Injection therapy

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EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 3/25/2007 1:30 PM (GMT -6)   
It has been 18 months since my robotic prostatectomy. I had almost instant success with continence and have worked hard to overcome ED. I am not satisfied with the limited success I have experienced with Viagra and the vacuum pump and have decided to try the injections. My doctor wanted me to do this in the first six months, but I was squeamish. I think I am ready now. My first appointment at the ED clinic of the university medical center where I had my surgery is on Monday afternoon. My doctor uses tri-mix. Can anyone who has been through this give me an idea of what to expect at the first appointment? Thanks.

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/25/2007 1:38 PM (GMT -6)   
Can't help but am pulling for you. Our first appointment for the same thing is Wednesday. Will be watching your posts! Annnd good luck!
;o) Bob & Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/25/2007 1:53 PM (GMT -6)   

EB02,

What you can expect is exactly what you can imagine.  In my case I met with my surgeon's PA who handles all of the penile injections for this university based urologoc surgical clinic.  The PA came into the exam room and asked some basic questions about where I was at with ED and what my experience was before surgery which was good.  The he began discussing the three types of medications, Caverjet, Bimix and Trimix.  He told me that he wanted to start with Caverjet because it had a reputation for lower complications with priapism and Peyronies.  The he went out and came back with the injection.  The injection itself was not bad at all as the needle is an insulin type of needle.  What you have to be prepared for is to watch him give the injection so you kow what to do.  He stuck it in and then pulled it out a little until he got some blood and then pushed the plunger slowly.  He then left and said that he would be back in 15 minutes to judge the results.  Almost immediatley I began to get an erection but I also had some pain along the length on my penis and on the top.  He came back in about 10 minutes and felt my penis and said that it was about 70% erection.  He noticed that I was pale and said that the Caverjet can make your blood pressure fall.  Aftre lying donw for a few minutes I was okay.  I then left the office and got in the car.  The erection conitnued to get harder and the pain grew to the uncomfortable but bearable level.  It was a two hour drive back home and the erection did not start going down until I got home.  I continued to have penile aching for the next three weeks.  I talked to the clinic and they then prescribed Bimix which I have not tried yet but probably will shortly.

In the research I have done the Trimix is better for the pain then the other two.  You might want to take some ibuprofin or something prior to the appointment.  They will start you on a minimum dose and see what the response is and then they will tell you what to try the next time.  I too do not like what I am getting with Viagra and the pump but it has only been about five months since my surgery. 

My surgeon told me that they have hundreds of men on injections.  I am not sure how to take that.  You can look at it and say that most men can handle the injections or you can consider that like you a lot of the men are not getting their natural erections back and this is what they have to do.

I am very interested in what your results are so please post them once you have had the injections.

Tamu


Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 3/25/2007 2:38 PM (GMT -6)   
Tamu - The practical question that I am concerned about is how do you conceal the erection to get from the doctor's office to the car? Any suggestions? From anyone?

mrscow
New Member


Date Joined Mar 2007
Total Posts : 2
   Posted 3/25/2007 2:39 PM (GMT -6)   
In an earlier post in response to Linda and Bob's question as to what to expect from the dr.'s visit regarding the shot, I must concur with TAMU's description of the results. My husband had much less results from the shot in the office. His is the tri-mix variety. It seems that when we inject in the proper spot he gets an erection that is painful and long lasting or if injected NOT in the correct spot (you never are really sure it seems) he gets little reaction at all. Saw the dr. Friday (PSA 0.00 Woo Hoo!) and discussed with him the reason this is happening. Well, he had no explanation but says to continue as we have been. At this point, hubby prefers to use Cialis and pump with an occasional use of the shot. Has anyone else experienced this with the shot? It has us mystified. Thanks to all.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/25/2007 5:58 PM (GMT -6)   
EB02,

The day i had the injectionI wore a wind breaker that was long. I just zipped it up and went on. The erection was still flacid enough that it would bend but I have to admit I wished that home had been closer.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 3/26/2007 2:44 AM (GMT -6)   
Very interested in this thread. I went for my first appointment to discuss injections with my surgeon's physician's assistant. He explained it all to me, and I decided against it for now. I was told that getting injections would not hurt my recovery in any way, and that it actually might help them determine if the nerves are OK. He said sometimes the injections help the nerves "wake up".

I think (!) I'd be OK injecting myself, but my main hesitation right now is that I have heard people here describe having painful erections. If I don't see more signs of recovery soon, though, I will give the injections a try, maybe as a backup option to the pump and Viagra/Cialis. Another concern I have is the long term effects of the injection drugs, and scarring of the penis.
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
number of pads/day at 6 months after surgery:  0 to 1
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 3/26/2007 8:03 PM (GMT -6)   
I went for my first injection today. I was actually more apprehensive than the day I went for surgery. A male nurse runs the ED clinic at the university medical center where I had my surgery 18 months ago. I had not been to see him in about a year since I had hoped to eventually regain potency using the vacuum pump and Viagra.

