Hello from Creed (49 years at dx)

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creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/4/2007 5:52 AM (GMT -7)   
Hello Everyone,
 
:-) This is just a short introduction from us creed_three. Already I have gained so much from posting a few questions on this forum.  It is 10 weeks now (17 April),  until my husband's proposed RP (open) surgery. My husband (CJ)  is not familiar with computers and does not use them at the moment, so I am doing the typing and reading out, on his behalf. This is for us, an experience which we are facing together like everything else in our 10 years together (and married for 6). At the moment, my only real purpose in posting this is to say "hello" and thank you for the information so far. I am not sure how much my husband will want to record of his experience this year, apart from what we know below.  Everyone is uniquely different I have learnt so far, and we are pretty private people overall... I am grateful to those who can share their experiences in such great depth and generosity,  as it has certainly helped me as a partner understand some issues.
 
Thank you again for this useful forum and looking forward to being a part yeah in some way. Special greetings to "Mama Bluebird" who has been very encouraging and helpful in getting this post up . Kind regards for now. We probably won't post much again until we have further specific questions, but thanks for all views and suggestions at any time.
 
Lana & CJ (Australia)
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07. No family Hx.
* Brother (55 yrs) tested recently for first time.  PSA 4.0 (Jan 07), no biopsy, wait for 6 month repeat PSA (different Drs).
"I promise to love, honour, cherish and never take you for granted"
 (from our wedding vows) Together 10 years now, & forevermore.


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 2/4/2007 7:18 AM (GMT -7)   
Greetings, Lana and CJ. We had the wonderful privilege to spend 4 months in Manly some years ago. We go back to Sydney and up to the Reef every so often. If there were any place in the world other than Texas that we would live, Australia would be it!

Even if you don't post, please check in often. There is so much to be learned about prostate cancer beyond the physical side. It's an emotional jolt for everyone involved plus an added level of "maleness" that guys have to deal with.

Keep in mind that every time you contribute, you're helping someone else.
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/4/2007 9:18 AM (GMT -7)   

Lana,  CJ,   &   *creed_three (Family),

  

I am thrilled to see your Thread!!! Perfect Title!!! And now as I told you previously… that I’d wait for your personal thread before sending our personal welcome!  I am adding our previous conversations so your thread is complete from the very 1st posting!!!!!  Every word is important ~ so I hope you don’t mind.  We get up close and personal…. And that’s what makes this forum so valuable to all of us!

 

               A   “Special”  Warm Welcome  to  You!

 

I know we can “all” make Your Journey smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you! 

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!

 

KNOWLEDGE IS POWER... and POWER conquers fear

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

We invite you to visit our personal thread listed in our Signature below…

Our thoughts and prayers will be with you as you continue your search for answers…

 

In Friendship ~ Lee & Buddy

 

“God Bless You”

 

It's a little prayer  ~  "God Bless You"

...but it means so much each day,

It means may angels guard you

and guide you on your way.

 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/4/2007 9:40 AM (GMT -7)   

 Hi~ Lana...

Are you okay with me bringing your posts over to here from SJC's Thread.?

I've got them ready to post but will wait for your response before doing so...  It really is important to have them all on the same thread but I will not do it without your consent!!

tongue    In Friendship ~ Lee


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/4/2007 2:27 PM (GMT -7)   
Hi Lee,

That would be fine to transfer the other posts if you think it would be helpful. I stumbled upon SJC's thread accidently as it was similiar to my husband's story. I also edited one of the later posts (those helpful instructions again!) one you liked I think, unfortunately!... Just had a moment of panic after posting that's all!

However will be checking the forum often and looking forward to asking more questions. I am just not sure how helpful we can be to others at this early (and somewhat dependant stage) in our diagnosis. I wish it was not so for others as well - although I am glad to realize we are not the only people in our 40's experiencing this fallout of nature.

Thanks for the warm welcome also GreenAcres. You have visited some lovely places in your travels here. I look forward to the time that our contribution will assist someone else. Texas sounds very exciting as I am a country music fan. I would love to go there one day as I imagine Texas as a place filled with laughter and music. Yes, the emotional load of this diagnosis and experience is tricky. We try to have lots of breaks from our readings and conversations about it, as there is a thing as Pca overload I have discovered. This forum is the most useful source of on-line info I have found in the past weeks, as it extends on everything we have read in a personal, helpful way. Off to work now (8.30am)! Cheers, Lana
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07. No family Hx.
* Brother (55 yrs) tested recently for first time.  PSA 4.0 (Jan 07), no biopsy, wait for 6 month repeat PSA (different Drs).
"I promise to love, honour, cherish and never take you for granted"
 (from our wedding vows) Together 10 years now, & forevermore.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/4/2007 2:47 PM (GMT -7)   

 

With permission from Lana *creed_three    Thank you!!!!!!!!  :-)

 

February 1st… 3rd… 2007

Quote/Postings…. brought over from SJC’s Thread…. Where Lana & CJ first joined us!! 

It’s nice to have a complete Thread starting with the very 1st one!!! 

Since it’s the most important one!!!   Welcome ~ Lana & CJ… & *creed_three!!!

