Need some input - aggresssive cancer

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Lydialynn
New Member


Date Joined Apr 2007
Total Posts : 8
   Posted 4/12/2007 8:33 AM (GMT -7)   
I am so very happy to find this forum.  Another prostate cancer bulletin board in which I lurked a lot & posted in a few times referred me to this site. What a find - so active & full of information.
 
Today I am feeling overwhelmed (maybe it's just this wintery gloomy weather here in Chicago) & feel the need to share our situation & ask for support.
 
Here's the story:
My husband, age 52, went for a long overdue physical last fall.  We expected to hear that he needed to loose some weight & that maybe his cholesterol & blood pressure were high. He felt fine & looked fine so we were absolutely shocked when his PSA level came back 35. And further shocked with the results of his biopsy - Gleason 9 with the diagnosis of an aggressive cancer.  We both thought that his Dr had the wrong patient file!
 
We were right about the blood pressure  - it  had to be lowered before his surgery.  In the meantime he had all the scans.  His bones were clean but some lymph nodes looked suspicious. His Dr recommended the radical which was done on Feb 8 of this year.  His prostate was removed along with 2 lymph nodes & the seminal vesicles. His recovery went well, but now I am shocked with his post surgical PSA level - a 9.
 
He has started hormone therapy - the 6 month shot & a daily Casodex pill. He also is recieving monthly Zolodex treatments to strengthen his bones - he's only had one so far.  And next week he starts a 7 week course of radiation. 
 
He's returned to work but is very tired in the evening - a side effect of the hormones & probably of the situation, too. His spirits are very good, very positive, much better than mine though I am keeping them to myself. To add to dealing with the cancer, I also was laid off from my job last Nov but started a new one last month - very stressful though I should be thankful I found a job that has benefits. And we have teenagers - need I say more?!?!
 
So, my question is - has anyone been down a similiar path? With the higher PSA level & the aggressive form of the cancer? What was/is your treatment?  What was your outcome?  I just keep hearing his surgeon saying his goal was "to save my husband's life" & when I ran into the anestheolgist (sp?) after the surgery he commented that my husband was a great guy & was too young  & that he wished us all the best, all the time looking very concerned.  I know I should talk to his Dr about this & ask some very direct questions about longevity, but......
 
So thanks for listening to me.  From reading back posts, you are all very informed & caring. I am so glad I found you.
 
Lynn
 

lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 4/12/2007 9:45 AM (GMT -7)   

Dear Lynn

It sounds like you have had a difficult time so far. This is the most helpful medical forum I have ever seen.  I'm sure that if you have read previous posts here you already have an idea of the help that is available.

Yes, there are others who have experienced what you are going through right now.  Hopefully they will make contact with you and share their experience.  When you mention talking to the doctor it rings a big bell.  Unfortunatly many surgeons concentrate on their surgery skills and not their patient skills.  They get too busy to do one of the most important jobs they have, and that is talking to their patients.  I know you don't want to hear negative things, so you don't ask the questions. We all find ourselves doing that.  I encourage you to find someone in the medical community who can help you and your husband better understand your options.

We wish you well, and hope you come back here often to share your fears and triumphs.


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
Back on the golf course...
 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 4/12/2007 10:47 AM (GMT -7)   
Hi Lynn,

Sorry you have to be here but for PCa help, hope and support, this is the place to be. Others who have had similar experiences as you husband will pitch in with medical stuff.

I would suggest that you and/or your husband keep a journal of his progress. Keep track of changes in physical, mental and emotional responses to treatment. This will lead to questions that need to be asked of your doctor. Also, we tend to forget things that happen when we don't write them down. Doctors allow about 15 minutes to talk to us and we leave important things out when we feel rushed. I give a copy of my journal to my doc on every visit. Sometimes he reads it there and sometimes he doesn't but at least I have documented my concerns and cares. I write down his answers to my questions during the visit so I won't forget the important stuff.

Please stay with us here on the forum. We need you as much as you need us...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/11/07.
 
 "Cancer feeds on fear - starve it to death."


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/12/2007 4:53 PM (GMT -7)   
Lynn – from one wife to another,

So glad you found us on this forum. Be ready to meet some of the kindest, encouraging and supportive people on the planet!

