proton radiation

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gralestel
New Member


Date Joined Dec 2006
Total Posts : 11
   Posted 2/6/2007 6:02 PM (GMT -7)   
do any of you know anything about proton radiation, done at loma linda? apparently it is not the same as the traditional radiation treatments like brachytherapy or external beam
my husband heard of someone (friend of a friend) who had great success with this treatment with few side effects.
we are scheduled for surgery next month, but want to learn more about this.

thanks for any info

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 2/6/2007 6:14 PM (GMT -7)   
gralestel,

Yes, Loma Linda has been doing the proton beam treatment for a while. Now there are others that have installed the radiation units. I looked at it after I had scheduled my surgery but decided to go ahead with the surgery. There were two of my old high school classmates that emailed me about it after they read my posting on the classmate site that we have and gave me their experiences. Both were good with undetectable PSA's at the time and no side effects. They were both totally continent and never became impotent. The nine weeks that you have to spend there is something that deters using the procedure. If you go to www.yananow.net and click into the site ann on mentor experiences
scroll down and you will come to stories of men by treatment election. There are several there that chose proton beam and you can get an idea about the procedure.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 2/6/2007 8:39 PM (GMT -7)   

Gralestel:

I had proton therapy 5 years ago - at the time was 61yr, PSA 4.6, Gleason 6, T2 and I had just finished rehab for a slight heart attack that required a stent placement.  My 5 yr PSA is 0.17 and I have not had any side effects.  The treatment is completely noninvasive.  Unlike photon radiation which goes clear thru the body, proton can be stopped at the tumor so very minimal damage would be done to any surrounding organs or tissue.  It takes about 1/2 hour out of your day and then the rest of the time is yours for any activity you wish.

The previous post mentioned the fact that it took 9 weeks out of your life.  Here's my thinking on that.  Any intervention you choose will have a substantial impact on your quality of life so you had better be ready to accept the side effects and if I have to give up 9 weeks to have a great quality of life, I consider this a good return.

Please go to protonbob.com - at this site you can read over 100 testimonials, there are phone numbers you can use to call men who have gone thru the procedure and you can get much more info on proton.

One last thing - I have never seen a hospital like Loma Linda - it's doctors and support staff are wonderful and the prostate cancer support network is superb.  This is a very serious issue, but we felt like we were on vacation while there.

Hope this helps and good luck with whatever modality you choose.

Dutch

 

 

 

 


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 2/6/2007 9:43 PM (GMT -7)   
Would you consider proton treatment a good option for 47 year old? We just want to make sure all are bases are covered....
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Looking for Surgeon with lots of da Vinci experience
Live in OK, willing to travel


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 2/6/2007 10:33 PM (GMT -7)   

Kurt and Courtney:

I think a good option for you will be the treatment both of you are most comfortable with, but with the diagnosis you gave it would seem that proton should certainly be one of the options you take into consideration.

My son is just a couple years younger than you and I would certainly encourage him to go to Loma Linda if he had your diagnosis.

Use the protonbob.com site to make some inquiries and get more info.

Best wishes on your journey.

Dutch

 


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 3/8/2008 6:28 PM (GMT -7)   
Hi gralestel
 
There are 5 proton treatment facilities in the US: www.proton-therapy.org 
 
MD Anderson in Houston would not give me proton with a Gleason of 9 and Loma Linda said they could not get me in anytime soon.  I have an appointment this coming week with U of FL in Jacksonville www.floridaproton.org.
 
Hope this helps and good luck and stay positive.
 
Richard   yeah
Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
11/07 PSA 1.9 PSA 11/08 was 4.9 PSA 12/08 was 7.7 MDA 2/12/08 3.3 On Proscar so shud double
Biospy 1/10/08 Gleason score (4+5)9, Stage T1C or T2C, 8 of 12 samples positive 
Bone scan 1/17/08 hot spot on ribs, CT shows rib enjury CT CHest 1/30/08 Clear
M.D. Anderson appt 2/12/08 CT Abdomin & Pelvis Clear Recommended Hormone&Radiation
2/19/08 Dr Fagin, Austin, TX did not recommend surgery based on medical history
2/22/08 Contacted U of Florida Proton Therapy Institute - Appt 3/13/08
Turn Stumbling Blocks into Steping Stones

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