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mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/13/2007 6:11 PM (GMT -7)   
Well, after a problem with secretary who forgot to put my appointment in the computer for April 5, I made it back to see Dr. Moul at Duke today.  I had a few questions for him and he said I really looked good with my weight loss.  We scheduled a surgery date of June 4th because this was the first date he and his team could operate on me early in the day.  He likes to do his surgery when he and his team are fresh in the morning with his patients who have health problems(diabetes and sleep apnea). He tried to do the post op today but they will not schedule that more than 30 days from surgery.  Dr. Moul was very positive and we had a good talk, and said the delay would not be a problem for me.  The only problem I will have with the June date is that I may not be much help with my car club for our July 4th car show.  It takes us the month of June to get things ready for the show.  I couldn't help last year because I broke my are in two places getting ready for the show last year.  The other members are probably thinking what will he do next year to get out of working.  But I am feeling real good about setting a date.  Was really having bad feelings about it last night in the hotel.  I have developed shingles since I have been diagnosed and they were out of control last night too and that didn't help matters either.  But I am now ready to (Do It)

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/14/2007 6:29 AM (GMT -7)   
Hi, MV - it's such a relief to actually set a date, isn't it? That's a big step. You'll also have time to prepare physically and round up things you'll need. I know we did so much research and then when we made an appointment with our da Vinci doc, he scheduled us for the next week! That was pretty wild - like, we wanted more time, but then the flurry helped those few days to pass.

Try to take some deep breaths and relax a little. You may have a little dread off and on, but in no time, it'll be over and you'll be well on your way into the "recovery channel."

Guess you'll get to "supervise" with the car club even, huh?
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/14/2007 8:18 AM (GMT -7)   
Good to hear that you got your surgery date set. How far do you have to travel to get to Duke?

We had to wait a while for our surgery too, and the waiting part was kinda ancy for us. We just focused on keeping exercising, doing the kegals, reading other's experiences, etc.. Although there comes a point where i felt oversaturated on info and research. and felt like "ok" nothing more can do except forget about it. Taking a vacation helped break up the waiting though! Would definitely recommend if you can swing it :)

I am sure your car club will understand if you can't help out as much as you would like :)

Best wishes on continued weight loss. Sorry about the shingles,what do they do to treat it? Don't know much about it, is it brought on by stress?

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Surgery: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both rght and left apex. Negative margins. Gleason 3+4=7.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2007 1:19 PM (GMT -7)   
Hi mvesr....
We will be back on-line this evening to touch base with you!!
Great news on the surgery date! Shingles ugh!! 2 friends have had it over the past few months. It seems to be out there more ~ not sure why!!! Take care of you okay!!! And yes ~ the stress needs to be reduced!!!

Please take care and we will be back later!!
In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/14/2007 4:02 PM (GMT -7)   
Hi all.  I wish I could get it done tomorrow, but setting a date was a big relief.  Shingles are related to Chicken Pox which I had when I was a child.  My wife had them when she was was expecting with our first child.  It can be caused by stress too.  Going to see my personal Dr next week and hope to get something for it.  I have a million things to think about, like getting things together for the surgery.  If anyone has a list of things to have or how to prepare for surgery I would like to hear about them.  Also we live about 3 hours from Duke.  It is driveable in one day, but after having experienced the traffic parking lot in Greensboro in the mornings, I think it is better to spend the night in a hotel

Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/14/2007 5:03 PM (GMT -7)   
This is our list. Compiled from reading helpful posts from others here as well as this site that was helpful:

http://www.malecare.com/prostate_cancer_surgery_patient_hints.htm

CLOTHING

Bought a pair of tear off basketball warm-up type pants with the snaps on the side. Easy to get on and off with the snaps and can hang the big catheter on a snap down low when moving around. But since you are having your surgery in summer maybe big mesh basketball shorts?

*Robe and slippers (with good sole, to not slip on the tile) for hospital

Some tightie whities for post-catheter out. Holds pad in tighter. We aren't that point yet, but have them on hand.

PHARMACY
Asked our doc for prescriptions for post-op at pre-op appointment (as some suggested on here). Filled them prior to surgery so didn't have to deal with stopping at Walgreens on way home, etc. (He prescribed detrol LA for bladder spasms, percocet for pain, an antibiotic, and ambien for sleep).

Pre-op stuff: in our case magnesium citrate (laxative) and a couple of Fleet enemas. Also baby wipes for wiping sore butt from all the laxative action.

Post-op stuff:
* Stool softener.
* Electronic thermometer (already had)
* Bought some pads for after catheter is out (we bought serenity pads, but some recommend attends ... haven't tried any yet ... but there are some threads on this)
* Neopsorin with pain gel (good for putting around opening of catheter) ... they also gave us some in hospital, but didn't have the numbing stuff in it.
* Alcohol wipes for cleaning off catheter connections, cleaning tip of penis
* We bought one washable bed pad for post-surgery in case of leakage, blood, etc. Although we have used it, didn't really need it

OTHER
*Vinegar for cleaning and draining catheter (oh and a funnel is handy, even though wasn't on my pre-surgery list)
* We bought an extra velcro catheter strap (we got one from the hospital, but Ken liked using two to keep it from pulling)
*Ken also added a few inches to his leg catheter with 1/2" sterile tubing. So the tubing was extended beyond his ankle. He then tucked it up under one of the straps. Works well for draining.
* We stuck a plastic hanger in between the top mattress and bottom one, hung the big night bag from that over a plastic garbage pail. Also had several plastic garbage pails around in sitting/resting places to hang catheter on during day.