I’m sorry that you’ve been through such distress. It’s such a tough time – to try to deal with cancer (the last thing you expected), learn what you can (in a stupor) and make decisions that will impact you for the rest of your lives.

My husband’s surgery was Feb. 9, 2006 so we’re a year ahead of you in this experience. I’ll give you our background story so you can see our similarities.

An appointment was made for a long overdue physical,,,it’s funny but the most urgent item Don wanted to talk to the doctor about was a problem he was having with his knee.
As the physical progressed I stepped out of the room for the prostate exam until the doctor called me back in. At that time he told us he felt a sizable lump in the prostate and asked when his last PSA was…Don told him 2001. He talked to us about the possibilities and scheduled Don for blood work. He said he would get back to us asap – trying to assure us everything was probably okay. We got a call within 2 days PSA level of 7.96 and the name of a urologist. Long story short – after a biopsy it was confirmed – prostate cancer. I think we all have this tendency toward thinking like this: OK - I have prostate cancer...the doc (maybe more than one) says surgery is the way to go and you want it to be gone. Surgery is "successful", the prostate is removed and recovery goes pretty much as planned. The first PSA comes and since the prostate is no longer there you are fully expecting the number to be less than zero, why wouldn’t you? Well, it was 11.8 and we were in shock and now fear set in.

His psa continued to increase but the cancer was not showing on any tests until Sept. 2006 and by that time it had metastasized to distant lymph nodes (out of the pelvic region). So hormone therapy was started at that time – Lupon 3 month shots.

Now, I tell you all this, Lynn, so you can also see the differences between us…your husband’s hormone therapy and radiation treatments are (some one please correct me if I’m misspeaking here) a normal treatment for where his cancer is. There is treatment for him. Currently, Don is getting all that he can for where his cancer is.

When you want to talk to the doctor about longevity I don’t know that he can answer you. I know the feeling but this is what I’ve arrived at: I have been to so many sites, some better than others, I have read so much until my eyes burn. I have sat at this computer and read others stories from this site and many others until I’ve cried. And at the end of it all – I have to tell you - the percentages, the numbers, the calculations mean less to me all the time. They are what they are but this is what I've arrived at...there is always hope. Believe me, I do not mean to sound blasé…quite the opposite. I truly believe what I am saying to you...I feel hopeful. Not every day, and not all the time but I know that is what carries me through this.

Now, there are much more learned people on here than I and they will be right here for you also.
Bless you Lynne,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3


whispers
Regular Member


Date Joined Nov 2006
Total Posts : 44
   Posted 4/12/2007 7:34 PM (GMT -7)   

Hi Lynn-

  I too am sorry that you are here, but glad that you found us.  This is truly a wonderful group and our sharing does help each other.  My precious dad-was diagnosed wth PC at age 60.  He has always been so healthy.  The doctor went in to remove his prostate and found his lymph nodes bulging with cancer.  He removed the lymph nodes and kept the prostate in tact..Psa was 64 by now...Nov 05.  In Dec 05, he had an orchiotomy.  His Psa dropped to .04..we thought we were on the way to recovery.  6 months later-Sept06..back up to 8.1..and by Nov 06- 15.6...very aggressive.  We then were referred to an oncologist..and started in a clinical study using chemo (taxotere) and DN101..we just started our 6th month.  My dad's cancer had spread to 3 tumors in the lymph nodes between his kidneys.  Now..his Psa just came in at .05..and the cancer has so far decreased 55-70%..we get a new scan and PSA in a couple of weeks.  He is doing great, very little side effects..although not a walk in the park.  We were just told that the remission period would not be long though..maybe just months..so I don't know what is next for us.  We go back to do more chemo tomorrow and I am requesting to see a radiologist oncologist.  I have been told that radiology after the chemo will keep him in remission longer so I want to check on that.

I don't have the answers..just understand the aggressive cancer. The best thing to do is keep him strong in body and mind.  Get him on a lower fat diet..my dad also drinks 8 ounces of pomogranite juice daily.  We keep getting told that my dad is doing great...is otherwise healthy..and I have been told recently we need to fight more aggressively..so that is the path I will next look into.  Stay positive and keep sharing and reading.  I find more strength in reading real patients stories than the medical websites. 

