Open Surgery Three Weeks Ago...

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Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 3/6/2007 6:34 PM (GMT -7)   
I had the open prostate nerve-sparing surgery just three weeks ago.  I did not require blood and my healing has been almost routine.  The post pathology was "No more cancer".  Of course, that is good news. 
 
I chose the open radical nerve-sparing surgery because it was the only surgery available in this smaller town.  I could have chosen a larger city, but the closest would have been 150 miles away.  In reading posts on this forum, it seems that none of you on this forum (I discovered it just today so I may have missed something) has had the open surgery like I did.  That is a little scarry for me (I know.  It's too late to re-evaluate and make a different choice.). 
 
Here are some areas in which I need comments.
 
(1) I encountered a problem with the catheter that I have found absolutely no one else whom I spoke with experienced:  Urine leaked out around the tube, even before I left the hospital.  I talked to the doctor's nurse and she in turn talked to him ; he did not think it was a problem.  It sure was hard to deal with, however.  I was totally unprepared for the degree of incontinence following removal of the catheter.  I expected some dribbling, but I had no idea that I would have absolutely no control.  That "freaked me out."  I have learned to deal with it better now, but that was a shocker.  I understand that it is to get better with Kegal and time, but for now I am still very concerned (I see from other posts that I am very impatient, to say the least...three weeks?)
 
(2) The surgeon (not at all very talkative) handed me a device when he pulled the cath out.  It was a clamp which was to go on my penis!  I have not read of anything like that from any of you today on these posts.  Has anyone else used one of these things?  It does work for about 30 minutes and then begins leaking through it.  Beside that, it hurts.  I also had some bleeding and I think it was the result of the clamp.  It quit when I took it off.  Anyway, I've decided not to use it any longer unless some of you can give me some encouragement and some first-hand positive experience with it.  Today I started simply using pads, and it looks as if it will take 8 or 9 per day currently.  That's a lot of changing, but I can deal with that better than a clamp.  And while on the subject, I wanted to mention that I am uncircumcised.  That keeps everything very wet , and sometimes I experience stinging.  The surgeon said not to pull the foreskin back but to leave it in place "because it could cause some serious problems if you do."  That's something I had never heard before either.  I wonder what kind of problems?  He didn't hang around to explain himself and I was too overwhelmed to ask at that moment.  I thought by pulling the foreskin back that I could stay dryer.
 
(3) We were prepared for the erectile dysfunction thing, as devastating as it was to us.  But we are motivated to overcome that in time, although the doctor said nothing about Viagra, etc.  I did ask for "nerve sparing".  Afterward, he did say that he was able to spare the nerves.
 
Thanks to any of you who can give some insight into these things.  Now that I have found this forum, I will probably be back with more questions.  Of course some have already been answered just by reading your posts.
 

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/6/2007 7:18 PM (GMT -7)   
Gene! Welcome to our new friend! We too found this forum after our surgery and it's been a wealth of information, support and sharing.

Take your time and look back over several posts . . .you will find that many have had open surgery and been completely satisfied. You just haven't gone back far enough.

We have never heard of the "clamp" you speak of and I'd be afraid of back up into the kidneys which could be problematic, not to mention urine retained in the bladder can lead to infection.

The incontinence WILL improve and in a few months you'll hardly remember this part of the journey.

As for the ED; with both nerves spared you should be just fine once everything is healed. You may want to try some Viagra just to keep the blood flowing.

When is your next visit to the doctor . . . you may want to go in with questions written down for this "non talkative doctor".

You will find a wealth of information right here on this forum as well.

Good luck and god speed with the rest of your healing and journey.

;o) Bob & Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/6/2007 8:55 PM (GMT -7)   

Hi ~ Gene6163   & Loved Ones,

 

 

Caring Enough to Share…..

 

 

              A   “Special”  Warm Welcome  to  You!   yeah   

 

This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey.  Thank you for joining all of us in the continued road to HealingWell…..

