Hi B&B -- A few thoughts.
Your husband's progress with the erectile and incontinence issues is remarkable, considering that he is only about a month out of surgery. I had a 95 percent erection about two weeks out of surgery and it has not happened since. Orgasms do happen though.
The nurses at City of Hope explained that as the internal swelling goes down and the area (including the spared nerves) heal, things change once again. We may feel funny sensations from time to time, which I have. Some days I feel as though I never had surgery. Others, I feel sensations like a finger trying to poke its way out of the area where my prostate used to reside. It can be anywhere from just behind my scrotum, straight back and continuing to right above the crack of my you-know-what. It's like a gentle tap tap tap thing.
My theory is that when the nerves are spared and are no longer attached to a prostate, they become ships without rudders (or vice-versa), wondering what they are supposed to do next. And they do funny things.
One fallacy I've discovered in talking to guys who have not been through PCa is they think we lose sensation in our penis, which we do not. Another is that you cannot achieve orgasm without an erection, which is false. (I guess some guys never had enough drunken sex in their lives -- LOL!
On the lighter side, I keep alluding to the idea that we PCa suriviors are now more like women in so many ways.
!) Like women, we have only one sphincter to control our urethra, which means we can experience incontinence in varied degrees
from laughing too hard, sneezing, etc.
2) We can pee on command much faster and easier than in the past. A dentist friend of mine and fellow PCa survivor recently said to me, "When you're in a public men's room, you can always tell which guys have had their prostates out -- they just let it rip while the other guys stand at the urinals, trying to work things out."
3) AND MEN -- SINCE WE NOW HAVE DRY ORGASMS, WE CAN FINALLY "FAKE IT" TOO! THERE'S NO NEED FOR US TO DELIVER PHYSICAL EVIDENCE ANYMORE!! We can just say, "Ooh, aah, Ooh, ahh," and do a few Kegels at the alleged time of climax and she'll never know the difference!
But that's a secret fellas! Keep it under wraps! LOLOLOLOLOL
(Hope I don't get thrown out of here.)
54 years old
PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1
Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6
Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007
Post surgery pathology – Organ confined, Gleason still 6, margins clear.
First post-surgery PSA -- Undetectable, 2/20/07
Post Edited (PianoMan) : 3/25/2007 5:55:20 PM (GMT-6)