Take care of yourself too...

Lisa


Lydialynn
New Member


Date Joined Apr 2007
Total Posts : 8
   Posted 4/13/2007 5:59 AM (GMT -7)   

Thank you all for responding to my post.  I was not able to get back to the board until this morning. I found my eyes welling up with tears as I read your posts - it's overwhelming to finally be understood, to find empathetic people who are going down a similar road.  In general, I found that talking to most people in my life, they downplay prostate cancer as the "good" cancer, the cancer that is easily cured. And to be honest, I was one of them until this happened to us.  Now I am telling all the men I know to be sure to get those yearly physicals & PSA tests!

Thanks lifeguyd for your input about doctors though I did not want to convey that I am disatisfied with our doctors.  Bill's GP, urologist & radiologist have been great - they take the time to explain the treatment & answer our questions but maybe we're not always asking the right ones.  And I know that we do not have all those stats that all of you list at the end of your posts - I will definitely ask for those next time we go in.

Thanks, Jim, for suggesting the journal.  What a great idea.  You think you will remember everything, but with all the details & at this age.......!

Thanks Susan & Lisa for sharing your stories about this journey none of us want to be on. This cancer seems so unpredictable - everyone seems to be affected differently & with different treatment options.  It is overwhelming esp wondering if you made the right treatment decision. Thanks again for your comforting words. - you touched my heart.

 

Lynn


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 4/13/2007 6:30 AM (GMT -7)   
Lynn---
 
Hang in there!   Your husband's treatment course sounds very familiar.   I'd advise you check out the work of Dr. "Snuffy" Myers.   He has a book out on nutirition, hormone therapy and prostate cancer.  In addition, a grerat resorse is the Prostate Cancer Research Institute.   Go to their web page.   They have great patietnt advocates you can call just to get their take on your husbands situation.
 
GOOD LUCK!
Sterd82
Age 46
Initial PSA march of 2006: 28
PSA May of 2006: 39
8 of 12 cores malignant
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
Post surgury PSA fluctuated between .04 and .09
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sesions of IMRT Ended Feb 1, 2007


ptchrzmom
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 4/13/2007 7:50 PM (GMT -7)   

I am in the same place you are Lydia.  My husband just had his radical prostatetectomy March 29th.  We had the catheter removed two days ago.  His gleason was 8.  The doctor uses the word worrisome more than I like.  It was on both sides of his prostate.  His PSA was 11 and that's how they detected the cancer. 

I get very concerned about the future.  I have a recurrent gynecologic cancer and have been battling cancer for 15 years.  He was supposed to be the healthy one so our kids would have somebody.  They are 22 and 19 now, but our 22 year old daughter gets very distraught.  Our son seems to handle things best.  My husband is the eternal optimist and thinks everything will be fine.  And, of course, I hope he is right. 

I know what you mean about people making light of prostate cancer.  But it is real, and it is scary.  Each day is a blessing.  I will keep you in my thoughts and prayers.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2007 7:04 PM (GMT -7)   

Hi ~ Lynn & Loved Ones,

 

Caring Enough to Share….. 

 

A   “Special”  Warm Welcome  to  You!   yeah   

 

This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey.  Thank you for joining all of us in the continued road to HealingWell…..

 

KNOWLEDGE IS POWER... and POWER conquers fear

 

You are a wonderful addition to our forum family!!!!  Thank you for reaching out and taking our hands… We are holding you tight as you move on to stepping-stones many of us have not had to traverse.  But in sharing your journey ~ you will be helping others who may find themselves on this particular stone and they won’t feel so alone.  Thank you!

 

Keeping you Extra Close in our thoughts and prayers.

In Friendship ~ Lee & Buddy

 

“God Bless You” 

It's a little prayer  ~  "God Bless You"  ...but it means so much each day,

It means may angels guard you and guide you on your  way

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2007 7:24 PM (GMT -7)   

Hi ~ Lynn,

 

We are extremely happy you’ve found all of us too!!!  It is truly understandable why you feel overwhelmed.  We feel your fear and will be here for you!  Knowing you are not alone and others have traveled similar paths will help ~ a little I’m sure.  Here’s a special rainbow on those days where the clouds really do their best to cover your light!!!  Keep it close ~ it will help!!! Because we’ve filled it with so much sunshine you may need your sunglasses.  It’s filled with extra Hugs too!!!

