BenEcho - Just wishing you well, Haven't heard from you for a while.

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/16/2007 12:20 AM (GMT -6)   
Ben,
Hope all is well.  Your insight and well wishes are missed.  Take care.
 
Tony & Ruth

BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 2/16/2007 7:19 PM (GMT -6)   

Hi TC,

Thanks for your kind words. I have not logged in for several weeks. I have been busy at work and also wresting with what are the next steps in my treatment. I will post more information in the near future.

Ben


DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/16/2007 7:29 PM (GMT -6)   
Glad to hear from you Ben. Hang in there.

Regards,

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 2/16/2007 8:18 PM (GMT -6)   
Thanks Bill,

It has been (and continues to be) a rough couple of weeks. We met with my urologist. The good news is that my second post op PSA was 0.00. The bad news is that based on my Gleason 10 and positive margins, per a Sloan Kettering nomograph, I have 92% chance of recurrence within 5 years and 96% within 7 years.

We are waiting to hear back from my surgeon at Johns Hopkins but I suspect that further treatment is in my future within the next few months. I am still largely incontinent so that frustration remains as well. We are just trying to gather more information right now.

Ben
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/16/2007 8:40 PM (GMT -6)   
Dear Ben, I am sorry to learn of your problems. I sure hope that things improve for you. I really hate it when you guys have problems like this. Especially at your age.

Keep Your Mach Up,

Bill

I am reminded that this is serious business.
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 2/16/2007 8:46 PM (GMT -6)   
Bill,

Yeah, this stuff really stinks. Anyway, I have to stay focused, collect information, and make the most informed decision that I can. It was only through my research over the past few weeks that I have come to undertand just how high my odds of recurrence are. I am still waiting to hear back from my surgeon to hear his thoughts. Depending on his response, I will decide what to do next.

PCa, the gift that keeps on giving!!

Sorry, I took some anxiety meds about 30 minutes ago. I should probably go to bed now.

Ben
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/18/2007 4:40 PM (GMT -6)   
Hi Ben,
I'm on th eother side now. I'm with you in that it looks like T3a. Glad to see you back here. Congrats on your 2nd 0.0

tc

BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 2/21/2007 12:37 PM (GMT -6)   
Hi TC,

Congratulations on getting the surgery done. Hang in there. You will feel better each day. The catheter is annoying but as you now know it is manageable. It will be gone soon.

Have you got the pathology back yet? Is it definitely T3a? I am doing a lot of research on all this right now but the biggest thing that I am waiting on is a call back from my surgeon. I sent him my three month post surgery update and asked him about my risk of recurrence and if adjuvant (before your PSA rises) radiation is prudent.

Ben
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Surgical pathology Gleason 10. Stage T3a (positive margins.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/21/2007 8:22 PM (GMT -6)   
Hi Ben,
Tomorrow at 11:00 pst, me, the doctor, the pathology. I'll keep you posted. You sound great and I hope I continue the trend. Also, tomorrow...seeya catheter. At least should be as I've had no problems. We will be discussing radiation and any additinal follow up.

Thanks for you encouragement, Ben, and God Bless.

Stay Tuned,

Tony
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