First, the nurse reviewed my status and inquired about my use and effects of the pump and Viagra. Then he explained the injection therapy. The overall goal is to find the right dosage that will give me a medically induced erection that will last for one hour. Once I am on my own, I can lower the dosage if I want less than an hour, but I should never try to attain an erection that lasts more than one hour. During this first appointment, he determined a starting dose based on my description of what level of erection I have been able to sustain with the pump and/or Viagra. I will report back to him at the next appointment how long this erection lasted and then he will supervise my self-injection of an adjusted dosage. I will report back on the duration of that erection and then the doctor will issue a prescription recommending the maximum dosage that I should use on my own. The nurse explained all of the details of the pharmacy and gave instructions for how I am to regulate use of the pump and Viagra once I begin the injection therapy. He will want me to produce at least one erection by injection every ten days whether I use it or not (I don't think after all this it is something I would waste). There has to be a gap of at least 48 hours between injections and no more than three injections in a 10 day period.

Prior to injection, I asked about painful erections that I had read about in this forum and elsewhere. The nurse explained that one of the three medications in the tri-mix has been known to produce pain in the shaft and tip of the penis, and if that occurred, we could reduce to bi-mix, eliminating that medication depending on my tolerance level. However, he cautioned that the erection would probably not be as firm. I also asked whether he thought I would need the injections permanently. He said that he still considers this part of a therapy regimen that I should continue in conjunction with the pump and Viagra. He indicated that some patients eventually no longer need the injections, but that others need or choose to continue them indefinitely.

He explained the procedure for injection and then told me to drop everything so we could begin. When the needle has been prepared, you pull on the head of the penis to stretch it out and then turn it sideways, either to the right or left. He injected me on the left side today since you alternate sides and he thought it would be easier for me to inject the right side next time since I am right-handed. The needle is inserted directly into a position at either 9:00 or 3:00 near the middle of the shaft, wherever there is not a blood vessel. He noted that I am at an advantage because my veins and arteries are distinct. Immediately after the injection he said to press firmly on the injection site and to knead both sides of the penis in order to spread the medication and keep it in the penis. After I did this for about a minute, he told me I could pull my trousers back up and wait.

It didn't take long before I felt stirrings and had to adjust my pants. After about ten minutes, the nurse asked me to drop trou again and he checked on the firmness of the erection. He suggested that I pull on it to get an idea of how actual stimulation can cause growth. Although this was not the proper setting for further discovery other than a brief tug, I could tell that the injection definitely produces a usable erection. I had hoped for more in terms of size, but he explained that he had given me a very conservative dose since I had reported in response to his earlier questions that I normally retain some "chubbiness" on my own after using the pump. He will use a greater dosage the next time.

Even though it was a very warm day, I had carried a lightweight jacket so I would have something to hold in front of me as I scheduled my next appointment and went to the parking garage. The erection lasted for most of my drive home. It was not painful except for a minor dull ache from time to time. The greater discomfort was from the tightness in my clothing. It reminded me for the first time in a long time of the uncomfortable erections that would sometimes sprout spontaneously in school when I was much younger (like about 40 years ago - who would have thought then that this would ever be such an effort?). I had deliberately worn a long polo shirt that would cover everything with the shirttail out. I kept my pants zipper down in the car with the shirt over the opening. I was alone. I know others have debated whether the wife should go along. Every marriage is different, but this works better for both of us. I know she'll be there for the full hour when I finally get to self-inject at home.

So that was my adventure for the day. In hindsight, it was all very easy and I wish I had done this a year ago. The shot was not painful and in fact I barely felt it. I think my only challenge in self-injecting will be to make sure I have a good enough view over my belly of the injection site. An added incentive to lose weight. I know many others have been through this and others have reported their experiences here. I hope this helps anyone who is going through this same process or thinking about it. I will report back after my next appointment.

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/26/2007 9:37 PM (GMT -6)   
Thank you so much EB for your detailed and frank description of your day. We go Wednesday and you have relieved some of the suspense for us. Please do keep us all posted . . .we will also share our experiences.
;o) Bob & Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 681
   Posted 3/26/2007 9:54 PM (GMT -6)   
Do most insurance plans and or medicare pay for the injections? If not , what is the typical cost per injection?

I am still trying to get the viagra and pump to work and have seen some improvement. I don't really know what to expect.