 

*This is your very own Rainbow and it’s sprinkled with Sunshine*

*/////////////////////////////////////////////////////////////////

///////////////////////////*/////////////////////////////////////

///////////////////////////////////////////////////////////////

/////////////////////////////////////////////////////*//////////

 

 

Lynn ~ continue to take our hands… it is amazing what sharing can do for the soul… You have found the right place to open up because we know your fears and several are on the same stepping-stone as you are…  and from the postings above…. You can truly realize you are not alone….. we will all continue to walk with you each step of the way ~ so keep reaching out ~ okay!!

 

We hope and pray that your new employer will work with you during this time…  take one-day-at-a-time.  Move forward and find out any answers that you need to help you!  Keep the communication open between you and your husband (let him help you with your fears and in turn it will help him with his… Pull from each other’s Strength!!!  And this will make you both stronger……  be there for each other during good days and the dark days. 

 

Our thoughts and prayers are with you each and every~day as you move forward…

In New Friendship ~ Lee & Buddy

 

Post edited to delete signature line only

Post Edited (bluebird) : 6/25/2007 11:19:27 AM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2007 7:39 PM (GMT -7)   

I hope this bring a little comfort to you at this time!!!

 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

 

Click here....>   The Power of Hope

 

 

Post edited to delete signature line only

Post Edited (bluebird) : 6/25/2007 11:20:08 AM (GMT-6)


DJSydney
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 4/16/2007 5:17 AM (GMT -7)   

Dear Lynn

I'm only new to this site as well, so I dont have lots to add.  Except to say that my husband was diagnosed with a PSA of 30 and Gleeson of 3+4 in December.  The cancer had spread from the prostate and it was considered too late to operate.  His Oncologist immediately put him on hormone therapy.  He is also on Cosudex and Zoladex (three monthly implant).  He will begin 8 weeks of radiotherapy in late May. 

I'm pleased to say that his recent PSA count was down to 0.65 but its been a rough road.  You can expect hot flushes, anxiety, mood swings, depression and general lethargy.  There are days when it seems like the cure is worse that the disease.  Having said that, my best advice is to keep positive and dont take his mood swings and depression seriously.  You need to stay positive and keep healthy. Try to get him to exercise and watch his diet (easier said than done!). 

Belonging to this Forum has taught me that you can only live one day at a time.  You need to be informed and dont worry about asking the doctor lots of questions.  Get yourself a notebook and make a list of questions you want to ask and write down the answers.  The early days are one long tunnel of confusing information and emotional turmoil - but knowledge is power!

Keep strong and healthy and keep posting - you're among trusted friends who really do care!

Best wishes from OZ

DJ


Lydialynn
New Member


Date Joined Apr 2007
Total Posts : 8
   Posted 4/16/2007 7:04 AM (GMT -7)   
Since my new job is in retail, I worked over the weekend & could not get back to the boards until now.  I want to thank all the new posters.
 
Thanks sterd82, for recommending that book by Dr. Myer. I've been wanting to read more on nutrition & diet.  We've read & reread parts of Dr. Walsh's book but he doesn't touch too much on nutrition.
 
Thanks ptchrzmom for sharing your story & how your son & daughter are handling their parents' cancers. I worry about my daughters (18 yr old twins & senior in high school), but their excitement about the year end activities & college next year keep us focused on the future.
 
Thanks bluebird.  You truely are the bluebird of happiness!!! Thanks so much for your very positive attitude. I loved the link to "The Power of Hope".
 
And thanks oz. I'm amazed how rapidly the hormone treatment changed your husband's  PSA from 30 to 0.65.  Very hopeful.
 
Thanks again to all of you.  Bill starts his 7 week radiation treatment tomorrow.  Another new path on this journey we never expected to be on.
 
Lynn

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/25/2007 10:22 AM (GMT -7)   

Hey ~ DJ,

 

        Thinking of you…. Please let us know how things are going for both of you!!!