 

February 1st… 1st Posting by Lana & CJ *creed_three… from  SJC’s Thread 

Hello SJC, So glad the news is all good for you. Hope it is continuing and that you are getting back to your routine. I can understand your deep sense of relief and blessing now. Thank you for sharing your experiences which will be similiar to what my husband (CJ)is facing in a few months fom now, after he has lost some weight before his surgery later this year. He is 49, PSA 3.5, Gleeson 4 + 3 = 7, seems localized so far (scans clear), and will have the same op here in Australia. I have also worked my way around other postings and found this one of the best sites available for information for couples. We are more or less fine, although the shock of diagnosis at this age is an experience in itself! However we have been blessed too with good news from the time the diagnosis was made just before Christmas. Thank you also to others who have posted, and especially to Lee and Buddy whose kind and refreshing words (and information) is really (really!!!) helpful, and is spread all over the place! I look forward to sharing more as the weeks go by as this is my first post. Best wishes SJC. May you have continued good health and good results, and recovery. Kind regards, Lana (from Australia).
PS. My wonderful husband (of 6 years) is experiencing the early stages of Pca diagnosis (8/12/06) at 49. T1c, Gleeson 7, RP scheduled for 17 April 07.

 

February 1st… Posted by Lawink… from SJC’s Thread

Creed - welcome to this forum. It truly is informative, supportive and (really!!) helpful. We look forward to your continuted postings and wish you luck with your journey.

You may want to take the information regarding your husband, and make it into a new post with a subject line that identifies it as yours. As it stands now it could easily get lost in SJC's post of last August. And, we DO want to follow your journey as well.

Good luck and please stay with us.

;o) Linda & Bob

 

February 1st... Posted by Bluebird... from SJC's Thread

Hi  ~ Lana & CJ...

I second Lawink’s motion.... Please start your own thread where we can welcome you with open arms.

 

Your words truly touched our hearts and we will definitely be there for you both!!!!!!

You know where we said in Our Journey …. “If we can help just 1 person”…. ?

Thank you for sharing your heartfelt words with us!!!! In New Friendship ~ Lee & Buddy

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there) 

Helpful Hints for New Members... Hope this helps you! :) Updated 02-05-2007

 

P.S.  What time is it right now when you post???  So ~ I can get in my mind the time frame… It is 7:47 a.m. February 02 ~ as I send this off…..  I was in the process of sending it last night and our server went down and I couldn’t even get back on to sign off!!!!  I’m glad it’s back up this morning…

 

SJC…

Thank you again ~ for "all" of your postings and replies... This is definitely a Thread that needs to be kept close to the top!!!  I'm so thankful I popped it back!!!!  

Respectfully,  Lee & Buddy

 

 

February 2nd  Posted by Lana & CJ *creed_three…from SJC’s Thread

Today 5:57 est…. Friday Feb 2nd   (Eastern Australia - Daylight saving time), it is a beautiful clear Saturday (3rd Feb) and the time is now 11.55am (almost exactly lunchtime 12 o'clock)

Thank you to all (lawink and Lee and Buddy), and I will certainly start a new link in a little while when I feel a bit more confident. Thank you for the welcome and for allowing me to contribute to this post started by SJC. This is all so very new to me!! I have contributed to another thred which is very informative, and read the helpful "helpful hints", so am almost ready to go now with one of my own.

I am also amazed by the timelines mama bluebird (what a beautiful name!), so for info here now (Eastern Australia - Daylight saving time), it is a beautiful clear Saturday (3rd Feb) and the time is now 11.55am (almost exactly lunchtime 12 o'clock) as I send this off. Could someone let me know if the user name or initials or other are the preferred names to use on this forum? I have noticed that there is a variety but overall people tend to use their user names. Is this correct? Thanks and warm wishes "creed" (Lana & CJ)

 

 

February 2nd… Post by Bluebird…. from SJC’s Thread

Hi Lana & CJ,

SCJ will be thrilled that you’ve joined us…. and to know that his thread was a warm welcome to someone just coming on board!!!!  This is heartwarming for all of us!

 

Looking forward to your New Thread!!!  Take your time….

 

In answer to your question about names, initials, etc..

Use what you are most comfortable using!

We personally like Lana & CJ  J  It makes it a little more personal and trust me when I say…. We do get personal… and this is a good thing!!!!!!! 

 

Just go with the flow…. You are doing Great!!!!! 

With you being a Newbie… Let me know if my directions on the Helpful Hints page could be worded differently to make it easier for the newer Newbies….  You can be our official “tester”…. 

 

Enjoy the rest of your beautiful sunshine Saturday….  Isn’t amazing to know that we are all under the same SUN, MOON, & STARS….. 

Partial Quote…from Lana..

mama bluebird (what a beautiful name!),

Thank you!!!!  I do have a tendency to chirp ~ chirp ~ chirp

Keeping you close in thoughts and prayers,

In Friendship ~ Lee & Buddy

 

 

February 2nd … Post by Lana & CJ *creed_three from SJC’s Thread:

This is really a wonderful experience to feel the care and concern of such kind souls around the planet - thank you again Mama Bluebird! It is a lovely Saturday afternoon now.

I am working slowly around the posting protocols, and have just added a signature (!). I wonder if it will come out on this first use? Anyway, if it does, it will give you a little more info about us until next time. We have a very happy life generally so am approaching the experience in a more or less positive way - just early days for us. The instructions on the newbe board are fantastically clear so far! Consider it tested! Like many others, while I use multiple technology at work on a daily basis, I have never before joined an on-line forum for personal support for any situation. However this time, thanks to such warm welcomes, I am managing it better than I thought!! Í do keep a diary started two years before my husband's diagnosis, but it is far too personal to post at this early stage, so it will be good to be involved in some way. I started a new chapter on the day of his diagnosis.

With a bit of a background in health myself, I tend to worry and obsess about certain things at the moment. I have learnt however that Pca is a unique experience for each person, especially those important men we love who are managing the complexity of issues. This forum is really assisting me in a big way. I am also trying to start back at the gym which was a phase I started a few years ago, and let slip!! Exercise is a good distraction I find & helpful for those who are having trouble sleeping (men and women). Thank you for your prayers and chirping!

