Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Sex After Radical Prostatectomy

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
1 2 3
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
James C.
Veteran Member
Joined : Aug 2007
Posts : 4464
Posted 1/7/2011 11:58 AM (GMT -8)
soccerdad, well, if it were Caverject, then you have just ben exposed to the most adverse reacting of the 3 available. There's not many guys who can tolerate it straight. Most can even feel it in the Trimix, even at a much, much smaller level. The Bimix is the least uncomfortable, if any is detected. It's drawbacks is it takes more than Trimix, so the cost is about equal per dose. I would definitely ask to try the bimix. We got lots of tutorials here to give you to help ensure a successful injection, when you are ready. Give it a try, then if you need , ramp it back up some by trying the Trimix.
profile picture
Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4175
Posted 1/7/2011 3:52 PM (GMT -8)
Soccerdad, I just knew that you were given Caverject. That is a very common reaction. You may want to call the Drs office and let him know that you ache was real bad and you would like to consider Bimix. That must be ordered from a compound pharmacy and you my have one near you. The reason I mention this is if you have to order it will take a few days and then you will probably need to have you frist injection in the Dr.s office.

Cajun Jeff
profile picture
Parrapower
New Member
Joined : Feb 2012
Posts : 1
Posted 2/16/2012 12:08 AM (GMT -8)
I am a 50 year young man that was diagnosed on October 19 glee son score 7 I had radical prostectomy on 18 December 2011 and would like to know how long after the operation should I try Viagra I have only been married 9 months and I'm very keen to try to make to my wife unfournately I don't have any sensation down there.. Is this normal and for how long?
profile picture
davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 2/16/2012 12:56 AM (GMT -8)
everyone reacts differently and you should seek the advice of your surgeon and/or urologist on when to start the ED pills for purposes of getting thisngs back on track.

In my case, I started the pills one month after surgery and had immediate effects. Not so many months later I no longer needed the pills for all intensive purposes. Doesn't mean I don't still enjoy taking them from time to time.

Important questions to ask yourself in order to help predict your future are whether nerves were sparred and whether sexual function was healthy prior to surgery.

Progress typically takes up to two years for many. Even those that have immediate use of it find that a lot of things connected to its use improve/change over this two year period. You will also find that the initial months require a very mechanical process. It's like a motor that stalls if not constantly "helped".

Good luck, but I suggest you go speak to your urologist about an actual plan. Your surgeon should have included this as part of his services, surprised he hasn't.
profile picture
bob1138
Regular Member
Joined : Jan 2012
Posts : 155
Posted 2/19/2012 10:32 PM (GMT -8)
I would just like to share my experience dealing with Post-Prostatectomy ED in the hope it will be of some help to others.

I developed ED in  February 2004 (After ORP) and suffered with its

devastating side-effects for 3+ years.

Viagra, VED, MUSE and Injections did not work satisfactorily for me.

Then, in December 2007 I received an IPP (Inflatable Penile Prosthesis) which completely corrected my ED and restored my sex life and the emotional intimacy with my wife of 45 years.

In my case the IPP was the Coloplast Titan Penile Implant.

After 3+ years of the low self-esteem associated with my ED,

my psyche was lifted to the sky after my Implant.

This is for men like myself who have not satisfactorily responded to other available ED Treatment Modalities.

Hope this has been of some help.

Bob

-----------------------------------------------------------------

Age 73; Pre-ORT PSA 2.2 with positive DRE; Gleason 3+3= 6;

Post-ORT PSA remains undetectable as of 12/13/2011;

Developed ED Post-ORT in February 2004;

Implanted December 13, 2007 (Coloplast Titan).

 

Post Edited (bob1138) : 2/19/2012 11:35:11 PM (GMT-7)

profile picture
mkohn
New Member
Joined : May 2013
Posts : 5
Posted 5/10/2013 7:35 PM (GMT -8)
I'm new here. I had my prostate removed 9/22/2011. Incontinence was dealt with in about two months. My ED problems are not working out as well. I was 50 when diagnosed with prostate cancer and had the surgery a few months later. I have stronger orgasms since surgery but I don't get erections often. After reading messages in this community, I think I'll try a pump next. I'll leave injections for last. Thanks for all the posts. I feel a little better, knowing I am not the only one going through this. My surgery was horrible..I was in surgery 11 hours and in recover 3 1/2 hours. I had complications from an appendectomy five years earlier with scar tissue being the biggest problem. My fiancee and I are frustrated with our almost nonexistent sex life and want to improve this. Thanks for all those who have posted, for being so courageous to do so.

