Special Request for pcdave :)

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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/11/2007 1:57 PM (GMT -7)   

Hi~ Dave…..*pcdave

 

:-)    Please consider starting a Personal Thread sharing Your Journey with all of us and newbies to come.  Your name jumped out at me on jetguy’s & peffster’s  Threads… After doing a little research you don’t have a personal page anywhere…. 

 

 

The information you have provided to all of us… is very valuable and should also be shared in “1” location…. 

This would be a wonderful gift!!! 

 

It is so important to have the information available and with Jetguy, JustJulie and several others…. Sharing radiation decisions, treatments, and recovery/healing….  This truly rounds out this forum to be the best it can be.

 

Plus ~ we've never had a chance to do a formal "Welcome to You"!!!!!  I sure hope this doesn't change your mind tongue

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

June 29th ~ PSA Less than 0.1 Non-detectable


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 2/12/2007 3:50 PM (GMT -7)   
Dear Mama Bluebird

thanks for your kind note and official welcome. i kind of quietly slipped into this chatroom in october 2006 when i was diagnosed with PC. i have become more active lately and am glad that some have read my recent postings. it is my intent to set up a personal thread soon and perhaps include some of my previous postings which i believe will have a continuing educational benefit to members. yes, i would like to see more postings from patients who elect some form of radiation treatment (i.e., brachytherapy or seed implants, photon or x-ray radiation, and proton radiation which is my elected form of treatment). i think it is very important for this PC message board, which is one of the best i could find, to attract a diversified group of patients encompassing all forms of available treatment, who are looking to both give and receive support and education from the start of their journey through treatment and recovery. i noticed lately that there have been postings relating to IMRT/IMGT x-ray radiation therapy as well as proton therapy. it is obvious that surgery patients predominate here and that is expected because it is still the form of treatment selected by the majority of PC patients. I just want to make sure that all PC patients do enough research on their own relating to all forms of treatment and not be overly swayed by their urologist to have surgery. I am very concerned about the strong bias in the medical profession toward their specialties (i.e., urologists favoring surgery, radiologists favoring radiation treatment). Objectively is so important in making a treatment decision. Age, medical condition and stage of PC weigh heavily on that decision. Give patients the honest facts and let them decide--that is my mission.

you are performing a valuable service of trying to get members to start individual continuing threads of their journey with PC. otherwise, trying to find the same information in individual postings gets overwhelming to the user of this message board and such messages, which may contain valuable information, eventually drop way down on the list and are not easily found. keep up your good work! god bless!

Dave

P.S. Mama Bluebird--your wish is my command. See my new personal thread entitled: Proton Therapy--My Journey With Prostate Cancer
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

Post Edited (pcdave) : 2/12/2007 6:44:01 PM (GMT-7)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/12/2007 5:07 PM (GMT -7)   
pcdave - I've read your posts (yes, I'm a new poster) and you offer alot to this community.  I agree with you regarding the way the medical profession deals with disease.  As you can see by myman's stats our choice of LRP did not have the outcome we hoped for, not at all.  But looking forward, it is what it is.  I wish you well with your decision - I know it will be an informed one!
 
 
All the best
Diagnosed 11/17/05  Age: 64  No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive  Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7  Stage: T2B N0 MX
2/09/06: LRP  Restage: T3A NX MX 
3 mo. PSA Post Surgery:  11.8, 12.9, 13.9  Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA:  18.8  CT shows lymph node involvement  Start HT Lupron 3 mo. shots
11/08/06: PSA  0.8
 
 
 


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 2/12/2007 6:14 PM (GMT -7)   
myman

thanks for your kind words. i have posted a detailed response to your man's PC situation under your "Another Newbie" posting.

Dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

Post Edited (pcdave) : 2/12/2007 6:45:13 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/12/2007 9:24 PM (GMT -7)   
Dear Dave,

 

Thank You ~ for such a warm posting…. Yes ~ you did slip in quietly.  Here’s what is really neat…  When I’m at the library on Tuesdays.. (we have dialup at home and it’s pretty slow… and they have DSL) I take time to go back and re-visit threads… on page 3,4….10,11,…etc.

 

It is always on my mind that there’s someone out there who needs a “gentle push”… and me being a mama bluebird… I feel very comfortable giving that little nudge… like letting my brood “friends” know it’s okay to fly!!!  And with all the Helping Hands that are reaching out… “everything will be okay”… you will land safely and you will be teaching others how to fly!!! 

 

To this day…  the most important thread to me is The hardest thing for me.... 

Since… I posted this thread… I continue to keep a list of names that I need to check on…

If I can’t find an original thread from them.. I do what I did here.  Your response tells me to continue doing what I’m doing.. and I thank you for this.  I usually send a little note letting them know they are thought of by many….  Sometimes this works and they come back to us… and sometimes they don’t… I understand it is a choice!!

 

You popped up on my radar screen when I checked Jetguy’s Thread and there you were again posting to peffster…  I put you down on my list to touch base especially after going back and reading your recent postings it said you would be starting Proton Therapy… and I knew we had to get you onboard with “Your Journey”…  you beat me to it….  tongue   

I was thrilled to see your recent posting!!!!!!  And knew this was my “Q” to jump right in!!!!

 

Again ~ your posting back truly touches my heart and we look forward as time permits that you will start your own personal log for us to follow with you.

 

Our hearts are warm because of you… and a few gentle happy tears are here also!

In Friendship ~ Lee & Buddy

 

 

Note:  This posting was typed and saved around 7:45 p.m. Monday night.  Stopped to watch the Dog Show from 8-11 and came back on at 11:15 to post it.  I am thrilled to see your Thread and one from MyMan!!!!! I can’t wait to read them….  


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 2/12/2007 10:07 PM (GMT -7)   
Thanks Bluebird!

I am taking a special interest in the posts from myman. I want to help her husband as much help as possible. I am very concerned as to whether or not her husband has been getting good medical treatment and advice after his cancer recurred subsequent to surgery. while we are not medical professionals, i think we can offer sound advice that patients can pursue if they so desire. i don't recall seeing any recurrent cancer cases here and they are the ones that need the most help. i can appreciate their shock and discouragement after getting those high PSA readings after surgery. it appears, despite the bad news, that her husband is a very positive thinker.

Dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

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