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Posted 3/19/2007 12:41 PM (GMT -7)
I had surgery scheduled for Saturday 3/17 with
Dr. Tewari, in NYC. Rough night beforehand with
snowstorm, we decided to get a rm in city and
take bus in...waited 90 min in the snow for bus...
anyway by the time i got to hostipal on Sat I had
a temp of 102, and (correctly)surgery was cancelled. I worked myself up to this point (4 months, dropped 30 pounds) and may need to wait another 3-4 months..any suggestions for keeping focused, and remaining positive?  Thank you.
Posted 3/19/2007 1:15 PM (GMT -7)
Hello Sinus07,

Sorry about your cancelled surgery, illness and the snowstorm. You are rightly disappointed but have come to the right place for solace, help and information. Let us know your stats because there are people here who probably are in the same place you are with PCa.

Get all the info you can, look for the little things to feel good about, take care of you body and stay with us. We all get well together....

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."

Posted 3/19/2007 2:02 PM (GMT -7)

So sorry to hear that your surgery was cancelled.  I know it is hard to see a date come and go with nothing accomplished - I too had to delay my treatment.  Are you close enough that they could put you on a cancellation list for this doctor hoping  your surgery could be moved up a little faster?

Best wishes.

Dutch

Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.

Posted 3/19/2007 2:46 PM (GMT -7)
Hi Sirius,

Welcome to the forum. Sorry to hear about your set-back on your surgery date. We have had some minor delays in ours as well from weather, etc. and know how frustrating and disappointing it is. Try not to let it get you down, keep excercising, etc. Waiting is the worse.

I also would ask to be on a list in case anything changes in your doc's schedule, cancellations etc. Hopefully they will try to work you in sooner.

Wondering your stats, etc? If you would like to share them.

Tanya
Significant other diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Da Vinci Scheduled: 4/10/07

Posted 3/19/2007 2:47 PM (GMT -7)
hi sirius

what a bummer. i decided against surgery, but I consulted with Dr. Tewari who is top rated. If I had done surgery, he would have been my choice. My wait would have been about three months. All you can hope for is a possible cancellation to get the surgery done sooner--you should look into this possibility. there is no question that getting the top doctors for treatment is a waiting game. knowing that one of the top PC surgeons is eventually going to do your surgery should help you to persevere during the wait. hang in there. best of luck!

dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

Posted 3/19/2007 4:10 PM (GMT -7)
Excuse me, but people are asking for stats. I see it at the bottom of everyone's post.
How do you add to post.
Posted 3/19/2007 4:25 PM (GMT -7)

Sirius:

Click on Control Panel at top of page - click on Edit File and down at the bottom of the page will be your signature box.   Fill in all info there then click Submit.

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.

Posted 3/19/2007 4:26 PM (GMT -7)
Hi,

Click on "control panel" towards top of this page on the left in the smaller blue bar. Then click "profile". Scroll down to "signature" Type info in there that you want to include at the end of posts, and it will show up on every post.
Significant other diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Da Vinci Scheduled: 4/10/07

