Pasayten journey... post-op DaVinci

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pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 4/25/2007 2:56 PM (GMT -7)   
Hello All!
 
A quick summary of our 4/24 Tuesday DaVinci surgery...
 
Checked in at 6:30am Tuesday, surgery at 8:30, recovery room at 11:10, and let loose at 11:30am the next day.
 
When they rolled me into the DaVinci room and slid me onto the heated gel pad, that was the last thing I remembered til waking up in the recovery room.
 
Did some walks that evening and one in the morning and they checked us out the next day at 11:30am.  Even ended up getting a room on the 11th floor with a view and hardly had anytime to enjoy it.
 
Virginia Mason hospital in Seattle was a great choice for us...  Staff was very professional and informative at all steps along the way.  Avis was even given a beeper and an assistant called from the operating room as soon as the prostate was out and said it would be another hour for the rest of the stuff.  As soon as I was being wheeled into recovery, Dr. Cormon came out and talked with Avis and said everything went very well.  He also said that the outer shell of the prostate looked healthy as well as the body cavities...  He did not visibly see any abnormalities.  We will get official biopsy report in 2-4 days.
 
Dr. Cormon said to scheduled the catheter to come out in 7 days...   I have very little pain and must say the overall experience of the operation was very easy...  Still have to wait for the biopsy report and the recovery issues, but we are very positive at this point.
 
We firmly believe all the valuable information and encouragement found on this site from such loving and caring people as you...   and the prayers from you and our church family truly made a difference!
 
We will write up more details and add to our original postings later...
 
Now on to the recovery stages...
 
Thank You and
God Bless You All!
 
Ray & Avis
(aka pasayten and sun4pasayten)


pasayten & sun4izzi
Age 59 y/o - Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign"
3/13/2007 - 12 point biopsy - Left 6 OK  Right 1 of 6 had small hit.
Gleason 3+3 Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx,   approx 20% of prostate involved, positive margin, but only 2 places of focal point where 2 cells were touching edge, the right apex and right posterior. Perineural Invasion present. Seminal Vesicle and Lymphatic/Vascular not identified. Final Diognosis of T2c. Nongram stats for no re-occurance are 95% for 7 years.
6/28/2007 9 weeks post-op incontinance... Overnite, went from 4-6 pads a day to 2 pads a day.  Finally some real progress! :-)

Post Edited (pasayten) : 7/1/2007 3:55:59 PM (GMT-6)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 4/25/2007 3:29 PM (GMT -7)   
Hey Ray and Avis,

Welcome to the "other side"!!! Sounds like you did great. Now on to the healing phase. Good luck...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/11/07.
 
 "Cancer feeds on fear - starve it to death."


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/25/2007 6:10 PM (GMT -7)   

Welcome Home!!!!  YYYYiiiippppeeeee

 

Dear Ray *Pas  & Avis *Sun,

 

What a wonderful posting….. Thank you for touching base so quickly!!!  WOW what a whirlwind…. And you are now home… unbelievable…

Ray ~ remember….  Take care of YOU!!!!    and    Avis ~ remember…. Take care of YOU!!!! 

Ahhhh  this is wonderful news…. You are now on the recovery/healing stone and we are all still here with Helping Hands…

 

Can’t stress enough to let Mr. Hang ~ do his job…  helping to let you heal inside…  Put up with his antics for 7 days.  I can only stress that we had no problems with him… but then again ~ we let him have his way!!!  J

 

Our thoughts and prayers are with you as you move forward….. with “All of US”… 

Hugs from Lee & Buddy

 

p.s.  Ray ~ don’t lift that bucket to feed the horses!!!!!  Just snuggle up to Yogi and heal….


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/25/2007 7:30 PM (GMT -7)   
Ray & Avis,

It was good to hear that so far everything is positive. Is it not amazing how well you feel after having major surgery. Your experience with surgery mimic mine almost exactly to the hours and release. Hang is a bother but the 7 days will go by rather quickly. I had hang for 13 days. Just remember that while you feel fairly good you have had a lot of trauma on the inside and the healing will take a while. I really did not feel that I was totally healed until about four months post op.

