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wittler
Regular Member


Date Joined May 2006
Total Posts : 104
   Posted 3/19/2007 3:49 PM (GMT -7)   
Hello Everyone Old and New,
 
  I am sorry for the long loss of contact. I have missed everybody very much. This site was such a God send for me and Tom.  Our life has been nothing but caos lately, but what can you expect with 7 kids between us? Tom is doing very good, although he would probably say different.  I judge life by the PSA score, and so far we are still undetectable.  We did have a scare with his second test though.  The first post op was -0.0 and the second was a 0.1. Immediately the Dr did a repeat because we had used a different lab that was notorious for giving elevated Psa and the repeat came back -0.0.  Tom's erections are sometimes weak, and sometimes not so weak. Sometimes we use cialis, but most of the time we don't.  We have a pump, but have only attempted to use it once.  I really don't think we need it. He definitely has a nerve left, we just need to give it physical therapy. He is still having some urinary issues, but other then phantom leakage it's not from the surgery. It's from a stretched out bladder due to excess beer storage.  We just didn't know he had the problem until we became regulars at the urologist office.  
  I am hopeful that you are all well and hold strong. If not, we will all get through this together. I look forward to catching up with you.
 
Kate
 
 


Kate
 
My Husband is 52 yrs old
* Diagnosed 7/13/06 with 11.4 PSA, Gleason 7,T2b.
* Negative Bone and CT scan.
* Had Open Radical Prostatectomy on 9/18/06
             Prostate Path Report
* 75% of the prostate was affected with cancer.
* Gleason was reduced to 6, had negative nodes  
   and negative margins.
            Where we are today (3/19/2007)
* First & second post-op PSA is -0.0
* One light pad per/day (just incase)
* Cialis works like a charm, but don't always need it.

Post Edited (wittler) : 3/19/2007 4:54:30 PM (GMT-6)


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/19/2007 4:04 PM (GMT -7)   
Hi Kate,
Its good to hear from you and that all is going well! I'm interested in what you wrote about Tom having a stretched out bladder from excessive brew?? If you have time I'd sure like to hear more about it. Although I know I've healed about as good as I'm going to get, I still have some problems. Some may be related to over indugence when I was younger and dumber! God bless you both.
Your friend,
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06, Erect, Dry & Lovin Life!!! I am's what I am and that's all that I am!!! 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 3/20/2007 6:20 AM (GMT -7)   
Hi, Wittler - good to hear from you! Sounds like things are progressing very well. That PSA scare must have sent you reeling. Please don't go away - you're a veteran, now!

Excess beer storage? I think many of us could be in trouble...
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/21/2007 10:48 AM (GMT -7)   

Yea!!! ~  Kate & Tom,

 

It is so good to hear from you!!!  We’ve missed you…. :-)

Thank you for the update and its good news all the way around.

 

I think it’s only fitting that Tom gets his “2”

*&^%$#@    WOO ~ HOO!!!!’s  (*&^%$#  undetectable!!!!!!

 

This is a goal that we all strive toward after surgery/treatment...

You are always in our thoughts and prayers…. And we keep you close when we are posting by quoting you!!!!  STAY STRONG….

 

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


aztec1958
Regular Member


Date Joined Feb 2007
Total Posts : 94
   Posted 3/21/2007 12:58 PM (GMT -7)   
I'm new here but it is good to hear good news for anyone. Congrats on getting your lives back and I hope you keep getting good news. You are a becon of hope for all of us who have just started this ordeal.

Alex

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 3/21/2007 12:58 PM (GMT -7)   
hi Kate, so good to hear from you! wow, 7 kids - that's a handful! please say in touch, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


wittler
Regular Member


Date Joined May 2006
Total Posts : 104
   Posted 3/21/2007 3:55 PM (GMT -7)   
Pete, GreenAcres, Lee & Buddy, Alax and Kat,

It's good to be back. Just sitting down and taking a time out from my crazy life is half the battle. I'll make this my own personal happy hour.