Posted 3/19/2007 5:21 PM (GMT -7)
Welcome Sirius: Sorry to hear about your cancellation, what a pain in the neck. I guess if I were you, I'd try to look at it this way -- for some reason GOD, the Universe, or whatever higher power you believe in, did not want you to have surgery on the 17th. Sounds like you have a top surgeon and it will be worth the wait. And I know from experience that there is a strong chance you will get in sooner than 3 or 4 months from now. In my case, I expected to wait at 6 to 8 weeks for surgery at City of Hope and then a cancellation came the week after I got on the list. That led me to believe that there are cancellations all the time because of the myriad of treatment options available for PCa. (Guys probably change their minds about their preferred treatment or perhaps have health-related issues that result in their having to cancel.) So hope for a cancellation and stay in touch with your surgeon's scheduling person, reminding them that you are anxious to get your procedure done and ready to go when they are. We all know the waiting is hell. But there is a reason for everything and for whatever reason, your surgery wasn't meant to be on the 17th. Hang in there. You'll be fine. 54 years old PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1 DRE: Negative Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6 Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007 Post surgery pathology – Organ confined, Gleason still 6, margins clear. First post-surgery PSA -- Undetectable, 2/20/07 Post Edited (PianoMan) : 3/19/2007 10:43:15 PM (GMT-6)
Posted 3/19/2007 9:49 PM (GMT -7)
Dear Sirius 07, How about this take: maybe your survival instinct actually protected you? What if your internal alarm system, call it intuition, sixth sense, gut feeling, or call it your higher self, knew somehow that the 17th was not the optimum day for your surgery. You were going along, all scheduled, having gotten yourself in shape, planning and so ready to have it over with that you couldn't really hear your inner voice telling you it was not the right time. So maybe nature and your will for self-protection really, in fact, took the best care of you, the highest possible good! At the very least, I would guess that you were really in a stress state, immune system perhaps compromised, which is not the best way to go into surgery. Illness is nature's way of telling one to slow down, right? Anyway, can you take a trip to a warm climate in the next three months? I wish you the best, most healthful state of mind and body when the time comes for surgery, and may your surgeon have steady hands and a good night's sleep! All my best wishes for an easy next few months....look for the blessing in the wait....I am sure there is one! Kindest Regards, Becky Age 51 Gleason 3+3 PSA from 3.2 to 4.3 in one yr Biopsy 11/06 DRE negative 4 of 12 cores positive, one lobe, less than 10% Inflammation only second lobe Stage T1C Clinical Dx PSA prior to surgery: 3.9 Da Vinci Prostatectomy 2/27/07: PCa in BOTH lobes 5-10% of gland Gleason 3+3 Negative tissue margins Bladder, seminal ves, vas deferntia negative Two inguinal hernia repairs Catheter removed 1 wk after surgery Full continence (no pad needed) 1 wk after surgery Full potency, 12 th day after surgery    
Posted 3/21/2007 10:22 AM (GMT -7)
Hi ~   Sirius07    &   Loved Ones,       A    “Special”   Warm Welcome   to   You!       I know we can “all” make “Your Journey” smoother just by being here for you!   This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...   It helps “all of us” ~ to help you ~ if we know where you are on your path. So ~ Please stay with us and take our hand when you need it!   Keep posting.... OKAY!!     KNOWLEDGE IS POWER... and POWER conquers fear   YOU MAKE THE DECISIONS… YOU HAVE OPTIONS… ~ and ~ Your decision will be the right decision for you!!!     We invite you to visit our personal thread in the signature area below . Our thoughts and prayers will be with you as you continue to move forward with your decision.   In Friendship ~ Lee & Buddy   “God Bless You” It's a little prayer   ~   "God Bless You" ...but it means so much each day, It means may angels guard you and guide you on your   way.   (Direct Link ~ just click on the title below and a new window will open!   Reminder … click on the REFRESH icon once you get there) Helpful Hints for New Members... Hope this helps you! :) mama bluebird - Lee & Buddy… from North Carolina Link to our personal journey…>>>      Our Journey ~ Sharing is Caring   April 3, 2006  53 on surgery day RRP / Radical Retropubic Prostatectomy with "wide excision" PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate 2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)
Posted 3/21/2007 10:34 AM (GMT -7)
Hey Sirius ~   Glad you joined us and we will help to get you to your surgery date!!! Keep up the good work with losing your weight…. You’ve just added a tremendous “Plus” to your recovery/healing time… Make plans to continue your exercise program this will help with the stress.   Are you doing your kegels and stairs (stairmasters)?   If not you can add this to your program.     Will look forward to seeing your specifics…. Age, PSA, Gleason, and Where are you located that you have to wait?   Hopefully you’ve recovered from the 102 temp… we’ve had a bug around our town that continues to creep back up on people 2 & 3 times…. So we really hope you are doing well…..accept for the waiting....    Visit with us on CHAT anytime... Just sign in and someone may show up.....  and this definitely helps!!!!   In New Friendship ~ Lee & Buddy mama bluebird - Lee & Buddy… from North Carolina Link to our personal journey…>>>      Our Journey ~ Sharing is Caring   April 3, 2006  53 on surgery day RRP / Radical Retropubic Prostatectomy with "wide excision" PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate 2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)
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