Welcome to the other side!

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/25/2007 7:49 PM (GMT -7)   
Ray & Avis:  Congratulations on getting through this phase!  I am so happy for both of you and glad you were pleased with the hospital, the docs etc.  We'll wait for the good post-op news!
Tom

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/25/2007 8:15 PM (GMT -7)   
Welcome Home - So glad to see you have surgerybehind you. Rest & heal.

Will be looking for your update.

God Bless you both,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3


Joes411
Regular Member


Date Joined Mar 2007
Total Posts : 87
   Posted 4/26/2007 6:43 AM (GMT -7)   
Congrats on your successful surgery experience Ray & Avis. Thanks for sharing it with us.

Three weeks to go for my surgery, It helps to hear positive feedback.

Cheers,
Joe

Age: 51

PSA  Jun06  4.1  (PSA Jun05  1.2)   DRE negative

1st Biopsy Nov06 – Atypical cells but no cancer

2nd Biopsy Jan07 – 1 of 16 cores positive

Stage T1c   Gleason  3+3=6

DaVinci scheduled for mid May


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/26/2007 11:27 AM (GMT -7)   
Great to hear all went well for you two :)
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins. Gleason 3+4=7.


sun4pasayten
New Member


Date Joined Mar 2007
Total Posts : 4
   Posted 4/26/2007 6:17 PM (GMT -7)   
Greetings all:
Pas is right, the experience went smoothly, gently, and with exceptional care. Pas went almost directly to the computer room upon returning home. He wanted us to complete the pharmacy errands before getting home from the hospital commute, as well as another pharmacy for other comfy's, AND then to check on the jeep since we had to take it to the repair shop the day we were to drive it to hospital campus. (gas tank was leaking onto concrete floor of shop)
Last night was a challenge between midnight - 1AM, our bed is very high from the floor, he got in for bedtime okay, but getting him out yet another. After numerous efforts & ideas, we got him to where I could lift his shoulders, push pillows under and support him against my knees, we raised him to sitting position with feet supported by the kitchen step ladder....... and he could step down to a standing position. tongue
So, this morning he was ready to go shopping for a rental hospital bed (then opted out that idea),
then we went to 2 furniture shops to test recliners (nothing seemed a suitable fit), so back home to plan C.  He likes the sofa with his legs supported by a pillow stack. So, we've got to find him his most comfy set up.  We were both very tired (I've had 2 nights of insomnia), rested in different rooms and called each other by cell phone if we needed to chat. yeah The cat Yogi likes to have Pasayten Pete back home. Others call him Ray, he taught me to call him Pete 4 years ago when we first dated. November will be our 4th year wedding anniversary.
He's looking calm, good color and spirits, has progressed to jello, pudding, & soups, lots of water, and juices. The Dr. also mentioned that his particular appendage rose to the occasion celebrating the finishing aspects of surgical process, i.e., The nerves appear have withstood the trauma okay. Pete chuckled at that bit of info!
Bye for now, I've fed the horses, now time for dinner prep,
sun4
 
Husbands stats:
PSA 5-6 and PSA Ratio 21-24% over last 3 years
Biopsy Screening -12 points 3/13/2007
Left Core OK  -- Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core.
Diagnosed as T1c cancer


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/26/2007 6:24 PM (GMT -7)   
Glad to hear you are ok.  Get some rest and take care of yourself.
 
mvesr

PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/26/2007 7:39 PM (GMT -7)   
Sun4 -- Reading your post reminds me of what my wife went through during and after my surgery. Your patience will be tested for a while but things will go in the right direction aa the weeks pass. I hope you can get some sleep -- try over-the-counter Benadryl for a night or so, it always knocks me out and it's not habit forming.

Your husband is going to be weak for a while and should be encouraged to take it easy. HE SHOULD NOT DO ANYTHING RIGHT NOW THAT MAY COMPROMISE HIS BLADDER-URETHRA CONNECTION, such as trying to climb in and out of that monumental bed of yours!!! LOL

AND -- he may feel very tired after just a few brief activities. I couldn't believe how exhausted I'd be after just going to watch my son at a game, going to a neighbor's for dinner etc. It was unreal. I wondered if my old energy would ever come back - but it did.

