Visit with the doctor

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 5/23/2007 9:56 PM (GMT -7)   
Hi Everyone!!
Hope you are all doing well. I had a visit with our onconlogist today who thinks I should see a radiation doctor ASAP, due to the positive margins and high Gleason. I also had an appointment with my surgeon/uroligist and told him that I was being sent to see a radiation Dr.
My surgeon said I should not have any radiation until I am completely healed and have regained continenance, The reason is if I do radiation too soon I will not regain continenance. I thought this was interesting as I had not seen this anywhere before. I agreed to meet with a radiation Dr. just to see what they have to say, but I don't think I will have any radiation actually done yet.
Again I truly hope you are all doing well, and once again I am so glad I found this site. It is very helpful especially when we are dealing with such a complicated situation.
(anniea) Rick
 
Rick & Diana
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
 


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 5/23/2007 11:13 PM (GMT -7)   
Hi Rick: I think it is wise to wait until you heal internally as much as possible before having radiation. You're only about six weeks out of surgery. Listen to your docs and keep us posted.
Best to ya,
TK

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 5/24/2007 12:16 AM (GMT -7)   
Hi Rick,
I have heard this from my oncologists as well. My Radiaologist was clear. Continance and ED after chemo or radiation will usually only return to the state it was before the treatment. This has not been an issue for me as my continance has been fine, and the blue pill works. Rick, I am T3b and Gleason 4+3=7 and PSA was 19.8, four margins positive. I too have to do radiation and HT (HT started, radiation this Friday). Chemo is a probability but not until I have healed from the radiation. Again for the same reasons. You will have tougher decisions on whether to take the other therapies as well. But for now, stay positive and heal the surgery. Try to do the things necessary to have regained your other resources, if you get my drift. And if you're good on those things, then ask your radiologist if it's OK to procede. But you may be mired in a tough call if these things don't cooperate.  If you decide, or are forced to decide because of the concern over the Gleason score, you just may have to move ahead anyway.  You may wish toe start with HT then radiation. 

Good Luck on your recovery,

Tony

Post Edited (TC-LasVegas) : 5/24/2007 1:46:19 AM (GMT-6)


jwb187
Regular Member


Date Joined Apr 2007
Total Posts : 101
   Posted 5/24/2007 5:59 AM (GMT -7)   
Hi Anniea (aka Rick)

I met with my radiation oncologist when I was a couple of weeks post operative.....he told me that I probably needed radiation for my pca but he couldn't even think about starting until usually 12 weeks post op and certainly no sooner than 8 weeks, and definitely not until I had regained my continance. He also referred me to a medical oncologist to see about other options that I could be doing in the interim period. I just met with this Medical oncologist, however he said that I didn't meet the protocol for his clinical trials due to me having a previous bladder cancer. He wanted me to get my first psa reading which will be the first week of June, then if it was okay to go ahead and proceed with the radiation when I was ready.....if the psa was above .04 to come back to him and he would start a treatment plan. This Doctor is a professor at one of the best University medical schools in the country and practices at one of the better large hospitals in the midwest. I don't feel like he would just blow me off because I didn't qualify for his clinical trial, so I trust his judgment in my case. Anyway, both doctors were concerned about bladder function if radiation was started too soon. Good luck in your journey. jwb
age: 61
PSA 4.57 - Positive DRE
Biopsy 3-19-07 - Gleason 4+4=8
Negative bone scan 3-20-07
DaVinci 4-24-07
Catheter out 5-01-07
post op pathology:
positive margin left side of prostate
left seminal vesicle involved (both removed)
No lymph node involvement
New gleason score 9
T3B....radiation consult on 5-9-07.


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 5/25/2007 12:21 PM (GMT -7)   

Hi everyone!!!

Thanks for your responses, you can bet I won't have any radiation until it is needed. Thanks again. Jtb I can't beleive how close our numbers are. I hope you post often as I will to watch how we progress.

Thanks again

Rick


Rick & Diana
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
 


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 5/25/2007 12:22 PM (GMT -7)   
I am sorry, I meant jwb 187

Rick
Rick & Diana
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/25/2007 12:42 PM (GMT -7)   

Hi ~ Rick & Diana (*anniea),

 

Caring Enough to Share….. 

 

  A   “Special”  Warm Welcome  to  You!   yeah   

 

This is truly a great forum!!! ~ “You” have joined! You are now part of our forum family ~ a group of wonderful individuals who are so willing to share their journey. 

Thank you for joining all of us on this road to HealingWell…..

 

KNOWLEDGE IS POWER... and POWER conquers fear

 

Keeping you Extra Close in our thoughts and prayers.

In New…Friendship ~ Lee & Buddy

 

“God Bless You” 

It's a little prayer  ~  "God Bless You"  ...but it means so much each day,

It means may angels guard you and guide you on your  way

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 3:44 PM (GMT -7)
There are a total of 2,906,239 posts in 318,936 threads.
View Active Threads


Who's Online
This forum has 158274 registered members. Please welcome our newest member, Identifiedinlove7.
315 Guest(s), 12 Registered Member(s) are currently online.  Details
PeteZa, scifigal2k, randrball1, opugirl, Scaredy Cat, cakegirl, js100, Sherrine, Manzanita2, Connor77, Woodduck12, Tim Tam