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CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 4/17/2007 10:38 AM (GMT -7)   
Hello!

We have been reading for a couple of weeks and decided it's time to dive in. Curt was diagnosed with prostate cancer in February and having the Da Vinci surgery on May 11. The Dr. feels that he can only spare one nerve due to the volume of cancer in the left side. We feel so much better reading all of your posts and seeing the support that is shown here.

I have been making note of all of your suggestions to make things easier after surgery. Feeling a bit overwhelmed but know that is normal.

Looking forward to getting to know you.

Curt & Vicky
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6
PSA:3.3
DaVinci Prostatectomy scheduled for May 11, 2007
Stage: T2a
Father and uncle had prostate cancer


daveed
Regular Member


Date Joined Jul 2006
Total Posts : 172
   Posted 4/17/2007 10:49 AM (GMT -7)   

welcome aboard Curt & Vicky

you've made your decision on treatment and that I beleive is the hardest hurdle. Please keep us informed as time goes on and remember "there are no stupid questions". We will all be praying for a successful outcome for Curt.

God Bless and God speed


Diagnosed March 06
PSA 4.4
Two biopsies. One core of each 5% cancer, two suspicious
Gleason 3+3=6
DaVinci surgery Nov 1, 06
Cancer confined to prostate
Ist PSA 6 weeks post op less than 0.02
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/17/2007 11:07 AM (GMT -7)   

Hi ~  Curt,  Vicky,  &  Loved Ones,

  

     A   “Special”  Warm Welcome  to  You!     yeah   

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where you are on your path. So ~ Please stay with us and take our hand when you need it! 

Keep posting.... OKAY!!

  

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

 

Our thoughts and prayers will be with you as you continue to move forward.

In Friendship ~ Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/17/2007 11:21 AM (GMT -7)   

Hi Curt & Vicky, 

Your signature is perfect!!   yeah   This forum truly is AWESOME!!! And we are thrilled you found us.  Thanks for taking the dive!!!  You truly won’t regret it…  We have been where you are now and soon you will be where we are!  Taking One~Day~At~A~Time….. and continuing to move forward in a “positive” frame of mind is so important.  Your decision is made and that's a huge stepping-stone that is now behind you!!!  May 11th will be here before you know it.  And the sharing of your journey will help others in the future. 

We will keep you close in thoughts and prayers.  Please stay with us ~ okay :-)

In New Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 4/17/2007 11:22 AM (GMT -7)   
Hi Curt and Vicki,

Sorry you have to be here but this is the best place to be for hope and help and support.

Having the treatment decision behind you is the first and highest hurdle that you have to face. Good for you for getting it done and good for you for using us to help in the process. Remember that we are here for you and look forward to you sharing your story so you can help the next person who comes on board.

Please stay with us, we need you as much as your need us...

Jim


Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/11/07.
 
 "Cancer feeds on fear - starve it to death."

Post Edited (biker90) : 4/17/2007 2:27:50 PM (GMT-6)


aztec1958
Regular Member


Date Joined Feb 2007
Total Posts : 94
   Posted 4/17/2007 12:45 PM (GMT -7)   
Hi Curt and Vicki

I just had the Da Vinci surgery and so far the recovery has been prety good. I still have the catheder in but will have it removed this Thursday. From my limited experiance you can move the first day and my hospital had me walking down the hall the next day and that same day I was discharged. Everyone is different but I was eating solid food by day three. If there is a drawback on this procedure it's that you recover quickly and feel you can do things you shouldn't too soon. Just from my standpoint take it easy and find books you like to read becasue daytime TV is the pits. Good luck and stay in touch the people in this forum can be a great help when things seem dark. I know they have been a great support system for me.