Thanks for your help
 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
golf game bad, but active
 
 


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 3/26/2007 10:42 PM (GMT -6)   
My insurance plan, which is otherwise a fairly generous plan provided by my employer, has a specific exclusion for anything relating to "sexual or erectile dysfunctions or inadequacies, regardless of origin or cause." I assume this is typical, although I don't know for sure. I am about 10 years away from Medicare eligibility, but I don't believe the injections are covered by Medicare either. I have been told by others that Medicare will pay part of the cost of a vacuum pump with a prescription and proper documentation. Others with more experience may want to weigh in here. I didn't ask the cost of the injections at my first appointment because the nurse said that will be between the pharmacy and me. I plan to pay whatever it is. I will post it when I find out.

StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 3/27/2007 12:39 AM (GMT -6)   
My urologist's office told me the medication for injections would have to come from them directly - not the pharmacy. Not sure about insurance coverage. As far as my ErecAid pump, I bought a new one at around $500, and was reimbursed slightly more than $300 by my insurance company. I have PPO coverage.
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
number of pads/day at 6 months after surgery:  0 to 1
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/27/2007 8:05 AM (GMT -6)   
We were already given our prescription for Trimix which we were to have filled for our appointment. 5 ml of Trimix cost us $45.71, no coverage and has a 3 month shelf life. We are in Canada.
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/28/2007 7:36 PM (GMT -6)   
Well, today was our day for experience with Trimix injections. EB your post helped us so much. It pretty much went as you explained with yours. In our case it was the urologist who did the explaining.

He appeared in the room and asked the questions about previous sexual function prior to surgery and then about the difficulties in the six months since.

We had our prescription for Trimix filled already and had it with us as instructed. He showed both Bob & myself how to fill the needle and is starting with the lowest dose of .10.

He had Bob drop his pants and showed us both where the needle should be inserted (reminded Bob to be watching - I had to remind him to breathe!)

Then he said to hold the spot for 5 mins and then try and stimulate things and he'd be back in a total of 15.

In surroundings like this it's rather weird to be trying to get an erection, but Bob did end up with the best one he's had in the six months, however, wouldn't be enough to successfully complete intercourse.

Dr. advises to try the .10 next time and then go up in increments of .05 until successful. He thought that for such a low doseage, this was a good start.

He also recommended no more than 3 times per week, which is the most we've heard so far.

This minimal erection lasted a total of an hour and disappeared almost as quickly as it began. . . . .

There has been no discomfort, however, so Tamu . . . you may want to experiement with a different injection for the result you are hoping for as well.

Take care all!
;o) Bob & Linda


Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.

Post Edited (lawink) : 3/28/2007 6:40:51 PM (GMT-6)


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 3/28/2007 8:35 PM (GMT -6)   
I'm glad that worked out for you. It's amazing how what was once unthinkable becomes manageable. From the way the effect of the shot was described to me and the feeling that I had, I'll bet in a different setting with more stimulation this will work out just fine for you. Are you released to go on your own now? My doctor's office requires me to come back and self-inject under supervision before they will send in the prescription. After seeing (and feeling) how easy it was, I'm ready to go now. From earlier readings, I was anticipating the possibility of some pain as an after effect, but two days later, I feel fine. I think tri-mix is definitely the route to go. My understanding is that Caverject is the part of the tri-mix that may cause pain, but apparently it is also one of the most effective drugs. But for me, so far, so good.

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/28/2007 9:20 PM (GMT -6)   
Thanks for the reply EB - yup, amazing what a guy will go through once it becomes a necessity. <<grin>>

Yes we are free to go on our own . . he just recommended using same dose as today one more time before increasing at all, and then to only go up .05 at a time, and never go higher than .50 but we're thinking a slight bit will do the trick, just finding out where.

Do keep us posted as well.

;o)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/29/2007 7:55 AM (GMT -6)   
EB02 & lawink,

Thanks so much for the sharing of your experiences. I have been given Bimix due to my compications with the Caverjet. Bimix does not have that medication in it while Trimix does have it. I have been waiting to hear from the two of you before trying the Bimix. Now I am motivated to give it a try and see what comes up! By the way, my urologist placed the precsription with a compond pharmacy located in Florida. It was $50 for 5 ml.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/29/2007 7:59 AM (GMT -6)   
Thanks Tamu - good luck and please let us know how the Bimix works! 5 ml sure doesn't look like a whole lot, does it?

;o)


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 3/30/2007 7:41 PM (GMT -6)   
Well, I got impatient, so went back to my doctor's office to get injection stuff. Had one appointment before, heard all the details and decided to come back another time. Let 3 weeks go by, and went back today.