Sweet dreams to you, Lee & Buddy. Now lets see of this signature works as the final test! I have forgotten what it said now...



mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable

Post Edited (bluebird) : 2/6/2007 11:38:19 AM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/5/2007 6:35 PM (GMT -7)   

Hi ~ Lana & CJ,                   February 5, 2007   Monday 8:30 p.m.

 

This was the first forum I had ever been on.  I’ve neer been in a chat room either… so it took me a while to get familiar and now…. all I do is chirp ~ chirp ~ chirp… and I love every minute of my time spent sharing…. And letting others know that we care.  We’ve been where you are right now!!!!!  So ~ it’s a true statement when we say… We know exactly what you’re going through. 

You Are Not Alone!!!!!

 

Good for you going back to the gym.  It really is a stress reliever for so many people.  We have a 2.5 hour routine on Tuesday & Thursdays at the YMCA.  The last half hour for me is in the pool  J  I’m a firm believer that worrying will only drain you of your positive vibes and strength.  Both of which you will need in the next several months.  So ~ continue with the gym and don’t hesitate to ask you family doctor for a mild sleep aide.  You both will be mentally better if you are able to get some sleep.

 

You both can do a lot in the next 10 weeks before surgery.  I’m sure you can pull a few things from our journey and many others who have shared their experience in getting prepared for surgery, coming home with a catheter, and overall healing/recovery period. 

 

It truly is an “US / WE” disease and must be treated as an “US / WE” Journey.  Making it a “team” journey…. Doing everything together.  You will need each other and each other’s strength!

“Hand-in Hand” “Heart-to Heart”…

nice words borrowed from Tim G…

 

Lana & CJ ~ the nice thing about the forum is you can talk with us and share with us and no one judges you…  it is a journey best traveled with friends.  I really hope you’ll stay with us.

One thing I really want you to remember…  Our Helping Hands are always here.  You just need to reach out at any time… and we will be here for you!

 

Thank you for sharing your information about your children and parents… It’s nice to know that you’ll have family around you.  And grandparents who can help with the little one at home.  It will be tough hearing the word cancer but remind them of the following.

 

Ideal scenario: Prostate cancer detected early, treated, and cured.  Prostate cancer doesn’t have to be fatal.  If it’s caught early enough, it is completely curable. 

 

Get started doing Kegels, Walking, & Stairs ~ they are really helpful in getting urinary continence back quicker.  See the Thread below… for some good info.

(direct link ~ just click on the title!  Reminder to click on the REFRESH icon once there)

See PianoMan’s Thread: Kegels - to pee or not to pee?

 

Take care new friend….. and know as we head into the darkness of night…. It can be comforting when we know we have so many people praying and caring.  And when we “can” sleep!!!!

 

Keeping you close in thoughts and prayer.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 2/6/2007 7:52 AM (GMT -7)   
welcome CJ and Lana! We thought Jeff was young to have PCa, but then came here and found all these guys in their 40s. our fathers did not find it until they were in their late 60s. as others have said, take this time before surgery to get in the best shape of your life, do your kegels, and have lots of sex! :) kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/6/2007 6:57 PM (GMT -7)   
Many thanks for the helpful hints Lee & Buddy. CJ is now fully up to date with the forums and our posts (apart from this one), having read all (ALL!) of them (recent threads including ours), in the one sitting! Several hours later, he told me he had found some of the questions/responses particularly helpful, especially a recent post about diet tips. We are now researching pomegranates and/or the juice. I'm not sure that I've ever actually had one... Today has been a frustating day emailing and experiencing (slight) mis-communications when making various upcoming appointments.

CJ and I have recently spoken to some local men from a local Pca support group by phone, who have kindly called us. We have arranged further phone conversations, as these men recently had the same operation etc. I found it a little upsetting talking to them (hope they did not pick it up), but CJ didn't seem to, so this may be another good outlet for him. I think I will leave it to him to meet with any local men if he chooses without me. I am not really wanting to discuss it with others (or wives apart from this forum) still.. at this stage. I guess that it pretty normal and perhaps why this on-line forum is another helpful way of seeking support. Hello Kat -thanks for the advice which I will definitely follow!

best thoughts to all, Lana & CJ
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07. No family Hx.
* Brother (55 yrs) tested recently for first time.  PSA 4.0 (Jan 07), no biopsy, wait for 6 month repeat PSA (different Drs).
"I promise to love, honour, cherish and never take you for granted"
 (from our wedding vows) Together 10 years.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/13/2007 12:27 PM (GMT -7)   

Hi ~ Lana,

 

I hope things have gone well with the phone calls.  Hopefully CJ will find the support he needs…  and of course you know you have our support here!  Remember… we are here to listen when the times get scary…. And they will.  That’s part of the journey. 

 

Lean on us Lana…..  Talk to us anytime!!!!  Even if it’s just to say “Hi!”

 

 This is “YOUR” rainbow

/////////////////////////////////////////////////////////////////

////////////////////////////////////////////////////////////////

///////////////////////////////////////////////////////////////

///////////////////////////////////////////////////////////////

 

Rainbows brings smiles, smiles bring positive energy into our being!!!

Tears are healthy… they cleanse the soul!