 

KNOWLEDGE IS POWER... and POWER conquers fear

 

Your thread: open Surgery Three Weeks Ago... is a wonderful gift you've given to all of us. 

 

This is so important ~ once the decision is made continue to move forward in a positive manner.  Your journey is testament to this.  We can’t tell you enough…. How happy we are that you Cared Enough to Share…. Thank you from deep within our hearts. 

 

Our thoughts and prayers will be with you as you continue to move forward in Your Journey.

 

In Friendship ~ Lee & Buddy

 

“God Bless You”

 

It's a little prayer  ~  "God Bless You"

...but it means so much each day,

It means may angels guard you

and guide you on your  way

 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints for New Members... Hope this helps you! :)

 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/6/2007 9:09 PM (GMT -7)   
Hi There Gene,

Welcome! It is too bad that you did not find this site before you made your decision. There have been several posts here from men and wives of men that have had the open surgery. Most if not all of them generally do as well as those of us that had the robotic. The problem with many smaller town urologists is that they feel that they have a captured market and do not have to treat the patient as a customer. I do not live in what I would call a small town but I left my local urologist after the way he handled telling me about having PCa and I went to a university based medical center where it was night and day from the local urologist.

As to the incontinence it will get better. Walking helps a lot although while you are walking you will leak worse. The clamp I had heard of from somewhere but most urologist consider this an absolute no because it can result in two things. First it puts back pressure on the area that is healing and second, it becomes a crutch and keeps you from learning how to train the pelvic muscles to develop the new sphincter. The foreskin issue I have no knowledge that I can share.

The Ed will take a lot of patience and has been the most depressive issue for me. There are a lot of posts and threads here concerning the ED. This is a very open forum and all issues are discussed about the sexual part by both men and the wives of men. Everyone is here to be helped and provide help.

We look forward to your participation.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/6/2007 9:24 PM (GMT -7)   

Hi ~ Gene,

 

Yes….  :-)   The sound of “Cancer Free”…. is definitely music to our ears… and moving forward to your 1st PSA will be here before you know it.

 

There are so many wonderful Threads for you to check out.  There are a few listed on the Helpful Hints page…. listed in my 1st posting to you.  I will be updating it with more over the next week.  We had the RRP and there are many on this forum who have.  And everything you’ve talked about is here somewhere.  I think the Helpful Hints page may get you started… We went the extra in all areas of healing… and recovery.  To this day ~ 11 months post surgery… we still pay close attention to Buddy’s body.  It will tell you if you are overdoing it. 

 

The most important thing we can share with you is… continue kegels, continue exercising with some stairs if/when possible, and give your body the right amount of time to heal and recover.  3 weeks…. Yep…. More time is needed and you must give it the proper time to heal.

 

Feeling good lends to more activity and more activity adds pressure to the healing area.  Continue taking one-day*step-at-a-time and remain “confident” for future PSA testing. 

 

There are several Threads here on incontinent issues and even how to have sex while leaking!!!  We are a wonderful forum with a true honest openness that will help in any situation.  All you have to do is ask…. Just like you’ve done here on the Thread!!!!  You get a Huge :-)   HUG....for joining us!!!!!

 

I can’t wait to hear what Swimom has to say about this doctor…. She is the best and you will really enjoy her knowledge and her experiences with almost everything we’ve dealt with on this forum… So ~ pay close attention to what she says…  I’m thinking she may be posting as I’m posting…..

 

This clamp is not a good idea in our opinion….. unless there’s more to it… But ~ your doctor leaves me wanting to get in his face.  You should not be left guessing or wondering what’s going on.  

 

In your research did you read anything by Dr. Walsh or Dr. Scardino????

 

I’m glad to see that ED is #3 where it should be and that your (spouse/partner) is right there with you!!!!!  Good for her!  It is a journey that definitely needs to be a “team” and it’s good to see her support is right there with you….…. ED is a very important part of Your Journey but getting the cancer out and urinary continence is definitely #1 & #2…. 

