Posted 3/25/2007 10:55 PM (GMT -6)

Gentlemen, I commend you! 

Who of you ever thought that "sex toys" would be prescribed by doctors...that you would be proud of peeing like racehorses next to your unamended counterparts in the urinals...that you would experience exquisite feelings without benefit of the priapus you thought was so important, once...

None of it really matters, except for a tender look of love in your direction, a broad smear of yellow, pasted on the hills in Spring, and a fresh, brightly inhaled breath as you survey your domain, each in your corner of the world, hurrah!

Becky

 

 


Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Posted 3/26/2007 7:29 AM (GMT -6)
Pianoman, you are making me laugh too much this morning! Becky, Jeff says his orgasms are better than before - more intense and longer, and there are still contractions. we both like the fact that there is no semen....no mess! He says somedays he has the sensations of getting an erection, other days he doesn't. I think it's great to read all the research, but realize that we are all a little different from each other. I know the people who wrote the article are experts, but I've never heard that 80% of men will lose the ability to have an orgasm after surgery. I'm glad I hadn't read that before! hang in there and keep doing what you can; heck - it's just been a month. :) kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump

Posted 3/26/2007 9:35 AM (GMT -6)
Thanks M.Kat and everyone...I still have research to do...the quoted study was done in 1996; who knows how many had nerve sparing in it, and perhaps the study was conducted of men who already had complaints.

However, I am surprised at the lack of discussion about quality of orgasm on the websites devoted to prostate cancer education.

You are so right about how different each of our husbands are recovering!

B's doctor never mentioned use of a pump; only daily Viagra. He and all the suppport staff were quite insistent that it be used every evening. We were told to use Viagra, but no one talked about stimulating the organ. I have learned so much in here. Because of this site, I realize how important stimulation is to recovery.
 
Since first intercourse on Mar 11, we have been having sex every other day---a step up from pre-PCa for these 50+ year olds! According to B, the sensations are excellent up to the point of no return, then there are the contractions of orgasm, but they're "empty".  He noted some better feelings during the orgasmic contractions at last sex on March 24.

Becky


Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Post Edited (B&B's World) : 3/26/2007 8:47:31 AM (GMT-6)

Posted 3/26/2007 10:33 AM (GMT -6)
Becky and Pianoman
 
Ouuuutstaaaanding Pianoman!!!!!!!!!!!!!
never thought of the fake orgasm. Boy will this get us out of future tight spots.
One of the problems regarding urinating without a prostate is the backsplash. I have to be careful because the stream is so powerful i get a lot of backsplash from the urinals which gets on my pants.
Becky: except for the incontenence and waiting for ED recovery I would recommend eveyone get rid of the prostate. My orgasms are a lot more intense than pre surgery. My whole body feels like it is convulsing at the climax now, not just the penis. Added benifits, no gagging, wet spots or clean up from M***tion. You just zip up, done, no muss, no fuss,thank you very much!!! 
 
Hope this helps your research tongue tongue tongue tongue tongue tongue tongue tongue
Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 

Posted 3/26/2007 5:55 PM (GMT -6)

Responding to posting on pcdave’s  help thread re: taking polls!

 

Hey Becky,

There may be something in these.. but not sure….  I will be placing a special note on the Helpful Hints page to remind members that titles with specific info in them… helps when searching for them in the future.  I have found it very difficult to find some things I know are there….

Hope this helps!!  J Lee

 

Links… click on Refresh when you get there

Sex After Radical Prostatectomy - HealingWell.com Forum

Sex and Incontinence - HealingWell.com Forum

just found out - HealingWell.com Forum

Vacuum Erection Device Recommendations - HealingWell.com Forum

Introduction to Prostate Cancer - HealingWell.com 

Recovering from Robotic Prostatetectomy - HealingWell.com Forum

Total Incontinence After Prostatectomy - HealingWell.com Forum


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Post Edited (bluebird) : 3/26/2007 4:58:16 PM (GMT-6)

Posted 3/26/2007 11:13 PM (GMT -6)
Thank you, Bluebird!
I noticed that there are two search buttons in here, the "search site" on the top and the "search" on the slightly lower right. I am not sure if there is a difference,  but I have been trying to use the lower right. Thank you for your guiding hand, always appreciated.
Becky 

Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Posted 3/27/2007 8:25 AM (GMT -6)

