Prostate Cancer Surgery & Reoccurence

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KenW
Regular Member


Date Joined Mar 2007
Total Posts : 74
   Posted 3/17/2007 3:27 PM (GMT -7)   
I mentioned in another post that I had heard of Salvage Proton Beam Therapy for those who have had the dreaded bad news with failed surgery.
Here is a couple testimonials from those who have been through it.
 
Testimonial 1
 
David L... - Foresthill, California
When David L's radical prostatectomy failed, he chose Proton treatment to go after the cancer cells the surgery had missed. That was 5 years ago. Today things are looking great! Following David’s brief testimonial, he relates an inspirational story about his brave friend, “TC.”
Proud to be aboard the Brotherhood. This is an outstanding program. I am a solid believer in the "Proton," and your organization is right on track getting the message out to all those in need. Keep up the good work! Early detection and Proton treatment is the way to go!
10-17-95, the prostate biopsy came back hot in the upper left quadrant of the prostate.
12-12-95. my prostate was removed.
Two years later, the PSA began to climb again.
11-20-97, ProstaScint - UCLA - indicated cancer in the prostrate bed.
1-26-98, City of Hope, consulted with Dr. Wawachi regarding regular or Proton radiation. PSA 7.
4-98, Started Proton radiation - Proton all the way.
Completed Proton, 2nd week of June 98.
So far, PSA is Non Detectable, as of Feb. 2003.
Had no radiation side effects, whatsoever.
That's my history.
Thanks so much, Bob for having me aboard. Looking forward to communicating with all members!
 
Testimonial 2
Steven H.... - Hatley, WI
Like many of our members, Steve’s initial treatment for prostate cancer was surgery. When his cancer returned, he chose proton therapy for salvage treatment.
Following is an email sent to me by Steven H..., a former surgery patient whose cancer had returned. He chose proton therapy at Loma Linda for salvage treatment.
Hello Bob,
I just finished reading the Proton Bob newsletter from June where you were speaking at Loma Linda's Wed. meeting. I was a post prostate surgery guest at Loma Linda starting in January 2006 and finishing up there on March 10th.
Four years after having my prostate removed my psa began to climb and when it reached 0.20 my urologist advised traditional radiation as the next step. I wasn't too keen on getting that done after hearing about the possible damage to good tissues that conventional radiation can have. After pressing my oncology radiation doctor about other treatments he then told me about proton radiation treatment at Loma Linda and mentioned that he had graduated from there some time ago and that his son now is going to Loma Linda. He said that if he were me and could afford the time and expenses, he would go to Loma Linda. After this fine recommendation, and some research and correspondence with Loma Linda the decision was made to go.
The experience as others have testified to, is almost indescribable. Being treated as a guest and with respect at every turn, the opportunity to socialize with other guests, and the professionalism by all the staff is overwhelming. My wife and I came home with many new friends and a very positive outlook on my recovery. Dr. Rossi is indeed an expert in proton treatments and is confident in his practice.
I had my first follow-up treatment after two months (standard for post surgery treatment), and am so elated to say that my PSA was non-detectable. Also, my friend Rex from N.M. who had post-surgery proton treatment at the same time, reported to me that he had the same results.
So anyone out there with ‘returning’ prostate cancer absolutely needs to check out Loma Linda. Bob, when I first contacted you to join your group I was surprised to get a personal e-mail back from you outlining the success of other Proton Bob members who had post-sugery proton treatment. That little note of yours really helped build up my hopes. Thank you. I hope this makes your testimonial pages so that others having similar cases will know that proton treatments for post-surgery returning prostate cancer really are effective. Best Regards, Steven H..., Hatley, WI. Keep up the great work!”
Email: (Edit) contact bluebird to make contact
 
Hope this helps.
 
KenW
 

v      bluebird ~  Moderator for Prostate Cancer Forum

Edit: e-mail address and names edited/masked for your security (click on link)

  **** E-Mail Addresses for Members Only (Masking for Security)

Post Edited By Moderator (bluebird) : 11/7/2007 12:30:50 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/17/2007 3:45 PM (GMT -7)   

Ken... Thank you!  :-)   

      

(direct links ~ just click on the title!  Reminder to click on the REFRESH icon once there)

 

KenW’s previous thread: Proton Beam Graduate

 

pcdave’s thread:  Recurring Prostate Cancer After Surgery and Radiation


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 5/28/2009 5:14 PM (GMT -7)   
Ken, thank you for this post. This is what Pete and I have thought. Pete had the reverse...radiation/seeds/lupron....4 years later the cancer returned...nothing to do then but radical salvage surgery. The doctors at MSK thought that would debulk the original tumor and give extra time. The time after has been hellish for Peter....The side effects from SALVAGE SURGERY AFTER radiation are horrific.

But, like you did...surgery first...then you have the opportunity to do the salvage radiation therapy if the beast returns......But everyone must make his own decision. Some that have had radiation have done well. Di
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09

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