New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Hosk
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 3/29/2007 10:49 PM (GMT -7)   
My dad was just diagnosed with prostate cancer today(29March2007). He has had seven biopsies in the past four years and they just found it on the seventh. They said its in the prostate of the left testicle. I don't know his PSA levels but I know they were high. Also, they told him they wanted to do sugery to completely removed it and something about chemo and radiation. How serious is this? Is all this meaning he is in a later stage or what. I don't understand all this stuff. I am really upset about this but i can't really go ask my dad and talk to him about it. The reason I can't talk to him is because I know he is scared and he is trying act like he is okay. My dad has never been sick. He has always been strong and healthy. He has always been there for me and i don't know what to do. I feel helpless and I need to understand what is exactly going on and what everything means. I will keep everyone updated but it would be helpful if anyone can give me any incite into what everything means soo far. Any information is welcomed.
 
K

Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 3/29/2007 11:10 PM (GMT -7)   
hi Hosk,

Welcome to the forum and sorry about your dad's diagnosis. ((Hugs))

I would suggest finding out the following:

1) what was his PSA?

2) What was the "gleason score"

3) how many cores samples did he have and how many were positive and at what percentage?

I am so sorry your dad has been diagnosed. does he have another appointment coming up? perhaps you can go with him to ask all the questions you need. how old is he? i wouldn't jump to later stages thinking. If he has had 7 biopsies in the last 4 years i would say it would be rare that it is too advanced yet. but you need to find out the things like above to really understand what stage he is.

Please keep us updated on your dad's prognosis and i wish all the best for you and your dad!

Tanya
Significant other diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.
Da Vinci Scheduled: 4/10/07


Lena Gr
New Member


Date Joined Nov 2006
Total Posts : 19
   Posted 3/29/2007 11:26 PM (GMT -7)   
K hi

I am really sorry you joined this club but you will find a lot of support and information here. Of course PC is a serious disease but as my father says "if you have to have cancer it is the best one to have". If caught early the cure rate is high. about your dad now although you don't give many information (age, psa, Gleason score) and I am mot a medical expert I don’t believe he ii in a later stage and the reason I am saying that it that he was offered the surgery solution. My dad was diagnosed with advanced PC for him surgery was not an option, all the doctors we visited said that.
What to do? Explain to your dad that it is more difficult for you not to know the exact situation because your imagination runs wild. Tell him that like he was always there for you need to be there for him, that it scares you not to be there.. He does not have to go through this alone. You can be there for him. Go to the doctor with him. If he refuses tell him that it is better to have two pairs of ears when visiting the doctor in order to catch all the details and two mouths in order to ask all the questions that need to be asked.
I decided that my father's PC was my business and nothing he said at the beginning stopped me. He now feels better to know that he doesn't have to be the only strong one in this. Like your dad he was never sick and this was quite a blow for all of us, but life goes on and the important thing is to live it. You have to make him believe that he is going to win this battle and that you will be there to help him.
A very interesting site to read is www.yananow.net you will find a lot of information there. In order to understand this mess you have to inform you self about this disease because in this case knowledge is power.
Since he was so recently diagnosed he probably has to make a few more tests, like a bone scan and a CT.
Also don't forget to take care of yourself too and keep posting here because we are here for both of you!
Elena
Dad is 61 years old, diagnosed 11/06
PSA 56,7 all samples positive,
Gleason 8
Hormone Therapy (complete androgen blockade)
cancer in both sides of prostate
Propable bone metastases


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 3/29/2007 11:30 PM (GMT -7)   
Hi K,
I think you mean the left lobe. Testicles and prostate are different organs. Tanya is asking some very important questions that we can use to help you with our experiences. Hang in there and think positive. Stay with this forum as it is a very informative resource. Post as much information as you can. In addition to Tanya's questions, his age may be helpful. Cancer is a scary term, but older men with non-aggresive cancers often do not die or feel a thing from this disease. The best tool you can get is understanding of what the things Tanya is asking mean.

God Bless and be positive.

