Just caught up with your email from end of May
At 4 months out from open RP I too still leak almost continously all day if I am not sitting down. Just standing starts it off. Nights are OK & although I get up a couple of times for a pee I am dry in the morning.It seems that what we have is different from straightforward stress incontinence. Currently I am trying the electro magnetic chair 3 times a week but so far no good news. Previously I have done plenty of Kegels & have always been able to stop the flow of urine.
I use pads called "Molicare Mobiles" Super which are like Grandma's knickers but with very good absorbency & I know they will last for at least 4 hours. I haven't seen anyone on this site talk about them. In fact I can get through a whole day using only 2 - 3 pads - they are made in Germany & although more expensive are quite practical & no underpants to worry about.
I would like to hear of your progress
& wishing you all the best
It seems as if you and I are in the same boat. I'm 2 months post-op, and leak continuously during the day. A lot of the guys on this board suffer from the "classic" form of stress incontinence.... which is leakage when coughing, sneezing, running, etc. While a real pain, it is not as bad as the continuous leaking I have even when standing perfectly still. This does not allow my bladder to accumulate any volume whatsoever during the day.... it all comes out in my pads, which I change up to 15 times a day.
As far as your initial question, I try to hold a kegel as long as I can, but I must eventually let go, and everything in my bladder just pours out. It is truly ruining my life because I have seen zero progress in 2 months.... it is taking a huge toll on my well being because the total lack of any progress is so atypical from most people on this board.
Are you able to stop and start the flow in the morning? I can only slow the flow briefly, not stop it. Since the morning is the only time I have a full bladder, I can only practice this once a day.
My prostate was rather large at 60 grams, so I am fearful that some damage was done to the sphincter or pelvic floor muscles upon removal. The doc, of course, says no but I honestly feel he is feeding me a bunch of BS to cover his rear. All he knows how to say is "patience and kegels".... there has to be more to it than that after 2 months. I started doing kegels weeks before surgery, and have just started biofeedback lessons, although the technician says that I have been doing the kegels properly.
I'm beginning to regret having the surgery at all.. I spent so much time researching all the procedures and doctors, in order to make the right choice, only to face the prospect of being a guy in his early 50's living the life of a 90 year old in diapers.
Sorry to be so negative, but this is becoming unbearable. There are a lot of upbeat, wonderful people on this board who have offered words of encouragement, I'm sure you are better off listening to them!! Good luck to you!