HealingWell in the NEWS!!!!! USA Today 6-3-2007

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bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 6/2/2007 8:06 AM (GMT -7)   

Click on the link below....

http://www.usaweekend.com/07_issues/070603/070603healthonline.html

Excerpt from USATodayArticle............on Peter Waite & HealingWell 

By Peter Waite

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Try sharing information, opinions and feelings with others who are hurting.

More than 10 years ago, I was dealing with a medical situation. I went online and was surprised by the lack of an outlet in which ordinary people like me could share information or find an empathetic ear. For those who are hurting, the Internet offers more than the presentation of medical facts; it is an outlet for personal connection.

That's when I launched my site, HealingWell.com, which contains 30-plus forums -- also known as online discussion groups or bulletin boards -- in which hundreds of thousands of people exchange information, opinions and feelings every month. Today, there are many other outlets online that host similar health-related forums.

 

Post Edited (bluebird) : 6/5/2007 1:04:32 AM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/2/2007 8:14 AM (GMT -7)   

Mr. Waite,

 

Thank you for all the time and energy in starting and maintaining……. HealingWell

 

It is truly comforting to be part of this “Special” family of friends!!!

 

                                  yeah     What a wonderful place to be!    yeah  

 

                                          Caring is Sharing….…. Thank "YOU" ... for Caring

 

Heartfelt appreciation to you  and  your  volunteers!!!

Respectfully,

Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

Post Edited (bluebird) : 6/2/2007 9:28:14 AM (GMT-6)


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 6/2/2007 8:18 AM (GMT -7)   
Mr Waite,
Your vision, insight, and compassion in starting this web site have helped countless people suffering from these dreadful diseases.
A sincere "Thank You" from one of them!
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump.
May, 2007 - Still one pad a day, even try a smaller pad on occasion. Slight improvement on the ED.
"If patience is a virtue, I feel like the most virtuous guy on the planet!"


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 6/2/2007 8:34 AM (GMT -7)   
Thanks Mr. Waite for the time and effort you put into HealingWell. This forum is an integral part of my recovery from prostate cancer. I found this board on the day after I was diagnosed and the people here have held my hand and seen me through the most difficult time of my life. Without them I would have been lost...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/18/07.
 
 "I have cancer but cancer does not have me."


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 6/2/2007 9:18 AM (GMT -7)   
We agree with everyone! This is truly the best forum anywhere. It has helped our journey more than words and thanks could ever express.
:o) Linda & Bob
 
Many thanks to Bluebird for drawing our attention to this article about HealingWell.


Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

Post Edited (lawink) : 6/2/2007 10:23:52 AM (GMT-6)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 6/2/2007 9:22 AM (GMT -7)   
Peter Waite,

Of course, at the head of this site had to be someone who cares a great deal about others. Like others have said here many a time - I only wish I'd found HealingWell sooner.
It seems that this site brings out the best in us because at our most vulnerable that's when we're the most human.

Thank you,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement
Restage IV Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3
06/06/07 - Next PSA


drmartin
Regular Member


Date Joined May 2007
Total Posts : 42
   Posted 6/5/2007 1:52 PM (GMT -7)   
I pass this site info to every doctor I see..and rave to them about it!!

It's been a God send for me and my wife!

Thank you very much! Peter Waite!

Dave M.
Age: 52
Male, Hispanic   
 
11/10/2006
PSA 10.2 - Discovered during Annual Physical with Family Doctor
Referred to Urologist Surgeon specialist
Free and total PSA - 10.9
 
Biopsy ( sent to John Hopkins pathology) - 2 of 16 positive on left and right apex of prostate
Left - GS 3+3=6, Right - GS 3+3=6
 
Davinci assisted laparoscopy radical prostatectomy on Apr. 17, 2007 -Complications due to extreme unusual size of prostate. Normal Prostate = 20 to 31 grams. Mine = 120 grams (not enlarged, but genetic growth large)
Nerves on right side spared.
All Lab's clear.  No Cancer outside prostate
 
Cystogram Apr. 24 2007- Slight leakage at anastomosi negligible.
Catheter in for 1 week  Removed Apr. 24, 2007
 
Second post op office visit on set  for May 30th.
 
 
    


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 6/6/2007 2:08 AM (GMT -7)   
Mr Waite: I can't express how much this site has meant to me. You have done a wonderful thing here and you will be rewrded for it.
Thanks,
Tom

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07

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