Posted 3/27/2007 1:01 PM (GMT -6)
Your friend should consider active treatment sooner than later with a transition zone tumor. These tumors can grow large causing urinary/pain problems early on and......they tyically have higher PSA's but are actually considered easier to predict. Transition zone tumors tend to have a better outcome compared to other locations when considering tumor volume because of their location. The flairs in PSA are probably tied to a chronic inflamation issue. He does need to see a specialist.
Posted 3/27/2007 6:54 PM (GMT -6)
I did not have pain or other symtoms --only the PSA and biopsy gave me a diagnosis--please keep us posted here-we are all in this together
Age 47 excellent health
First PSA test ever 12/06 was 17.2
Biopsy - Gleason 3+4=7 involving all core biopsies 80% on right and 30% left
DaVinci 2/28/07
Post-op biopsy-Gleason 3+3=6 Stage 3Tb
Lupron shot 3/15/07, no PSA level yet.

Posted 3/28/2007 3:30 PM (GMT -6)
My husband did have pain. It started last summer and his PSA was 2.6. The doctor treated it as an infection and it never totally went away. Then in October, it flaired up again, even worse. He was out of town for a few weeks, so his doc called in an antibiotic and made Kurt promise to come in for PSA when he got home. (I just found this part out last week!) He didn't go in and come December, the doc's office was calling 2-3 times a week trying to get Kurt to come in. We went on vacation after Christmas and came home the first week of Jan. He was still, constantly feeling pain. He finally went in for PSA and it had gone up to 4.1. The doc said biopsy and Kurt said infection. As the biospy neared, Kurt's pain increased to the point where he was actually ready for the biopsy, but still believed that after words they would tell him he had an infection and put him on meds. Unfortunatly, we are here, so you know the results. He had constant pain between the diagnosis and the surgery (One and 1/2 months).
Kurts original diagnosis was gleason 6 on both sides, stage T2c with nothing coming up on the bone scan and some enlarged lymph nodes, but nowhere near the prostate. His post surgery path report was the same, however, his cancer had reached the capsule, it just had not penetrated yet. Who knows what would have happened if we waited a week, or a month. We most likely would be facing a different outcome. We owe HUGE thanks to everyone here for continue to encourage us to push forward and expecially to become our own advocates!
As you will see here, pain is not the norm, but it can happen. Good luck to your friend. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 

Posted 3/28/2007 5:56 PM (GMT -6)
jadeonion...Thank you for coming to this forum.  We all learn everytime we read and everytime we post. Pain is a subjective and interesting topic.  I suffer chronic pain(back.hip & legs), but had never considered it part of my prostate experience. 
When you described prostate pain, it sort of rang a bell with me.  I remember three times in the six months before I was diagnosed with prostate cancer where pain was part of my consciousness. Three times after a rather intense orgasm, I experienced a painful spasm in what I now know "was" my prostate.
No doctor has ever asked for this anecdotal information.  I wonder if it might have been an early warning of problems to come?
Jadeonion...I hope you can get some answers to your questions.
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
golf game bad, but active

Posted 3/31/2007 10:51 PM (GMT -6)

interesting screen name! from my research, pain relating to prostate cancer normally only occurs in the advanced stages of cancer, usually when it has escaped from the prostate capsule and has metastasized in the bones. this does not necessarily mean that your friend has prostate cancer. however, any sign of severe pain in the body is usually very serious and requires prompt medical attention. tell your friend to pursue this with haste with the best doctors he can find. there has to be an explanation and he needs to get one.
best of luck to your friend. it is true that high grade PIN can lead to prostate cancer and needs to be monitored closely.

68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

Post Edited (pcdave) : 3/31/2007 9:53:28 PM (GMT-6)

Posted 4/1/2007 5:04 PM (GMT -6)
My gratitude to all of you. He recently saw his GP, who did a physical exam, took a urine sample and scheduled blood tests. He's waiting now to see the specialist and if he isn't given an appointment for another biopsy, he's changing doctors. His PIN is low/normal...and while I understand that it doesn't mean all that much, it's a little hopeful.

In case it seems that there is undue neglect on his part, let me point out that our province's medical system is now in a state of full disaster. Months, sometimes to see a specialist or get tests, and it only "fast tracks" if there is a diagnosis of cancer. Often, sadly, by the time the diagnosis is reached, it's too d*mn late to treat. There's no way that V has the money to resort to out of country or private treatment, unfortunately.

I really appreciate the replies, folks and may be back to tug on your sleeves again... Meanwhile, wish him good fortune. He'd really like to see his grandkids for a while longer...

*Jadeonion. Catches the imagination, doesn't it?

Thank you all again. I tried replying earlier and was rudely booted off Mozilla Firefox and given an error message.


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