 

Haven’t heard from you and wanted to remind you “we are all” here for you and your husband. 

Stay close… Know we care!!!  This road is best traveled with friends....

 

Keeping you close in thoughts and prayers.

In Friendship ~ Lee & Buddy


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 6/25/2007 3:47 PM (GMT -7)   
Hi Lynn,
I am on my third week of IMRT radiation treatment. My story doen't very far from yours. PSA was 19.8, Gleason 7 (4+3), Stage III (pT3b). After surgery, my PSA went undetectable. Still though the concern for recurrance was great as I had 4 positive margins. I am on hormone treatment as well as the radiation. I also walk everyday 3 miles. it helps keep the affects of the HT and radiation down. In fact, 2 months into the HT I am still just getting mild hot flashes. And living in Vegas, it was 117 two days ago, it feels normal. Also, I have a post here on the Michael Milken story. I find it inspirational as he has lived with PCa now for 14 years with numbers very similar to your husbands. He started the Prostate Cancer Foundation and there is great literature available there, but use the www.wellnessbooks.com for any books as this site gets funding when you do. Also, visit www.mikemilken.com for his story. If encouraging words are something you want, you can find it in his struggle with this disease.

Sorry to welcome you, but this is a great site to talk on.

Tony

veteran1
Regular Member


Date Joined May 2007
Total Posts : 133
   Posted 6/26/2007 7:52 AM (GMT -7)   
Lynn,
I've read your thread and the compassionate and knoledgeable responses it's drawn. You have friends here.
Your husband and I share some fairly similar PCa traits. My Gleason biopsy was 10. The only perfect score I ever got in my life...ha. I had surgery on Feb.
14th of '06. It revealed a T3b Seminal Vesicle Involvement---out side of prostatic capsule, and a Gleason 9. This, like husbands, is a very agressive cancer that requires more than one therapy. I would like to know what your husbands post-surgery pathology...Gleason & stage is.

Your doctors are treating an agressive cancer agressively. I had radiation from June 06 thru late July, 06. Also, on hormone therapy which can have some side effects like: hot flashes, mood swings, muscle mass loss. bone density loss and a few others.

But the Hormone Therapy is working to drop PSA level. Radiation will do the same.

Glad YOU are taking a proactive role. As you've seen from your replys, women are usually braver than us.


Good Thoughts Always

Vet1
,

Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/27/2007 10:03 AM (GMT -7)   
Your story is heart wrenching.... no words could express my feelings of hope for you and to eradicate this terrible disease from your body... you are in my prayers

Richard
There is a special church here nestled deep
in the forest.... a beautiful bell hangs at the very top.... it only stops ringing.  When you come through the forests for your voice takes its place....   Richard


Lydialynn
New Member


Date Joined Apr 2007
Total Posts : 8
   Posted 6/29/2007 1:17 PM (GMT -7)   
Thanks, Bluebird, for checking up on us! 
It's unbelievable that Bill's 7 weeks of radiation are over, though to him it seemed endless.  It did not help that he was in the middle of his busy season (landscape supply) & that the mid-afternoon trip to the hospital &  back took up at least 2-3 hours of his day, depending on traffic.
 
Now we're waiting, wating to see what effect the radiation & hormones have had.  His next PSA level will be in early August.  In the meantime he's experiencing a side effect we were not expecting  - the inablilty to pee (which we found out was due to scar tissue) which sent him to the ER twice for catheters.  And after a dr's office visit, he has learned how to catheterize himself. This has all happened in the last 2 weeks.  Has anyone else experienced this?  How long did this last? And was there any other treatment for it?
 
I want to thank the other posters, too.  Thanks Tony in Vegas - how do you have the energy to do your walks?  After Bill comes home from work, he eats dinner, goes thru mail, etc for maybe an hour, then falls asleep.  Of course, getting up every 2 hours to pee does not give him a good nite's rest.  At least with the catheter, he could sleep through the nite. And thanks Vet 1, too.  I do not know Bill's post op stats - either I don't remember or was never given them.  I will definitely ask next week when Bill has an appt with the radiologist.  Thanks, Richard, for your prayers - always very appreciated.
 