 

 

Take time to check our personal link out…  it can’t hurt…. But it might just help…

(direct link ~ just click on the title!  Reminder to click on the REFRESH icon once there)

Murphy ~ Our Special Helper

 

Keeping you close each and every~day.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/23/2007 1:09 PM (GMT -7)   

J Just to let you know…. We are ~  Thinking of you!  yeah


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/25/2007 12:06 AM (GMT -7)   
Hello Lee & Buddy (Mama Bluebird),  and forum members,
 
Thank you for your thoughts... we are playing the waiting game now (surgery pending April 17th). Have already posted a reply once this morning (and lost the lot!!) so working with my technology skills now, and posting again tonight (6pm Sunday). :-)
 
The past 3 weeks have been very hard for us - lots of appointments - frustrating in part, I guess. We ended up skipping the on-line meetings and support groups we spoke about earlier. The gentlemen we spoke with were very traumatised themselves still, and even though they were kind enough to contact us personally to assist, CJ found it "brought him down" a little at this stage in our path (pre op). We decided in the end to go back to our Surgeon with about 20 -25 extra questions. ie. just for one example:-  CJ cannot tolerate an epidural (the preference for post op pain relief according to our surgeon's assistant),  and is therefore going to negotiate an alterative (PCA) as he has a pre-existing injury which means the epidural is a "no way" for us. Once this is cleared up next week, and I know he will get the traditional PCA machine post op, I will feel better. We still struggle with matching our experience to the older men we have spoken with (as it still seems completely different with a young family to consider), so I have been grateful for the info posted by Courtney and Kurt (thanks guys!). Good luck with the March op & thinking of you both.
 
We have downloaded some of your excellent tips Mama and Papa bluebird, for immediate surgery and post op. I have booked a hotel across from the hospital; organised 5 weeks off work (special leave); organsing to purchase a reclining chair for post op recovery; stocking up on DVD's and novels for this time of rest and recovery; plans going ahead to have our son minded well away from us - for 3 weeks in the initial surgery time and post op as he is too young to be involved at this stage (will be 7 years soon). However he will be well cared for, and completely occupied. By the time we get him home, things will have settled I think. He will be enrolling in another school for that time - so it all takes quite a bit of planning at this time. We have been honest with him about his dad having a big operation, but avoided the "C" word as I honestly think he is too young to take it in at this stage. He will know all in future no doubt,  as he is our top priority (along with CJ's adult son),  in terms of prevention/monitoring of Pca, for the next generation of boys in our family.
 
Just stressing about the op now, and trying to mentally prepare. CJ is by nature a very shy person and our experience is that due to this, medicos seems to direct all their comments to me (I'm not really a loud mouth, just happens as I can speak their "lingo" when I have to!)...  CJ has therefore booked another appointment this week with both GP and specialist to go to alone, and really try to develop a trust and rapport with his surgeon alone,  and get them to know him. and he get to know the Surgeon,  as a person ( a real person).  We apparently have one of the best (surgeons) in this country, for which we are grateful, but it is all hard - terribly hard.  I guess everyone knows that.
 
The saving grace is that I now know more and more each day,  why I married such a precious man (CJ). We are at the moment, each others best comfort; best clarifier;  best support; and best "buddy" and best resource in a way. The person to person, and "phone to man" support groups just did not work for us, but I honestly think it was an age thing. Different ages have different motivations and priorities. The theme is the same, but we search now for specifics....maybe that is why this forum is useful for us, moreso than our local comtacts who seem to have the Aussie "You'll be right" attitude when they find out that CJ is in the early stages (we hope and pray from first biopsy resultsn that this is so). Not to discredit the advice we have been given by older men and families (it is helpful in many, many ways), we just find our experience is different in some ways.
 
Lee, thank you for remembering us. I was delighted to hear of Buddy's excellent news recently with the zero PSA (Feb 07). Way to go!! And the posts which have similar good news... We are still reading and learning from you all. I also remember "lawinks" (from Texas)  message to me once, that each time we post, we assist others. That is the only reason I am "venting" now. As I explained we are pretty private overall... venting and what we see as "dumping" on others, is not usually our way.. but I trust you - if it helps others to share, then here we are with you all!!! As hard, as complex, as complicated, as scary - yes, we do experience it all.....
 
Finally, may God bless us all here,  as well as our families, our sugeons, our pathologists and our friends. Will post an update on CJ's  epidural and pain management post op options for discussion and comment  later this week, once CJ has had a good talk to his surgeon.
 
We have had good times and bad times in the last month, but overall just the process of grief and adjusting to change. Nothing different to others I am sure. Thank you for the rainbow Lee! I am absorbing it, and feeling the rainbow (colour, music, hope, faith).
 
Be assured that each time I look to heaven to support our needs, I also think of those posting here with exactly the same needs, and think of you especially (Mama Bluebird & Buddy) - a chirping rainbow over us all!' Thanks for your useful and practical tips on how to manage it all.
 
Kind regards and good wishes for each and every indivdiual recovery. I will be in touch soonish.
 
Lana and CJ    yeah  
 
 
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07.


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/25/2007 12:35 AM (GMT -7)   
Correction!! It was "greenacres" from Texas not lawink, but thank you to both Lawink and greenacres for the sound advice and greetings. Love, Lana. tongue
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/25/2007 6:56 AM (GMT -7)   

Dear Lana and CJ - you get to vent, or dump as much as you wish.  Nobody will think less of you.  I have certainly done my share of it.  I agree with you that being your age must be much more diffiicult.  Not just because of the young 'uns (as we might say here in Texas) either!  Though our words and personalities (and nationalities) differ, I am impressed that we all seem to have very similar emotions about this.  It's very appropriate that Lee calls it a journey, because that's exactly what it is.  As we go further along the way we handle it better.  Sometimes there are setbacks which are most disheartening - it seems to me that it sort of re-sets the journery.  Almost like starting over again.

