Are there others ready to have a biopsy done in the future.... I need some answers

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Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/2/2007 9:52 AM (GMT -7)   
  I am new to this site...... I've never heard of having a low PSA and yet my urologist says he does not like the feel of my prostate and tells me there is still a 30% chance of prostate cancer, I have never heard of this, I always thought it was the opposite..... are there others in this predicament?  I will appreciate your input on this..... thank you...... Richard -- pa

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 6/2/2007 10:38 AM (GMT -7)   
Hello Richard,

Welcome to the forum. This is the place to be for support and info.

I don't know how the doc comes up with 30% chance after doing a DRE. Maybe others can enlighten us on that. Its really good that you are getting it checked out just in case.

Nice chatting with you last night in the chat room. Stay close...


Jim


Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/18/07.
 
 "I have cancer but cancer does not have me."


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 6/2/2007 11:33 AM (GMT -7)   

Hi  ~ Richard  & Loved Ones,

 

            A   “Special”  Warm Welcome  to  You!   yeah   

 

I know we can “all” make Your Journey smoother while you are waiting for answers ~ just by being here for you!   Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you! 

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

 

 

KNOWLEDGE IS POWER... and POWER conquers fear

 

 

We invite you to visit our personal thread in the signature area below.

Our thoughts and prayers will be with you as you continue to search for answers.

 

In Friendship ~ Lee & Buddy

 

 “God Bless You”

 It's a little prayer  ~  "God Bless You"   ...but it means so much each day,

It means may angels guard you and guide you on your way.

 

(Direct Link ~ just click on the title below and a new window will open!  

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Post Edited (bluebird) : 7/19/2007 8:42:41 AM (GMT-6)


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 6/2/2007 11:55 AM (GMT -7)   

Hi ~ Richard,

 

I do recall several members who had the following PSA numbers…

1.5 G5,   1.5 G6,   2.5 G7,   2.3 G6/7,   2.62 G6

So ~ I’m going to say yes… the numbers can be low. 

 

Do you have your specific PSA numbers yet??  When you do ~ let us know.  We are happy to walk with you…. so continue to take our hands… Okay!!!  yeah  

 

The link above ….  Helpful Hints…  in your Welcome Letter will help to guide you to some specific threads that may be helpful to you.  This is only a very small # of threads…. With 49 pages… this helps you get a little bit of a head start.  I hope you do find it Helpful.

 

Keeping you close in thoughts and prayers as you head toward finding answers.

In New Friendship ~ Lee & Buddy

 

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Post Edited (bluebird) : 7/19/2007 8:43:28 AM (GMT-6)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 6/2/2007 11:56 AM (GMT -7)   
Rick,

The 30% id a statistical figure. As you know, statistics are not the end all, be all. There are many, many journal sites you can begin searching through but, it might be in your best interest to wait until the biopsy / urethrascope are done so you will have something to look up. Whether your UT / prostate condition is cancer related or not, there still has to be a diagnosis. Don't go scaring yourself into a tizzy just yet. The imagination can do some wicked things to a man's mind...please be cautious.
The unecessary, long waits for tests are enough to drive a person buggy. Try to find a way to keep busy and off the subject for part of the day everyday. Volunteer, take up a new excersise habit, paint the house, fix the neighbors fence! Anything that'll redirect your mind a bit.

If you really need to look up a few things...because you are like most people on earth...try places like Urology Times or Medscape (urology). These may be of some use. Most of all, try to realx. 18 days is a long way away and even longer when you're anxious. Best of luck...sounds like you've had some already given your history.