FOOD
*lots of liquids, buillion/broth, lemon ice, jello for pre-surgery liquid diet
*Lots of pudding, yogurt, ice cream, soup, etc for post-surgery diet

That is everything I can remember! Best wishes, you have lots of time to prepare, we ordered a couple things online and took a little time to arrive.

Tanya (and Ken)
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both rght and left apex. Negative margins. Gleason 3+4=7.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2007 5:39 PM (GMT -7)   

Hi ~ mvesr,

 

You will likely go in and out of emotions so get ready to deal with them.  It is a normal process… so don’t be alarmed.  Just remember to take one-day-at-a-time and you will have a lot of Helping Hands reaching back to you as you continue to reach out to all of us.  There are several threads with lists of supplies that different folks have put together.  I’m adding several links at the bottom from the Helpful Hints page…   will It will really help you!!!  Knowing what to expect is really important… so there are no surprises.  Why re-invent the wheel.  We can all add our “spokes” to make a wonderfully smooth ride.  I see that IzzyBlizzy just added her list to your thread also!!  :-)  

 

Don’t forget to ask your family doctor for a mild sleep-aid for those nights your mind starts to really get going in the wrong direction.  This helped us the last 2 weeks before surgery and had no affects once we stopped them.  Have them handy because you really want to be rested going into your surgery.

 

Will you be having the open or the lap surgery??  Smart decision… to stay overnight.  Don’t put any more pressure than you have too during this period of time.  There’s been a lot of members who have traveled…  Pull from their experiences…. To help you prepare for your drive home.  I can honestly say the best thing we had for our 1-hour drive home was the reclining seats in the Jeep and the neck pillow!!!!!!  That was my biggest concern and turned out to be so easy in the long run.  SO ~ read, read, and read more…  Don’t overload but take in as much as you can.  You’ve made your decision and it’s the best decision for you!!!!  Don’t go backwards…. Continue to move forward!   yeah  

 

In response to your shingles…~  painful rash of blisters.  I truly hope you get your appointment on Monday…. Because the longer you leave it the more pain you will experience.  And you might mention to your doctor that your daughter is pregnant (not sure if this is a problem but worth mentioning).  I know this virus is easily spread by direct contact with a blister and will cause chickenpox in a person who is not immune to the disease.  Medication helps to reduce inflammation and helps you cope with the pain associated with it.  Our neighbor had this and found cold compresses helped tremendously…  Hopefully you can get this dealt with quickly so you can move forward.  It will probably zap your strength… so work with it not against it....

 

Continue on your road to weight loss!!!  This is such a positive for you!  And don’t forget to start kegels….  We can’t say this enough.  We truly feel it’s what helped us in our urinary control so quickly after the catheter was removed.  Make sure you re-read your posting to help you get in a good “positive” mindset!!!!!

 

The car show… will be here in 2008 ~ right!!  Plan to put your all into that showing…  This year it’s time for “YOU”!  Once you’ve had your surgery you do not want to cause any extra concerns once your on your healing/recovery stone.  So ~ plan now ~ not to have any duties that will cause you any extra stress or injury…..  Lift a hood and bam you’ve got a hernia…  You don’t want this!!!!  So ~ plan to give yourself the right amount of time to heal properly…  this is major surgery and it needs major attention to HealingWell.

 

Keeping you close in thoughts and prayers as you move forward in your journey to become prostate cancer free!!!!!  We invite you to visit our personal thread below.

In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/15/2007 6:05 AM (GMT -7)   
Oh, yes, shingles. Had 'em - stress for sure. There's more to worry about if they're on your forehead as it can lead to eye damage. Otherwise, you probably already know the routine. The doc will give you a couple of meds, but it's really too late to speed up the healing process. Anyone who has ever had chickenpox is susceptible to an outbreak of shingles as the "pox" lie in nerves and then activate on a whim at any time. Avoid going around anyone who has not had chickenpox.

Regarding the drive home - I highly recommend waiting a day - if there's a hotel nearby with easy access to a room. Even then, you'll want to pack plenty of pillows and plan on taking a pain pill for the ride. We had a five-hour drive and stayed one extra night. The only thing we would have done differently is leased a "luxury" road car for a smoother trip. Our short-wheelbase SUV provided a miserable, bumpy, painful ride home. Otherwise, if you can stay knocked out - the drive home to your own bed might be well worth it.
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 4/15/2007 10:51 AM (GMT -7)   
Hi MV,

Congrats on getting a date set. My wife and I were much relieved when ours was set. The decision was behind us and we didn't look back or try to second guess ourselves. Waiting for surgery was hard but we stayed close to the people on this forum and got much needed support. We can do this thing together...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/11/07.
 
 "Cancer feeds on fear - starve it to death."


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/15/2007 5:04 PM (GMT -7)   
MVesr -- Biker could not have put it better -- you're on the right path and will soon be on your way to recovery.
Best to ya, from all of us! Keep us posted.

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07

 

Courage is fear holding on a minute longer.”

George S. Patton

American Soldier and General

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