Jeff & becky update & some question for those using vacuum devices

Hey everyone, haven't been on in a while. I've been trying to catch up on things I got behind on while dealing with my dad's illness. I'm not quite there yet - I didn't realise how much this was going to affect me - I guess I'm fortunate that this is the first time I've lost a close loved one. My sister and I will be going out to CA again to help my brother with some more of my dad's legal stuff, but this time we're taking her 3 & 4 year old sons, and taking a trip to Disneyland - so there will be some fun.

Jeff's second PSA cme back at <0.01 %, so even though cancer showed in the margin so far it looks like the dr. still got it all.

Around St. Patrick's day we purchased 2 different pumps a vacurect, and an osbon. We figured we would return whichever one we didn't want, although it's probably too late to do that. They both did okay, althoug I think the osbon worked better. The bands on the vacurect were hard to remove. The bands on the osbon were more easily removed, but snapped more when he put them on.

We've only been able to have sex once, and it wasn't great. He had to use 2 rings to keep the erection, and the rings made it so painful it wasn't very enjoyable. (This was partially from hair being pulled). So he kept practicing with them, for therapy, and it has seemed to improve his flacid length & thickness.

The problem is that now Jeff is having a lot of pain with orgasms, which he hadn't had since the first month after surgery (in October). He feels like someone slugged him in the testicle, right at the point of climax, and lingering for about a minute. He also had his first episode of leaking since the first of January. He said when he uses the pump he can feel the urine being pulled down his penis.

So he hasn't put a band on for about 3 weeks, and hasn't even used the pump for about 2. He was out of the country for a week, so tonight was the first orgasm he'd had for about a week and half to 2 weeks. I was hoping that the pain would be gone, but it was still there, and he leaked again.

I'm worried that he's aggravated something, or even injured himself with the pump. It's really made any attempt at intimacy an unpleasant experience - so we've really cooled it, which isn't good for either of us emotionally. It's been 6 months since the surgery, and I can see him getting depressed and frustrated.

Any advice? We're thinking he may need to see the dr. - but I"m not even sure there's anything he could do.

On a good note, our son who is a marine is still waiting for his special class to start, so they've let him come home for a month to work with our local recruiter. It's so good to have all my boys at home where I can keep track of them all.

I'm praying for you all -

bec

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husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%

Bec - we second Tamu on the advice with the injections. Although Bob was terrified to poke himself with the needle, once he overcame this obstacle, we find the injections to be very helpful and exactly as Tamu describes. Bob is able to use the Trimix without any discomfort at all.

A visit to your doctor is definitely in order, just to find out what's going on. Ask him about the injections too. Makes intimacy way more "normal".
;o) Linda & Bob

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Bob (60) had laproscopic prostate surgery on Sept 27, 2006 - 2/12 malignant biopsy samples - gleason 3 + 3 = 6. Follow up PSA results and pathology results received Nov 14th are NO MORE CANCER! Gleason changed to a 3 + 4; cancer completely confined to prostate; (even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE November 2006 AND February 2007.


Bob also takes Hydroxyurea to control Polycythemia (elevated red & white cells & platelets) has secondary condition . . Myelofibrosis) -- If anyone has experience or knowledge of these, please post us

lifeguyd,

Excellent PSA!! It must have been a big relief since it was the first one since your surgery. I understand your reluctance to try the injections. I had the same reaction but finally just got fed up with the pump and nothing from the Viagra. As my urologist told me, all of his motivated patients eventually move to injections.

Tamu

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Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3

Da Vinci on 11/01/06, Catheter out on 11/13/06

56 Years Old

Post Op Path, Gleason 3+3, Approx. 5% of prostate involved

Prostate Confined, margins clear

Undetectable PSA on 12/18/06

No more pads as of 1/13/07

Began injections in April '07

Lifeguy - congrats on the PSA result! that's great news.

Bec - Jeff has been using the pump on and off for a few months now. sometimes the erection is worthy of intercourse. other times it's not. he's not ready to use the injections yet but I will pass on Tamu's and Bob's experience to him. We've reached a couple of stalemates where we won't even fool around because it just doesn't seem as much fun....and then other times we go with the flow and enjoy ourselves. Jeff hasn't had pain per say, but sometimes his orgasms are very intense and he'll just suddenly move away and say he has to stop. I think your Jeff should talk with his doctor about his pain. it could be nothing, or it could be something that needs looking into. How has your experience been with the muse? I assume not so good if you're considering injections. what a journey this is......take care, kat

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Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump