Off To Loma Linda for Proton Therapy

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fredlp
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 2/10/2007 12:43 PM (GMT -7)   
Hello All

I was originally diagnosed in mid November 06. My PSA was 38.3 and my Gleason was 7 (3+4) 2 of 12 cores positive at about 30%. My Urologist, of course, recommended immediate surgery. I decided on additional research and after careful consideration, decided on Proton Beam Therapy at Loma Linda Medical Center in California. I have an appointment with the Dr. at Loma Linda on Tuesday February 13th. I will either begin treatment in the next couple of weeks or will start a course of hormone treatment for two months prior to beginning treatment. By the way, my current age is 70. I think my main point here is related to high PSA and the meaning/importance of the reading. I was retested about 30 days after the original 38.3 in November. That December PSA was 24.6 and after requesting antibiotics, a Urologist prescribed 30 days of Cypro. The reading two weeks ago, about February 3rd was 15.6. Obviously there was/is infection in the mix. I continue to watch my diet and exercise every day and I will be tested again on the day of my appointment at Loma Linda. I will get back with additional info after returning.  With the advise of a member, I am starting a new thread.  Maybe my upcoming experiences will be of some benefit to some of you.  Regards, Fred
 
2/16/07  Hello all - Just returned from Loma Linda.  The Medical Center is beautiful and everyone we came in contact with were just super nice, helpful, concerned etc.  A great group of people.  I took one more PSA early morning of the 13th, and took care of insurance etc. at the business office.  I met with Dr Jabola shortly after 11:00 AM.  The Dr. was extremely thorough in his explanation of the disease as well as the treatment.  He did not minimize anything but explained in terms that Helen and I could understand.  Unbelievably, the Dr. spent two hours explaining things, answering questions, and, at no time, made us feel that he was in any hurry.  Because of my high PSA, 15 on the 1st of February and 17 last test on the 13th, Dr. Jabola recommended a combination Proton, Photon and six months of Lupron.  I started the Lupron immediately after returning to Tucson on the 15th (yesterday).  We plan to return to Loma Linda for preliminary workup about the 1st of April.  Should start radiation about the middle of April.  That will consist of 44 treatments over about 9 weeks.  I will keep you all posted.  If anyone has any questions, please feel free to E-mail me (Edit)
regards Fred
 

   tongue   Members who wish to share their e-mail address.... please do the following:

(Edit) Click on link and Refresh…once page is opened.

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v      bluebird ~  Moderator for Prostate Cancer Forum

 

Post Edited By Moderator (bluebird) : 11/12/2007 1:24:48 PM (GMT-7)


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 2/10/2007 1:26 PM (GMT -7)   
Best wishes,

Please keep us all updated as you go. Always great to read of other treatments and follow the course of them. And great for new members too, considering this treatment.
Signficant Other diagnosed: 10/30/06 (age 63)
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Treatment: DaVinci.  Sheduled April 3, 2007


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/10/2007 1:58 PM (GMT -7)   

Hi ~ Fred  &  Loved Ones,

  

           A   “Special”  Warm Welcome  to  You!

 

I know we can “all” make Your Journey smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share... 

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!

 

 

KNOWLEDGE IS POWER... and POWER conquers fear

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

We will be keeping you close ~ in thoughts and prayers. 

In Friendship ~ Lee & Buddy

 

“God Bless You”

 

It's a little prayer  ~  "God Bless You"

...but it means so much each day,

It means may angels guard you

and guide you on your way.

 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints for New Members... Hope this helps you! :) Updated 02-05-2007


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/10/2007 2:06 PM (GMT -7)   

Hi… Fred,

 

Thank you so much for starting this thread!!!  And allowing us to walk with you on this path…

 

Keeping your experiences on 1 thread would be great!!!  And as time permits… edit your 1st posting above and add Proton Beam Therapy to the title!!  This will help Newbies in the future! 

 

Example:  Off To Loma Linda for Proton Beam Therapy

 

We will keep you extra close and you will feel our strength.  yeah    In New Friendship ~ Lee & Buddy

 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 2/10/2007 3:09 PM (GMT -7)   

Fred:

My experience at Loma Linda over 5 yr ago was a good one.  Try to make the Wed. night Support Group meeting - can get info at Level A desk.  Think you will be pleasantly surprised at the atmosphere there.

Keep us posted.

Dutch

 


Diagnosed Feb 2001  (Age 65)
PSA 4.8
Gleason 3 + 3 = 6
T2
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/11/2007 11:26 AM (GMT -7)   
Keep us up to date, Fred.

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 2/12/2007 5:00 AM (GMT -7)   
Best wishes to you fredlp!
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/16/2007 6:16 PM (GMT -7)   

Hey Fred,

Your journey is important to all of us.

 

11-12-07  Quote copied from inside another thread….

In January of 06 I had a PSA of 7.  Later that year, another PSA came back at 38.3.  My biopsy showed one small area of cancer.  Gleason 3+4=7.  My staging was T1C.  With no treatment, the PSA was down to 22 within a month.  After 30 days of antibiotics it was 15.  Pretreatment PSA was 15.  After five months of Lupron and 44 Proton/Photon treatments, 0.1.

 

tongue    Yea!!  Fred,

 

!!!~~~>>>  Woo~Hoo <<<~~~!!!

 

Cause for celebration!!!!!  Definitely!!!

What a wonderful day it is ~ each and every-day….   

Enjoy it to the fullest. 

 

In Friendship ~ Lee & Buddy

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.

 

J  Caring is Sharing ~  Thank You for Sharing  J 

 

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