Pete - My loving husband has been a beer drinker for at least 35 years non stop. At this time, a normal day will involve a six after work. And maybe a 12 pk on a day off (he quite a tolerance built up). For most of the last decade he did service calls at work and would go many hours between bathroom breaks. He says he would just hold it until he didn't need to pee anymore (very bad). With that sort of treatment, his bladder is now twice the size it should be. Our urologist says that his bladder will hold 1000mLs. He says 400mLs will make a healthy bladder want to pee your pants.
The problem with a stretched out bladder is that it looses it's tone and strength to push the urine out. So most of the time it doesn't fully empty. Long story short, the Dr wants him to try "self cathetering" at night before bed to empty his bladder completely empty. This will hopefully help shrink his bladder over time, as well as give him a good night sleep without getting up to pee. I'll keep you posted on the progress.

GreenAcres - It's good to here from you too. How are you and your husband? That PSA scare sent me reeling. Just a 2 minute phone call put me right back to the beginning. Crying and praying.

Mamma Bluebird - I missed you terribly. Over Holidays I found the best bluegrass Christmas music cd. I thought of you both every time I listened to it.

Alex - It is nice to meet you. I will look up your posts to get to know your story. This is truly the best place to draw strength.

Kat - A hand full? Heck, there are days I feel like I'm running the circus. He has four and I have three. In the beginning we had six living at home with us full time. Now we a down to four with 9 yrs until the youngest is out of high school. We are a strong couple.
How are you and Jeff doing?
Kate
 
My Husband is 52 yrs old
* Diagnosed 7/13/06 with 11.4 PSA, Gleason 7,T2b.
* Negative Bone and CT scan.
* Had Open Radical Prostatectomy on 9/18/06
             Prostate Path Report
* 75% of the prostate was affected with cancer.
* Gleason was reduced to 6, had negative nodes  
   and negative margins.
            Where we are today (3/19/2007)
* First & second post-op PSA is -0.0
* One light pad per/day (just incase)
* Cialis works like a charm, but don't always need it.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 3/21/2007 7:22 PM (GMT -7)   
Glad to hear form you, Kate. Also glad it's you with seven instead of me!

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!
Began IGRT January 23, 2007. 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 3/22/2007 6:18 AM (GMT -7)   
And we think two adults to one small dog is a handful! :-)

In find the bladder explanation very interesting. I used to do that as a child - when I was too shy to ask where the bathrooms were. (My dad's a minister and we spent a lot of time in hospitals and other people's homes.)

On another note (beer, etc.), while many things are not "good" for us, a vice or two isn't all that bad if it gives us a little something to help unwind, especially when you push hard all day! (That's my story and I'm sticking with it.)
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


wittler
Regular Member


Date Joined May 2006
Total Posts : 104
   Posted 3/22/2007 1:25 PM (GMT -7)   
Oh, don't get me wrong... Not once was "cutting back" uttered by either of us. He loves his beer and I would not expect him to go dry. I personally am a mixed drink kinda girl. Besides, beer is not the sole culprit. At least I don't think so. As far as the condition itself, I "Googled" it last night and there is a forum dedicated to bladder control issues that had a few interesting threads on stretched bladder problems. I didn't really and truly realize what a big deal it could be until I read some of the posts.

So the moral of the story is... Don't Hold It!!!
Kate
 
My Husband is 52 yrs old
* Diagnosed 7/13/06 with 11.4 PSA, Gleason 7,T2b.
* Negative Bone and CT scan.
* Had Open Radical Prostatectomy on 9/18/06
             Prostate Path Report
* 75% of the prostate was affected with cancer.
* Gleason was reduced to 6, had negative nodes  
   and negative margins.
            Where we are today (3/19/2007)
* First & second post-op PSA is -0.0
* One light pad per/day (just incase)
* Cialis works like a charm, but don't always need it.

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