Be Well, Swim
 


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 6/2/2007 1:55 PM (GMT -7)   
Richard, My husbands PSA was 2.6 last summer and the DRE was negative.  His doctor started calling him 2 months later trying to get a follow up PSA.  Kurt, like a lot of men, put it off.  In Jan, 07
with a lot of pushing, he finally had the test.  It jumped to 4.1. Doc said biopsy, Kurt said no, I said yes, and as you can see from our signature, I won that battle.  Docs say that cancer could have been there at least 3 years maybe longer, but probably not much less.  His PSA's during that 3 years were always below 2.6.  He just thought he was prone to prostate infections.  We caught his just in time.  It was very close to breaking the margins.  Doc said that it was at margin, just hadn't broken through to give us a positve margin outcome.  We were very lucky and he is only 47. 
PSA is said to be the best predictor of PCa, however, I would go with the docs suggestion and have a biopsy.  At least you can then put your mind to rest.  What is a little bit of discomfort, if it means saving your life?  I wish you the best and please keep posting.  We may be able to help you, and/or you may be able to help others.  Good Luck,  Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/2/2007 6:00 PM (GMT -7)   
gosh .....swim..biker90..bluebird...kziz.... you guys are all super great. You have enlightened me about a lot of questions that I had ....like you say keep busy and trying not to dwell on the negative.... I will look forward to chatting with you all and keeping you up to date.

Richard --pa

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 6/2/2007 6:10 PM (GMT -7)   

    Hey Rick, nice chatting the other night.  I would go ahead with the biopsy.  I had a 12 core and it was not all that bad.  i may have used a few pain killers that evening but nothing after that.  You will feel better if you know for sure.

   Look forward to seeing you around the room.

  KW

 


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA.
    June 1st Start Bio-Feedback to try to control my leaking.
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/4/2007 5:54 AM (GMT -7)   

Quote from Richard *Rick Roma  aka Richard –pa  posted on Trey’s Thread

HI TREY...... I am also in shock over my future biopsy....... I have a low PSA, but my urologists does not like feel of my prostate... I always thought it was the other way around..... I have suffered where depression for many years and alone also. I'm really scared. I don't know what the future will bring..... and if it's cancer knowing what steps to take....... wish you all the BEST......

Richard -- PA

 

Hi ~ Richard

Just a little note…

  tongue   This “Hug” is for you!!!  yeah  

 

If your biopsy comes back ~ not prostate cancer… we will be right here to cheer with you.  But not knowing is the hardest!!!  So start now to understand what’s in front of you… Consultation, Biopsy,…  We have had a few who have joined us and we cheerfully waved goodbye to them once their biopsy came back not Pc. 

 

                     Knowledge is Power…. Power takes away the fear

 

You have reached out and this is the best gift you can give yourself.  Accept our “Helping Hands” as you travel this path you didn’t expect to be on.  We are all here to let you know that you will do fine if you take one step at a time.  Learn as much as you can about this cancer and it will help to take away most of the fear.  I won’t say all of the fear…. but once you understand what’s in front of you…. you can start to move forward in a positive direction. 

 

It has made me smile to see you on Chat… with fellow friends.  This is truly a wonderful tool and will help you through this. Please ~ stay with us… Share all emotions here!!!  It will truly help you!  We are here ~ so lean on “all of us”. 

 

You will feel our “STRENGTH” surround you as you step on to the stepping-stone that will lead to your biopsy.  Please ~ do what you have to do to not let this trigger your depression.  If so ~ get the help you need to help you through this.  You will need to be strong and in good mental as well as physical health to travel this path. 

 

Below is an excerpt from “Our Journey”…. This book helped us to understand fully what the biopsy was all about!!!

 

Keeping you close in thoughts and prayers as you move forward.

In Friendship ~ Lee & Buddy

 

Excerpt from Our Journey ~ Sharing is Caring by Lee & Buddy

 

**Dr. Walsh’s Guide to Surviving Prostate Cancer…(Give Yourself a Second Opinion), is truly a book of knowledge… teaching you about this disease… that affects the whole family!

 

It is not a book to make you scared ~ but to make you think, to make you understand, and to make you knowledgeable about this terrible cancer….. It doesn’t hold back….

 

But remember…being scared is part of this whole picture at the beginning anyway… so take in the information that is offered from its contents. 

 

We are not promoting this treatment.... that is definitely a personal choice.  This book has information that "all of us" can use no matter what treatment you decide on. 