Gotta' go, I'm meeting a friend who owns a small plane and we are going to go bore some holes in the sky.  Will be my first time in the air in more than five weeks.  I'm sufferring from withdrawl symptoms.

Regards,

Bill

 


Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 2/25/2007 7:02 AM (GMT -7)   
Dear Lana and CJ too!

Lana--how wonderful to hear a wife saying such loving things about her husband. I am sure that he feels the same way about you! Well, it appears that you are not shy in talking about your loving marriage. As time goes on, perhaps you will feel less shy talking about CJ' s journey with his PC. We all seem to let our hair down and talk about some of the most intimate aspects of our experiences with PC. It seems to free us when we talk about it. Sharing intimate details is very helpful to others on this website. However, you have to do what you feel is comfortable for both of you. We are just happy that you found us and that many of our postings have been helpful to you. Best of luck and may God bless both of you as you continue on this journey which can be difficult at times. We are here to make your journey easier.

Dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

Post Edited (pcdave) : 2/25/2007 7:16:58 AM (GMT-7)


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 2/25/2007 8:46 AM (GMT -7)   
Hi lana and CJ,

just read through your thread for the first time and wanted to say welcome.

not much more to add. Share as much as you feel comfortable, you have already shared a lot which will help many :)

Best wishes,

Tanya
Significant other diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Da Vinci Scheduled: 4/10/07


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/25/2007 9:20 AM (GMT -7)   

Lana & CJ - Welcome! As you can tell by the responses you have on this forum there is help and comfort here. Thank God. 

My husband and I went to a meeting but found it wasn't for us, either, there seemed to be a strong sense of inevitability about the group and we didn't see it in the same way. Also, I believe we can say things here, no matter what it may be, that we may not voice out loud in front of a room full of people, you know? The follow-up here is phenomenal.

Also, you mentioned CJ was going to a few doctor appts. alone to get to know the doc better, that's a great idea! It will give him more confidence and allow him to get a better feel for the man and visa versa.

As you go through this time, remember to take care of yourself as well as you take care of CJ. There's no match for loving the person you're caring for.

All the best to you both,

Susan 


Husband Diagnosed 11/17/05  Age: 63  No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive  Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7  Stage: T2B N0 MX
2/09/06: LRP  Restage: T3A NX MX 
3 mo. PSA Post Surgery:  11.8, 12.9, 13.9  Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA:  18.8  CT shows lymph node involvement  Start HT Lupron 3 mo. shots
12/06/06: PSA  0.8
03/07/07 - next PSA


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 2/25/2007 9:49 AM (GMT -7)   
Hello Lana and CJ from an "older" guy.

Thank you for your excellent update. You let us see into your heart and that makes us all feel closer.

My wife and I found that the PCa experience brought us much closer than we had been in 51 years of marraige. The realization that this might be the end certainly rearranged our priorities. While child bearing is not on our agenda, be assured that physical love is. And recovering my potency is something that we will both work on until it happens. We found a new closeness, a new need to touch that I had always shied away from before. I am sure that your relationship will change for the better.

Please keep us posted...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/3/2007 10:29 PM (GMT -7)   

Dear Lana & CJ,

 

Your posting was well worth the wait…  Truly….  yeah

You have been so close to us in thoughts and prayers… that I was overwhelmed when you wrote back with such depth to your posting…..

 

It is very clear that you both are moving in a very positive direction.  It truly touches our hearts that we’ve touched your lives in such a positive manner.  That’s what sharing is all about. 

 

Reading and re-reading your post… made me smile and made me cry… Several things you’ve done is exactly what we did and it brought back the memories.  I respect you for your decision with your little one…  3 weeks will give you and CJ time to settle down.  It really is a roller coaster ride and then once the surgery is over ~ you look back and say … WOW we made it…

 

We were so happy to know that "Our Journey" gave you pointers… This forum is allowing others not to have to re-invent the wheel.  If we share our journeys….  Others have the opportunity to see what others have done and can pull from any of these to make their journey smoother.  Thank you so much for letting us know that we have helped both of you!!!   :-)  

 

Taking the time to heal and recover is a very important part of this journey.  So ~ make the right decisions all along the way.  Rest, walk, eat, sleep, walk, eat, rest, etc…  And Lana…. Sleep when he sleeps!!!!  This made me feel less “anxious” because I knew I was fresh and would be able to handle anything that came our way. 

 

Anxious to hear about the epidural and pain management post op options.  I’ve read where they do this but I’ve not heard of anyone actually having this procedure.  Give me the gas ~ thank you very much!!!  I want to go to sleep and wake up with it being over… J and the bad walnut GONE!!!  At our consultation together… When we found out we had to wait a certain amount of time after the biopsy… I told Dr. Staley…we want that thing out NOW… and I’d be more then happy to throw Buddy on the table right now and assist him!!!  That’s how we felt.  Get it out and move on….

 

Buddy went to the 1st consultation with the urologist and I think this was a very good move.  Then we went to the biopsy together… and the following consultations together.  Same thing with our family doctor.  This is a true team effort… but a little one-on-one is important. 

 

I giggled when I read about your getting the lounge chair…  We didn’t have any and now we have “2” his & hers  J   The chair was due in 2 days after surgery… Not a problem… We had planned to get as much sleep & rest during the time we had the catheter.  We also didn’t want to put a lot of pressure on the incision for that period of time so pretty much stayed in a reclining mode on the bed.  So ~ on day 4 of being home I head to the store to get the chair.   After seeing it ~ I went ahead and ordered me one too!   They have been a wonderful addition and have a special “attachment” to them.  We have a small home and they are swivel / recliner chairs with ottoman.  They are perfect for us…!!!! 

