New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AEG
Regular Member


Date Joined Nov 2005
Total Posts : 154
   Posted 4/15/2007 9:33 PM (GMT -7)   
I'm new here.  My husband is 44 years old and he's been recently diagnosed with PC.  His psa is over 3 (he takes Propecia and now we learned that it lowers the psa by 50%), gleason in 3+4, cancer 30%, however only 4 biopsies were taken (3 out of 4 positive) so the stats may not be very accurate.  He also had a biopsy done 2 years ago where 10 samples where taken and the results came back as atypical.  Since there is no family history of PC, we didn't follow-up properly.
 
I'm really scared that the cancer is not confined to the prostate and that his gleason could actually be higher.  Any words of wisdom would be greatly appreciated.  Thank you.
 
AEG
 

Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/15/2007 9:56 PM (GMT -7)   
Welcome AEG :) Sorry to have to welcome you.

I hate to tell you this. But if they only took four samples and 3 were positive that pretty much is a guarantee that he has cancer.

No one can tell you right now whether it is confined to prostate or not, or whether gleason is higher or not.

But I would encouage you to start looking into all your options. You do have options. And i also would think with his stats that you might want to pursue a bone cancer scan and/or MRI. (I certainly don't want to scare you, but with a Gleason of 7, 3 out of 4 cores positive, and 30%, i would insist on further tests).

This is a big (((((hug)))) for you. Please keep us updated.

Best wishes,

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both rght and left apex. Negative margins. Gleason 3+4=7.


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 4/16/2007 12:04 AM (GMT -7)   

AEG,

I moved some helpful lists of "threads" up to the top so you could find them easily.
I feel Bluebird is our "forum hyperspace navigator...."
I had a lot of trouble navigating this forum at first.
As Tanya-IzzyBlizzy said, do your homework and consider your options.

So young!
My research indicated that most urologists will likely say that with an age of 44 and a "7" Gleason, radical prostatectomy should be considered - and soon.
Find experienced physicians that you feel comfortable with.  CONSIDER ALL OPTIONS.
Get a second opinion from a urology/oncologist that is not just a radiologist.
If you tell people here what part of the country you are from, you will get a lot of experienced opinions about which physicians and facilities they liked.

I was scared until the biopsy after radical prostatectomy came back "confined."
Being scared is normal.  However, keeping your spirits up - even in the face of such a scary thing - is VERY important.  I found the entire experience very (out-of-character) emotional.
I suggest just go ahead and cry at will.  Then cheer up because you have each other, you will likely prevail, current techniques have come a long way, and the Creator loves you always.

If you go for the (likely daVinci Robotic) radical prostatectomy - and the cancer is contained, the challenge to overcome incontinence and erectile disfunction will be a small price to pay for being cancer free.  Some of the couples here will be very helpful with the relational issues that may arise.

Start execising now.  Walk or exercise more at whatever level you exercise now.  The better your physical condition going into this, the easier the healing process.
Learn Kegel Exercises.  Do them at least three times a day.  The sooner you start the better.

You are among friends.
Cedar Chopper


~~*~~*~~*~~*~~*~~*~~*~~*~~*~~*
2 Years of PSA between 4 and 5.5
Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.
Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.
Confined:)
***************
Texas Hill Country
FRESH Produce Department Manager
Have you had your 5 colors today?


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 4/16/2007 4:26 AM (GMT -7)   
In recent times, it is not usual to take only 4 biopsy samples.
 
Personally I would obtain a 12 sample biopsy and request 2 opinions on the reading: Biopsy readings are subjective, so good advice is also to obtain the 2nd view as you will be basing your treatment decisions on the results.
 
Gleason scores with 3 as the main figure are very usual results and are obviously not the most agressive scores one can have.
 
It is very rare for someone with a PSA under 20 to have bone problems.
 
Once you put it all together you can then consider the various treatment options.
While many people and doctors have thier own prefered treatment  option, the facts often indicate that  several treatment options can yield similar results, so it could come down to personal preference.
 
Most here will advise that selection of your doctor is the most important consideration, regardless of the treatment chosen.
 

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/16/2007 5:18 AM (GMT -7)   
AEG,

I assume that the clinical stage is T1c since you did not say that a DRE indicated any abnormalities. The Partin Tables were developed as a probablity tool to help understand the chances of the cancer getting out of the prostate. I entered in to the calculator for the Partin Values the PSA at 6+ and Gleason scores you provided and assumed a clinical stage of T1c. Here is what the calculator provided.

