corynski & anyone interested
I am currently at Jacksonville. If you are considering Proton you need to get your info in and start the process as the waiting time is getting longer. You can always change you mind later.
I am kinda an odd duck. I am on Hormone Therapy (Lupron & Casodex), My first half of treatments are photon (IMRT) and my last half will be Proton. They are and will be radiating not only the prostate but the lymph node they suspect may have cancer. Most Proton patients do not have hormone therapy or IMRT. The center will decide that based on your test results. Also there is a new trial with some new patients only getting 29 treatments (higher dosage) but the requirements are what I have heard very strict.
I do not urinate any more than before starting treatment as I had BPH and it was already somewhat of a problem. No incontinence ever and ED was already a problem with BPH and high blood pressure. I already had a problem with diarria so that can't all be blamed on radiation. Hot flashes are from the Hormone therapy and not the Proton.
If one can afford the treatment (Insurance and travel expenses) I would sure seriously consider it.
If I can answer any questions just ask.
http://www.proton-therapy.org/ list of proton centers and some information and links to each.