Since my physical in September, it's been a real rollercoaster. Referral to urologist in October, biopsy and diagnosis in November, agonizing in December - am I being too aggressive in selecting surgery, surgery in January, no problem with catheder and no post surgery problems, much worse than expected post surgery pathology report. Finally, today I got my first post surgery PSA and it's 0.01 !!!
By no means am I out of the woods, but after a month of frustration, this is a start.
I have been a faithful reader - usualy twice a day - of this forum, and really appreciate all of the postings. (Thanks to Benecho for having the "positive margin" thread.) In a couple of my postings this past month, I appologize if I've been a bit testy, but seeing all the signatures with "negative surgical margins" has been difficult. However, I realize that there are those who are in much more difficult situations than my own, and I can only offer my hope and prayers that their situations can improve. My brother was diagnosed in 1995, opened up for an open prostatecmy, but closed right up, and given five years. After he searched out radiation and hormone treatments, he is still going strong 12 years later. Something new may be around the bend, so hang in there.
As for me, I meet with my doctors next week to review the whole situation. Virginia Mason in Seattle does an excellent job having you meet with the doctors from all aspects, giving you information in their specialties, and letting you make your decision. For anyone in the Northwest, I recommend them very highly!! From what I've read, here, other internet locations, and in Dr. Walsh's book, it's time to heal and keep an eye on my PSA. If there is a change - up to .2, or a quick spike, then it will be time to consider more therapy. Of course, I'll listen to the doctors to get their views before making any decisions. For the past month, I've been dreading having to go into more therapy right now.
I've also used this time to help make some lifestyle changes. I'm down 12 pounds from November, drinking more green tea, taking a Sellenium supplement, and just trying to act a bit healthier. (Even the arthritis in my hip feels better.) I've got my first baseball umpire assigment of the season Saturday, and I'll even go behind the plate next week. I use just a female "panty liner" pad when I go out to catch that occasional drop that seems to show up unannounced. I will still be strongly in favor of the laproscopic surgery as a treatment, knowing that one of the best things is that my prostate is in a jar of formaldehide somewhere!
Thanks again for the good thoughts, and I'll try to continue to be a positive contributer to this very important forum.
PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006
1 of 10 cores positive 5% LEFT Side
2 others questionable (small gland proliferation)
Robotic surgery January 19, 2007
Post Surgery Pathology
Stage T3a, Gleason 3+4, positive margins and
capsular penetration RIGHT Side
Post Surgery PSA: March 5: 0.01