Tony

Hosk
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 3/29/2007 11:36 PM (GMT -7)   
I am not sure about another appt. He works on the railroad and he is on call 24/7. They work his appts. around his schedule. If he is home he calls and they let him come in. I will have to get my mom to get all the info for me. My family is all in PA and I live in Illinois. It is an 8 hour drive. He is 62 years old. He is trying to retire and he really needs the rest of this year. They want to do the surgery by next month. It is scary because they seem like they are rushing it. I know about all the tests. I asked my mom and she just said the PSA was high and she didnt remember the number. She says she does not know the other ones. I wish i could drop everything and go home but i cant til May. I have a 9 month old and I am preparing to move to tx no later than august(military wife, move date is still up in the air). My husband is going to be out of here by the 1st of june for va so i plan on going home then to live til his school is done there but i am considering moving home by may so i can be there. Do you know the survival rate for some one that is older and diagnosed. I am really worried bc cancer runs in my family. My grandmother, my dad's mom, has had breast cancer. She was in remission but now it is back. I never knew about her having bc til just this past year. I guess she had it when she was quite young. She beat it but now it is back. She is in her eighties. I am worried because I know her cancer isn't very agressive this time and she isn't actively fighting it. But i know there is a chance that my dad's can spread and with the family history it could or may have already. Why would they push for surgery soo soon?

Hosk
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 3/29/2007 11:49 PM (GMT -7)   
My mom said something about being in his testicle but i dont think either of my parents completely understand. It is a big shock to us even though it has been a possibility for the past 4 years.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 3/30/2007 12:03 AM (GMT -7)   
Surgery is the gold standard for prostate cancer. But it isn't more critical because they recommend it. Take a second, Hosk, and get this information we are asking for. Your answers will come as soon as you post them. As for cancer in the family, I read where there is a coalation between ovarian cancer in women and prostate cancer in men for heredity, but have not with breast cancer. 1 in 6 men will be diagnosed with prostate cancer and typically at your dads age. Many more get it and die from old age and not from it. So for your dads doctor to recommend surgery, he is prescribing the best treatment he does. That may not be the best treatment for your father. get us the information so we can educate you on our personal experiences. There are alternatives that work quite well including radiation (various types) and hormone treatments. Elena and Tanya are right on the money with their advice.

A little about me, I have advanced prostate cancer and I am 44. It is scary but I believe I will be fine. I had the surgery, but not until I researched many great centers to do it. You father needs to consider what type of surgery, alternatives to surgery, and he can only do this by understanding the PC treatments available.

K, it's day one with this stupid disease. I know you are scared as I was on day one. God bless you for reaching out to help him. But now you need to educate yourself and him as well.


Tony

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/30/2007 1:41 AM (GMT -7)   
Dear Hosk,

You sound like a very caring person and sometimes when we can't say the things we want to, it helps to write it (I find that anyway!). Perhaps you could send your dad a simple card, just to tell him you are there for him and will support him in any way you can and/or just that you are thinking of him. Or simply to tell him that you love him and want him to know that you can't really think of anything useful to say right now, but simply that you are there, and concerned about him as always. It really doesn't have to be long-winded and emotional. Just a special note from you to him. This may not help, and/or may not be "your thing" but sometimes when we cannot say the things we want too (especially to parents), it helps just to let them know you are there, and on their side. It may also help him to talk to you if he ever needs to, especially now that he has all this on his mind. opens up the channels of communication sometimes. Just a few ideas.

Good luck and stay in touch with the people here in this forum. They will be most helpful in helping you understand this condition. You and your dad will be in all our thoughts. Take care, Lana.
Creed_three
Husband diagnosed 8/12/06 on his 49th birthday. 1 (5%) core of 12 positive. Gleeson 4 + 3 = 7 according to biopsy. Routine PSA (Nov 06) 3.5. Awaiting RP (open) scheduled 17th April 07.


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/30/2007 5:02 AM (GMT -7)   
So glad you came here, K. You will find much support.

To educate your family & yourself - get Dr. Patrick Walsh's book "Guide To Surviving Prostate Cancer". Most bookstores have it. Many here have read this book - it's a great place to start. You can do alot of research on the internet. I realize your parents are in shock but they need to see the importance of learning what the numbers mean in their decision making process. There are many men here and wives who post for their husbands. Maybe your parents would come on board?

You are a wonderful daughter with much on her mind. A baby, an upcoming move, a husband in the military and your dear dad. Try to take a deep breath. I believe as others have pointed out that your dad is probably not in later stages of pc...so during this time encourage them to get informed. No, it's not easy but it is doable.

Make sure to stay here and keep posting...we'll be looking for you.