Hope all af you are doing well, going into the 4th of July holiday week. I think I will enjoy all the festivities more this year - our town's parade & festival, the fireworks.  Cancer changes everyone - you can't take anything in your life for granted.
 
Lynn
 
 

MEDLAW
New Member


Date Joined Jul 2007
Total Posts : 9
   Posted 7/22/2007 10:05 PM (GMT -7)   
This post is probably old but I wanted to touch base with you regarding your husband PSA and surgery. We also live in Illinois outside Chicago Northern suburbs. My husband is 59 & started out with prostatitis PSA of 11 and Gleason 6. The biopsy showed 2 areas 5% & 10%. Supposely contained. The bone scan has questions but that's another time. His surgery is scheduled for 8-07. Soon... nevertheless are you happy with your surgeon? Your husband is young and has many years to live. The University of Chicago is where I chose for my husband. It take time after a radial surgery even for a hysterectomy. It took a year for me to recover so each day your husband will become stronger. I'm in the medical profession at Northwestern Memorial Hospital and I tell all my patients to have patience becuase IT DOES TAKE TIME to heal and to heal well. Tell your husband its ok to rest just don't push himself.

take care and our best to you and your husband

medlaw

dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 7/24/2007 4:22 AM (GMT -7)   
Dear Lyn,
 
I'm fairly new to this forum too as my husband (53) was diagnosed with advanced PCa about 2 months ago. He didn't have any problems, but found out through a medical test for a job. Given the seriousness of the cancer - which we still find hard to comprehend, it still seems bizar that he is suddenly 'terminally ill' - the only treatment option was HT (3 monthly lupron). His PSA was 1940, and the PCa had already spread to his bones and lungs. Dunno what exactly the Gleesan score was, but than, it doesn't really matter. I agree with Susan that the statistics don't really matter either. My husband is by no means an average person, so we're hoping we will have many good years together.
 
My husband is feeling all right, although he does get pains in his limbs and sometimes feels  tired. What works for him is continuing his normal life and going back to work. There is a lot of healing power in having fun! Make sure to get enough sleep and try to exercise. Am wishing you and your husband all the best.
 
Dutchy

gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 7/24/2007 10:12 AM (GMT -7)   
PSA numbers are important, but don't feel that a number above a certain point is a time for panic.  My uncle told me that he was diagnosed in 1994 when he had a PSA over 100.  He looked back at prior tests that showed numbers over 30, but apparently they didn't pay much attention to those things at that time.  He has had radiation and hormone treatment and is still living a fairly normal life.  He also told me that he knew someone who's PSA had been over 1000 and this man was also still around.  I had no idea that such a number was possible.  I'm grateful for the wonderful knowledge available from the members of this forum. 

debib
Regular Member


Date Joined Jun 2007
Total Posts : 35
   Posted 7/24/2007 10:35 AM (GMT -7)   
I just want to add that Ron's PSA was 49 and his Gleason 5+4=9 in June 2006, he is 57 and was told that the only treatment option for him is hormone therapy and they added casodex last month...his PSA is 0.28 !!! YES !!!
The large number PSA in the hundreds and thousands can mean he has bone mets but can live years ...I know of a man who had a PSA of 7100 and that was 5 years ago...no one knows why some men live a long time and others don't...the only thing left to add is to test his PSA monthly..you will have to fight for that ...drs don't want to do that but I have not let up and between his urologist and oncologis Ron gets monthly a PSA test and that is the only way to know for sure what is going on and that is why the casodex was added. Ron has no symptoms at all and feels good. We are greatful for each and every day and live life to the fullest and wish all of you brave warriors the best !!!
Take Care,
Debbie

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/24/2007 8:00 PM (GMT -7)   

Keeping you all very close in thoughts and prayers.

 

There is a book that I’m reading that was recommended by Recommended by Courtney *kziz

It truly gives one HOPE… (thanks Courtney)  :-)  

 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

 

 “Peace, Love and Healing”

Bernie S. Segal, M.D.

            BODYMIND Communication & The Path to Self-Healing: An Exploration

 

 

BOOKS... Recommended by Forum Members ~ See Link to HW's official bookstore!!

 


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 

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