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Posted 5/11/2007 12:14 AM (GMT -6)
I know I am new--awaiting my surgery--lots of family health problems--some of you know my wife also has Hasimoto's encephalopathy.

I posted that my daughter had a baby on the 8th.--unfortunately Jesse has had bleeding in the brain--We are now at children's hospital in Denver--waiting and trying to find out how much brain damage there has been.

Remember him--think--pray--whatever is right for you--

Thanks---

David
Age 50
Diagnosed 4/24/07
PSA 5.5
cancer in 8 of 12 biopsy samples
gleason score 4+4=8; up to 70% pti;
some perineural invasion
surgery scheduled 5/23/07

Posted 5/11/2007 12:17 AM (GMT -6)
Our thoughts and prayers for Jesse. Been there David. We'll be praying for the baby and for your family.

God Speed, Vickie
Posted 5/11/2007 12:34 AM (GMT -6)
David,

Jesse, You, and your family are in our prayers. Take comfort in your faith and the love and grace God has for us all.

God Bless!

Ray & Avis
pasayten
 
Age 59 y/o
Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign" so I did not seek immediate followup urologist referral
3/7/2007 - Went to urologist -No DRE abnormalities but scheduled screening biopsy
3/13/2007 - 12 point biopsy - Left OK  Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core. Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Got copy of pathology report:
Gleason 6  T2c Nx Mx   approx 20% of prostate involved
Positive margin, but 2 places where a focal point of only 2 cells were touching edge, the right apex and right posterior. Perineural Invasion present. Seminal Vesicle and Lymphatic/Vascular not identified. Doctor was not concerned about that at all and Final Diognosis of T2c "suggests" organ confined.  Stats for no re-occurance are 96% for 5 years and 95% for 7 years. No further treatment other than PSA watch.
 

Posted 5/11/2007 7:21 AM (GMT -6)

Dear David,

I am terribly sorry about your grandson.  How awful.  If it is possible for wishes and hopes to heal, you have all that I can give.  My best to you and all of yours.

Bill

Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!
Began IGRT January 23, 2007. 

Posted 5/11/2007 8:16 AM (GMT -6)
Oh David! There is nothing worse than watching a child or grandchild suffer. Our heartfelt prayers go out to you and your family!
Linda & Bob
Posted 5/11/2007 12:05 PM (GMT -6)

My families' thoughts and prayers will be with your family.

Dutch

Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.

Posted 5/11/2007 12:27 PM (GMT -6)
Dear David,

Our hopes and prayers are with you and yours. We had a gravely ill grandson also. Nothing worse. Please keep posting with the progress...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/18/07.
 
 "I have cancer but cancer does not have me."

Posted 5/11/2007 1:26 PM (GMT -6)
Dear David,

We are so sorry to hear what you and your family are going thru. We will say a prayer for you and your loved ones. Keep up your strength and take care of your self.

Wishing you and your family health & happiness.

Anniea
Rick & Diana
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
 

Posted 5/11/2007 1:26 PM (GMT -6)
Dear David,

We are so sorry to hear what you and your family are going thru. We will say a prayer for you and your loved ones. Keep up your strength and take care of your self.

Wishing you and your family health & happiness.

Anniea
Rick & Diana
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
 

Posted 5/11/2007 2:59 PM (GMT -6)
David,

So sorry about this on top of everything else. Best thoughts, wishes and prayers.

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Scheduled: May 10, 2007
 

Posted 5/11/2007 3:11 PM (GMT -6)
David,

So very very sorry for you & your family.
Your friends here will be keeping you close. God love you all.

Susan
Posted 5/11/2007 7:38 PM (GMT -6)

David, we are praying for you and your family.  Don't give up hope.

 

mvesr

Posted 5/11/2007 9:36 PM (GMT -6)

Dear David,

I sit here with tears rolling down my cheeks for Jesse and all of you.  I lost my son at age 21 and to me he was still one of my babies.  I can not imagine your pain at this time and  your families agony.

I pray that he has a positive outcome and I pray that you have the strength to make it through all of your battles.

Bless you. 

Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter

Posted 5/12/2007 9:51 AM (GMT -6)
David,
My thoughts and prayers are with you and your family. May you gather strength knowing that so many others are thinking of you.
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2007 Robotic Prostatectomy - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump. Patience..Patience!!!!!!

Posted 5/12/2007 9:54 AM (GMT -6)

Good Morning,

I am thinking of you and please give us an update when you are able.  We are all praying in our own ways for you and Jesse and all your family.

Gentle Hugs.

Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter

Posted 5/13/2007 2:49 PM (GMT -6)

Dear David,

We are here and we are thinking of you and praying. Bless you.

 

Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter

Posted 5/13/2007 10:54 PM (GMT -6)

Special words borrowed from daveed

                    Our Hands are Reaching Out to You

                                                                   and Your Loved Ones!!!

 

Dear David,

 

We are keeping you and your loved ones close to our hearts and in our prayers.  This is a time where you will feel “all of our” strengths.  The strength of this forum family as we pull together in all situations…. is very powerful.  Pull from us as you greet each new day.  And as you close your eyes for rest…. you will know we are there! 