Organ Confined: 54(49-59)
Extraprostatic Extension: 36(32-40)
Seminal Vesicle Invasion: 8(6-11)
Lymph Node Invasion: 2(1-3)

While these are not as good as you would like they still give a good chance that the cancer is confined to the prostate. I also believe that statistics indicate that PC in younger men tends to be more aggressive. If it was me I would find a Urologic clinic either a private one or one associated with a university and get a second opinion in order to move toward a treatment decision as soon as possible. It is paramount that you get as much information as possible as soon as possible and move toward a treatment plan.

We will be here with you along the way. Just let us know how we can help.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 4/16/2007 8:26 AM (GMT -7)   
AEG,
I'm sorry to hear about your husband. I can see that my friends here are giving you some great information but also some scarry stuff. I assure you they don't mean to frighten you. The main thing to do is try to keep calm. I know it is a horrable time for you but the more calm you are the better you will be able to think about what you must do. It is NOT the end of the world although it must seem that way. Like the others said, get a second opinion from the best Doc in your area or if you are able to travel, go to one of the well known centers known for their work with PC. Find someone you trust and are comfortable with. It really makes a big difference. There are a lot of great people here to help with any questions you can think of. People who have been there so please don't be a stranger. Let us know how you and your man are doing. My prayers are with you.
Your friend,
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06, Erect, Dry & Lovin Life!!! I am's what I am and that's all that I am!!! 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 4/16/2007 11:43 AM (GMT -7)   
AEG-

There are 3 books, one each by Strum, Scardino and Walsh, all doctors,
any one of which (or all) you should read. They are available through this site and at all major book sellers.

In addition, check out US TOO. They have PCa support group chapters all over the country.

Good luck.

-Gordy

kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 4/16/2007 2:24 PM (GMT -7)   
AEG, sorry you had to join our group. Like your husband, mine is also one of the young ones at 47. You can look below to see his stats. He also had a low PSA, but high for his age. Every urologist we spoke to said that a bone scan and CT scan were not important. I have a trusted onocologist who sat up the test for us. He assured us that chances were, they would be negative, but why not just make sure. The partin tables scared me to death. I felt more comfortable knowing for sure, as did my husband.

With the help of all the great people here, and our local onocologist (who we also saw despite what the urologist said), we made a quick decision to go with the da Vinci. We had to travel to have it done by a doctor with a lot of experience. Once that decision was made, we were very relieved. It has been 4 almost 5 weeks since surgery. Kurt is back to work, only leaks when he sneezes, and continues his rehab for ED. We are truly bleased to be rid of the cancer. Our lives are on the way back to normal.

If you have kids, there are many web sites out there to help you talk to them. Kurt tried to shield ours a little at first, but after the initial shock of "dad's going to have an operation and everything will be ok" wore off, (maybe 30-45 minutes), we told them the "C" word. After that, we had open convesations, both with the boys (ages 14 and 10) and infront of the boys. It helped them to feel part of it all. If someone asked me a question in front of the youngest, he would often jump in with the answer. And he was proud to be part of the adult conversation and in the know.

Reseach all your options. Surgery is not as scary as it seems at first. The side effects will decrease with time. A lot of men live a healthy, full life following treatment. Let us know where you are from, that way the locals can help even more. And have your husband start walking daily and doing kegals. Keep posting, and more importantly, keep your head up and know that we are here to help you along this journey. One of my favorite sayings is "Life's a Journey, not a destination". Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/16/2007 5:53 PM (GMT -7)   

Hi ~  AEG  &  Loved Ones,

  

    A   “Special”  Warm Welcome  to  You!   yeah  

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where you are on your path. So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!

  

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

 

Our thoughts and prayers will be with you as you continue to move forward with your decision.  In Friendship ~ Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/16/2007 6:03 PM (GMT -7)   

November Posting:

Bringing this information forward so we have it here!

Quote from previous thread Started by:

                                               AEG on November 2006 thread:  Questions about prostate issues

 

Hi everyone. I'm new here and I can really use your expertise. My husband is 43 years old and here is the history of his prostate issues:

1. My husband's psa readings over the past few years have been between 2.9 and 3.2

2. July 2005, my husband went to a urologist:

   a) he had a prostate biopsy

   b) results indicated atypical cells

   c) urologist wants to repeat the biopsy

3. one week after the biopsy:

   a) PSA was done and it was 5.1 (the highest it's ever been)

   b) urine had blood in it

4. August 2005, my husband went to a radiologist that specializes urology for a second opinion, during the visit:

   a) the dr. performed an ultrasound

   b) he saw what looked like inflammation (possible residual of biopsy)

   c) husband's urine still showed blood in it

d) dr. said it should clear up on its own in about a month or so

e) dr. wants to repeat ultrasound in six months

5. In September 2005, my husband had a semen analysis done (as part of an infertility protocol) and test indicated that white blood cells were found in the semen sample (possible residual of biopsy since previous semen analysis were normal)

6. In November 2005, my husband went to an infertility urologist:

   a) PSA was repeated and it was 4.9

   b) blood still found in urine

   c) dr. wants to repeat urine test in one month

   d) if blood still found in urine, dr. wants to perform cat scan

   e) I asked dr. if he thought antibiotics could clear this up and he said no

8. As far as we know, my husband didn't have blood in his urine prior to the biopsy

My questions are:

1. Could a biopsy cause the psa to rise?

2. Could blood appear in the urine four months after the biopsy?

3. Has anyone here experienced this before?

Any input would be greatly appreciated.

Hugs,

AEG

 

 

April 15, 2007 New Posting.....

 

I'm new here.  My husband is 44 years old and he's been recently diagnosed with PC.  His psa is over 3 (he takes Propecia and now we learned that it lowers the psa by 50%), gleason in 3+4, cancer 30%, however only 4 biopsies were taken (3 out of 4 positive) so the stats may not be very accurate.  He also had a biopsy done 2 years ago where 10 samples where taken and the results came back as atypical.  Since there is no family history of PC, we didn't follow-up properly.

 

I'm really scared that the cancer is not confined to the prostate and that his gleason could actually be higher.  Any words of wisdom would be greatly appreciated.  Thank you.

 

AEG


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/16/2007 6:37 PM (GMT -7)   

Hi AEG,

 

Stop and take a nice deep breath  Now ~ let the past go… 

 

You are here ~ right now ~ and you are moving forward with finding out as much as you can about this disease. 

 

Knowledge is Power… and Power takes away the fear! 

 

Excerpt from “Our Journey”

Prostate cancer... is an “US / WE” disease and must be treated as an “US / WE” Journey. 

Make this a “team” journey…. Do everything together.  You will need each other and each other’s strength!

 

Let us help you to move forward. There are many stepping-stones on this new path.  Save your energy for taking the next step on ~ Your Journey.

 

It is so important to “keep” reaching out to us ~ Okay!!…..  Continue posting …. On this thread… We have your hand now!!… So ~ Hang On while we shore up a few of your wobbly stones. 

 

We feel your fear and we know what it feels like.  Remember ~ you are not alone…

  Take another deep breath.... and know that there's a lot of us like you out there...

and we've been where you are now.

 

Please take time to read as much as you can on this forum… The Helpful Hints & Direct Links in your Welcome Letter will take you to so many wonderful topic/threads to view.  There are many, many more as your time permits.  Take the Time!!!!! to grasp as much as you can from people who have been right where you are ~ right now and where you’re headed.

 

Your fear is felt by all of us ~ but we will help you to realize that the fear will not overshadow you as long as you start pulling from all the strength that will be coming at you ~ from all of us.

 

We are keeping you tucked close to our hearts as you move forward.

Our thoughts and prayers are with you.

In New Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


AEG
Regular Member


Date Joined Nov 2005
Total Posts : 154
   Posted 4/16/2007 6:47 PM (GMT -7)   
Hi Everyone,

I'm overwhelmed by everyones respones. Thank you so much for your support and encouraging words. I forgot to mention in my previous post that my husband is scheduled for open surgery with a Urologist in NY. Please keep us in your thoughts and prayers. G-d bless everyone here.

Big Hugs,

AEG

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/16/2007 7:20 PM (GMT -7)   
Hey AEG, Make sure we have the date of your surgery!!! Special thoughts and prayers will be sent out so let us know!!! Okay!!! Hugs to you ~ new friend!! Lee

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 4/18/2007 7:28 PM (GMT -7)   
Dear AEG

i can't imagine any doctor only taking a 4-sample biopsy. I had a 29-sample biopsy taken by a top urologist. some doctors think that 12 samples is adequate, but a minimum of 20 should really be taken to get a more accurate projection of the stage of cancer. i don't understand why your husband has been scheduled for surgery when it appears that an inadequate biopsy was taken. the biopsy is one of the principal tests to determine if cancer is present and to help the patient decide on an appropriate treatment. it is also advisable to have a complete body bone scan and an endo-rectal MRI. I would not let any surgeon or radiologist treat me without adequate pre-testing. i strongly suggest that a more complete biopsy be taken and that your also obtain a 2nd opinion on that biopsy. best of luck to your husband.

Dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Starting proton radiation therapy 2/22/07.

Post Edited (pcdave) : 4/18/2007 8:32:27 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 18, 2017 3:51 AM (GMT -7)
There are a total of 2,906,668 posts in 318,985 threads.
View Active Threads


Who's Online
This forum has 158325 registered members. Please welcome our newest member, kiumo.
231 Guest(s), 5 Registered Member(s) are currently online.  Details
Georgia Hunter, Aset28, M1961, testuser1234, kiumo