Alex

kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 4/17/2007 1:34 PM (GMT -7)   
hi Curt and Vicki,

Not to echo the others, but sorry that you are here. My husband had the Da Vinci in March. Like Alex said, the down part is that you feel so good so soon. I practically had to sit on Kurt to keep him down. He is now back to work with very few leaks if any at all. He wears one pad per day, just as a precaution. Kurts nerve bundles were spared on both sides, however, the doc cut the ends that wrap around the prostate on both sides about half way to 3/4 of the way up because he didn't know exactly where the cancer was. He said that at Kurt's age, he expects full recovery, just may take a little longer than most men his age. You are very close in age, so I hope that gives you a little encouragement. We are not quite there yet, but know that it will come. Doc expects 50% at 8 weeks. I think we have achieved that at times all ready. Good luck to you. Don't hesitate to ask anything. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 4/17/2007 2:08 PM (GMT -7)   
Thanks so much for the kind welcome. Isn't it wonderful that we can all communicate through the internet. My father had a prostatectomy in 1992 and there wasn't anyone to ask questions of except the Dr.
I am still trying to figure out how to navigate here. I read your instructions post, Lee -- but it seems things aren't sticking in my brain very well lately.
Daveed-thanks for the boost to ask questions. Lee- Could you explain the reconstruction of the sweat pants a bit more? Velcro strips spaced down the sides or what? Jim- What kind of bike do you ride? Curt is a Harley guy.
Alex- We splurged on Showtime to get us through the recovery period. Bet you can't wait for Thursday!
Courtney- Will the nerves work after being cut? Curt is concerned he will be lopsided with one nerve. ;) We have so much to learn! Thanks again.
Vicky
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6
PSA:3.3
DaVinci Prostatectomy scheduled for May 11, 2007
Stage: T2a
Father and uncle had prostate cancer


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 4/17/2007 2:31 PM (GMT -7)   
Vicky, Take a deeeeep breath. I know exactly how you feel. I was there just 2 months ago. My dad died from this in 1997. He was 53 years old. Surgery was not an option for him, but it was for Kurt. Yes, the doctors expect full recovery. It is frustrating at times, for both of us, but the most important thing is the cancer is gone. He takes Viagra everyother night and pumps 2 times per day. I think that we are ahead of schedule at times, and right on track the rest of the time. It does take time. We will be 5 weeks post surgery tomorrow, and only in our 2nd week of trying to get an erection. So, being said that he can achieve some hardening, I would have to say that the nerves work, they are just mad at being manipulated and cut during the procedure, haha. They will get over it eventually, and our life, though changed forever, will get back to normal.

I posted a thread around the beginning of March about what to have ready for after surgery. If you want, we can bring it back up to the top. We got a lot of great advice there for surgery needs. We were set!! Eventhough we traveled six hours away.

Good luck to you. Keep posting. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 4/17/2007 2:42 PM (GMT -7)   
Will look for the surgery advice thread. We have to travel 3 hours away and I was worried about how he will make the trip home. If you guys made it six without problems that makes me feel better.
Breathing!
Thanks, Vicky
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6
PSA:3.3
DaVinci Prostatectomy scheduled for May 11, 2007
Stage: T2a
Father and uncle had prostate cancer


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 4/17/2007 4:03 PM (GMT -7)   
Vicky, where are you all located? That info can also help others to give you advise. Glad you are breathing.... Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 4/17/2007 5:09 PM (GMT -7)   

Just one more note of encouragement.  This forum is the best PCa support group anywhere.

Everyone makes their own decisions about this thing.  My path just before surgery was different than most here.  I knew this forum and other online sources was out here, but I consciously chose to turn them OFF. After I acquired a bunch of (too much?) information,after I read all websites and talked to the doctors and made my treatment decision, I just went back to living.  At that time I decided not make prostate cancer my whole life. duh?

That is my way of dealing with things.

I admit, that since surgery every day has been about healing and moving on.  I have been back here (this forum) virtually every day, reading and learning occasionally sharing my experience.

You are doing the right thing.  Get your information, read until your eyes are blurry.   Once you have made your decision, don't look back, just look to a future that is hopefully cancer free.

Best to you both...