 

A gentle reminder that you must take care of “you” ~ It’s obvious many loved ones depend on you…. and in order for you to be there for them with strength… you must take care of you…   Take one day at a time…. and pull the strength from one forum family member…..  and the next day pull from another….. and you will feel the power of strength build to help you through this.

 

We know your focus will be with Jesse right now…. But you must take care of you… okay!! 

Our heartfelt thoughts and prayers surround you as you move from one day to the next…. Waiting for answers.  As Wittler would say... STAY STRONG

 

Please ~ know we care!!   In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Post Edited (bluebird) : 5/14/2007 11:07:44 PM (GMT-6)

Posted 5/13/2007 10:55 PM (GMT -6)

David,

I pray for the best results.  God bless you and your family.

Tony

Posted 5/13/2007 11:47 PM (GMT -6)
I am grateful beyond words for all of your support. We are still in Denver at children's hospital. Tomorrow Jesse will have an MRI to determine (or guess) at the level of damage he has suffered. It is weird, I have held him for hours over the last few days. When I hold him, I am sure that he will be ok, it is only when I get away and think that I become so afraid for him and my children.

I havve told my clients over the years that fear is always about the future and never about the present. We are never afraid of what is, only about what might be or will be. As long as I stay in the present, everything is ok.

I guess it is the same with PC.

During these days, I have been overwhelmed by the support we have been given. My wife is adored by our town, and through her illness and now mine, 50 or more people have plunged in to help us, through food, helping prepare for our recital and now my son's graduation.

The problems with Jesse has only increased people's help and prayers.
I have been a minister for over 25 years and a professional therapist during the last 10 of those, and yet words like faith, love, hope, trust and others are just now beginning to be understood by me.

We have been told that if the MRI shows that there is no more bleeding in the brain, Jesse will be able to come home on Tuesday.

Thank you all for your care. I will keep you posted.

I am thinking of starting a thread on my return to health to document my new struggle with PC.
I probably won't do so until after my surgery as our recital is this weekend and my son graduates from high school next Wednesday.

We are all in this together, though are path is different we are all togther

david
Age 50
Diagnosed 4/24/07
PSA 5.5
cancer in 8 of 12 biopsy samples
gleason score 4+4=8; up to 70% pti;
some perineural invasion
surgery scheduled 5/23/07

Posted 5/14/2007 8:41 AM (GMT -6)

Der David,

I am so glad that Jesse is coming home on Tuesday. That news sounds so very hopeful for all of you.  I will continue to pray for a positive outcome. God gave Jesse to a family that will love him and care for him because he is special and I know that is why he has you for a Grandfather.

I am asking you to take care of you and yes, stay in the moment. You have every right to be afraid for many reasons right now and that only makes you human so please draw on the strength we offer and do the best you can without overextending yourself right now.  Accept the help of your friends and family.

Serenity isn't freedom from the storm, but peace within the storm. --Unknown

I will be looking for your next update and please start your thread whenever you are ready.  Gentle Hugs
Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter

Posted 5/14/2007 12:06 PM (GMT -6)
David,

So happy that his condition appears to be improving, and hope that you will be able to bring the little one home soon. It is fantastic that you have so much community support in your town.

Praying for you and your family as Jesse goes through his MRI today and that things turn out positive.

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 

Posted 5/14/2007 11:58 PM (GMT -6)

Dear David,

 

Sending extra STRENGTH to help you through today……

Our thoughts and prayers remain with you and yours.

 

In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Posted 5/15/2007 12:45 AM (GMT -6)
Hi oldfordlover: This is a late reply, but you and your family have been in my thoughts and prayers since you began posting here. It sounds like you have a wonderful family and things will fall back together for you soon.
I am impressed by your courage through this time.
Best to you and yours.
Tom

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07

Posted 5/15/2007 11:31 AM (GMT -6)

Dear David,

Here it is Tuesday and I am praying for your Jesse and all your family.

May God be with you and I pray  Jesse will have a positive report today and be home with his family.

PRAYER

Life without purpose is barren indeed.
There can't be a harvest unless you plant seed.
There can't be attainment unless there's a goal.
And man's but an object unless there's a soul.
If we send no ships out, no ship will come in.
And unless there's a contest, nobody can win.
For games can't be won unless they are played.
and PRAYERS won't be answered unless they are PRAYED.

Gentle Hugs

 

Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter

Posted 5/15/2007 12:51 PM (GMT -6)
thanks for all of your continued prayers.
we were set to go home today--even have the car packed but Children's decided that they need a contrast CT and possible an MRA. They think they have found a blood clot in addition to the bleeding. This will impact how much damage has been done to his brain.
Please continue prayers.

It is weird I haven't had any time to worry about my upcoming surgery as this is much more in the forefront.
I had to cancel my second blood donation since I am not at home, but my doctor thought one unit in reserve was probably enough.
I will keep you updated.

My wife is getting ready for recital so she is not with us. Dress rehearsal start tomorrow. We gave up on a yard lunch for our sons graduation and moved it to a friends bed and breakfast. It is a much nicer place and is a lot less work for us. That is this Sunday.

Thanks again for your prayers
David
Age 50
Diagnosed 4/24/07
PSA 5.5
cancer in 8 of 12 biopsy samples
gleason score 4+4=8; up to 70% pti;
some perineural invasion
surgery scheduled 5/23/07

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