2nd PSA - Un-de-ZERO-dectable!

New Topic Post Reply Printable Version
29 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/19/2007 8:01 AM (GMT -7)   
We just received our 2nd PSA and it's a big whopper of an undectable!
 
Here's what we learned:
 
As you can see by the sig - we had some cancer cell leakage. It's "possibly" in the bladder sphincter tissue. Our doctor says that if we stay undectable on PSA tests for 24 months, then we're free and clear (as best as that can be predicted). He also says that there is a 20%-50% chance of return within that timeframe. We're very thrilled with this 2nd PSA and remain positive that we'll make it to the 24-month mark.
 
The doc also said that almost everyone with lingering leakage has a "magic" turning point at the 9-12 month mark following surgery. It will get better all of a sudden as the scar tissue works itself to a certain point in the recovery process.
 
He gave us some suppositories to try in conjunction with Cialis. Just a little extra "boost" that seems a little bit more "fun" than injections.
 
Other than that, Austin's a great party town, so this time we enjoyed it even more!
 
And last, (but not the last time), thanks to everyone here - you've been such a big part of our lives since last June, and we continue to learn from all the "noobs," and perhaps help a bit, too!
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/19/2007 9:29 AM (GMT -7)   
YES!!!!!!!

So happy for ya all!!!!
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both rght and left apex. Negative margins. Gleason 3+4=7.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 4/19/2007 10:56 AM (GMT -7)   
Great news!!! We DO love those zeros....

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/11/07.
 
 "Cancer feeds on fear - starve it to death."


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/19/2007 12:42 PM (GMT -7)   
Very very good!!! That's what we like to hear!

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/19/2007 12:54 PM (GMT -7)   
Congrats Greenacres -- KEEP THOSE GOOSE-EGGS COMIN'.
My next PSA is August and I'm chomping my nails already. (Grrrrrr.)
I too, hope to stay on the ZERO squad.
Best to ya!
Enjoy the moment.

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 4/19/2007 3:00 PM (GMT -7)   
GREAT NEWS!!!!!!! We are hopeing to contiunue in your footsteps. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/19/2007 5:30 PM (GMT -7)   

Yea!  ~ GreenAcres & Hubby & MinPin  tongue  

 

2nd …..PSA   !!!~~~~>>>  Woo~Hoo  <<<~~~~!!!  undetectable

 

Cause  for   celebration!!!!!  "Thanks Austin"!!!!

                    What a wonderful day it is ~ each and every-day….

                                     Enjoy it to the fullest my friend.

 

Yippeeeee!!!!!! From  Lee & Buddy

 

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.  

J  Sharing is Caring ~  Thank You for Caring  J

 

 

Hey ~ Green,

 

Excellent news….   yeah    Thank you for continuing to share your updates with all of us!!  You always bring an extra special smile to our faces when we see your postings!!  Let’s Keep Holding Hands… okay!! 

 

How’s MinPin?  I see where kw has a minpin…  I’m wondering if this is a Miniature Pinscher breed???  Enquiring minds want to know.. or maybe just blue is inquisitive?

 

Continue on your road to  HealingWell   and taking One~Day~At~A~Time…

Give papa Green a SPECIAL HUG and a SPECIAL HUG for you!!! and kisses to MinPin xoxo

 

You are always in our thoughts and prayers! 

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/20/2007 6:59 AM (GMT -7)   
Thanks to all for the great congrats! - Iz, Piano, Susan, Biker, Courtney, and MamaB (our personal bluebird) - each one of you has contributed so much along the way here! I look back to last year and spending a month just lurking - getting to know (and relying on) Mama Blue, Swimon, Spinbiscuit, (to name a few) and tracking so many journeys, including JustJulie. What a wealth of information! And I look at how much this place has grown in such a short time since then.

Very special and a fount of strength for those who come in here lost and frightened. I see those in particular become stalwart and, in time, ready to take on the charge - how inspiring is that?

PianoMan - we know about the nail-biting, so stick around so we can take yours down for the Zero count, too! Courtney - you two are going to be fine! I'm very proud of you.

