I deleted my previous post on this thread!!! We invite you to read our personal thread…
"Our Journey” with Prostate Cancer
by Buddy & Lee
(direct link ~ just click on the title below! Reminder to click on the REFRESH icon once there)
Our Journey ~ Sharing is Caring
A few excerpts from it…..
Items to have on hand before surgery:
Head Brace: I took 2 very soft ankle socks and stuffed them with soft material. The pillows in the hospital are really not very good. I placed them on the sides of Buddy's head so when he slept his neck was not strained, as his head would roll to the side. This really helped!!
Neck Pillow: Used while I slept in the chair at the hospital and Buddy continues to use it today while recovering in his new lounge chair J Helps relax his body while he reads. It was a lifesaver coming home from the hospital too!
Donut Pillow: Used when sitting at the computer (not in the lounge chair)… this really helps take the pressure off. We have since…found that placing a soft pillow over the donut gives it an extra soft cushion.
Prescriptions: Ask doctor for “all” prescriptions ahead of time so you have them at home before you head out the door for surgery. (Pain med, stool softener, bladder spasm, antibiotics, etc.)
BE PREPARED: Coming home with a catheter?
The catheter was our best friend…. We let the catheter be our priority!!! We did not go out to dinner, we did not go out to visit friends… we took care of each other during this time and let the catheter do its job. Giving the body time to heal properly on the inside.
Ø We kept the large bag hooked up except for 2 occasions ~ when we went for our appointments with the doctor. The small bag will cause you problems if you let it fill up and you get backflow… Why take that chance…
Ø Extra big size PJ bottoms with a drawstring…. I slit the side seam from waist to mid thigh. I re-strung the drawstring so it could be adjusted to the tightness that is comfortable for walking and sleeping. * The idea is to have the catheter tubing from the penis to the bag being a comfortable angle for walking and sleeping. A better idea from Wittler is use Velcro… to secure the top… J I agree this would be better. This is one of the reasons I posted OUR JOURNEY hoping to help others. I did not find the forum until after our surgery.
Ø Expect mucus to appear on the tip of the penis…. This is normal and should not be removed. It’s a natural body reaction with having a foreign object in the body… if cleaned off the catheter tube will be dry and will agitate the penis and infection could occur. (Pus means possible urinary infection that is treated with an antibiotic… this is very common with a catheter. So be aware!)
Ø With catheter in .....push lots of liquids during this time to help flush out system.
After Catheter Removed: we used…
Ø Depends Adjustable Underwear (there are several brands out there… they are easy on the incision areas)
Ø Depends Pads for Men (there are several brands out there… they have adhesive so they don’t slip)
Ø **Liquid Intake After Catheter Removed………..Back off on the intake of liquids once catheter is removed
** Until your urinary control has returned to an acceptable level, don’t force fluids.
Reminder: Caffeine in all forms is a powerful pharmacological agent that increases the frequency and urgency with which you need to urinate. We also stopped intake of liquid between 6-7 p.m. to help in the number of times we had to disturb our sleep. (We still do this and will continue to do this)
“Our” Personal Journey February – July 2006
papa bluebird 53 “Buddy” Retired & mama bluebird 51 “Lee”
At Age 50, 2003 Complete Physical PSA 3.9
January 5th, Thursday 2006 ~ Age 52
Routine Physical PSA 5.1
January 24th, Tuesday
DRE indicated something going on PSA 4.6
Age 53 on February 2, 2006
February 7th, Tuesday
Consultation with Urologist
February 20th, Monday
Biopsy (day before…started 5 days of antibiotics)
February 23rd, Thursday
mama bluebird - Lee & Buddy… from North Carolina
Link to our personal journey…>>> Our Journey ~ Sharing is Caring
April 3, 2006 53 on surgery day
RRP / Radical Retropubic Prostatectomy with "wide excision"
PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)