Max
profile picture
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6408
Posted 5/10/2013 9:55 PM (GMT -8)
Welcome to the forum, mkohn! I've started you a new thread so people can say hello.
profile picture
mkohn
New Member
Joined : May 2013
Posts : 5
Posted 5/11/2013 6:18 PM (GMT -8)
Thank you, Peter. It is most appreciated.
profile picture
thedon
New Member
Joined : Jun 2013
Posts : 1
Posted 6/6/2013 8:31 AM (GMT -8)
Sometimes I feel so discouraged, I have had my surgery done about two years ago. I am still having to wear at least one pad per day and having sex with my wife has never really entered my thoughts. I just do not know where to start, I guess I am a bit scared but dont know what I am scared about.
profile picture
mkohn
New Member
Joined : May 2013
Posts : 5
Posted 6/6/2013 3:11 PM (GMT -8)
Thedon, did you have nerve sparing surgery? How has this affected your relationship with your wife? How long you married? Welcome aboard healingwell. It's been about a year and a half for me and my girlfriend and I have had sex a few times in the past month or so. My surgery took over 11 hours and my recovery time was 3 1/2 hours. There were complications from a previous appendectomy five years earlier. I leak occasionally...think it's called stress incontinence. Write back when you can.
profile picture
bluebird123
Regular Member
Joined : Aug 2012
Posts : 482
Posted 6/6/2013 6:25 PM (GMT -8)
Hi don,

Welcome to HW. Hopefully, one of the moderators will see this and start your own thread for you.

I'm sorry that you are feeling so discouraged. My husband had surgery a little over 7 months ago. He was incontinent until he did biofeedback. He was doing kegels on his own, but his biofeedback therapist taught him how to do them properly and it made a big difference.

Are you scared about the cancer, about becoming completely continent, or about your sexual relationship with your wife? Please tell us more about you so that we can try to help you. Are you seeing a urologist and is he treating you for your issues? My husband has ED and is on a program to recover his potency. He takes Viagra and injects with trimix on a regular basis.

We look forward to getting to know you better and learning more about you.
profile picture
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6408
Posted 6/6/2013 6:47 PM (GMT -8)
Hello thedon,

I've started a new thread for you so folks can stop by and say hello. There are a lot of guys here who have been where you are and have gotten past it. Hopefully you can, too.

Your new thread is here:

www.healingwell.com/community/default.aspx?f=35&m=2755765

Locked by mistake. Oops. -- PeterDisAbelard

Grrr. Travelling... Struggling... There is something about this netbook or Chrome or something. I am locking threads by accident all the time.
profile picture
Caillou
New Member
Joined : Jan 2014
Posts : 1
Posted 1/28/2014 3:30 PM (GMT -8)
Hello, my name is Caillou (french for pebble), I am wondering if anyone has used any of the vibratory "toys" to assist in either obtaining an erection, or for sexual release. I would be interested in hearing reports if any.
I have had two cancer surgeries; Nephrecomy (removal of R. kidney) Nov. 12 of 2013, and radical Prostatectomy Nov. 27 of 2014. I am 70. I am unable to create erection whilst stilulating Mr. Happy by hand, and the good wife assisting does no good either. The euphemism of flat tire certainly describes my present condition. I am not leaking much at night. At day, I leak quite a lot, the colour of which seems ok. I am awaiting an appt. with my surgeon at the Army hospital to see where the cancer has gone if it exists at all. (luck to me no?!)
I thank you all in advance for your kind responses, Caillou
profile picture
ngreene
New Member
Joined : Feb 2014
Posts : 4
Posted 2/3/2014 3:52 PM (GMT -8)
Hello everyone my name is Nancy and my boyfriend had DeVincie robotics surgery Dec. 11 2013. The surgery was a great success with both bundles of nerves spared. I can't remember all the details of his biopsy last Nov. but the cancer was confined to the prostate. I have been with this guy for less than 2 yrs when he had his surgery. He is 53 and we had a very active sex life pior to surgery. He had a lot of pain post op he used a cushion to set on for a long time. Feb 11 will be 8 weeks. We tried nothing until about 3 weeks ago. He was at that time able to have a very partial erection but he was able to have an orgasm which he described as very different. It seems at this time that the hardness of his penis is more towards the base than towards the tip , if I may be so descript. Things are improving slowly and both of us are well aware of the long recovery road we are on. I'm super supportive of him .Each time we get together it is different. He has been able to have orgasms each time but is unable to have intercourse,you never know what to expect. He has a pump but not a very good one and is on celias but his insurance want cover it which means he pays around $300 bucks for it, that is crazy !!!!! I care a lot for this man and will do what ever it takes to help. As he says we are in this together. I have learned so much by reading this blog and have passed along the info to him. He is so happy he is not alone in this process as am. I hope that each and every man out there has a support for that special someone.
Now that I have given a background I have a question. I know you can have urine leakage when you have a orgasm......it happened the other night and it was a lot. It was sticky though and it didn't seem to " feel " like urine. If the surgeon did not remove the seminal vessels could this have been semen? Being a nurse I have never seen sticky urine. I played it off as no big deal, which it wasn't, this is an emotional time for him and of course all guys who go through this. rolleyes
profile picture
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6408
Posted 2/3/2014 4:12 PM (GMT -8)
Hello NGreene,

Welcome to the forum. Sorry you and your boyfriend need us but hope we can help.

