Hello All. I am new to this board.
I only heard the term perineal pain for the first time yesterday while searching the Net and trying with your help to confirm that's what i have.
I am 53 YO and had a radical prostatectomy and lymph nodes removed Fe 6th. went home with a catheter Feb 9th and catheter removed Feb 19th. about a week after the surgery i started to get significant pain/pressure in what i thought was my rectal area but since then I think I have pinpointed it to the area between the rectum and scrotum and when really bad the pain would radiate into my buttocks. to be blunt it felt like someone was shoving a baseball bat up my you know what, when i would sit it felt like I was sitting on a balloon and the only way to get relief was to take painkillers and lie down. after lying down the area would throb for about an hour.
I mentioned this to my doc/surgeon who said my bladder was spasming and was inflamed and swollen from the surgery and catheter. he said it would be better when the catheter was removed.
well the catheter was removed Feb 19 and pain stayed the rest of that day and next day went away for about 3/4 of a day and then came back. it is much reduced from what it was and seems to have stabilized at a moderate uncomfortable level but does not seem to be improving after a week and a half without the catheter. the doc again talks about spasms, possible infection so has put me on strong antibiotics and just says for some it takes longer to recover. he has never mentioned perineal pain.
the symptoms i'm experiencing:
-the balloon like feeling is the least first thing in the morning and seems to get larger as the day goes on
-walking relieves the pain/ache
-lieing down " " "
-the pain is the worst and comes on the fastest when standing in one spot such as when shaving or standing under the shower.
-seems to also come on when i feel a bowel movement coming on and is temporarily relieved like 10 or 15 minutes with the movement.
i mentioned all of this to the doc this past Thursday and he has booked me for a cysytoscopy for Tuesday if i am not improving. I'm sure you can all appreciate that after having a catheter for 2 weeks i certainly want to avoid having more things shoved up there if i can avoid it.
I am hoping the gentlemen in this forum who have been through this can tell me that all the symptoms are normal and will go away.
I look forward to your reponses and thanks to all in advance.