Newest member on quest for PCa Research

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magic55
New Member


Date Joined Apr 2007
Total Posts : 4
   Posted 4/17/2007 6:24 PM (GMT -7)   
I have recently been diagnosed with a small 5 mm nodule on my prostate and have begun the search for information as I consider what should be the next steps...  This website has been very informative but I have not found many postings with symptoms similar to mine.  Due to the fact that all systems are normal - PSA 2.1 and no other symptoms - I am hesitant to get a biopsy.  Although I have been told there is no clinical proof that biopsies can cause cancer to spread this is part of my hesitance.  Due to my family history I believe at some point I will have to undergo this procedure but want to be sure its necessary before I do.  Since biopsy is the only option for diagnosis in Saskatchewan, I have checked into other options and made an appointment to have a color doppler ultrasound (sonogram) and a MRIS (spectroscopy) at Mayo Clinic and Dr. Wheeler's clinic in Florida.  Although I am optomistic this is not cancerous I feel the need to get checked as thoroughly as possible and these tests seem to be able to provide another baseline in addition to the PSA that will allow annual monitoring.
 
I would really appreciate hearing from any members of this site who have had similar symptoms or experience with the doppler or MRIS tests.  Thanks to all of you that have contributed to other messages threads, this is really helpful to us newbies!

Age 51
PSA 2.1
Family history of PCa (Father and Brother)
5mm (.2") Nodule found in DRE
No other symptoms


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 4/17/2007 6:44 PM (GMT -7)   
Hey Magic,

Almost all of us here were diagnosed as the result of a biopsy. While it is not perfect, it seems to be the best way to find out if you have cancer because the pathologist can "see" the cells. I had two because the first one showed some suspicious areas but were not definitely cancer. The second concentrated on these suspicious areas and found cancer in both lobes. Both of my biopsies were 12 cores.

I have never heard that a biopsy can cause or spread cancer. My only after effect was bloody semen for about a month post-biopsy.

Please stay with us...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/11/07.
 
 "Cancer feeds on fear - starve it to death."


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 4/17/2007 7:11 PM (GMT -7)   

Dear Magic55

about a year or so ago my physician in a regular exam noted that I had a small nodule on one side of my prostate.  I had just had a psa test and it showed a reading of 2.3.  My doctor noted that my prostate seemed quite normal.  That is ,no enlargment or inflamation, and few symtoms except slow urinary flow. Three months later, he saw the same nodule still with  no other prostate problems and ordered another psa test, which came back about 4.2.  Based on that he sent me to a urologist.

The rest "they say" is history...and so is my prostate.

If your doctor thinks that a biopsy is a good idea...then it is a good idea.  It is a simple mostly painless test.  I will admit that the indignities of all the poking and prodding that followed were not fun, but they are past now.

All of the other tests you mention are expensive and sometimes invasive too.  Urologists agree that a biopsy is the way to find if you have a cancer beginning to grow.

Please let us know what you decide and how things are going with you.


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
Back on the golf course...
 
 


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 4/17/2007 7:37 PM (GMT -7)   

Magic:

You have come to a good forum to inquire.  One thing I could suggest if you have not already had one is the "free" PSA - anything below 19% would be a reason to check further.  Your family history makes you 3X as likely to have Pca at some time in your life with the father/brother connection.

I know of two men who used the color doppler - one to see location of cancer to determine his treatment choice and the other to decide about biopsy.   Both were satisfied with the results.

Good luck in your research.

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/17/2007 8:22 PM (GMT -7)   

Hi ~  Magic55  &  Loved Ones,

  

A   “Special”  Warm Welcome  to  You!

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where you are on your path. So ~ Please stay with us and take our hand when you need it! 

Keep posting.... OKAY!!

  

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

 

Our thoughts and prayers will be with you as you continue to move forward with your decision. 

In Friendship ~ Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/17/2007 8:43 PM (GMT -7)   

Hi ~ Magic 55,

 

This was a great concern for me… when the biopsy was scheduled!!  ~ so I know the feelings you are having!  It was the first question we presented to our urologist…. And after discussing things thoroughly… we walked away knowing this was our best shot at confirming and moving forward to be free of this cancer.  We are adding a few  **Excerpts from Dr. Walsh’s book. 

Sending it for your knowledge base as you continue to research. 

 

Your  Decision  is  Your  Decision!!

And it will be the right decision for you!

 

Being mentally prepared as well as physically prepared is essential in moving forward!  This is a prime example of having options.  Having the other scans available to add to your personal “foundation” in monitoring will definitely be a mental plus for you.  We all have to do what we feel is the best path for “us”. 

 

This forum allows us to share experiences and you have the option to pull from all or none or a few from here and/or a few from there!!!  It truly is a warm place to be.  It also makes the world smaller…  Saskatchewan!!  My cousin lives in Topkins…  We’re glad you found "all" of us!

 

Our thoughts and prayers will be with you as you move forward in your path to find answers.

In New Friendship ~ Lee & Buddy

 

** Excerpts taken from a wonderful book called “Dr. Patrick C. Walsh’s “Guide to Surviving Prostate Cancer” by: Patrick C. Walsh, M.D. and Janet Farrar Worthington.  Copyright 2001….. 

 

 

**  When prostate cancer is small and curable,

it is also silent—it produces no symptoms.

