glad to help in any way i can! part of my mission since getting PC is to help others with this unfortunate condition. it also keeps my mind off of myself! you said that your husband was treated at the Moffitt Cancer Center which I believe is in Tampa, Fl. i hope that you can find someone here who has had surgery that failed to eradicate the cancer and followed up with subsequent radiation treatment (either IMRT/IMGT x-ray or proton) to hopefully offer you some encouragement. if we have members in your area, hopefully they can make some good suggestions.
it would be helpful to me and perhaps other members to have answers to the following questions, in order to offer you more helpful advice:
--what did his surgeon advise him to do when it appeared that his cancer was not eradicated with surgery (i.e., high PSA readings subsequent to surgery)?
--you indicate lymph node involvement now--why weren't they tested and removed during surgery which is often the case?
--when it was discovered subsequent to surgery that cancer existed in the lymph nodes, what did the doctor say about
eradicating the cancer in the lymph nodes?
--you indicate that the advise was to start lupron treatment or wait until the cancer appears elsewhere. what in the world is meant by that--why would anyone suggest waiting until the cancer appears elsewhere when it is obvious that all of the cancer was not eradicated after surgery?
--there are diagnostic imaging tests, although not perfect, which can help to locate cancer beyond the prostate. did the doctors suggest any such tests to possibly pinpoint where the remaining cancer is other than in certain of the lymph nodes? refer to these websites: http://www.prostate-cancer.org/education/staging/Kipper_ProstaScintUpdate.html
--who advised him to have hormone treatments?
--what did they tell him to expect from the hormone treatments?
--what did they tell him that the hormone treatments would do to help him overcome the cancer?
--how long did they expect to keep him on hormone treatments?
--did any doctor suggest radiation treatments when it appeared that the cancer had recurred (i.e., why did they resort only to hormone treatments)?
the nearest proton center to you is in jacksonville, at the university of florida proton therapy institute which
opened in 2006. i suggest that you visit their website: http://www.floridaproton.org/about
there is contact information on the website. you may want to eventually phone them, give them an overview of your husband's condition and discuss with them whether or not proton radiation therapy (possibly combined with x-ray therapy) could help him now. as i mentioned to you previously, hormone therapy is not going to eradicate his cancer (it will hopefully slow it down), and that is why i would like to know if radiation therapy was suggested to him and if not, why not?
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.
Post Edited (pcdave) : 2/13/2007 9:11:40 AM (GMT-7)