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flippin out

Regular Member

Joined : Mar 2006

Posts : 137

Posted 4/5/2007 11:28 AM (GMT -7)

I Don’t know why but a couple weeks before my next PSA (going for the third), I get in a panic depressed state anyone feeling that way or once its out its GONE like ya never had it that’s kinda the reaction I get at the office Live Simply,Love Generously, Care Deeply, Speak Kindly, Leave the rest to GOD.... Trials keep You Strong, Sorrows keep You Human, Failures keeps You Humble, Success keeps You Glowing, But Only God Keeps You Going! 54 DaVinci 4-25-06 Post edited to correct font from Garamond10 to Verdena 10 Post Edited By Moderator (bluebird) : 11/10/2007 8:19:26 PM (GMT-7)

pcdave

Regular Member

Joined : Oct 2006

Posts : 444

Posted 4/5/2007 2:12 PM (GMT -7)

hi MJR

i have not yet finished my treatments, but i know that i will be facing PSA tests for the rest of my life. I am sure that I will have some concern before each test and be nervous waiting for the results. I think you will find that most PC patients feel this way. Let's face it, no one can really understand PC until they get it. Here is a little excerpt from a recent posting I made which kind of answers how others view us:

"Outside of this website, I don't think that we get all of the understanding and empathy we deserve. Even close members of one's family cannot fully understand the challenges and deep emotions that men face with prostate cancer. Because PC is slow growing for the most part and, if caught early, it has an excellent chance of being cured. Therefore, I think many people tend to play down prostate cancer and minimize the side effects that treatment force upon us." They also don't realize that we face those PSA tests until we take our last breath and that any of us potentially face recurring PC. At present, I have blocked that thought from my mind.

Good Luck!

Dave

68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

PianoMan

Regular Member

Joined : Feb 2007

Posts : 365

Posted 4/5/2007 2:52 PM (GMT -7)

Hi MJR. I've only had one PSA test since surgery (which freaked me out) but I've talked to a few guys who are anywhere from three to six years out and they tell me they really sweated out the first year or so of PSA testing. They also say they stopped worrying after about three years of undetacble scores. So I guess what I'm saying is what you're feeling is normal. Going for those PSAs is like going in, over-and-over, to be tested for cancer. And we all know what that feeling was like when we were told we had cancer. We don't want to hear it again. So let's keep the operative word here HAD -- AS IN THE PAST. AS IN GONE!!! Best of luck. Try to relax. 54 years old PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1 DRE: Negative Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6 Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007 Post surgery pathology – Organ confined, Gleason still 6, margins clear. First post-surgery PSA -- Undetectable, 2/20/07

Veteran Member

Joined : Nov 2006

Posts : 883

Posted 4/5/2007 6:16 PM (GMT -7)

It may be because of how comfortable I am with my Dr. But, since mine was contained to the prostate and the all the labs came back clear for everything else they took out. Two 0.00 PSA's! I never worry about the cancer comming back.

I just want to get dry!!!

The best attitude to have is a positive one.

PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.

Gleason 7

Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate

RRP on Oct. 17, 2006 - Nerves on right side saved.

All Lab's clear. No Cancer outside prostate

Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006

First Post op PSA on Dec. 11, 2006 Undetectable 0.00

Office visit on Jan. 19th due to continued excessive urine leakage.

Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)

Dr. said everything looks fine. Continue to work Kegeal's. Leaking appears to have improved after Cystoscope?!?!?! Down to 3-4 pads per day!

March 1st Leaking has crept back up to 6 - 8 pads a day ???????

March 8th Started Detrol LA to see if it helps with the leaking?

March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.

Return office visit May 2nd unless leaking starts agian.

May 22nd Follow up and 3rd Post Op PSA

biker90

Veteran Member

Joined : Nov 2006

Posts : 1465

Posted 4/5/2007 8:09 PM (GMT -7)

Its natural to feel anxious about something that threatens our life. Look at it but don't stare. Reach out to us when you feel fear. That is what we are here for - each other...

Jim

Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.

RRP 12/7/06. Nerves and nodes okay.

Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.

PSA on 1/3/07 - 0.04.

PSA on 4/4/07 - 0.00 Restarted T therapy.

Next PSA on 7/11/07.

"Cancer feeds on fear - starve it to death."

sween76

Regular Member

Joined : Feb 2007

Posts : 60

Posted 4/6/2007 5:28 AM (GMT -7)

Regards PSA tests after surgery: What is the "normal" time for the first test (I have heard both 6 weeks and 3 months). Then how frequently after that given the results are good? Thanks in advance. Ed

Age: 63

PSA 2.62

Negative DRE

Gleason 3,3

Stage T1c

Prostate 63 cm

Cancer 5% in one of twelve modules

DaVinci scheduled for April 16, 2007

Izzyblizzy

Regular Member

Joined : Oct 2006

Posts : 411

Posted 4/6/2007 10:05 AM (GMT -7)

We are having da vinci on April 10, 2007. Our doctor says he does them at four weeks (which seems early to me), eight weeks, three months and then six months.

But every doctor seems to do it different, I have also seen first one at 3 months. I would ask your surgeon what he does at your pre-op consult.

Best wishes with your surgery.

Significant other diagnosed: 10/30/06

PSA: 3.7 (up from 3.4 prior year)
Gleason: 3+3
Biopsy: 1/10 positive, 5% cancerous, right apex.

Da Vinci Scheduled: 4/10/07

flippin out

Regular Member

Joined : Mar 2006

Posts : 137

Posted 4/6/2007 10:14 AM (GMT -7)

Thanks ALL its nice ta know I'm not the only one whos nuts over this, Relax take life a tad more seriously having more fun doing it don't miss my grand daughter and stay dry seems to be the Key.

Lucky ME pretty dry after a couple of months lil reminder now and then just to keep me honest no real ed problems. looking ahead.

One Year and counting (:
54
Da Vinci Robotic RP surgery, City of Hope, April 25th , 2006

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