Let it be. Give him six to eight weeks and I guarantee that he'll be his old self again, or close to it.

Don't push things and don't let him either. Just try to take care of yourself and keep on eye on him, so he doesn't try to do anything that gets in the way of the healing process.

Best to both of ya!
Love ya,
Tom

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 4/27/2007 2:24 PM (GMT -7)   
Hello All again!

I slept on the couch last night and got a good sleep... More important was that Avis got a great nights sleep! She felt really refreshed this morning... And finally not worrying so much about me that I convinced her it was OK to leave me alone for a while and go to her favorite bakery to get herself her favorite traditional cinnamon roll/coffee combo she likes so much... :-)

I had first post surgery bm (small, but no straining) and a nice hot shower... A lot of the body "stiffness" is also gone today and I am feeling much more mobile... But will continue to take it easy as the wisdom of this forum suggests!

God Bless,

Ray & Avis
pasayten
 
Age 59 y/o 
PSA 5-6 and PSA Ratio 21-24% over last 3 years
Biopsy Screening -12 points 3/13/2007
Left Core OK  -- Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core.
Diagnosed as T1c cancer
Scheduled for DaVinci 4/24/2007
 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/27/2007 5:02 PM (GMT -7)   
Avis and Ray:)

Sounds like you have had an exhausting few days! glad to hear you had a good night's sleep, Avis.

Hang in there both of you :)

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (up from 3.4 previous year)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins. Gleason 3+4=7.


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 4/30/2007 10:14 AM (GMT -7)   
Ray and Avis, so glad to hear that all is well and you are both recovering nicely. yes, sleep is so important and it's great that you found the most comfortable way to get it. I'm glad you're taking everyone's advice and not overdoing it. remember that as you feel better each day and each week. take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/30/2007 10:49 AM (GMT -7)   
Ray & Avis,
 
Just a little note to let you know we are thinking of you!  Glad to hear you're getting the sleep you both need.  It truly is part of HealingWell :)  Nice to know you're in your 4th year of marriage and you traveled this path so close together!!!  It brings an extra special closeness ~ to the relationship for sure.
Take care and I'll touch base with you when I get home around the 13th.  Keep doing well!!!
In Friendship ~ Lee & Buddy
 

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 4/30/2007 1:38 PM (GMT -7)   
Hello All!

Thanks for the words of encouragement... Moday (4/30) noon just got my pathology results over phone before my 5/2 cateter out appt...

Gleason 6
20% of prostate involved (and the biopsy only had a 1/12 hit on last 1mm of a 120mm core!)
2 points (cells?) touching edge of prostate
No further treatment at this time - watch PSA

Not the 5-10% involvement and negative margins that I had hoped for with my initial numbers, , but I am sure glad I did not wait any longer for the operation!

Recovery going well... I am only taking Tylenol since Sunday... Having some infrequent bladder spasms sitting/talking and more last night laying flat out... They are not bad and do not hurt... just feels wierd! Kind of like a kegel, but in a different location. When I was laying flat out and having some episodes of frequent ones, I was able to minimize and stop them at times by concentrating on them very hard...

Catheter is a pain in the a##!
Some urine/blood seepage from penis during BM and a few pink discharges into the catheter bag... Clears right back up to pale straw color 20-30 minutes later.
Uncomfortable while walking longer distances due to the sliding in/out of the tube... Doesn't really hurt, but like an uncomfortable tickle... I have tried many types of taping/fastening geometries, but we are using the large bag exclusively and have its tube securely fastened to the catheter at about 6 inches above the knee. I hated the leg bag as it did not want to "accept" urine as well as the large bag... It seems to have more to do with my geometry or skinny legs...
Glad to say goodbye to Mister Hang Wednesday!

Doctor says above is quite normal at this stage of the recovery.

Also had my first cough today when a little water went down the wrong pipe... Boy, that was a pain in the stomach muscles! Lots of pressure from my hands at stomach/body sides helped... I was in a restaurant and did not have a pillow.

