Hi Jeff Lawrence
I am in the process of being treated with proton radiation therapy for my prostate cancer at a very fine medical institution (not Loma Linda). I strongly object to your promoting this new website (i.e., www. proton.com) if it is an advertisement solely for Loma Linda. Perhaps that is not what you have in mind in terms of greatly building upon this website in the future. I hope so. Many new proton therapy centers are being
opened in the U.S. and it is misleading to give one the impression that Loma Linda is still the only act in town. Loma Linda is a very fine medical institution--they have successfully treated thousands of men for prostate cancer since 1990. Loma Linda was too far away for me to consider it for my proton therapy. At this website we don't need to read advertisements. Our members are the best advertisements based on their treatment experiences at all kinds of medical institutions. We have certainly had many positive endorsements from members about
their wonderful treatment experiences at Loma Linda.
What is really needed is a website that talks about
and has links to all of the proton centers in the U.S. As more and more proton centers
open, patients are more likely in the future to go to a proton center nearest where they live (that's what I did). Also, proton therapy is used to treat many types of cancers and is not restricted to prostate cancer. It is a wonderful treatment option which is expected to expand substantially in the years ahead.
I hope that your website would eventually include profiles of PC patients (on a voluntary basis) who have been treated for PC at the various proton centers. Men with PC need to network with other PC patients which is very helpful in their deciding on a treatment. This helped me greatly in deciding on my treatment. I would be happy, at some point in the future, to offer my profile and e-mail address so that recently diagnosed patients, in particular, could contact me to hear about
my treatment with proton therapy. I find that most PC patients are willing to network with and help others who have PC. Profiles of doctors at the various proton centers with reference to research they have done would be useful. Statistics on the success of this treatment would also be helpful in the future. Other than Loma Linda, there are really not any longer range statistics because proton treatment has been limited principally to Loma Linda until recent years.
I think you need to tell us more about
your plans for making your new website into a "real gem" about
proton therapy treatment for PC without any bias toward a particular proton therapy center.
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.
Post Edited (pcdave) : 4/3/2007 5:38:55 PM (GMT-6)