Good News - Finally

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hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 3/6/2007 9:14 PM (GMT -7)   
Since my physical in September, it's been a real rollercoaster.  Referral to urologist in October, biopsy and diagnosis in November, agonizing in December - am I being too aggressive in selecting surgery, surgery in January, no problem with catheder and no post surgery problems, much worse than expected post surgery pathology report.  Finally, today I got my first post surgery PSA and it's 0.01 !!!  By no means am I out of the woods, but after a month of frustration, this is a start. 
 
I have been a faithful reader - usualy twice a day - of this forum, and really appreciate all of the postings.  (Thanks to Benecho for having the "positive margin" thread.)  In a couple of my postings this past month, I appologize if I've been a bit testy, but seeing all the signatures with "negative surgical margins" has been difficult.  However, I realize that there are those who are in much more difficult situations than my own, and I can only offer my hope and prayers that their situations can improve.  My brother was diagnosed in 1995, opened up for an open prostatecmy, but closed right up, and given five years.  After he searched out radiation and hormone treatments, he is still going strong 12 years later.  Something new may be around the bend, so hang in there.
 
As for me, I meet with my doctors next week to review the whole situation.  Virginia Mason in Seattle does an excellent job having you meet with the doctors from all aspects, giving you information in their specialties, and letting you make your decision.  For anyone in the Northwest, I recommend them very highly!!  From what I've read, here, other internet locations, and in Dr. Walsh's book, it's time to heal and keep an eye on my PSA.  If there is a change - up to .2, or a quick spike, then it will be time to consider more therapy.  Of course, I'll listen to the doctors to get their views before making any decisions.  For the past month, I've been dreading having to go into more therapy right now.
 
I've also used this time to help make some lifestyle changes.  I'm down 12 pounds from November, drinking more green tea, taking a Sellenium supplement, and just trying to act a bit healthier.  (Even the arthritis in my hip feels better.)  I've got my first baseball umpire assigment of the season Saturday, and I'll even go behind the plate next week.  I use just a female "panty liner" pad when I go out to catch that occasional drop that seems to show up unannounced.  I will still be strongly in favor of the laproscopic surgery as a treatment, knowing that one of the best things is that my prostate is in a jar of formaldehide somewhere!
 
Thanks again for the good thoughts, and I'll try to continue to be a positive contributer to this very important forum.
 
 
PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006
1 of 10 cores positive 5% LEFT Side
2 others questionable (small gland proliferation)
Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology
     Stage T3a, Gleason 3+4, positive margins and
     capsular penetration RIGHT Side
Post Surgery PSA:  March 5:  0.01


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 3/6/2007 9:39 PM (GMT -7)   
God bless Hawk,
Great news. I know the frustration you feel when you know you received bad news after surgery. It is also enlightening to hear about your brother. Great news he is still doing well. I will know my final post op PSA in two weeks. After just two weeks I was tested and registered a 0.9. Good news but still not 0.1. I hope I can add good news at that time to my thread. God Bless again, and keep up the good PSA blood work? Hops all stays well.

Tony

PS: Are you a Hawk fan because of UofI?

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/6/2007 9:45 PM (GMT -7)   

Dear Hawkfan,

 

 

*&^%$#@    WOO ~ HOO!!  (*&^%$#  undetectable!!!!!!

 

                         This definitely feels good!!!!!!!   Thank you for this wonderful posting.

 

Definitely!!!!  Time to heal and recover….  Continue to move forward and we will be right there with you.  I am so happy you continued to allow us to walk with you.

 

We all have to do what we need to do ~ to get through this!  And … yes… if we stop and take a look around us we can usually find someone suffering a lot more than us.  But at the moment when we are faced with “the unexpected”…  Our whole world seems to cave in and that’s all we see.  Hawkfan…. There is nothing wrong with this.  It’s call survival mode.

 

But ~ I think you are a little too hard on yourself!!!  Your postings are and will be very important….  So ~ continue moving forward.  

                                           Aahhhhhhhhhhhhhhhhhhhhhh  Nice deep breath sure feels good!

 

Continue with your weight loss and doing what feels good for you!!!  You’ve earned this.

You know mama bluebird’s going to chirp here….. Take care of the little guy!!!  Okay…

We say it with lots of warmth from our hearts to yours….

 

Move forward and enjoy the heck out of your 1st game on Saturday…..

You are a good friend to all of us…. And we continue to care what happens.

 

There are extra hugs coming to you tonight!!!!!!!

In Friendship ~ Lee & Buddy

@#$%^&*($%^&  Group Hug   &^%$#@^&*(#$

~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~  ~

waves of emotions going on here…..

~~~~~~~~~~~#$%^&*   %^&*(%~~~~~~~~~~~~

From the 3 of us...

Lee, Buddy, & Murphy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 3/7/2007 3:37 PM (GMT -7)   
Wonderful news Hawk!!  We all live for one item of good news at a time and each bit of good news is a God-send!! 
You're a champ. Keep up the good work!!  We're all gonna beat this thing!

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/7/2007 4:13 PM (GMT -7)   
Nice numbers Hawk, congrats! We all love that "undetectable" PSA.

My sis worked at Virginia Mason for years. I'm over the mountains in Spokane but would have gone there if we were still in Seattle. We lived there for 20 years.

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 3/7/2007 4:27 PM (GMT -7)   
Hawk Fan

Great to hear the 0.01 number on your PSA test. I hope and pray that you will continue to have low numbers with your continued journey and treatments.
norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test Scheduled for 3-22-07 


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 3/7/2007 5:37 PM (GMT -7)   

Hawk---

I know what you mean about reading post after post with "clean pathology" and negative margins.... love to see folkds in the clear, but can make you get into a "why me?" mood real fast.  Ben's thread is a great one for positive margins and PSA recurrence....Said it before and will say it again - it's not the end of the world or death sentecne to have postive margins, PSA recurrence, or anything worse yet (look at your borther!).  I've talk to a lot a people who were a lot worse off and they're still kicking around!!!

HANG IN THERE!


Sterd82
Age 46
Initial PSA march of 2006: 28
PSA May of 2006: 39
8 of 12 cores malignant
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
Post surgury PSA fluctuated between .04 and .09
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sesions of IMRT Ended Feb 1, 2007


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/7/2007 7:26 PM (GMT -7)   
That's the news that we needed to hear about you! Wonderful!
I look for your posts and you are supportive and positive with all here.
Our happy news today is a PSA of 0.3...so we join you in your celebration!

All the best,
Susan

PSA: 7.96, Positive DRE


<FONT color=blue>Biopsy Left: 1 of 6 Cores Positive



<FONT color=blue>2/09/06: LRP Restage: T3A NX MX


Bone scan, CT scan, Endorectal MRI, Chest XR - neg.



<FONT color=blue>12/06/06: PSA 0.8


<FONT color=blue>03/07/07 - PSA 0.3


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/9/2007 7:30 AM (GMT -7)   
Congrads Hawk!
You have been through the ringer, now just sit back and enjoy that big fat goose egg for a while! Thats great news!!
Your friend,
Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  

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