ED 5 years post-prostatectomy

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Sheel
New Member


Date Joined Feb 2007
Total Posts : 1
   Posted 2/22/2007 11:38 PM (GMT -7)   
Hi -
I just found this site tonight.  What a relief that others are out there talking about their experiences.  Thanks, you guys.
 
I have a question, not for me but for a friend (No, REALLY!)  He had what was supposed to be a nerve sparing radical protatectomy 5 years ago.  Unbeknownst to my friend, his doctor took off on vacation right after, so he didn't get good follow up care for some time.  He got another doctor several weeks later, but didn't know what to expect or not.  At the time, he was mostly concerned with the incontinence and painful testicular swelling, but as time passed, discovered he has no erections. 
 
At 5 years post,  he's tried Viagra, Levitra, & Cealis ... all give him headaches so he has trouble taking for any longer than a few days, none has given erections.  He's tried MUSE w/ very little result.  
 
Has anyone else experienced similar but found a solution, or have any hope they can offer?  He's considering an implant, but frankly, they're a uncertain about them with possibilities of malfunctions & mutilations.  Anyone know of any positive experiences, good clinics or good doctors?  He doesn't seem to get very far with his local urologist and there are not many to choose from in our community.  He's considering traveling if it offers a chance.

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/23/2007 7:53 PM (GMT -7)   

    Not sure if it isn't too late???...  He should probably start looking out of town for another Dr.

    Just my opinion!

    KW


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope with possible Cottigen injection into bladder neck to help controll leaking.  2nd Post Op PSA. 
    May 22nd Follow up (unless incontenance does not improve by mid March) and 3rd Post Op PSA
   


djhouston
Regular Member


Date Joined Jan 2007
Total Posts : 68
   Posted 2/28/2007 4:14 PM (GMT -7)   
Hi Sheel,
In my opinion, and I agree with kw, your friend should get another opinion. You didn't mention if your friend had tried the injections yet, because these can induce an erection, when the pills and the MUSE can't.

Shortly after my surgery, my wife and I were invited to a conference by my urologist's department, which kind of turned out to be a marketing presentation for surgical interventions for erectile dysfunction and incontinence. Nevertheless, it was a chance to hear some information and ask questions about the procedures. A doctor presented about the penile implant, and the one they talked about was that made by American Medical Systems (http://www.americanmedicalsystems.com/mens_health.html). The doctor said that there was a low rate of problems with it, and a local businessman who was the recipient of the implant, and his wife, gave a testimonial about their satisfaction with it. The decision to have one is kind of final, because they use the spaces of the natural erectile tissues to put the thing in. That website gives the names and locations of doctors who provide this intervention, and you might find somebody close to you. Chances are those doctors may have ideas, just short of doing the implantations, to help.
All the best. Keep us posted.
dj
dj's stats:
PSA (10/04): 2.9; PSA (2/06):4.4, on Androgel (serum T about 450) at age 56; negative DRE, no symptoms.
PSA (5/06):5.7 with a free PSA% of 8, OFF Androgel (serum T 163). 
Biopsy (5/06): 4/12 samples positive; postitive samples only on right side; max Gleason 4+3=7 (in 2 of the 4 -from area nearest bladder.
DaVinci robotic-assisted laparoscopic radical prostatectomy + bladder lift + Right nerve plastic surgery (8/23/06).
Catheter out 4 weeks postop, due to internal pinhole leak at bladder-urethra junction.
Final pathology report:T2c-both sides,but in capsule; neg. margins, neg. lymph nodes, neg. seminal vesicles; final max Gleason still 4+3=7.
Follow-up PSA (11/06): <0.008; serum T: 195 OFF Androgel (at present).


Allan92
New Member


Date Joined Mar 2007
Total Posts : 13
   Posted 3/2/2007 6:15 PM (GMT -7)   
As I have mentioned in other threads your friend should try the injection with Trimex.  First find a doc who treats ED and will prescribe it.  You have to get it from a compounding pharmacy, not your corner drugstore.  But it's inexpensive and effective.   You can use the short needles that diabetics use.  Much smaller needle than used for a flu shot. I call it the screw shot.
 
Only consider an implant as the very, very last resort.

pcmentor
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/25/2007 1:47 AM (GMT -7)   
Sheel,
There are other options...tri-mix is an option, but there is a way to have intercourse even when the penis will not become erect. a soft foam sleeve can be placed over the penis to hold it erect, and some of them come with an area to stimulate the ***oris as a bonus. Plus, it is cheap--$12.95.
pcmentor

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/25/2007 6:14 AM (GMT -7)   
Sheel,

As already mentioned penile injections work and your friend should give it a try. There are three medications for injections. Caverjet, B imix and Trimix. Some men, like me, cannot use Caverjet because it cause aching and pain. Bimix, as the name implies, is a compound of two medications and does not contain any Caverjet. I presently am using Bimix and get extremely good erections. The third medication is Trimix. It includes the two medications in Bimix plus the Caverjet medication. Your friend should see a urologist that is open to working with him to restore erections. There also is the use of a vacuum device. I used one for a while to exercise the penis and keep it from becoming atrophied. There has to be a concern if your friend has gone 5 years without and erection if there has been some irreversible damage done.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07

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