Curt home from surgery

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CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 5/12/2007 6:17 PM (GMT -7)   
Just a quick note to let you know that Curt did fine with the surgery. We actually looked at your notes on a computer in the admitting/waiting area at the hospital right before his surgery. That made us feel good!
His surgery took 2 hours and 45 minutes. The Dr. came out and said that he had taken an extra wide margin on the left side where most of the cancer was and extra lymph nodes. He also commented that that side of the prostate was very hard. I asked him if he felt that the cancer was contained within the prostate and he said we would have to wait for the pathology to come back on the 16th.
This morning when I went to Curt's room he was in a lot of pain and they had not gotten him up to walk all night even though he asked to. So I got after them. As soon as we got him up and walking he started feeling better.
They didn't decide to let him go until 3 p.m. this afternoon.
It is a 3 hour drive home and he tolerated it quite well on pain medication. We're so happy to be home and on the "other side", although I have to admit I am quite nervous about the "extra wide margin--extra lymph nodes--and hard left side of prostate" thing.
Curt is having a tough time getting used to the catheter. Does anyone have any tips about how to keep it from pulling so much and moving around or is that just something that you get used to?
I'm about ready to drop, so will check in tomorrow.
Curt & Vicky
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6
PSA:3.3
DaVinci Prostatectomy scheduled for May 11, 2007
Stage: T2a
Father and uncle had prostate cancer


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 5/12/2007 6:50 PM (GMT -7)   
so glad you are all home and doing well.
 
as for the catheter "pulling" and so forth, ken found that neosporin with lidocaine worked well (slather it on around the opening of the penis).  We also had an extra velcro thigh strip and  left a little "tug room" between the penis and the top strip and also the bottom velcro strip. So a "double" tug back up. 
 
We will be waiting for your path results.  I don't have much advice to offer on that front. But sending best wishes and thoughts.
 
Tanya 
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 5/12/2007 7:30 PM (GMT -7)   
Curt & Vicky,

Glad to see you are home and recovering!

Tanya has a good idea with the lubrication and extra straps.

We bought two velcro straps at the pharmacy and adjusted the catheter tube towards the inside a little and not on the center front of the leg. If it on the front face of the leg, it flexes more. I also made a loose fitting tent over the top of my penis using a large gauze pad and a piece of tape to hold it closer to the leg while walking and it prevented any chafing of clothes to it. It also kept it a lot cleaner. I changed the pad each evening with a clean one. With the velcro straps, it is easier to adjust the tube positions than if you get everything taped down.

I also cleaned the area and cath tube 3-4 times a day to minimize any chances of infections. For cleaning, I alchohol most of the time on the leg and tube, but also some antiseptic soap solution around the scrotum and tip of penis. Alchohol can irritate the scrotum and if it gets in the tip of the penis. Got the soap at the pharmacy and it was a liquid that you added to water. It was called Hibiclens and was a 4% Chlorhexidine Gluconate solution. I also used some of the soap when showering on my penis area and rear end.

When we went to get the catheter removed 8 days later, the nurse looked at our catheter arrangement and asked me if I was an engineer... Which of course, I actually am... :-)

The important thing now is for you both to take it easy... Get lots of sleep and rest! You are on the "other" side now!

God Bless,

Ray & Avis
pasayten
 
Age 59 y/o
Last 3-4 years of annual general health checkups - PSA 5-6 but Free PSA Ratio 21-24%, suggesting "benign" so I did not seek immediate followup urologist referral
3/7/2007 - Went to urologist -No DRE abnormalities but scheduled screening biopsy
3/13/2007 - 12 point biopsy - Left OK  Right Core Gleason 3+3
Consisting of single less than 1mm focus at tip of 1 core. Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Got copy of pathology report:
Gleason 6  T2c Nx Mx   approx 20% of prostate involved
Positive margin, but 2 places where a focal point of only 2 cells were touching edge, the right apex and right posterior. Perineural Invasion present. Seminal Vesicle and Lymphatic/Vascular not identified. Doctor was not concerned about that at all and Final Diognosis of T2c "suggests" organ confined.  Stats for no re-occurance are 96% for 5 years and 95% for 7 years. No further treatment other than PSA watch.
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 5/12/2007 8:11 PM (GMT -7)   
Welcome to the "other side" Curt and Vicky,

Get rested up Vicky. The anxiety from waiting for the path report will be easier to endure if you get plenty of sleep and eat right. I know that we usually don't feel like either one in times of stress but taking a nap during the day and snacking on fruit or juice can keep you on top.

The others have posted excellent advice on the catheter. Nothing I can add there except don't let the cat jump in your lap Curt. Thats an owy...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/18/07.
 
 "I have cancer but cancer does not have me."


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 5/13/2007 9:36 AM (GMT -7)   
Dear Kurt & Vicky
 
I am sure that Kurt is happy to have the surgery over and start the healing process.  My thoughts and prayers will be with you in hopes that Kurt will get good news when the pathology report is completed.  God Bless!
 
