Dear Mama Bluebird
thanks for your kind note and official welcome. i kind of quietly slipped into this chatroom in october 2006 when i was diagnosed with PC. i have become more active lately and am glad that some have read my recent postings. it is my intent to set up a personal thread soon and perhaps include some of my previous postings which i believe will have a continuing educational benefit to members. yes, i would like to see more postings from patients who elect some form of radiation treatment (i.e., brachytherapy or seed implants, photon or x-ray radiation, and proton radiation which is my elected form of treatment). i think it is very important for this PC message board, which is one of the best i could find, to attract a diversified group of patients encompassing all forms of available treatment, who are looking to both give and receive support and education from the start of their journey through treatment and recovery. i noticed lately that there have been postings relating to IMRT/IMGT x-ray radiation therapy as well as proton therapy. it is obvious that surgery patients predominate here and that is expected because it is still the form of treatment selected by the majority of PC patients. I just want to make sure that all PC patients do enough research on their own relating to all forms of treatment and not be overly swayed by their urologist to have surgery. I am very concerned about
the strong bias in the medical profession toward their specialties (i.e., urologists favoring surgery, radiologists favoring radiation treatment). Objectively is so important in making a treatment decision. Age, medical condition and stage of PC weigh heavily on that decision. Give patients the honest facts and let them decide--that is my mission.
you are performing a valuable service of trying to get members to start individual continuing threads of their journey with PC. otherwise, trying to find the same information in individual postings gets overwhelming to the user of this message board and such messages, which may contain valuable information, eventually drop way down on the list and are not easily found. keep up your good work! god bless!
P.S. Mama Bluebird--your wish is my command. See my new personal thread entitled: Proton Therapy--My Journey With Prostate Cancer
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.
Post Edited (pcdave) : 2/12/2007 6:44:01 PM (GMT-7)