 

You sound very confident and positive…. With a few issues that you’ll find others have dealt with and have shared their experiences....  

 

Don’t ever forget…… 

Your Decision is Your Decision!!

and

Your Decision was the Right Decision for You!!!!!

 

 

We are thrilled that you found us!!!  tongue

Stay with us and let us walk with you as you continue on the healing/recovery stone in your journey.

Keeping you close in thoughts and prayers.

 

In New Friendship ~ Lee & Buddy 


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/6/2007 9:47 PM (GMT -7)   

    Hey Gene6163,  I too had the open RRP and leaking around the cathiter.  Take a look at my Journey (kw's Journey).  You may find some helpful information.  Also let's you know your not alone with the leaking issue.

    Good Luck,    KW


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
     Dr. said everythign looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    May 22nd Follow up (unless incontenance does not improve by mid March) and 3rd Post Op PSA
   


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/7/2007 5:24 AM (GMT -7)   
Gene6163, Jeff also had open surgery (RRP) and is recovering nicely. ED is still an issue, but we're hopeful that it will come back eventually. keep doing those kegels, start taking viagra (or cialis or levitra) mainly for healing reasons (not erections), and if you don't like the doctor's responses, you're going to have to take a trip and see a different doctor. congrats on being cancer free! that is the main point of your original decision. don't lose sight of that. take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 3/7/2007 7:22 AM (GMT -7)   
Thanks everyone.

I never dreamed there would be this kind of help available from people who have/are going through the same thing. To the others of you who read my/our posts and reponses, please share your thoughts, too. I hope I will be able to share my recovery so that perhaps I can help others.

Allan92
New Member


Date Joined Mar 2007
Total Posts : 13
   Posted 3/7/2007 2:37 PM (GMT -7)   
Gene, sounds like you are a victim of the "managed care" system which does not reward docs for followup care, although my "name" physician at Hopkins answered every question even thought my HMO paid a flat fee.  And he provided a multi-page handout with specific instructions to follow.  Leakage with the cath is common as well as using lots of pads.  The time it takes to recover continence depends on the surgeon, I guess.  I was fully continent in less than 2 months.  ED is another story.   I went to the shots to get things started, why wait 6 months before having sex?  The Viagra may not work right away and anyway the side effects are unpleasant, and I am not comfortable with the long-term effects (unknown) if I live 10-20 yrs.  Don't want to be walking around in a blue haze.
 
Best to you.
 
Allan

Post Edited (Allan92) : 3/7/2007 4:16:59 PM (GMT-7)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/7/2007 4:28 PM (GMT -7)   
Hello Gene,

Lots of us have had "open " surgery, as you have now discovered. PCa recovery takes lots of patience. Continence takes exercise (Kegels) and walking but will get better.

Keep a journal of your concerns and questions and take it with you to see your doc. We tend to forget things during the visit without notes. Also take someone with you to make sure your questions are answered. Two people sitting there staring at the doc is more intimidating than one. Don't be afraid to insist on straight answers in everyday language. (Unless you have the medical lingo down pat) He/she has your future in their hands and owes your straight answers. Most docs understand this and will cooperate.

Good luck and please stay with us...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 3/9/2007 7:32 PM (GMT -7)   
All you you have helped bring me back down to reality. I've got to admit that I quit pushing water because of all the mess. I am walking, doing Kegal, and now (at least starting in the morning, I'm going back to 6-8 glasses of H20 each day. I will be journaling, too... plus, I will take the wife with me when I go back (he does not want to see me for three months) for the PSA. I have been bragging on all of you to all my friends. This is a great site for help. I'll be back in touch in time.