Dave
68, Biopsy 9/27/06, Stage T1c, PSA 7.1, Gleason 6 [less than 5% in two areas], Gleason 7 (3+4) [less than 20% in third area], negative DRE, bone scan and MRI. Had 39 Proton radiation treatments 2/22/07-4/18/07.
First PSA test to be taken 7/07.


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 5/13/2007 12:05 PM (GMT -7)   
Hi guys gald your home, good on you Vicki for getting him up and around in the hospital. As Curt will soon find out each day is a little better. As for the catheter, I changed around my velcro hold downs when I got home. I used two at night for the big bad and only one during the day for the smaller leg bag. Of course it helps if the catheter is off to the side his penis normally hangs towards and connect it to that thigh. I used the lidocane cream as well but not sure it did any good. Just tell Curt that he only has 5 or 6 more days of his friend the catheter!
Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Age 51
Surgery (robotic) May 4 2007 City of Hope
Procedure uneventful
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/13/2007 12:30 PM (GMT -7)   

Dear curt and Vicki,

Hello, and Welcome Home!.  I have been waiting to hear how you did and like others have said you are now on the other side.

I understand your concerns re the surgeon's comments and hope that it turns out to be nothing.

The catheter issue, I am always amazed that necessity is the mother of invention.  Great ideas from all.  We used the velcro in the hospital but when you go home you are becoming more active and  these problems come up. You are all so clever.  You should write a home remedies book yeah

Gentle Hugs.


Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 5/13/2007 2:27 PM (GMT -7)   
Curt & Vicky,

So glad to hear you're back home - that's always the best place to be!
The 16th is just a couple of days away and we're still keeping you in our thoughts.

Be strong & get your rest, both of you!
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 5/14/2007 7:14 PM (GMT -7)   
Curt and Vicky,
Welcome Home! I'm sure it feels better just to be back in your own bed! The suggestions here are all good ones. I adjusted the tube and those velcro anchors several times ( I bought some extras at the drug store) until I got them in a spot that was comfortable. Then I marked the anchor position on my leg with a permenent marker. When I had to change it the right spot was easy to find! Thank Goodness it was only on for 10 days! Take it real easy Curt (no matter how good you feel), and Vicky I know you've heard this before, but now is the best time for you to rest as well!
Keeping you in thoughts and prayers,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2007 Robotic Prostatectomy - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump. Patience..Patience!!!!!!


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 5/15/2007 5:11 AM (GMT -7)   
First-thanks for all of your notes and advice. Really good tips.
It's Tuesday I feel pretty good. Haven't had anything for pain since Sunday.
I had my first BM yesterday afternoon and another this morning. Went pretty well. Had leakage around the catheter with a little bit of blood in it after the BM, a little scary but learned here that that's normal.
Pain is starting to subside when standing up or sitting down. As a whole everything is going pretty well.
Should find out tomorrow about our pathology. Will let you know the outcome as soon as we get it.
Curt
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6
PSA:3.3
DaVinci Prostatectomy scheduled for May 11, 2007
Stage: T2a
Father and uncle had prostate cancer


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 5/15/2007 5:44 AM (GMT -7)   
Glad to hear from you :) and that pain is subsiding. you sound like you are doing well!

keep it up (errr, well not yet!) I mean ummm ... take it easy, and say "hi" to Vickie for us. :)

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 5/15/2007 6:09 AM (GMT -7)   
Sounds like you are having the typical Da Vinci recovery. I know you are anxious about the post op path report. Healing takes time as you know form this forum and although you feel good on the outside there is a lot of stuff going on inside. Work yourself back into activity at a methodical pace.

Welcome to the other side!

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 5/16/2007 7:44 AM (GMT -7)   
Good news! We got the pathology report this morning and the nurse said it was as good as it could be. Cancer was confined to prostate, margins clear, lymph nodes clear, seminal vesicles clear. We are so thankful.
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6
PSA:3.3
DaVinci Prostatectomy scheduled for May 11, 2007
Stage: T2a
Father and uncle had prostate cancer


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/16/2007 8:32 AM (GMT -7)   

Curt and vickie,

Yehaaaaaaaa, Horray and Congratulations on you path report.  That is absolutely wonderful news for you. 

Gentle Hugs


Respectfully

Kitt

Moderator Prostate Cancer

Depression 25 years, Husband Crohns Disease 30 years

My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”

~Rosalyn Carter


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 5/16/2007 11:20 AM (GMT -7)   
Curt- Great news on the path report, sounds like you and I were on the same page but a week apart! As you have noticed from my posts things are going well for me, Im sure they will be for you too! Next in line is to get the darn catheter out. Just remember to go slow (or if your like me to try and go slow-er) and dont freak over the occasional aches and pains. Vickci- keep up the good work, keep an eye on him and no heavy lifting for a while.

Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Age 51
Surgery (robotic) May 4 2007 City of Hope
Procedure uneventful
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/16/2007 4:42 PM (GMT -7)   

Ahhhhhh………….. Wonderful News with the Pathology Report….Curt & Vicky,

Thank you for keeping close touch with all of us.  I’m getting caught up after being away and reading your thread has me sitting here with a HUGE  :-) smile on my face!!!

 

Nice updates… please continue them…    I hope Mr. Hang is being good!!  Only a few more days… 

Vicky ~ I hope you’re getting good rest.  It’s important!!  For you too Curt.. 