All the best,
Susan

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 3/30/2007 5:51 AM (GMT -7)   
Hi, Hosk. It's a learning curve for all of us, but distance doesn't make it easy and you have quite a lot going on right now. You need to get your mom involved as much as possible. She may not understand it all now, but with a little guidance from you, she can get up to speed. Give her a list of questions and she can even contact the doctor herself if necessary (?).

Once you have specifics, then you can plan your attack. Many, many "older" men are facing a great prognosis following any type of pc treatment and even with higher numbers.
Husband age 65
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06
T2a (at biopsy)
T4c (at pathology) w/cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/30/2007 5:57 AM (GMT -7)   
Hi Hosk, sorry to have to welcome you to our club. I can only echo what everyone else is saying. Try to find out what all his numbers are. With the new laws on privacy it can be harder. I'm sure mom could have the Dr's office call you with the info if she ask. It sounds like Dad is a strong healthy guy. He may want to inprove his diet. Drop a few pounds if needed. The best thing you can do to help is to try to get educated. There is alot of info out there. Also great advice on here. I did not find this site until after my surgery. My personal opinion is that if he is healthy enough for surgery I would want it out of my body first. Then deal with any remaining cancer (if any) with radiation, chemo, or any of the other treatments. But that is just Me. He has to do what he feels is best for him.

If you are comfortable with chatting on line, several of us are regulars on the PCa (prostate cancer) chat room on here. Just click on the "chat" button at the top of the page and log in using your same info you use to post with.

Good Luck helping Dad

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.
    Return office visit May 2nd unless leaking starts agian.
    May 22nd Follow up and 3rd Post Op PSA
   


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/30/2007 6:30 AM (GMT -7)   
Also, if your dad gives permission you can get info from the doc...but I'd suggest this only if your mom doesn't feel able to digest all of this.
All of Don's doc's can speak with me once he gave permission.

See you here,
Susan

Joes411
Regular Member


Date Joined Mar 2007
Total Posts : 87
   Posted 3/30/2007 6:40 AM (GMT -7)   
Hi Hosk.

I was recently diagnosed with Prostate cancer (PCa) after my second biopsy. The doctors believe they caught the cancer at an early stage and because of that my chances of a complete recovery are very good. At the bottom of the email you can see what my psa and biopsy results are. I have chosen surgery as a treatment but there are several other very good treatment options available as well.

Prostate cancer caught early is very treatable and often curable. If your dad had seven biopsies over 4 years before they found the cancer there is a good chance they have caught his cancer early. Gather as much information as you can, knowledge is power over this disease and the emotional turmoil in creates. Share what you learn about your dad's condition with us and we will help you work your way through this.

Joe

Age: 51

PSA  Jun06  4.1  (PSA Jun05  1.2)

1st Biopsy Nov06 – Atypical cells but no cancer

2nd Biopsy Jan07 – 1 of 16 cores positive

Stage T1c   Gleason  3+3=6

DaVinci scheduled for mid May


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 3/30/2007 1:24 PM (GMT -7)   
Hi hosk, sorry that you are joining this family. I don't want to repeat everyone, but getting that info is the key to moving forward. Some docs will take your phone call, have your dad call and tell them that you are calling. As TC said, surgery appears to be the first treatment choice for early cancer. My dad was diagnosis at 49, and surgery was not an option for him. My husband was diagnosis in Jan at the age of 47. He had surgery on March 14th. We traveled to Austin Tx where we had found a wonderful Da Vinci Surgeon (robotic) thanks to this great group here. PCa is very treatable. If your dad is to have surgery in a month, have him start doing kegals now. There is a thread on here to explain how. It is very important for regaining continence following removal. Good luck to you and your family. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/1/2007 8:30 AM (GMT -7)   

Hi ~   K  *Hosk,  Dad,  Mom,   &  Loved Ones,

  

                        A   “Special”  Warm Welcome  to  You!   yeah   

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where you are on your path. So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!

  

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

We invite you to visit our personal thread “Our Journey” in the signature line below.

Our thoughts and prayers will be with you as you continue to move forward with your decision.

In Friendship ~ Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 17, 2017 12:51 PM (GMT -7)
There are a total of 2,906,499 posts in 318,965 threads.
View Active Threads


Who's Online
This forum has 158305 registered members. Please welcome our newest member, Kidney Stones.
314 Guest(s), 12 Registered Member(s) are currently online.  Details
goshawk, scifigal2k, proactfit, Jasperilla, PeppermintTea, carnations4ever, astroman, The Dude Abides, Samura, Mergirl, gabybee, Imbeccak