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
Back on the golf course...
 
 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/18/2007 9:47 AM (GMT -7)   
Hi Curt and Vicky,

Just wanted to add my welcome to the forum and glad you decided to post!

We are just one week out of surgery here and everything is going very well.

We were also facing the "possiblity" of one nerve going, although our doctor told us absolutely no way to tell until he got in. Turned out both were saved.

Best wishes, keep us udated :)

Tanya and Ken
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both rght and left apex. Negative margins. Gleason 3+4=7.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/18/2007 10:29 AM (GMT -7)   
Curt & Vicky,

Pleased that you dived in but wish that you did not have to be here. The treatment decision has brought you a long way to the other side. The Da Vinci surgery is really a good way to go especially if you never had surgery before. The worse part for me was the prep and liquid diet. I was up and walking a lot within 10 hours after surgery. Curt will be sore in abdomen like you get if you do too many situps. I did not have any pain at all and never took anything stronger then an extra strength Tylenol for the aching and I do not consider myself to be good at handling pain. The incontinence and impotence are generally time dependent complications. I was one of the lucky ones as I did not have any gas pains and my BM's returned within 12 hours after surgery.

Look forward to hearing your progress and helping where we can.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/19/2007 6:15 PM (GMT -7)   

Hi ~ Curt & Vicky,

 

In response to your question about Velcro.

 

Due to cooler weather at the time we had Mr. Hang… we used long pj’s… 

We used the drawstring pj's over elastic waist..for comfort in tightness around waist. 

Warmer weather!! …shorts would be perfect with no work needed!!

 

I slit a comfortable pair of pj’s down the left side from waist to mid thigh.   I pulled the drawstring out of the way  so I could re-thread it once the slit was made.  I then hemmed the edges and placed hooks… to close the opening (not really necessary if truth be told!!! No body saw it but us J).  This allowed for the tubing to be comfortable with a downward draw to the bag.  Buddy was very comfortable holding the “big” bag as he walked, it hung great in the basket beside the bed, and while reading in his “new” lounge chair.  The small laundry basket with handle….was very stable on the floor. (approx size 13Hx12Wx13D).  We chose not to use the leg bag at home!  We also did not venture away from home.  We got lots of rest and good walks!!

 

The Velcro could be used on a pair of elasticized pants… and at the slit (waist to mid thigh) the Velcro could be used to close the waist (adjusting tightness as healing takes place) and leaving the slit open or a little Velcro could go here too!!

 

Couldn’t find the posting about the Velcro and now I’m wondering if it was Wittler who mentioned it….  But here’s my thoughts.

There are other postings and if I can locate them I’ll send them to you….  Lots of options!

 

The most important thing we can share from our experience with Mr. Hang…. Is…. Make friends with him.  Let him have his way because he is doing some serious work here.  Helping you to heal and this is so important for continence……  So ~ if you fight him he’s going to fight back!!!  And ~ he will win.  So ~ make life easy…. Go with the flow for the “small amount” of time that you’ll be joined with him…. 

 

Hope this helps and continue asking questions…. there’s no need to re-invent the wheel!!!  We can all help to make your journey smoother.

 

In Friendship ~

Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


sween76
Regular Member


Date Joined Feb 2007
Total Posts : 60
   Posted 4/19/2007 6:19 PM (GMT -7)   
Curt & Vicky:  This is a great place/forum. Some of the best advice I got was to make sure you were in the best physical shape possible as well as mental and spiritual shape.  As far as physical - besides the normal stuff (heart, abs. etc,) I worked very hard on my upper body strength (ptimarily arms). Very beneficial as it now allows me to lift my body without too much strain. I was exercising at least 2 hours per day before the surgery (nothing was more important). Good luck to you.  Ed

Age: 63
PSA 2.62
Negative DRE
Gleason 3,3
Stage T1c
Prostate 63 cm
Cancer 5% in one of twelve modules
DaVinci scheduled for April 16, 2007

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