Gene

kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 3/9/2007 8:07 PM (GMT -7)   
Gene,
Sorry that you are joining our family. We are one week behind you in the since that my husband will have surgery next week. Thanks to this site, we know to expect leaking around the cath. We know what to take when we travel for the da Vinci surgery (not readily practiced where we live). Keep doing the Kegal's, and make sure you are doing them right. There is a thread on here to help with that. Something regarding no tighting of the abdominal muscles, etc.... Good luck to you. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-15-07 in Austin


tooyoung
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 3/10/2007 2:02 PM (GMT -7)   

Gene

I had RRP also on Feb 5th and had slight leakage at times around the cathetor after I got home from the hospital. I also had a clogged cathetor that built up some incredible pain in my bladder that had to be flushed out (Lots of dry blood- clots). I am down to only a slight bit of stress incontinence - pad free for the past 2 weeks. I have been back at work for the past 2 weeks and have also been taking the time to do some walking every day. ( My dog is espicially thanful for this)

As you can tell frrom the people on these board, all people are different and you must have patience. There is a lot of good info and things to be learned from this forum. I have found that you can usually answer most of your questions by reading previous posts, and if all else fails post a new topic.

Good luck with your recovery

Tooyoung


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 3/13/2007 5:48 PM (GMT -7)   

Just a little update... It's been almost four weeks post surgery and almost two weeks post cath removal.  Today a couple of good signs:  (1) Was able to hold urine long enought to pee in urinal and/or pot after standing up.  That's when it's really been gushing.  Of course still lots of leaking in between.  (2) Had an enlarged (stuffed...not erect) "thingy".  Anyway, those are two encouraging signs, right?  Right?

Gene 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 3/13/2007 7:07 PM (GMT -7)   
YUP. I started limp and am approaching a full one now. Takes a bit of work but it gets near the way it was. Surgery 4 weeks this Friday. Nearly full continance as well. Rare leaking when laghing too hard or drinking a beer.

Tony

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/13/2007 7:09 PM (GMT -7)   
RIGHT!!! Sounds like you'e on the right track...Good for you!

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/13/2007 8:10 PM (GMT -7)   
Hey Gene,

Great progress!! Congratulations. We all really like good news...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/14/2007 4:31 AM (GMT -7)   
Gene, I echo what Jim said..... kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and no further improvement in erections


Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 3/14/2007 11:55 PM (GMT -7)   
Gene,

Like KW, I had leakage around the catheter ... for all 2 weeks that it was in. It ran constantly anytime other than when I was lying down. I tried everything, including taping sponge around the catheter tube, and wearing loose shorts with small towels held in with elastic bands aroudn my legs that I changed every waking hour. It was very inconvenient. In hospital, they tried reducing the volume of fluid in the catheter balloon, and then increasing the volume in the balloon, but neither made a difference. I was then given anti-spasm pills called Ditropan, which did not do a thing. I have read that the wrong size catheter can result in excessive leakage, and my guess is that this was the cause of it.

Thankfully, all things come to an end, and one my my happiest days was when the catheter came out. All I have to do now is become continent, and no real progress has been made in this respect in the 7 weeks since it was removed. I'm still using 6-7 pads a day. I often wonder whether my slower than normal recovery of continence is related to the leaking catheter. I still have a UTI (now 7 weeks despite antibiotics - Citrobacter, a hospital acquired bug), and my urologist feels that is delaying my progress towards continence.

On the subject of the foreskin, failure to return it to its normal position results in significant swelling, which I found out the day after my surgery. My doctor recognised this and corrected the situation quickly.

Just had a couple of successes in the erection department. I had been preoccupied with the incontinence issue and had not worried too much about ED. I was surprised to feel and then see some unexpected enlargement the other evening while watching TV. It just happened, and with some work, resulted in an erection around 60% of normal, followed by orgasm. Tried it again a couple of days later to make sure it was not a fluke, and sure enough, another success.
58 years old
Da Vinci surgery Jan 10, 2007, nerves spared
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Post surgery pathology says no cancer outside prostate
Complication 1 - urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), treating with anti biotics
Complication 3 - fungal growth on genitals (candida albicans) probably from anti-biotics


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 3/21/2007 8:38 PM (GMT -7)   

I yeah am now 5 weeks post surgery and three weeks post cath removal (had to be one of the worst days in my life).  I am still incontinent, but I think... I think I am improving.  Here's why I think that:  When I stand up, if I think really hard about holding it, and if I squeeze really hard, I can get up, go directly to the bathroom and pee a little.  Sometimes I can even stop the flow, but it starts again on its on momentarily.  But at least I am sometimes controling it a little.  So I think I am improving.   