We are journalling some and will do an overall experience write-up later.

Thanks for all the support...
God Bless All!

Ray & Avis
pasayten
 
Age 59 y/o 
Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign" so I did not seek urologist referral
3/7/2007 - Went to urologist
3/13/2007 - 12 point biopsy - Left Core OK  - Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core.
Diagnosed as T1c cancer
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
4/30/2007 - Pathology over phone (will talk more after 5/2 visit)
Gleason 6
20% of prostate involved (and the biopsy only had a 1/12 hit on last 1mm!)
2 points (cells?) touching edge of prostate
No further treatment at this time - watch PSA
5/2/2007 - Catheter scheduled to come out
 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 4/30/2007 3:30 PM (GMT -7)   
Hi Ray/pete,

It is surprising that your path report was 20% with your biopsy results ... so glad you caught it early.

On the catheter, are you using neopsoring or some type of triple Antibiotic gel on it? Ken would feel kinda "irritated" with the catheter, but the neosporin (with the lidocaine) really seemed to help that feeling.

Ken had a lot of blood in the bag when he first got up to walk in the hospital, and then occasional pinkish. That sounds totally normal (like your doc said).

Thanks for updating us and send our hugs to Avis too :)

Tanya (and Ken)
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Scheduled: May 10, 2007
 


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 4/30/2007 7:19 PM (GMT -7)   
Ray and Avis
Know how much you're looking forward to sending that d*%# catheter into retirement! I remember it only too well. I hooked the bag inside a 5 gallon pail, and carried it around the house. My kids called me "Bucket-Man." I rather liked the leg bag, except for the day I fell asleep in the chair with it on and had to cut my pants off to remove them. I didn't know that little bag could fill soooooo fully! I totlly agree with Tanya on the triple antibiotic ointment, infections are a real problem!
Hugs to you both!
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2007 Robotic Prostatectomy - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump. Patience..Patience!!!!!!


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 5/3/2007 10:55 AM (GMT -7)   
Hello All!

5/2/2007, got catherter out (8 days)... Hoooooray!
Leaked live a sieve for the rest of the day, but we went to a friends house for visit and I was getting up and down a lot. Forgot my kegals most of the time. Thinking I used 4-5 pads from noon til night. Penis is still a little sore and uncomforatable and may have aggrivated the situation. Thankfully I have great friends and was not embarrassed when I needed to change pads.

Was dreading the first evening sleepping in bed as I figured it would be a soggy night... Anyway I used the Serenity full male/female briefs for bed just in case. I ended up getting up ever couple of hours to pee and really practiced the kegals going from bed to the bathroom... Out of five trips, I only dribbled once. And no noticable seeps while in bed. Much better than I thought. Nurse had told me that laying down would be easier.

Today, 5/3, I am practicing getting up from a sitting position with kegals and just holding a plastic cup under my penis to measure dribbles. I make it about 20ft before I get a squirt... But this is something I can keep practicing at as I strengthen my kegals and get the timing down pat.

Only notice an infrequent drip once in awhile will sitting, like 1 per 30 minutes or so. I also notice that without the pads/briefs while I am using the cup, lets the other body parts have a air dry environment instead of being cooped up in the pads/briefs.

I seem to be worried about this phase more than the operation... Maybe because it affects lifestyle so much or maybe just a guy thing.

Thanks all for the support you give us on this forum!

God Bless!