 

Our recovery/healing was our main focus and feel strongly that because of this that we had very few issues to deal with.  The surgery went smoothly, the catheter was our friend from day 1 with no pain at removal… and we continue to move forward with “healing” still taking place.  Our most important goals stayed true to #1 Cancer Free, #2 Urinary Continence and #3 Sexual Potency was not an issue with us… We made a very personal decision to have what they call RPP with “wide-excision”  This means we had our surgeon take the nerve bundles and lymph nodes out.  Our relationship is as strong if not stronger… and our mental attitude that we made the right decision is even stronger today then it was when we made the decision.  Lovin’ can come in a lot of packages….. Kisses on the neck as you walk by (Right! Biker!!), dancing across the living room floor, a gentle caress as we meet in the hallway, group hugs with Murphy, and so many more “special” communications.   So ~ please get mentally prepared so your recover will continue with a positive mind.  Healing takes time…. And the more time you give the little sphincter muscle to heal… The quicker things will happen.   Protect the area with all your might!!!!  This little guy has to last a life time… so be prepared.

 

Your posting is so touching… and again reminds me of “us”….

Partial quote: The saving grace is that I now know more and more each day,  why I married such a precious man (CJ). We are at the moment, each others best comfort; best clarifier;  best support; and best "buddy" and best resource in a way.

 

The little rainbow is doing it’s job…  I am so happy you shared this… I truly filled it with lots of stars, sunshine, and hugs….

 

For about the 4th time… I’m having to stop and get my puffs plus!!!  Happy tears continue to fall as I read your posting again.  Whew… my heart is overflowing….  We’ve made a difference and this is the gift we want to share.

 

Lana ~ you are a very special young lady and we travel hand-in-hand with you and CJ.  Taking each stepping-stone with you as you move toward the 17th of April (6 weeks J).  Our thoughts and prayers are with you each and every~day!

 

Continue on this path to being cancer free and keep the wonderful attitude and positive steps moving forward.  Please ~ continue to “vent”…. This is a wonderful tool for healing the spirit.  If you have a chance…. When you see the fabulous full moon above you!!!! Know that we are thinking of you with a smile… many miles away.  But close in heart and prayer.

 

Take care dear friend….  And know we care!

In Friendship ~ Lee & Buddy

 

This  “Hug” is  for  both  of  you!!!

 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Post Edited (bluebird) : 3/3/2007 11:35:29 PM (GMT-7)


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/4/2007 3:39 PM (GMT -7)   

Hi Lee!

 

What heart-warming messages you send - thanks! This is truely such a supportive place to spend time. Just some facts and good news now following. By the way, it is nice to be called a "ÿoung lady" - I am not THAT young,  Lee. .. 46.5 yrs to be exact!!! We were lucky to have our son six months short of my 40th! I'm actually a bit of an "old girl", compared to many mums of such young ones at our school!

 

1. CJ and the pain management issue - It is NOT an epidural - I misunderstood this one,  and assumed that a "nerve block" could only mean epidural, but it is NOT this. CJ went back to the Surgeon for a 45 min consult last week (and he didn't charge him!) and had a good review of everything. We have ordered the "Dr Walsh" book but it hasn't come yet (back-ordered), but we had read the "Scardino" book and CJ went armed with specific questions and information about his particular surgery.

 

The nerve block is done during the operation (from the inside), therefore no epidural and no impact on the spinal area (which we were avoiding). Its purpose is to decrease immediate post-op discomfort and it lasts just short of between 18-20 hours. They plan to have CJ up the following afternoon, and during the immediate return from theatre (Day 1), he has appliances to his legs which blow up and down promoting circulation. Surgeon feels he will still be able to shuffle his upper body if needed, but that his research indicates that this immediate pain intervention (nerve block in theatre in the operative area),  works better than the traditional analgesia post-op. So that was good news. I still feel a little unsure, just because it is something I have never seen,  but do trust the Surgeon, as we searched high and low for him specifically. He trained in the US at John Hopkins, so the hospital offers the De Vinci, but in CJ's case,  he wants to feel the prostate and therefore the open procedure in CJ's case is his choice, and now ours.

 

2. We are using this particular Surgeon for his nerve sparing and continence results (the best here in Aus from what I have read/researched). He is 90-100% confident that nerves, lymph nodes and vessicles will be clear, so we are trying to save the nerves, at least at this initial point. CJ's tumour appears to be 5% of one core out of 12, in right Apex - tricky, but the Surgeon does many of these per week - has given us lots of info about outcomes of men even younger (aged < 45yrs), and has done about 1700 of them in past 4 years. It makes you realise how many younger men have this experience who we don't even hear about. I feel a lot better now with this information all clarified. We will be able to face whatever is the final outcome I am sure. Life is more than sex that's for sure. Yet, we do hope now, that his nerves can be spared - only if the Pca is confined to this one "minute" area.

 

Would be interested however to hear  if anyone else has had a nerve block in theatre during the actual op (in the operative area) and the return of sensation, effects etc afterwards. I am sure I am not using the correct terms here, but does anyone know about this one? The Surgeon's research seems to show it is effective, promotes recovery the next day, pain minimised... he is still getting any analgesia afterwards that may be needed, but the Surgeon seems to think that the majority do not need it, and that he will be "öut of it" for most of that time anyway, and very comfortable. By the time he is up and moving the next day - oral meds should do the job.