And, yes, MamaB - it's a Miniature Pinscher - and KW can tell you as well that they're quite a "load," which means chock full of personality!
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 4/20/2007 7:15 AM (GMT -7)   
Yeah GreenAcres! that is excellent news, especially with the "leakage". I'm curious how the suppositories will work out. please let us know. have a great weekend....kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/20/2007 7:52 AM (GMT -7)   
Way to go GA!! That is a GREAT report. A few more undetects and you will get past the critical time.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/24/2007 1:21 PM (GMT -7)   
Dear Green,
 

Your posting above...touched a cord with us too!!!  Again ~ the same journey with optional stepping-stones to traverse.   The same but different.

 

You nailed it with you thoughts here.  The whole time reading my head is moving in a yes motion…..  so true so true….

 

Interesting how when I saw kw mention his MinPin… I thought hmmmmm strange they would have the same name for their doggies…. And since I watch the “Dog Shows”… I thought Miniature Pinscher!!!!  So ~ when he’s sleeping on the little pillow beside you on the floor… This is quite time?  Right!!!  I hope you see a few bluebirds and think us!!!  Because we think of you often… truly we do.  A special “core” group that you travel with during your surgery period will always have that “extra special closeness”.

 

Please Take Care and Remember You’re Kept in Warmest Thoughts Always

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/24/2007 6:51 PM (GMT -7)   
Hey Green Great news on the 0000's I've decided I'm going to wait out any more action on my leaking untill I hit that 12 month window. I think I will look for another urologist to get a second opinion on my situation while I'm waiting.

See you later.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.
    May 30th Follow up and 3rd Post Op PSA
   


BenEcho10
Regular Member


Date Joined Jan 2007
Total Posts : 133
   Posted 4/24/2007 6:57 PM (GMT -7)   
Congratulations on the 00 GreenAcres. That is great news.

Ben
DIAGNOSIS: 09/25/06. Age 49. PSA 4.6. PSA free 2%. Clinical pathology: Gleason 10. Stage T2a.           
 
SURGERY: 11/08/06. RP at Johns Hopkins. Excised widely including nerve bundles. Surgical pathology Gleason 10. Stage T3a (positive margin at apex.) Negative seminal vesicles, lymph nodes, and bone scan.
 
POST OP: 12/15/06: First post op PSA was 0.00. 02/12/07: Second post op PSA was 0.00.


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/25/2007 6:34 AM (GMT -7)   
Kat, Tamu, Ben - thanks so much! Only you all here know exactly what this means. We were sort of convinced before this second PSA that it was going to be some huge number (worriers 'R us), but I also deep-down felt that since it was undetectable the first time, it certainly shoud be this time! I expect we'll go through this each PSA test for a while, just to keep things lively.

KW - I'm glad you're doing that. A second opinion won't hurt - and maybe (just maybe), you can avoid another surgery with a little more time! How cool would that be?

What's funny is just the last two days, husb. is down to 2 not-totally-soaked pads - that's a 50% reduction! We're not getting excited, yet, but it's certainly an upper.

MamaB - our bluebirds are back for the season - perching on the deck flagpole just outside my studio. Of course, you know who comes to mind!
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


tekgeeks
New Member


Date Joined Jan 2007
Total Posts : 11
   Posted 4/28/2007 6:22 PM (GMT -7)   

GreenAcres..

Congratulations on the psa test!!!

sorry have not been around, just saw your post, great news!!!


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/30/2007 6:27 AM (GMT -7)   
Hi, Tek - thanks! Glad you checked in - how's your dad doing?
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


tekgeeks
New Member


Date Joined Jan 2007
Total Posts : 11
   Posted 4/30/2007 8:09 AM (GMT -7)   
he is doing well, he has gone back to our home country after his surgery. incontinence goes up and down, some days are good and some days are bad, from what i have read here, that is pretty normal for the first few months, and it has been only 7 weeks since his surgery.
 
thanks
 

KenW
Regular Member


Date Joined Mar 2007
Total Posts : 74
   Posted 4/30/2007 9:45 AM (GMT -7)   
All Zero's is wonderful. Good for you. Keep it up. I'm still working on my 1.7 as I had Protons instead of Surgery.