 

This healing/recovery stepping-stone is so important…. taking the proper time to heal.  I’m glad you mentioned about being scared but knew it was okay to see leakage around the catheter during a bowel movement.  Isn’t this forum “awesome” with the Knowledge that we have all gained in our search for answers…!!!

 

Our thoughts and prayers continue to be with you.

Special Hugs coming at you both……  from Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 5/16/2007 5:10 PM (GMT -7)   
Lee & Buddy,

We're so glad that you had a nice getaway!

Remember when I wanted to put the velcro in Curt's sweatpants (I think you said you used snaps) --well, snaps would have been better. The velcro stuck to the leg band and caused pulling, so I took it out the day after we got home. Just thought I would mention that in case anyone else is thinking of doing it. Will save someone sewing and then ripping out. Mr. Hang is behaving and it is comforting to remember what you said about not fighting him, and letting him do his job. Yes, this place and everyone in it are such a HUGE help in recovery, and we are eager to help others along as well.

Vicky & Curt
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6 Changed to Gleason 7 after surgical pathology
PSA:3.3
DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital
Stage: T2a
Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR!
Father and Uncle had prostate cancer


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/16/2007 5:49 PM (GMT -7)   

J Hi Vicky, 

 

Thank you ~ we had a lovely cruise!  It’s nice to be home and back with “our friends”.

 

Thank you for your info about the Velcro. Nice to have feedback on this.  The snaps worked great and I tried hooks too and they worked fine.  (I’ll note this in our thread!)

 

Yes ~ Mr. Hang has a very important job to do.  I often wonder if the reason Buddy didn’t have trouble with the tip of the penis being agitated is because Dr. Staley said to leave the mucus there.  It is a natural lubricant and should not be removed.  Cleaning the crusted areas on leg and tubing… water only.  He walked 3 times per day and we had the catheter 17 days. 

 

That’s where sharing our experiences allows others to pull what best fits their needs. 

Nice to have options.

Take care ~ Lee


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 5/17/2007 2:33 PM (GMT -7)   
Vicky and Curt,

Great to hear about the path results. :)

We used snaps too (although i didn't sew them on, not much of a seamstress here :)) Just bought some of those "tear off" basketball warm-up pants in one of those light-weight fabrics with snaps all the way.

Bet Curt can't wait to have that catheter out. Keep us updated, and keep taking it easy :)
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/25/2007 2:09 PM (GMT -7)   

5-25-2007

Quote from Pete42 on new thread titled: CVK started by Pete42 J

     Curt and Vicki - Waiting to hear how everything went today!

 

Reply post Quote from CVK on thread started by Pete42: CVK

Hey Pete,
The catheter is out. I have some irritation from when they pulled it out, it's starting to subside a little bit now. I'm having some leakage problems right now. Everytime I take a step it wants to squirt. I'm having a hard time being able to control it because of the irritation and I'm having a hard time determining what's going on right now, due to that. I can't tell if I have urinate or if it's just the irritation. It's only been a couple of hours though and I'm sure glad to get rid of the catheter. It feels so much better walking around without that thing jerking. I'll keep you updated.
Curt

 

 

Hey Curt & Vicky,

Just a little note to let you know we are Thinking of You” and helping to keep your journey together!!!

I hope you don’t mind me copying and pasting this info here too!!  For those who will read later down the road will definitely want to see the story continued…  J

 

We will look forward to hearing how things transpire over the next few days for both of you.  You’ll hear this time and time again…. But it is true.  Take one-day-at-a-time and know we will be here for each of those days!

 

Hugs ~ to both of you.  In Friendship ~ Lee & Buddy


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 5/25/2007 5:10 PM (GMT -7)   
Thanks Lee! We'll try to keep everything in this thread now (after we just posted on the other CVK one). Whoops.
Hugs to both of you too!
Vicky & Curt
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6 Changed to Gleason 7 after surgical pathology
PSA:3.3
DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital
Stage: T2a
Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR!
Father and Uncle had prostate cancer


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 7/10/2007 8:07 AM (GMT -7)   
Just got the first PSA report back.

<0.01 !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

What a relief!
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6 Changed to Gleason 3+4=7 after surgical pathology
PSA:3.3
DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital
Stage: T2b
Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR!
Father and Uncle had prostate cancer
First PSA after surgery- July 5, 2007 = <0.01 !!!!!!!


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 7/10/2007 8:17 AM (GMT -7)   
yeahhhh!!!!!!!!!!!!!!!!!!

congrats ... so glad to hear :) Thanks for letting us all know.

Best wishes for MANY more undectables in the future :)

Tanya (and Ken)
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 7/10/2007 8:52 AM (GMT -7)   

SUPER, SUPER news!   May all of the future ones be OOOOOO's

Best wishes to you both,

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001
Have had no side effects.
6yr PSA - 0.19
 
 
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 7/10/2007 10:56 AM (GMT -7)   
:-)   :-)    GO BLUE!!!!!
 
Good news on a followup PSA indeed.
 
Swim  (Die hard U of M fan!!!)
 

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