 

Read only areas that you are comfortable reading at first.  Gradually you will likely read it all…  I did not read Chapter 12 until after our surgery and after we had a few weeks under our belt.  Then I skimmed through the pages… and it made me really appreciate what we have just gone through….. and give thanks each day for having found this cancer early.

 

 

We hope this link helps you!! Scroll down to the 3rd posting when you get there for some quick links..

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)

 

«  bluebird ~  Moderator for Prostate Cancer Forum

Caring is Sharing ~ Please donate.... www.healingwell.com/donate

Post Edited (bluebird) : 6/16/2007 12:58:54 PM (GMT-6)


Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/4/2007 10:19 AM (GMT -7)   
Hello buddy and--lee. You guys have been so helpful to me, and very informative I appreciate all your information. Unfortunately I'm alone and I worry more about my independence. I find that scary IF the news is not good, but like you say another opinion. I will do nothing hasty...... I will definitely keep you all posted... I am getting a little frustrated... last night was trying to chat in the room and constantly being thrown off every second until finally I gave up.

Sincerely, Richard -- PA
There is a special church here nestled deep
in the forest.... a beautiful bell hangs at the very top.... it only stops ringing.  When you come through the forests for your voice takes its place....   Richard


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/4/2007 12:23 PM (GMT -7)   

Hi ~ Richard,

 

Magaboo was alone also and he did extremely well!!!!  Take a look at his thread and pull from his strength… it will help you to know You Are Not Alone….  Even when you see that most have spouses and/or significant others ~ don’t let this pull you down.  We are all here for you so lean on us.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

  click here…>>>  Another new case

Started by:  Magaboo

 

Chat has problems with this and maybe over time it will get worked out… I call it getting goosed!!!  Just smile and sign back on.  If it happens more than 4 times… then sign-off and know that we are all getting goosed!  And check back later.  Remember it’s open 24/7  just sign-on and when others look to see who’s on…. They will see you.

 

Happy chatting and posting….  Tuck that hug close and pull strength from it.

In Friendship ~ Lee & Buddy

 

«  bluebird ~  Moderator for Prostate Cancer Forum

Post Edited (bluebird) : 6/16/2007 1:02:36 PM (GMT-6)


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 6/4/2007 6:46 PM (GMT -7)   
Hey Rick, I know that you feel like you are all alone, but you are not. You have found us. And even though you would not know me if you bumped into me in the street, by staying here, you will "know" me and the others. When my husband went in for surgery, I got on the computer in the waiting room and went straight here. I saw a thread that said that the waiting room at our hospital must be full since the "folks" from Oklahoma were there too. I didn't get to meet the son who was posting for his dad. He had surgery right before Kurt, and thanks to this web site he had traveled overseas to have his surgery in Austin. The morning following surgery, I walked up to the nurses station to ask the doctor a question. As I approached, I saw this man talking to the doc. He said, "Are their other people here from OK?" The doctor looked at me and then back at the other man. I said, we are from OK. He looked at me and said Courtney? I said yes, not sure who or how anyone there would know me. We traveled out of state for surgery. He said, "ChiOkc". He was with us from the beginning. He too had found this site. It was as if one of my closest friends was there with us. So, you see, you may not know me by sight, but you will learn about each of us. And hopefully, you will not need us for long, but if you do, we will be here. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/5/2007 6:27 AM (GMT -7)   
Hello Courtney, that's an amazing story. You really are like family. This site has helped me tremendously and feeling not so alone. I just want to say thank you for caring... kurt is very fortunate to have someone like you in his life. on my way right now to the dermatologist, a deadly melanoma on my arm. Two years ago and 35 stitches and doing well.... I'm just getting one challenge after another..., I will try to roll with the punches............

