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HIFU
Regular Member


Date Joined Feb 2007
Total Posts : 27
   Posted 2/22/2007 8:35 PM (GMT -6)   
Age 75
PSA 14.1, jumped from 7 four months ago.
Biopsy January, 44 samples found 4 Gleason 3+3=6 and 2 Gleason 3+4=7
Bone and CT Scans negative
Urologist recommended Radiation (IMRT) and Hormone treatment, due to age and other health problems.
Found out about HIFU and made appointment for it at the Klinikum Harlaching in Munich, based on the number of treatment done (1,600)
Going next week
 
 

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 2/22/2007 8:44 PM (GMT -6)   
Good luck HIFU.

Sorry you had to join the club but we stick together here and support and inform each other. Nice to see another 70 year old for once!

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/22/2007 9:25 PM (GMT -6)   

Hi  ~ HIFU,

 

                A   “Special”  Warm Welcome  to  You!   yeah  

 

I know we can “all” make Your Journey smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you! 

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   We are all here to help you travel the path with prostate cancer. 

 

 

KNOWLEDGE IS POWER... and POWER conquers fear

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

We invite you to visit our personal thread in the signature area below.

Our thoughts and prayers will be with you as you prepare and travel to your treatment location. 

 

In Friendship ~ Lee & Buddy

 

“God Bless You”

 

It's a little prayer  ~  "God Bless You"

...but it means so much each day,

It means may angels guard you

and guide you on your way.

 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints for New Members... Hope this helps you! :)


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/22/2007 9:32 PM (GMT -6)   

Hi ~ HIFU,

 

Great new personal Thread!!!!  Thank you for joining us!!!  We truly look forward to walking with you and hope you continue to share your journey with all of us.  This forum is building such strength from all who participate…  A forum where we share in order to help others.  And allowing “all of us” to pull extra strength when we need it most!

 

Again ~ thank you for the gift of sharing!!!!  :-)  

 

Will you share a little more with us…?  Where are you located?  Current health status before diagnosis…   Will you be planning to keep a log of “Your Journey”?  We sure hope so!!!! It will be so valuable for future members and adds to our wonderful “options” that are being posted every~day!  Teaching all of us about the procedure and giving us the knowledge to understand...

 

Keeping you extra close in thoughts and prayers ~ as you prepare to travel…

In New Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/22/2007 10:29 PM (GMT -6)   
Get back here and tell us about your experience. It's important. Best to you.

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!


HIFU
Regular Member


Date Joined Feb 2007
Total Posts : 27
   Posted 2/22/2007 10:57 PM (GMT -6)   

Thanks Guys

Leaving on Tuesday and checking in on Thursday, and having it done on Friday. Germany's e-mail said " absolutely no pain or discomfort"

I'll keep you posted along the way

 

Ben


HIFU
Regular Member


Date Joined Feb 2007
Total Posts : 27
   Posted 2/23/2007 10:25 AM (GMT -6)   

Thanks Dave:

I had already contacted Maple Leaf. they use the same equipment Ablatherm as the Munich Clinic, only difference in procedure. Munich does TURP before doing the HIFU

I decided on going to Germany because they have been doing it for many years having done about 1,600 procedures, against about 1 year in Canada.

Also Canada quoted me $25,000 against about half from Europe. 

 

Ben


HIFU
Regular Member


Date Joined Feb 2007
Total Posts : 27
   Posted 2/23/2007 10:55 AM (GMT -6)   
bluebird said...

Hi ~ HIFU,

 

Great new personal Thread!!!!  Thank you for joining us!!!  We truly look forward to walking with you and hope you continue to share your journey with all of us.  This forum is building such strength from all who participate…  A forum where we share in order to help others.  And allowing “all of us” to pull extra strength when we need it most!

 

Again ~ thank you for the gift of sharing!!!!  :-)  

 

Will you share a little more with us…?  Where are you located?  Current health status before diagnosis…   Will you be planning to keep a log of “Your Journey”?  We sure hope so!!!! It will be so valuable for future members and adds to our wonderful “options” that are being posted every~day!  Teaching all of us about the procedure and giving us the knowledge to understand...

 

Keeping you extra close in thoughts and prayers ~ as you prepare to travel…

In New Friendship ~ Lee & Buddy

Hi Bluebird:
 
I am located in Dallas, Texas, and before being diagnosed I thought I had never felt better in my life.
I had a massive heart attack about 40 years ago, while living in Mexico City, and before I was turning 40 my cardiologist told me I was in very bad shape and that the only hope I had in surviving was getting the at the time experimental Bypass Surgery, and had it done by the Argentinian Doctor Favaloro at the Cleveland Clinic, who had started it. I had it done a second time 10 years after that in Houston, and 7 years after that when Houston said they could not do anymore for me I went to Stanford in Palo Alto, Ca. and they did a great job. about a year ago my local cardiologist thought I might need to have a defibrillator implanted, but I don't know if by losing 25 pounds and a non-prescription chemical chellation, they decided I did not need it any more and was told I could begin excercising, and I started to go to a gym 4-5 times a week.
And suddenly in a routine visit to my urologist who had told me to see him in 4 months because the DRE was negative, he called me up and told me about the rise in PSA and had the Biopsy last month.
I feel great, but know I need to take care of this right away, I am not the guy that  can just wait and see what happens, and plan to fight it to the end. 
 
Thanks
 
 
Ben

donnathewife
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 2/17/2010 11:45 AM (GMT -6)   
Hey there HIFU Ben,

How are you today? How's the PSA? The other thread you posted on (My HIFU Trip) is all confusing, some posts must be missing as it reads strange, and it's "locked" so I couldn't ask any questions.
 
Getting the TURP sounded like a negative, but then you were doing great in no time at all after the HIFU, and your PSA was 0.05 after 3 months time, but then the thread was locked, thank goodness you provided this link.
 
If you are still getting notices, then I hope to hear from you.

Sending my best wishes,
Donna

Post Edited (donnathewife) : 2/17/2010 10:51:06 AM (GMT-7)


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 2/18/2010 3:31 PM (GMT -6)   

donnathewife

The HIFU guys come and go on this website. They don't seem to stick around and the site has had problems with HIFU associated scammers who were promoting a certain doctor or clinic. Lots of promises, etc.

You may get a quicker response by just going to the web and searching for HIFU. Anyway, in my case I was never a candidate for HIFU since I have Colitis/IBD and none of the HIFU docs would even touch me.

Good luck

  

 

 


Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.

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