 

 

Chapter 6 Page 139-140

**If I Have Cancer, Will the Biopsy Spread It?

This is an excellent question, and a very common fear.  It just makes sense, doesn’t it, that if you poke a hole in a wall that’s holding back cancer, the cancer might escape.  Doctors have worried about this, too, in many forms of cancer.  But the good news is that there is no evidence that this has ever happened, or that it could happen.  Think about it:  Almost every cancer you can think of—breast, colon, lung, prostate—is diagnosed by biopsy.  If the biopsy itself could spread cancer, then the whole concept of early diagnosis and treatment wouldn’t work.  But many thousands of people—all of whom had initial biopsies to confirm what they had—have been cured of cancer.

 

**But what if some cancer cells escape into my bloodstream?  Well, they may.  In fact, the more we learn about cancer in the prostate and elsewhere, the more we understand that the circulation of cancer cells in the blood is probably a fairly common event—even in cancers that are curable.  And it’s not unreasonable to assume that a few more cancer cells may find their way to the bloodstream when the tumor is manipulated, as it is during a biopsy.  The key is the stage of your cancer.  When cancer is confined to the prostate, even if a few cells escape into the blood, they won’t survive.  This is because they haven’t yet gotten the hang of living outside the area where they developed.  But over time, cancer cells change with age.  They get more aggressive, and they become, in many ways, “smarter.”  They not only move to distant sites, but have the wherewithal to thrive in these new locations as well.  So there are two different issues:  One is the presence of cancer cells in the blood; the other is the survival of these cells in distant locations.  Prostate cancer cells are simply unable to live outside their normal environment until they develop this ability, called metastatic capability.


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


magic55
New Member


Date Joined Apr 2007
Total Posts : 4
   Posted 4/17/2007 9:07 PM (GMT -7)   
Thanks to all who have shared your insights.  For the last blood test my doctor ordered a PSA and PSA-free test.  However, since the PSA was only 2.1 they wouldn't do the PSA-f, since the PSA was not over 4.0.
 
I appreciate the feedback, links to information on various websites and the book recommendation. We can't seem to get enough to read these days!!

If anyone has good suggestions on what questions to ask the urologists I would welcome them. My appointment at Mayo Clinic is for May 1st and with Dr. Wheeler in Florida on May 15th.

Thanks again


Age 51
PSA 2.1
Family history of PCa (Father and Brother)
5mm (.2") Nodule found in DRE
No other symptoms

Post Edited (magic55) : 4/17/2007 10:11:43 PM (GMT-6)


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 4/18/2007 6:13 AM (GMT -7)   

Hello:

I would encourage you to get the biopsy - just because you PSA is low, does not mean you're clear.  My husband's PSA was only 3.74 and he was confirmed with prostate cancer at the age of 44 - better safe than sorry I say.

Good luck to you.


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 4/18/2007 6:59 AM (GMT -7)   
Magic,

Your PSA isn't eaxctly low. It is under 4 which is cosidered low but not certaily not undetectable. Your age and family history and a nodule is all the rason you need encourage a biopsy. I sense you trying to talk yourself out of something that might turn out to be a life saver. Don't...it isn't worth the stress on you.

There is a Doc in Michigan by the name of Fred Lee who does color ultrasound also if you're interested. Florida sounds so much better though! Anyway, there is a big article on the subject written by Fred on line...just google, you'll find it.

A biopsy is not going to spread cells.....not like testicular or some bone tumors will. I read in one journal that the chance of cells escaping is not "impossible" but there are no reported cases of prostate cancer having done so. Chances are, the drive to the Doc's office will kill me before a biopsy will spread cancer cells.

You'll make a decision soon. For now, read and get familiar. Entrez PubMed, Urology Times, Urology Journal, prostatepointers, Us TOO...there are dozens of place so visit. Good Luck.

Swim

magic55
New Member


Date Joined Apr 2007
Total Posts : 4
   Posted 4/19/2007 6:22 PM (GMT -7)   
Swim - Thanks for the advice and the websites. There is a lot of good reading here.
Age 51
PSA 2.1
Family history of PCa (Father and Brother)
5mm (.2") Nodule found in DRE
No other symptoms


sween76
Regular Member


Date Joined Feb 2007
Total Posts : 60
   Posted 4/19/2007 6:32 PM (GMT -7)   
The local medical community told me "not to worry" and that my statistics were normal for 63. However, at the Cleveland Clinic the FIRST comments from the Doctor were to schedule a biopsy. I was very scared about having the biopsy (pain etc.) but it was a piece of cake. Biopsy is the only way to know. Get at least 12 samples (then it is only 75%-80% that it will be found.) More samples increase the probability.  Also the biopsy needs to be done by a very experienced surgeon to get the needle properly positioned. I believe the biopsy has saved my life.  Ed

Age: 63
PSA 2.62
Negative DRE
Gleason 3,3
Stage T1c
Prostate 63 cm
Cancer 5% in one of twelve modules
DaVinci April 16, 2007


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/19/2007 7:08 PM (GMT -7)   

Reading your post & the replies jogged my memory.  My December biopsy was my 2nd one. First one in July 05 showed something "suspicious" and urologist even said they may be "pre-cancerous, but didn't know.  Told me to wait 6 months, which turned into a year and a half until I had the 2nd one which produced cancer diagnosis.

I was put to sleep with both biopsies and didn't remember a thing except rolling over.  I get the idea some of the people here were not put to sleep. I think I like going to sleep and not remembering.

Gene



Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3+6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
 
 
 

Post Edited (Gene6163) : 4/19/2007 8:11:20 PM (GMT-6)

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