Prior to this, I've been having slooooow results with Viagra, Cialis and ErecAid. I have had erections lately on a couple of occasions that are enough for semi-amusement and/or mastur-bation, but not suitable for intercourse.

So the physician's assistant had me put on a robe (that was much too small!) and then proceded to give me the injection. He actually guided my hand to get the injection in, so I guess I was kind of giving it to myself. I went in at a slight angle, something to improve on for next time. Anyway, the medicine is prostaglandin. He gave me what he called a low dose, which he said was a bit less than half of 9 cc. After injection and rubbing it in, he checked back a few times in 5 minute intervals.

The injection itself was a little painful, and certainly one doesn't like to see a needle going into that area! I'll see how I do with it. I did in-vitro with my wife several times and had to give her dozens of injections, so I should be somewhat experienced... I guess!

Anyway, I would say that I got a bit fuller, but hard to tell how much improvement, if any, I had. The PA gave me 3 samples to take home, of 9 cc each. No more than once a day and at least 48 hours between. If I don't have success with those, I am to go back to try a different medication. I'll give these a try. I'm mostly thinking of an occasional alternative to pump/Viagra/Cialis for now, while I (impatiently) wait for healing and a return of some erection capabilities.

More to come...
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
number of pads/day at 6 months after surgery:  0 to 1
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 3/30/2007 10:07 PM (GMT -6)   
Good for you, Raheeb! My doctor believes that the injection therapy actually "jump starts" the recovery process. I hope you have success. We'll be waiting to hear of your progress.

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 4/1/2007 4:48 PM (GMT -6)   
Wow! Now we have a "new" problem . . . . last night Bob decides to try needle number two and after almost an hour of lining up and refusing to poke he threw the needle out and wasted one injection. Anyone else have this problem??? How do you overcome it??? I suggested that I do the poking, but he's not really game for that either. Looking forward to replies.

;o) Linda
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 4/1/2007 7:17 PM (GMT -6)   
Your experience gives me greater appreciation for why my doctor's office requires me to come back and self-inject under supervision before turning me loose to go on my own. I have great empathy for Bob. I remember how hard it was to learn to self-inject Heparin (blood thinning medication) into my abdomen that I had to do for five days before and after my surgery. I had to muster courage all over again each time and I was so glad when the time ran out. I was helped by having had several years of experience of giving twice a day injections of insulin to a pet. I wonder if getting some empty syringes from a pharmacy and practicing on a piece of fruit might help him get more comfortable with the needle and inserting the needle before trying real medication again. Or perhaps your physician's assistant can supervise the next round so that he is more comfortable. This is tough. It really is mind over matter and feeling pressured is going to make it worse. Give him time and space to work through this. This isn't easy. Hopefully others who have been through this can weigh in with helpful solutions. Good luck!

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 4/1/2007 7:31 PM (GMT -6)   
Thanks EB!  He has experience from his farm boy years with injecting cattle.  I think the fear is thinking of WHERE he's really putting this thing.  Although it's only a thin, small needle I think it must look like a blade to him.  skull
 
I'm not putting on pressure . . he's doing that to himself . . .LOL . . . Thanks for your supportive reply.
;o)
By the way, when do you go back????
Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6.  Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER!  Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer)      PSA UNDETECTABLE November 2006 AND February 2007.   
 
Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us.


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 4/5/2007 5:54 AM (GMT -6)   
Well, 2 nights ago I tried again,using a 9 cc dose of prostaglandin.I was away on a business trip at the time, which is when I generally have more time to experiment given that I have a very young child. This time I definitely got an erection that was suitable for intercourse; in fact it lasted a couple of hours and I had to take sudafed and do some exercise to make it go down. I'll have to check back with the physician's assistant, but seems like the 9 cc may be too much.

The other interesting thing was that the erection, while firm, was smaller than what I get with the pump. I am wondering if this is a sign that I did lose some significant length in surgery; what I had with the pump was much closer to what I remember from before. Oh well.
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
number of pads/day at 6 months after surgery:  0 to 1
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/14/2007 6:33 PM (GMT -6)   
I finally got up the nerve to try the Bimix injection. After the bad experience with Caverjet I have been reluctant to give it a try. I injected .20 cc's. I did not have any aching or pain like I had with the Caverjet. The 30 gauge needle was not any more then just a prick. In about 15 minutes I had a good erection probably 90% of a normal erection. My wife and I were able to have sex from any position we wanted and did try a couple. This was the first sex that I have had since the surgery that felt normal. The erection lasted about an hour before it began to go down but took about two hours to get back to normal. I plan to up the dose to .25 cc's the next time and see if that will give me a full erection. Bottom line, the injection provides an erection with a lot more quality and normality then then Viagra and the pump.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07

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