To pee or not to Pee that is the question ?

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Telstar
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 6/1/2007 9:29 PM (GMT -7)   
 Hi All... Well Im back and I apologize for not communicating much since my last post. I know been a while but felt I was being a big baby... You all that have had the patience to stick with me have been a true God send and I wanted to say THANK YOU. Im about 12 weeks out now from my surgery march 20th. I am glad Im looking backwards now and not waiting for the OMG what next days I had after surgery. My Post op stats if i didnt give them as I dont remember:
Gleason 7 4/3 Tc1
After Op
still gleason 7 4/3 tumor feelable
some escape but surgeon says he felt it and thinks he got it all
first psa taken 14 days after surgery PSA 2.6 :(
Second PSA 30 days after surgery 0.01 WHOOO HOOOO hope it lasts
wont have another one for 90 days 
 
any way I hope im on the way to staying .01...
contenance has come a long way. can go to bed and only get up once. stream now good from dribbles of first couple of weeks. Still on pads during day as I leak when I get  up or stress myself
still have a few disturbing moments but feel it is normal. Sex drive is good but phisical side sucks
can have orgasm but no erectionl Had nerve sparing and doc says it will take time. Have great wife so not overly concerned there yet as alternative are still fun :) .
 
So Pee or not to Pee.   any ideas on how to control the squirts ? I sometimes try to tighten up the muscles but still pee when i stand up  cough sit wrong and move etc....
 
I do hold pretty well for normal urination. I get the sensation and can make it a min or so till i evacuate so feel pretty good about that. I at least will go back out in public now :) . I still wear depends diapers when i go to bed even thought they are dry in the morning ( security blanket ) is this normal psychology or not ?  I do worry as at times my penis gets damp and hard to keep it dry . It has really shrunk up since the surgery and gets tight against my testicles and either sweats or stays damp for some reason. Also experiece  mild pain in penis but doc says that is normal and will eventualy go a away. Not bad pain but just a irrating pain that itches more than hurts.  I hope im not being to graphic and dont mean to be just dont know how to ask ( politicaly correct ) and discuss these things....
Any way thanks and God bless all you wonderful people
 

PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 6/1/2007 9:41 PM (GMT -7)   
Hi Telstar. Welcome back. Sounds like you're doing fine. As far as urinary control -- in my case, "false moves" such as bending down to pick something up; turning around to back up the car, blowing my nose too hard etc. led to leaks. However, as I continued doing those moves, the leaking disappeared.
So gradually work yourself up to moving around like you used to -- just the moves, not the weight-lifting.
I also wore the pads for security after I really needed them. I probably would still wear one if I was sleeping over at someones's house. When you're ready to let the pads go for good, try putting a tissue in your Jockeys when you venture out. It willpick up the stray drops and make you feel better about the whole thing. Ultimately, you will lose the security blanket -- AND LOVE IT.
Best to ya. Keep up the good work.
Tom

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/2/2007 8:25 PM (GMT -7)   

 Yea !  ~   Telstar,

 

PSA…   !!!~~~~>>>  Woo~Hoo  <<<~~~~!!!  undetectable

 

Cause  for   celebration!!!!!

     What a wonderful day it is ~ each and every-day….

          Enjoy it to the fullest ~ friend.

 

Yippeeeee!!!!!! From  Lee & Buddy

 

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.  

J  Caring is Sharing ~  Thank You for Sharing  J

 

Other threads started by: Telstar

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

 

4-10-2007  Help With Recovery and Healing process.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/2/2007 8:42 PM (GMT -7)   

  tongue Hi…Telstar ~

 

Stay with us friend….   yeah    The amazing thing about this forum is…. “We can talk about anything!!!”  Graphic… sometimes it has to be and that’s what helps us through certain situations.  opening up and having others help you over a stepping-stone that is wobbly is what we are all about. 

 

So ~ keep on posting and keep coming back.  We need to hear from you!!!!  Okay!!

Leaving us is not the best medicine!!!   tongue   

Hugs to you!  Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 6/3/2007 5:48 AM (GMT -7)   
Good for you, Telstar! You're progressing just fine in all areas. It gets frustrating, we all know that. You may wont to consider graduating to just pads as they might be more comfortable than the "security blanket." Being dry lying down is an excellent sign. I think the 30-day PSA is much more telling than the 14-day one. Many on here have had docs wait for things to settle down before having the test done. The squirts may go away gradually, or just quit one day all of a sudden. Everyone is different there, but I'm sure some of the guys will be along shortly with ideas that may help control those.

Sounds like you have a great support team at home and that's a big part of the battle (plus all of us at HealingWell!).
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/3/06 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 4/17/07
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/25/2007 9:57 AM (GMT -7)   

Hi ~ Telstar,

 

Thinking of You  and wanted you to know!

Hope to hear soon on how things are going for you...

Take care and we continue to keep you close as you move forward.

In Friendship ~ Lee & Buddy

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