Hello folks,

Mind if I put in my two cents? Unlike most of the guys have replied to you Becky, my surgery was over 3 1/2 years ago. Chances are you haven't read any of my post concerning this subject because they are so old. So I may be repeating myself to some of you long timers, I'll take that chance if it helps out the newbees. I didn't have a doc that told me anything about what to expect after surgery or maybe I was in a state of shock and didn't pay attention. No Viargra, no pumps, no theropy at all and although I was lucky that I didn't have any problems as far as leaking and didn't use pads after the first week, I had no idea what the future had instore for me. I didn't belong to any online forums like this one so I was totally ignorant when it came to my post RP heath. I was able to get a usable erection by 3 months when the doc said it was OK to have intercourse. My 1st orgasm scared the crap out of me! and it did hurt a little, especially inside where my prostate used to be. I had all the contractions and yes, it did last longer but I wasn't sure that I enjoyed it compared to presurgery. Something was missing! My story gets way too involved to tell y'all about here and now so I'll make it short. I went into a severe depression which lasted about 3 years when there was hardly any sex at all and twards the end none! It turned out to be low testosterone causing all my problems which thanks to my friend Swimom, I've finally got under control. I thought my penis was done! through dealing! shriveled up little hard nub that was going to be useless for anything except peeing! I was wrong! I'm back and it grew back! Granted not all the way but I'm happy w/ what I have and so says the Mrs. My orgasms are now fantastic! I am learning how to use and control them and the length of them is almost unbeleivable. I get so out of breath as I try holding it like I used to. It takes practice but I can get them to last an estimated minute! I never timed them. I don't have any contractions like I used to, you know that pumping feeling like something is going to come out but I have never enjoyed sex more! I'm not sure how my testosterone replacement has effected this but I'm only back to a low average range now. Well I hope this helps! I'd be glad to answer any questions if you have any.

Your friend,

 Pete  


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06, Erect, Dry & Lovin Life!!! I am's what I am and that's all that I am!!! 

Posted 3/27/2007 10:13 AM (GMT -6)
Dear Pete, I am most grateful for your information. You were about the same age as my husband when you had your surgery. I am happy to see that you have not had a reoccurance of PCa. Your post makes me think that I want to know more about low testosterone; it seems that several of the guys in here suffer from it...why? Does it have anything to do with PCa treatment? Actually, I wouldn't mind hearing the long version about "something missing", because that was what prompted the creation of this thread! The other thing your post punctuated is the difference in orgasmic feeling after prostatectomy. Most men, so far, have reported extended orgasms, even if the feeling is altered (most, to the better I think). Some of the studies I have perused talk about how much orgasm sensation is felt from the brain.

I think I will start a poll to find out whether the doctors addressed the possibility of altered orgasmic function after surgery.

Again, I so appreciate your sharing such personal information...it really, really helps.

Becky

Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Posted 3/27/2007 12:51 PM (GMT -6)
Becky,

If you read the different hypogonadism causes in here, everyone appears to have a different reason. Paul had cancer, Biker's is from a congenital problem and Pete....well lets just say Pete thought he was a crash dummy as a younger man. The vhicles didn't hold up well but Pete sure did! Not sure about the other 2-3 guys.

Swim
Posted 3/27/2007 10:14 PM (GMT -6)
Group:
 
I have finally stumbled onto this chat forum, having searched for some time to find others dealing with these post prostatectomy issues.
 
I had a Gleason 3+3, T1C small tumor removed by DaVinci system in 1/06, so I'm just over 1 yr out.
All my PSA numbers are, clinically, zero.  So that's good.
 
Continence fine...still have light pad and very minor mostly "stress" leakage, but for the "ease" of urinating now, it's a small price to pay after years on Flomax.
 
Reading the posts, I am in the group with "no problem" on orgasm...very intense and, generally satisfying.
 
My question is more one of mechanics: even with Viagra (and recently, Levitra) at "hi" dose levels (100 Mg Viagra, 20 mg Levitra), my erections are 50 -75% at best. (By the way, had very bad headache on Levitra and probably won't continue with it).
 
So...while we CAN get to orgasm, it isn't easy to manipulate and make it happen.  And...there's some leakage of urine when it does.
 
I have the vacuum pump, but haven't tried it yet.
 