Recovery of erectile function after prostatectomy can take up to two years with six months being a fairly common time for a man to get back in the saddle, so to speak. If he can take Viagra he might talk to his doctor about switching from Cialis to Sildenafil which, with some finagling can be less expensive. Sildenafil (the same drug as in Viagra) is available as a generic for Pulmonary Arterial Hypertension and if you write the scrip just right and shop around different pharmacies you can get it for about one dollar per twenty milligrams (or five dollars for the equivalent of one 100mg Viagra).

As for his 'sticy urine' it's probably a mix of normal urine (lots of post-RP men leak when they climax) and secretions of his bulbourethral gland (Cowper's Gland). That's the gland that produces the clear pre-ejaculate that neutralizes the acidity of the urethra and contributes to lubrication when a man is aroused. Surgeons usually leave us that one but the seminal vesicles are gone.

Post Edited (PeterDisAbelard.) : 2/3/2014 5:15:01 PM (GMT-7)

profile picture
ngreene
New Member
Joined : Feb 2014
Posts : 4
Posted 2/3/2014 7:15 PM (GMT -8)
Thanks so much for the drug info. I will pass it on. He has his first post op visit this week. I know he needs to stay on this type of med to keep the blood flow. He is also very interested in getting a better pump. We had looked at better ones earlier. I believe if he could use a better pump and a constriction ring he could keep a erection and be pleased. idea
profile picture
inkhorn
Regular Member
Joined : Nov 2013
Posts : 103
Posted Yesterday 3:48 AM (GMT -8)
Ngreene-Definately get a good pump. I've used the Osbon Erecaid Esteem, and their rings for 4 years. There are no ED meds that work for me, but with the VED we are able to have as much sex as we want. Some complain the rings hurt,it's not natural WA wa wa. For me it's the only game in town, and it works. Regards Inkhorn
profile picture
freelancermuse
New Member
Joined : Mar 2015
Posts : 2
Posted 3/3/2015 11:17 AM (GMT -8)
I am 64 years old and had a robot assisted laproscopic radical prostatectomy on 2/13/15. My Gleason score was 3+4=7 but considered stage one by my Urologist. I am a borderline diabetic and have borderline hypertension. I was always very strong and lifted weights on and of most of my life. During an extended time away fro lifting I had a number of health issues which eventual brought me to a Dr. in 2010. That's when I discovered I had full blown diabetes 11.5 A1c. I went vegan for 4 months and lost 30 lbs. in 5 weeks. Cut my A1c in half and was exercising regularly but found my erections were often not hard enough for penetration. maybe from the diabetes but also from my blood pressure med lisinipril. Last June my PSA was climbing to 4.2 hen shot up to 6.4 my Dr. referred me to a urologist and he was not too concerned about the PSA but had me do another one. It rose slightly and he wanted me to have a biopsy. Had it on 12/23 and the results came back negative on one side but positive on the other with the score I mentioned. I'm leaking when i sit, rise, cough, sneeze etc. I am just barely back to my private teaching schedule. Using a couple of pads a day and a depends at night. It was really tough trading my loin cloth for a diaper. The first night after the cath came out I went the bed. right through the pad. It has been improving a bit almost everyday. On the 23rd I'm going in and the Urologist will get me going on Viagra. I am feeling some strings down there when I think about sex. I think this is encouraging. I'm looking forward to intimacy with my wife. I just hope the pathology report from the surgery is good. The urologists was very optimistic.
profile picture
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6408
Posted 3/3/2015 11:31 AM (GMT -8)
FreelancerMuse,

I stared a new thead for you so other members can say hello without having to read through three pages of old comments. Welcome to the forum. Here's your new thread: Welcome New Member FreelancerMuse
profile picture
freelancermuse
New Member
Joined : Mar 2015
Posts : 2
Posted 3/3/2015 3:38 PM (GMT -8)
Thank you for the welcome. I'm going to feel a lot better when the pathology report comes back and clears me, my the Urologist that sometimes takes a while. Since I was already having erectile problems before the surgery, some things I read indicated it was not hopeful for me. But my experience in life is that everything can be improved no matter what is going on at the time. On that basis I posit there is no limit to progress.
profile picture
woodyvt
Regular Member
Joined : Feb 2014
Posts : 117
Posted 6/20/2015 7:16 PM (GMT -8)
3 1/2 years post op, no sex, no erections, can orgasm, but no erections, don't use the pill either...have learned to live with it, married also......
✚ New Topic ✚ Reply
123


More On Prostate Cancer

Positive For Prostate Cancer

Positive For Prostate Cancer

An Unexpected Diagnosis Of Prostate Cancer

An Unexpected Diagnosis Of Prostate Cancer


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.