Diagnosed with a Gleason 4X3. 1 out of 7 samples, Left Side. DRE showed Normal. Psa gradually crept to 10. Dropped to 6.4 with Alt. suppliments.
Proton Beam Therapy at Loma Linda 11-06. PSA at 1 yr. 1.7.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/3/2007 1:42 AM (GMT -7)   

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

 

A year cancer free!!!

August 2nd 

An anniversary really worth celebrating!

Just a little note to say “Thank You for You”….     

 

 

Dear ~ GreenAcres,

 

It has truly been a journey we’ve shared. 

Thank you for allowing us to continue walking with you!

It proves that walking this path with friends who know… makes the difference.

Our thoughts and prayers are with you in a “special way” at this time.

Special Hugs to a Special Friend

Heartfelt Appreciation from ~ Lee & Buddy

 

J  Caring is Sharing ~  Thank You for Sharing  J

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 8/3/2007 6:25 AM (GMT -7)   
Dear MamaB - you understand what it means to hit the one-year mark out of surgery (as many others do, too!). While we should never wish away our time, how glad we are that this last year is past us and not in front. It still seems like just yesterday, though.

Just as important is the anniversary (July 06) of finding HealingWell and those of you who came before us and chose to stay on with a wealth of support and information. These times and thoughts shared here I will treasure always.

You know - we still live our cancer, but in a positive/forward-moving way most of the time. Because it's all of us here who continue spreading the word about this very prevalent and horrible disease. I believe we're helping lay the foundation to greater knowledge, comfort, and strength for all who visit.

OK, off the soapbox.

Thanks! (and a big WHEW - we made it!)
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 8/3/2007 12:10 PM (GMT -7)   
Hey Greenacres,

Congratulations on a big year! This kind of news is what gives us hope and is the most important service that this forum provides.  May your success continue on into the future and continue to encourage those of us who follow you...

Jim


Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
Next PSA on 10/17/07
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/3/2007 12:27 PM (GMT -7)   
Happy Anniversary! It's good to hear things are getting back to normal and life is good.

You are so right about this site. It's value is well...as the commercial goes...priceless!

Continued good PSA's to you!

Susan

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1209
   Posted 8/3/2007 6:57 PM (GMT -7)   
Congratulations, GreenAcres ,
I know exactly how you feel just before and right after your zero results from your doctor. I'll have my 3rd result on Sept., 12 and I'm hoping for another goose egg. The time just before the test result is agony, but to get a zero result is cause for celebration.
Good luck with your continuing recovery and take it easy on the celebration part :-).
 
Paul Magaboo

Age 70
PSA 7.9
Stage T1C
Open RP 28 Nov 06
Dry since early Jan 06
1st PSA result on 15 March 07 = 0
2nd PSA result on 15 June 07 = 0


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 8/3/2007 7:36 PM (GMT -7)   
Green,

So glad to hear you are at your one year mark!! It IS cause for celebration!

I think you were one of the very first people to respond to me when Ken was first diagnosed. And I will never forget your encouragement!

Doing a happy dance for you and hubby!!!!


Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 

Post Edited (Izzyblizzy) : 8/3/2007 8:42:24 PM (GMT-6)


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 8/4/2007 4:33 PM (GMT -7)   
Hi Greenacres,

So glad to hear you are celebrating good health and good results after one year. Thank you for all your help, advice and encouragement. Wishing you were closer so we could say "Hi" and have a drink with you! Lana
Creed_three
Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07)

New Topic Post Reply Printable Version
29 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Tuesday, December 12, 2017 10:40 PM (GMT -7)
There are a total of 2,904,671 posts in 318,781 threads.
View Active Threads


Who's Online
This forum has 158158 registered members. Please welcome our newest member, Mrblonde369.
285 Guest(s), 4 Registered Member(s) are currently online.  Details
Nab, Girlie, OptimisTick, mordant