Any comments from the "pump" users?  Would it be easier to stimulate using the "pump" for better erection?
 
Thanks...I'll try to help others with my story as well, if any are interested.
Posted 3/28/2007 6:58 AM (GMT -6)
Becky,
To answer your question about something missing let me start by saying your husband is doing GREAT so far! There is still a lot of healing going on "down there" and it will take some time before he gains full feeling back from those nerves that were disterbed. But he will, I'm sure of it! The "empty feeling" he describes is understandable. We guys were used to exploding at the end and delivering "the goods" if you know what I mean. Now that that part is gone, I'm sure he feels the "something missing part" I was talking about. Now I beleive we have to relearn how to enjoy this new and different orgasm that we have. It gains speed much slower than it used to and does not just end like it used to either. His orgasms will continue to get better and better as he heals. Most of the guys I've talked to say it lasts longer and as I said it certainly does for me. The peak can last longer also although it may not be as intence as before with the ejaculation and all, the sustained orgasm makes up for it for me anyway. Some guys including myself morned the loss of our ejaculation and miss it and some guys don't. But we must get over it because its gone and for me over time I also lost the contractions or "dry heaves" that I used to experiance. After time and much practice, I've learned to use what I have and suprisingly it has become wonderful for me. Like I said, I enjoy sex more now than ever, its different but learning how to ride that orgasm has changed everything. Now as long as I heart can handle these new long powerful and extreamly pleasurable orgasms, I'll be fine. I hope this has helped you and your husband, it certainly isn't an easy thing to describe. Please Becky, if I've said something you don't understand, ask me and I'll try to reword it for you. Have fun and keep practicing, your husband will be fine. It takes time, but he will be fine.
Your friend,
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06, Erect, Dry & Lovin Life!!! I am's what I am and that's all that I am!!! 

Posted 3/28/2007 9:33 PM (GMT -6)
Dear Pete,

I am so appreciative of you right now! I just read both of your recent posts to my husband, and he laughed along with me; I could hear some relief in his! I invited him to visit this place of comfort and, by gosh, I think he will soon.

You have done a wonderful job in describing what is obviously difficult to do even in the most normal of circumstances, so candidly and kindly.

Kindest Regards,

Becky


Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Post Edited (B&B's World) : 3/28/2007 10:47:04 PM (GMT-6)

Posted 3/28/2007 10:25 PM (GMT -6)
yes quality is decreased after surgery, for me--1 I can't get it up but 2 a muscle spasm is possible--this is 30 days post op w/ no meds
-g------ps muscle spasm feels very similar but no ejectulate---just the facts jack--better than cancer multiplying
Age 47 excellent health
First PSA test ever 12/06 was 17.2
Biopsy - Gleason 3+4=7 involving all core biopsies 80% on right and 30% left
DaVinci 2/28/07
Post-op biopsy-Gleason 3+3=6 Stage 3Tb
Lupron shot 3/15/07, no PSA level yet.

Posted 3/28/2007 10:42 PM (GMT -6)
Okay, 1588ap, you are only 30 days post surgery, just about where we are. What I want to know is, why aren't you using meds? Our doc said it is very important to get the blood to the organ--very important--what did your doc say? Also, aids told us that some men don't like to take the meds, so are you using a pump? Thanks for your post.

Becky

Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery

Full potency, 12th day after surgery
 
 

Posted 3/29/2007 6:33 PM (GMT -6)
I'm registered with the website and have posted comments and questions. Thanks so much to all of you for the valuable information. I'm still anxious and conflicted about my treatment options but am working through it. I am interested in starting my own thread. I'm pretty computer illiterate and haven't fugured out how to do that. Can someone walk me through it? THANKS.
Posted 3/29/2007 7:07 PM (GMT -6)
up at the top of any thread, on the left, immediately above where the message starts there are three gray "buttons" ... one of them is "new topic".

Click on that and it will open a brand new thread ... put in your topic in the title area that will pop up then post your question, etc. It will show up as a new thread.

Tanya
Significant other diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Da Vinci Scheduled: 4/10/07

Posted 3/29/2007 7:09 PM (GMT -6)
P.S. just noticed the same buttons are at the bottom of every thread too, so you can click "new topic" here too (at the bottom of a thread) and start a new thread.
Significant other diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Da Vinci Scheduled: 4/10/07

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