 

3. CJ is a sturdy man, and needed to loose quite a bit of weight for the best results (the reason I sent him for a checkup in the first place),  so this is why we chose to wait 5 months for the op. It was our choice in consultation with the Surgeon last December.  He (Surgeon) clarified that this was better for best results for us, but no problems really if it could not happen. Pre-existing injuries have made exercise difficult (CJ raced bikes in his youth - was a Champ in his day!!), but Gym managers and others have been great, and working with those areas they can (stomach/upper body) so CJ has now lost 12kg in 3 months, looks great, and Surgeon impressed. Says that the operation will go well - he is most confident, and I sense it is sincere. So does CJ which is the most important.  He has some unique methods - ie. does not cut the lower stomach muscles, separates them - and he predicts that like most of his younger men, that CJ will have catheter out in 7 days with no ill effects. As an aside, although we have not told many people the details (just mainly said "abdominal surgery" as an explanation to most people), we did tell School Principal, close family and the Gym Manager the whole story. The gym manager's dad had this surgery with same Surgeon 2 years ago at age 48!  Needless to say he has been great, and will put CJ on a very gentle post-op exercise progam (mainly swimming) a few months after the op when he has fully recovered. He empathized with us, and seems to be very informed about Pca due to his own background. That was a big plus. It is hard for overweight people to join a gym, but CJ is enjoying it very much now (going each second day), and they are closely monitoring him and his pre-existing injuries, which we need to take care with always (legs/lower back areas). 

 

4. Re. catheter removal. I know others worry about this, and read here that for an open procedure 2-3 weeks is a possibility for some. We have been told it will be in no longer than 7 days. CJ will stay in hospital for that time (again our choice), as we live about 3-4 hrs from the hospital and are travelling for it in a sense. We saw 2 urologists and the first Urologist was pleased we chose our particular Surgeon. In fact, many people who ask us who the Surgeon is (those who understand the complexities of Pca or who have had it themselves),  say when we tell them "He's the one... He's the best in Aus",  and this also is reassuring as we have spoken with men who have had this particular Surgeon, and they confirm all he has told us (both the younger and more mature men who have had him). We met a man last week, who had just had his cath out a few mins before we met him (7 days post op), and who was bright and fresh and reported that it was nothing painful - reassuring for us, and I hope for others.

 

5. Life goes on. Hunting for a reclining chair this week! Yes, good idea about 2 chairs. I will get another to match one day soon I think, although our two large dogs may fight me for it if I do -since they are very indulged pets overall..

 

6. My adult daughter is coming back to stay and mind our house and animals while "we" are in hospital in 6 weeks time, and she is a good mate to CJ and seems to give him lots of special encouragement and support - they are often found speaking softly to each other - secrets, whispers and special times between step-dad and daughter as it has always been, but moreso now. Reminds me of when she was a teenager and spoke to him lots when she couldn't find the words to speak to me (mum!!). She is another great resource for CJ at this time.

 

7. CJ has decided he does not want hospital visitors during his 7 day stay (apart from immediate family - actually only three people - the two adult kids and me only). How did others (kindly and without offence) steer people off visiting when in hospital? I'd prefer to plan it, rather than leave it. CJ feels he would rather have visitors a few weeks after he has recovered from the op.

 

That's about it for now. I am glad this maybe helps others. Honestly hard to see how my words could result in that now, but if it helps, here we are again!!

 

Our best wishes always. Prayers for others assured. Lee - thank you!!! Buddy and Murphy - take good care of this beautiful women in your lives. Dave, thanks for the beautiful poem. Susan - thanks to you and all the many, many others who are taking the time out of your busy lives, and your own difficulties, to offer advice and suggestions and hope to us.

 

Any news or experience on the nerve block issue (intra-OPERATIVELY) is welcomed.

 

cheers & love for now, Lana

 

PS. A technical question re. posting on the forum. When you "preview post" to check working etc, how do you get it back to the original? I nearly did it again (lost the lot), but saved the posting, and just re-posting now. I have been previewing the post, and then can't get it back. When I click on previous page it disappears... I am sure there is a trick to this one but have not found it!! yeah " type="#_x0000_t75">


Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07.


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/4/2007 5:16 PM (GMT -7)   
Just thought I would also send a special thanks to greenacres from Texas, Linda and Bob (lawink), Kat & Jeff, Bill (Jetguy - hope you are still flying high!), Dave, Tanya (izzyblizzy), Susan (myman) and Jim (biker90 - I think you may have something in common with us too!!),  since you are probably all now sleeping. The words of encouragement from you all mean a lot to us. Thanks & special rainbows to you all....from us.
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/4/2007 8:40 PM (GMT -7)   
Welcome CJ and Lana......good luck on your journey...
KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Dr. said everythign looks fine.  Continue to work Kegeal's. Leaking appears to have improved after Cystoscope?!?!?!  Down to 3-4 pads per day!
    Leaking has crept back up to 6 - 8 pads a day ???????(3/4/07) 
    May 22nd Follow up (unless incontenance does not improve by mid March) and 3rd Post Op PSA
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/4/2007 10:15 PM (GMT -7)   

Hi ~ Lana & CJ,

 

Yes ~ my dear….. 46.5 is young!!!! Trust me on this!!   tongue    hee hee….  Enjoy it!!  And yes ~ this forum is so important to so many in many different stages of needs and wants.  Continue to share your journey… and thank you for allowing us to continue walking it with you…  Hugs!!!

 

We just ordered Dr. Scardino’s book yesterday…. We learned so much from Dr. Walsh’s book.   It educated us on exactly what was what… and I do feel it can be used by anyone…. No matter which treatment/surgery one decides on.  I am looking forward to the new book mainly because of it being more updated.  I continue to use it when there’s a question from a member and I know there’s an answer in my book.