Ray & Avis
pasayten
 
Age 59 y/o
Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign" so I did not seek immediate followup urologist referral
3/7/2007 - Went to urologist -No DRE abnormalities but scheduled screening biopsy
3/13/2007 - 12 point biopsy - Left OK  Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core. Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Got copy of pathology report:
Gleason 6  T2c Nx Mx   approx 20% of prostate involved
Positive margin, but 2 places where a focal point of only 2 cells were touching edge, Doctor was not concerned about that at all.  Stats for non-reoccurance are 96% for 5 years and 95% for 7 years.  No further treatment other than PSA watch.
 


survivor_wannabee
Regular Member


Date Joined Apr 2007
Total Posts : 29
   Posted 5/3/2007 2:41 PM (GMT -7)   
Congratulations Ray and Avis on getting through the surgery and progress post catheter. I have DaVinci sugery scheduled for 5/29 so will be watching to see how your progress goes. I am trying to get the Kegels going now....almost a month ahead and do find it hard to remember. Hope that helps. Good luck in a quick recovery.
Age: 57
Diagnosed: 3/27/2007
PSA: 4.9
Gleason: 3 + 4
Cancer in 6 out of 12 samples
DRE: Positive
Stage: T2B
RALP Scheduled: 5/29/07


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 5/3/2007 7:15 PM (GMT -7)   
Congrats on your catheter out :) Sounds like pretty "normal" (whatever that means :)) for your incontinence so far. Hang in there, it gets better every day :)
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Scheduled: May 10, 2007
 


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 5/4/2007 7:12 PM (GMT -7)   
Hello All,

How long after your catheter was removed was the end of your penis still sore? Mine certainly did not appreaciate the movement in/out while walking when it was in and is still complaining 2nd day after removal. It seems to be only the last 1 inch on the end. Even can feel twinge when walking with a pad.

Thanks,

Ray
pasayten
 
Age 59 y/o
Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign" so I did not seek immediate followup urologist referral
3/7/2007 - Went to urologist -No DRE abnormalities but scheduled screening biopsy
3/13/2007 - 12 point biopsy - Left OK  Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core. Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Got copy of pathology report:
Gleason 6  T2c Nx Mx   approx 20% of prostate involved
Positive margin, but 2 places where a focal point of only 2 cells were touching edge, the right apex and right posterior. Perineural Invasion present. Seminal Vesicle and Lymphatic/Vascular not identified. Doctor was not concerned about that at all and Final Diognosis of T2c "suggests" organ confined.  Stats for no re-occurance are 96% for 5 years and 95% for 7 years. No further treatment other than PSA watch.
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 5/5/2007 4:02 PM (GMT -7)   
yes, Ray, Jeff had the same problem and continued to put neosporen on the end. it did eventually get better.
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 5/5/2007 11:51 PM (GMT -7)   
Hi Ray:  Hang in there.  You may have all kinds of "twinges" during the next few days or weeks.  Just go easy and wash, rinse and pat-dry well in that area.  I remember sometimes feeling sensations like these little three-way electrical currents running from the tip of penis to my A-hole, to my bellybutton area.  The soreness will subside.  If it's an open sore, ask your doc before applying anything to it, including Neosporin.  That stuff is a miracle ointment, but it is not designed for every cut or sore.  After surgery, I kept applying it to my incision wounds and later found out that it was not the right thing to do.
Also, as your internal swelling subsides, you will feel different sensations down there and may have some relapse, in terms of where you are with incontinence -- that's all normal.
I'm almost four months out and as the healing continues, I sometimes get a little jolt (but not pain -- not even ache) from down there, including a feeling like a vibrating phone is in my lap.
I think it's the nerve bundles coming alive again.
Best to ya.  You sound like you're doing great!!!

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 5/6/2007 5:47 PM (GMT -7)   
Thanks all!

That's is what is so great about this forum is the sharing of experiences and information that helps to relieve anxieties...

God Bless!

Ray
pasayten
 
Age 59 y/o
Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign" so I did not seek immediate followup urologist referral
3/7/2007 - Went to urologist -No DRE abnormalities but scheduled screening biopsy
3/13/2007 - 12 point biopsy - Left OK  Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core. Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Got copy of pathology report:
Gleason 6  T2c Nx Mx   approx 20% of prostate involved
Positive margin, but 2 places where a focal point of only 2 cells were touching edge, the right apex and right posterior. Perineural Invasion present. Seminal Vesicle and Lymphatic/Vascular not identified. Doctor was not concerned about that at all and Final Diognosis of T2c "suggests" organ confined.  Stats for no re-occurance are 96% for 5 years and 95% for 7 years. No further treatment other than PSA watch.
 

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