2 weeks out - Incontinence primarily only when sleeping

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OhioPhil
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/28/2007 7:57 AM (GMT -7)   
Just had Da Vinci surgery two weeks ago, after talking to the Doc and reading other forum posts I understand that two weeks post surgery is too soon to expect total continence but my incontinence problem seems to be a little different than most.  I feel good with where I'm at in terms of continence with one exception - when sleeping.  I keep having a total drenching when I fall asleep.  It sounds like most people don't have problems when lying down.
 
The first time this happened was five nights after the cath came out.  I figured it must have been brought on by the glass of wine that I had not too long before going to bed so last night I cut out all liquids after 8 PM and made it through the night without incident.  Then this morning I laid down for a short nap and it happened again.  It seems that I can't fall asleep with anything in my bladder or I have an accident.  I would really like to be able to take a nap without cutting off liquids for hours before.  Just wondering if anyone else has had a similar experience or suggestions.
 


DaVinci Surgery 5/14/07
PSA 7.5
Gleason 3 + 4 = 7
Age 38
 

Post Edited (OhioPhil) : 5/28/2007 9:01:40 AM (GMT-6)


CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 5/28/2007 8:24 AM (GMT -7)   
Phil,
Welcome to the forum. I had the davinci on May 11th. I got the catheter out last Friday. Just wondering, do you sleep on your back, side or stomach? I sleep on my back and don't leak at all at night.
Curt
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6 Changed to Gleason 7 after surgical pathology
PSA:3.3
DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital
Stage: T2a
Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR!
Father and Uncle had prostate cancer


OhioPhil
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/28/2007 9:19 AM (GMT -7)   

Curt,

Thanks for the reply.  I think this might be part of the problem.  I try to stay on my back but tend to roll onto my side.  I think that I do better when I stay on my back.

Thanks, Phil


Diagnosed 2/2/07
1 of 10 samples positive, 4%
PSA 7.5
Gleason 3 + 4 = 7
Da Vinci 5/14/07
Pathology: 10% of gland, confined to prostate
Age 38
 
 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 5/28/2007 9:55 AM (GMT -7)   

Phil,

Yes, two weeks is too soon to make any assumptions. nono

I mentioned my sudden lack of control after some wine (See blue paragraph below.) to my Bio-feedback Therapist.  She said that she had heard about this reponse from alcohol  MANY times before.  The basic message is to cut out all caffeine, citrus juices, alcohol, sodas, and more (I can't remember the entire list.) until you have some control.  Then bring a little of one of these items back at a time until you have control with that item.  Move slowly.

Cedar Chopper wrote:  I'm in week 10 and still leaking.  After a week of the least number of pads a day since surgery, I had my first drink of alcohol last Saturday night at a perfunctory job-related charity wine tasting.  I drank about 7 ounces of (very expensive) wine.  When I got home, I fell asleep in a chair and woke up two hours later soaking wet.  I've never had problems dozing in a chair before.  For the last three days, my control was terrible.  Today control seems to have returned.  Needless to say, I won't be drinking alcohol again anytime soon.

You are likely ALSO just one of those patients that have a bladder more sensitive to all the relocating and stretching. 
   When you are having problems with such a large amount of leaking when sleeping:
 try the incontinence bed liners, and the men's brief underwear liners (holds 8 ounces) and a women's incontinence liner (positioned at 90 degrees to the men's , under the penis - - Holds 12 ounces).
I drank less water than normal and ealrlier than normal.  However, I always drank at least 64 ounces every day.  You might read my thread on "Zen and the Art of Symphonic Continence" if you have time.  I think it is on page 6 or 7.
 
I'm in week 15 and leak some whenever I drink a lot - say a quart of milk -  and do a lot of lifting. 
Be a patient patient!  You will recover!
 
CCedar



~~*~~*~~*~~*~~*~~*~~*~~*~~*~~*
2 Years of PSA between 4 and 5.5
Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.
Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.
Confined:)
***************
Texas Hill Country
FRESH Produce Department Manager
Have you had your 5 colors today?

Post Edited (Cedar Chopper) : 5/28/2007 2:21:43 PM (GMT-6)


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 5/28/2007 8:17 PM (GMT -7)   
Phil
You are doing fine. Every one is a little different in recovery. Your day time control says that you have good muscles and are working to get things back together. The night time control is different. Cedar has suggested less liquids at night and that will help for sure. Just be sure that you have a pad on or under and don't worry about it for the next week or so. I know when I woke up wet i was Pi%%ed off and felt like I had messed up . I found that it was normal. You seem to be going in the right direction. We all get impatient and hope for a quick solution. sometimes (always?) we need to just give it a little more time. You are younger than most of us. That is good and bad. Being younger gives you the physical advantage of "youth", but also gives you the impatience of "youth". It sounds like things are going ok. Everyone does it a little different. Yeh.. I said that twice...must be the old brain....(or the two beers) Keep asking questions. Things will get better.
 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/28/2007 8:35 PM (GMT -7)   

Hi ~ OhioPhil & Loved Ones

 

Caring Enough to Share….. 

 

A   “Special”  Warm Welcome  to  You!   yeah   

 

This is truly a great forum!!! ~ “You” have joined! You are now part of our forum family ~ a group of wonderful individuals who are so willing to share their journey. 

Thank you for joining all of us on this road to HealingWell…..

 

KNOWLEDGE IS POWER... and POWER conquers fear

 

Keeping you Extra Close in our thoughts and prayers.

In New…Friendship ~ Lee & Buddy

 

“God Bless You” 

It's a little prayer  ~  "God Bless You"  ...but it means so much each day,

It means may angels guard you and guide you on your  way

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 6/3/2007 8:46 PM (GMT -7)   
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