 

Interesting about the nerve block… from the inside.  We too wanted the surgeon to see and feel the prostate and surrounding tissue.  Nice that there are so many options to choose from now.  The cuffs on the legs help to keep the blood circulating and really are important.  I took massage lotion with me to the hospital and when they took the cuffs off… I massaged Buddy’s legs.  He said it felt wonderful!!! 

 

Definitely ~ the ultimate goal is nerve sparing…. But most important thing to keep in prospective is #1 Cancer Free, #2 Urinary Continence, #3 Sexual Potency… 

 

Loosing the weight is a really good thing.  Keeping up the exercise is a must.  Getting the sphincter muscle ready too!  Buddy did his regular 5-day exercise program right up until the surgery date.  Then after surgery… walked, ate, slept, walked, ate, rested, walked.  He found he was doing too much by the blood showing up in the urine(bag)…. So monitor this.  His body will tell him if he listens closely.  Also ~ after 5 weeks I got him 3 lb. hand weights to carry with him on his walks to exercise the upper body.  He never went back to the full 5 day regiment.  He goes 2 days / week with me now that I’m retired.  He stays away from any machines that put pressure on the sphincter muscle (stationary bike, arm machines with hard seats, etc.) But he does get his 2.5 hours of work out.  Walking, stairs, stretches, and upper body motion)  We are probably over cautious with the sphincter but this little guy is our priority to keep safe.   (Note: Do not over do the workout on the sphincter because he can get tired and will be less effective.  His job is to hold the urine back… and when he gets tired he is weaker… again listening to the body)  Buddy started out slow and worked up to more time on the stair machine.

   

I find this interesting that they would keep him for the 7 days in the hospital.  If something changes ~ know that you both would do fine with him at home. 

 

You might have to invest in a loveseat if you want to share with the pooches.  I tried to send a link so you could see our swivel / lounge chairs but it wouldn’t work. 

 

Special relationship between your daughter and CJ….and a source of extra strength for both of you.  Pull from her strength when you need it…  Sounds to me like she’s a special “younger than us” lady.   :-)   And having her at your home looking after the pets…will leave you with total focus on the task at hand.  You truly sound like you have your ducks in a nice neat row… this will help when the day comes and you can put all your energy into healing/recovery…. Really important!!!…. Get as much rest as you can so you are 100%.  You must take care of you in order to take care of others.  Okay!!

 

We are firm believers that a hospital is not for visitors… but this is not the norm…..

Neither of us wanted visitors nor someone to stay with me during the procedure. We were very vague with the date of the surgery.  We had surgery on the Monday 4-3-06…. We told others it was on the calendar for the following week the 10th and on the back-up schedule for any cancellations.  Knowing that we would be going in on the 3rd.  This was best for us and kept anyone from being offended.  Plus ~ we are very private in the sense that it’s really just me and my Buddy.  Work relationships are just that.  Work friends.  At home we are pretty much just us.  Neighbors who care and would be there in a blink of an eye if we asked for help.  And the same goes for us.  If the phone rings and they need help ~ we are there immediately.  But ~ we are a little like “hermits on the creek”.   tongue   Calling to tell them the surgery was over and things were going fine was a relief for both of us. 

 

Thank you for your thoughts and prayers ~ Lana…. I am truly loved by my Buddy & our Special Helper Murphy!!!!  We are quite the “3”… 

 

Take care and know that our thoughts and prayers are with you each and every~day.  They are there to give you extra strength…. 

In Friendship ~ Lee & Buddy

 

Re: posting concerns…

Let me know if this helps… (Someone else may come on with a helpful hint on this one!!)

If not I’ll post on Technology Thread… and I’ll talk with Sherry/Moderator about it. 

 

I type everything in WORD ~ save, copy, and paste.  This allows me to look at it before I’m ready to post it on the forum.  

 

Click on Post Reply Button

Type or Paste Message

Check box to Preview before posting

Click on Submit button

Post Preview box appears at the top  ~ 

     no changes can be made here just “view”

Original post appears underneath  Post Preview box ~ you may need to scroll down to see it ~

     changes are made here

Very Important…. Once you’ve viewed and/or made changes…You must again….

Click on Submit button to post your message to the forum…(if you don’t… you will lose your work)

 

Personal note:

I seldom use the preview box anymore.  If I see something after I’ve posted that I really don’t want there or a misspelled word not caught by me… I just go in and edit my post.

 

The post review box is at the top and any changes need to be made in the original.  The original is always just under the “post review box”..you may need to scroll down to see it…  And you must re-click on the submit button. 

 

If you look at the Post Preview box and then click on  **Prostate Cancer in the blue section at the top of the page…. (**see below) .to get back to the main page…. you will lose the work because you haven’t clicked on the SUBMIT button. 

 

**HealingWell.com Forum> Diseases & Conditions > Prostate Cancer >Thread Name your on…..   Don’t click on this area when you’re doing your posting/post preview….


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/4/2007 10:19 PM (GMT -7)   
Best of luck Creed.

You very well prepared. A lot more so than we were except that we too were very confident in the surgeon. That is so important. Only thing left is to build up a great positive attitude. Helps calm the fear and I feel that it helps healing. I had a spinal and the doc put morphine in it. No pain! I was entertaining everyone in the hospital for about 24 hours. (That according to witnesses...)

One step at a time, okay? Our hopes and prayers are with you always.

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 3/5/2007 7:12 AM (GMT -7)   
Hi, Lana & CJ. Sounds like you're good to go! The time will pass so quickly and you're going to be in the best of hands. We're reading every word, and I know that newbies coming in will gain confidence that feeds off the knowledge you're sharing.

Your emotions may take a rollercoaster ride now and then; but rest assured that it's normal. Each passing day will get you just a little closer to moving on!
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 

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