In the ED department, the surgeon gave me a packet of 50 mil Viagra last week.  I tried one yesterday and was able to obtain about 75% erection... but it took lots and lots of petting (and still lots of leaking and squirting... yuk).  So I think I am improving and I am becoming more hopeful.  You all have been a very special help and encouragement.

And by the way, I think my size is the same as it was before surgery.  I had read of several saying they were somewhat shorter after the surgery, but I don't think that's the case with me.   f course that should not matter one way or another, right?  The important thing is to get the cancer out.  But for me, at least, I seem to still have the same length, at least as much as I can tell with a 75%.

Gene


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/21/2007 8:57 PM (GMT -7)   
Hey Gene,

Progress is the name of the game post-op. Sometimes it comes fast and sometimes it seems like its taking forever. You are keeping track of the small victories and that is important.

You said, "The important thing is to get the cancer out." and that is surely true. Keep up the good work and please keep us posted.

Your friend,

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/21/2007 9:14 PM (GMT -7)   

Hey ~ Gene,

Great updates....  yeah    Thank you and it really does sound like you are progressing nicely.  You sound great!!!!!!  Keep the positive attitude..  "I am impoving!!!!" each day a little more....  I read somewhere.... the bladder gently settles down in the area where the prostate was so there's no pulling on our guys tongue    That's one less thing to worry about!!!! 

Keeping you close in thoughts and prayers.... In Freindship ~ Lee & Buddy

Kegel Help?  Thread by KW / Member

(direct link ~ just click on the title!  Reminder to click on the REFRESH icon once there)

I copied this information in blue below and taped it in the bathroom… above the toilet.

 

 **Excerpts taken from a wonderful book called “Dr. Patrick Walsh’s Guide to Surviving Prostate Cancer” by: Patrick C. Walsh, M.D. and Janet Farrar Worthington.  Copyright 2001….. 

 

**Urinary continence: The return of urinary control:

 

 

**Phase One is when you can remain dry when lying down.

 

**Phase Two is when you’re dry when you’re walking around.

 

**If you can walk to the bathroom and not urinate until you get there, that’s a GREAT SIGN!!!…

    it means that the sphincter is intact.

 

**Phase Three, you are dry when you stand up (using muscles that put pressure on the sphincter)

    after sitting.

 

**Remember, the recovery of urinary control is a slow process.

 

The most important thing you can do during this time

is not to get discouraged.


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


B&B's World
Regular Member


Date Joined Mar 2007
Total Posts : 120
   Posted 3/21/2007 9:34 PM (GMT -7)   

I am so appreciative of the direct posts in here.  I check in with B after the day is done to find out the skinny on pee, etc!  He used the small, penis covering pads today (remember I said in previous posts no pad needed!) because of stress incontinence. Now that he is more active, and back at work for the last week and a half, he is noticing it more and wants the assurance of a pad.  He says he's doing the kegels...

It is great to track those of you a few weeks beyond the surgery...thank you for keeping us updated.  It has been a comfort to me.

Becky



Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Post Edited (B&B's World) : 3/21/2007 10:42:23 PM (GMT-6)


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/22/2007 4:04 AM (GMT -7)   
Gene - you are right. you are making progress. like Jim said, it comes and goes and is different for everyone. I laughed at your comments about leaking and length. yeah, size doesn't matter... it's what you do with it. oh well...that will come. in the meantime, you can still have fun. take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump

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