Hi ~ Gene,
The most important thing you must remember is that we all heal at different rates. And urinary continence is the same thing. You’ve had your surgery so don’t look back and wonder about it... The ultimate goal has to be becoming ~ cancer free…. You are on the healing/recovery stone and it will take time. Not something we want to hear but it really is true…
Gene ~ What type of exercises are you doing? Walking, stairs, and yes kegels? Did you find the other postings about incontinence here on the forum??? In “Our Journey” we made others aware that the “book” has the information that is needed to understand what we are dealing with… I’ve taken a little excerpt from what we posted:
Excerpt from “Our Journey ~ Sharing is Caring” by Buddy & Lee
Dr. Walsh’s Guide to Surviving Prostate Cancer…(Give Yourself a Second Opinion), is truly a book of knowledge… teaching you about this disease… that affects the whole family!
It is not a book to make you scared ~ but to make you think, to make you understand, and to make you knowledgeable about this terrible cancer….. It doesn’t hold back….
But remember…being scared is part of this whole picture at the beginning anyway… so take in the information that is offered from its contents.
We are not promoting this treatment.... that is definitely a personal choice. This book has information that "all of us" can use no matter what treatment you decide on.
Read only areas that you are comfortable reading at first. Gradually you will likely read it all… I did not read Chapter 12 until after our surgery and after we had a few weeks under our belt. Then I skimmed through the pages… and it made me really appreciate what we have just gone through….. and give thanks each day for having found this cancer early.
We still feel very comfortable promoting this book… Now ~ We can truthfully say we did not key into the “percentages”…..Why?? Because we knew we had to get the cancer out!!! First and foremost…. Then we would deal with the urinary incontinence. I understand that the book scares some and we even had one member put it away in a drawer for a few days…. But over time she pulled it back out and continued to learn about this disease and the healing/recovery issues.
Please know that you are not alone on this particular wobbly stone of incontinence…. But ~ giving yourself the time and learning as much as you can about what you need to be doing to help “you”…. Is so very important. 8 weeks really isn’t a long time when you think about what the body has gone through.
We are so thankful you continue to reach out….. because knowing you are not alone definitely helps and will help take some of the fear that continues to push the positives away. Don’t let it. Take one~day~at~a~time and work through it with all of our Helping Hands.
I’m at the library today and had planed to touch base with you about the white blood cell count & tests. Did you follow up on this?? Please let us know how this is going. Having this and the incontinence is definitely adding to the “stress”.
We purchased Dr. Scardino’s book about 3 weeks ago. It has information that Dr. Walsh’s book does not have and Dr. Walsh’s book has information that Dr. Scardino’s does not have. I know in a previous posting you mentioned your doctor did the testing to see if you would be able to take the collagen. We also keep reading that this should be a last resort!... There’s also a “sling” that a friends brother has and says it works well. And a lady I just met at the library…. Her husband has the clamp and says it’s very uncomfortable. Now each of these men waited over 16 months before doing anything…. So ~ with 8 weeks under you… I would definitely wait for your body to do as much healing as possible. Dr. Walsh says it can continue to heal up to 2 years for a few men. Don’t let the fear pull you under. You’ve come to far and hopefully in the next week to two weeks you will see that you really are better than 2 weeks before.
Our thoughts and prayers surround you “extra” during this very trying time for you. Easy for us to say…. But try to keep the positives in front of you!... And again ~ continue to keep us on the front line with you.
In Friendship ~ Lee & Buddy
(Direct Link ~ just click on the title below and a new window will open!
Reminder … click on the REFRESH icon once you get there)
Threads by: Gene6163
open Surgery Three Weeks Ago...
"Gushing" and Collagen Implant
Method discovered (?) while attempting to regain Continence
Six Weeks & Starting to Bleed...
Now I am in Panic Mode about My Incontinence... Help.
** Excerpts taken from a wonderful book called “Dr. Patrick C. Walsh’s “Guide to Surviving Prostate Cancer” by: Patrick C. Walsh, M.D. and Janet Farrar Worthington. Copyright 2001…..
Excerpt: Page 246
**After the catheter is removed….
> Until your urinary control has returned to an acceptable level, don’t force fluids.
>Once the catheter is out, you’ve got to slow the pace considerably. Avoid drinking excessive amounts of fluids, and stay away from caffeine in all forms---coffee, tea, even soft drinks. Caffeine, especially, is a powerful pharmacological agent that increases the frequency and urgency with which you need to urinate.
**Urinary continence: The return of urinary control:
**Phase One is when a man can remain dry when lying down.
**Phase Two, you’re dry when you’re walking around.
**If you can walk to the bathroom and not urinate until you get there, that’s a GREAT SIGN!!!…
---it means that the sphincter is intact.
**Phase Three, you are dry when you stand up (using muscles that put pressure on the sphincter)
**Remember, the recovery of urinary control is a slow process.
The most important thing you can do during this time
is not to get discouraged.
Excerpt: Page 244
**It’s hard to believe, but urinary control does continue to improve over two years and, in an occasional patient, even longer than that.
**Can you do anything to speed things along, and improve your urinary control? First, whatever you do, do not wear an incontinence device with an attached bag, a condom catheter, or clamp! If you use any artificial device, you will hurt yourself in the long run. You won’t be able to recover your urinary control, because you won’t develop the muscle control you need.
mama bluebird - Lee & Buddy… from North Carolina
Link to our personal journey…>>> Our Journey ~ Sharing is Caring
April 3, 2006 53 on surgery day
RRP / Radical Retropubic Prostatectomy with "wide excision"
PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate
2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)