nerve damage... how does one know?

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StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 3/13/2007 4:52 PM (GMT -7)   
I imagine this thought has crossed someone's mind here, so I thought I'd toss it out there...

My surgeon told me the nerves were spared during surgery, though I bled a bit more than expected, which could slow the healing process. But how the hell do I know if he's telling the truth?? I wouldn't have a clue if one or both nerves, God forbid, were damaged, would I? And the only way to find out would be to be cut open again, right?
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 3/13/2007 6:29 PM (GMT -7)   

Raheeb and Dave:  I agree wih both of you.  Who knows?

I was also told that my nerves were spared, but as time goes by (and the nerves come alive?) I am feeling some strange sensations down there -- most of the time it is everything but a "you-know-what."  Sometimes I feel like something is biting at me from the inside.  Or I'm blown up with CO2 again.  Or my "package" weighs about 10 pounds.

I think surgery damages everything for a while and we all know we have to get used to our "new anatomies."  Da Vinci is called "less invasive" but my surgeon reminded me that it's not about invasion, but precision.  What happens to your insides is the same as the retropubic procedure with the large incision.  And the insides take a long time to heal.

I am there with you (had the late bleeding too).  I'm hanging in there and hoping for the best for all of us.  There are good healing days and not so good days but we're healing all the time.

AND AS FAR AS THE REAL PURPOSE OF THOSE NERVES -- THE SOUTH WILL RISE AGAIN GENTLEMEN!  LOL 
 
I wish I could say that from everyday experience, but patience is the operative word
 
Best to ya!

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 3/13/2007 7:11 PM (GMT -7)   
Yes, quite familiar with the idea of the nerves being touched and moved around. I'm just realizing/saying, all we have is the doctor's word (and judgment), which should count for a lot, obviously, but... being at 8 months past surgery, and getting only twitches and slight fullness, well, i'm having my doubts, but also I'm asking what I think is a practical question. Sorry to be blunt, but I'm missing the days of raging you-know-whats... *sigh*
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/13/2007 8:15 PM (GMT -7)   
Hey Raheeb,

We all miss those raging you-know-whats. Even us old f___s. But Pianoman said it for me. In fact tonight I was watching the NCAA game and felt like "something was biting me from the inside". And I get twinges every once in a while. That along with getting "a little fuller" gives me hope!

Jim


Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/14/2007 4:21 AM (GMT -7)   
ya guys - we have to keep hope that it will come back..... for us girls, too! :)
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and no further improvement in erections


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/14/2007 4:54 AM (GMT -7)   
Well guys,
Its been quite a while since my surgery and I have to say, I am still feeling stange sensations down under! Don't get me wrong, they are not all bad feelings, just sometimes things feel a little weird. I know what I have now is as good as it's going to get and I'm fine with that. My erections are plenty good enough for intercourse without any pills and my orgasms are fantastic. But what I'm talking about are the everyday feeling I have down there, not sex. It feels like something is missing, especially when I pee. If I start up and have a good flow going and the pressure builds up to the point that I pass gas, my flow just turns off. Its like the gas had my bowel or whatever pushed up against my bladder and was helping me push the urin out but when I passed the gas there was nothing for my blatter to push against and I can't empty it out. Now if I haven't had a bowel movement or don't pass gas, my flow is great and I can get it all out. There are also strange cramp like sensations that come and go in the area where my prostate used to be, not bad or painfull just a kind of acky empty feeling. Maybe all these little pangs may go away and maybe not, if thats all I have to deal with, great! I know I'm a lucky guy and am grateful for what I still have! Better that a dirt blanket, Right Jim???
Your buddy,
Pete
53 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg.  

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