sincerely, Richard...pa
There is a special church here nestled deep
in the forest.... a beautiful bell hangs at the very top.... it only stops ringing.  When you come through the forests for your voice takes its place....   Richard


trey1121
Regular Member


Date Joined Feb 2007
Total Posts : 81
   Posted 6/5/2007 7:05 PM (GMT -7)   
Hi Rick!
It sounds like we have a lot in common! I'll be thinking about you as you have your biopsy. Since I finished my radiation treatments and my life has returned to normal, I pretty much have put PCA behind me. I may be taking it too lightly but I think its my own way of coping with it. I'll be anxious to hear how everything goes and would love to chat with you. Keep me posted! Trey
Diagnosed 1/19/07
Age 53
PSA 7.2
Gleason (3+3) 6
Stage T1c
PI present in 3 of 6 cores
Completed 42 IMRT treatments on April 20, 2007
appointment 5/30/07 for PSA indicated a drop from 7.2 to 5.8


Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/6/2007 8:21 AM (GMT -7)   
hi trey....was your psa low when you were first diagnosed? Did the urologist feel something suspicious with your prostate exam? This is what happened to me. I'm alone allso and my independence is extremely important..... did you have any side effects with the radiation? I appreciate your help.... I'm really scared right now......... the urologist said he wants to check back and front...o boy..... he said he will put me out for .. 10 minutes..... I will go to a medical center where they do these procedures.

thanks for your help -- Richard -- PA
There is a special church here nestled deep
in the forest.... a beautiful bell hangs at the very top.... it only stops ringing.  When you come through the forests for your voice takes its place....   Richard


rek3283
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 6/7/2007 10:09 AM (GMT -7)   
Rich,
 
Sorry if I'm late.  I just found out about this forum this week.
 
Having gone through 5 (yes, 5) biopsy sessions totally 92 needle pokes, I strongly recommend that you find a urologist who can anesthetize the nerve bundle adjacent to the prostate.  I had my next to last one done that way (the urologist had been on the receiving end once himself) and it was like day and night.
 
When they tell you the stick is like a bee sting, it is.  BUT, bee stings hurt and having one inside your rectum and prostate hurts like hell.
 
Fortunately, I was under general anesthetic for the last one that totalled 44 pokes, and they finally found a malignancy after 4 years of elevated PSAs and all them pokes.
 
I'm going in for my seed implants next Tuesday.
 
Dick
 

pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 6/7/2007 2:55 PM (GMT -7)   
Hi Rick
 
While my circumstances were not similar to yours, I stupidly avoided having a biospy for three years after it was recommended to me.  Don't let anyone scare you about having a biopsy and make sure if you have one that they take at least 20-core samples to give you greater assurance as to whether or not you have PCa and at what stage (I had a 29-core biopsy).  I was lucky to still be in an ealier stage of PCa when I was diagnosed three years later than I should have been, but I was not at the earliest stage.  Just make sure that if you have a biopsy that the urologist numbs the prostate in some way so that the biopsy will be essentially painless.  You seem to be in a situation where having the biopsy may take some of the worry away from you and tell you definitively whether or not you have PCa.  I hope and pray that you do not have PCa.  If you do, I can assure you that many of our wonderful memebers will be here for you. 
 
You might be interested in reading my journey with prostate cancer by clicking on the link below.  It gives further information on my biopsy and may answer some of your questions on radiation treatment, including my side effects (which were mild and have now gone away since treatment ended in April 2007).  Also, my journey includes some links to helpful PCa resources.
 
Best of luck!
 
 
Dave


68, 29-core biopsy 9/27/06, PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area],  Gleason 6 [less than 5% in two other areas], negative DRE, bone scan and Endorectal MRI. Completed 39 Proton radiation treatments 2/22/07-4/18/07.
First PSA test to be taken 7/07.

Post Edited (pcdave) : 6/7/2007 4:20:25 PM (GMT-6)


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 6/8/2007 2:12 PM (GMT -7)   
Rick, You never did mention your number and you absolutely don't have to.  It sounds like you fall in the same category that I do and that is where "they" tell you that you have a 10% to 30% chance of having cancer.  I won't worry about 10% but a 1 in 3 chance I don't like.  I think that we had a 30% chance of rain today and the clouds are moving in.  Everyone has their own history and their own situation and I would never ask anyone why they would not want to have a biopsy, but I can tell you that I want to know exactly what my situation is and I want to know as soon as possible.  I think that the best years of my life are yet to come and they are worth some pain in the meantime.  I've enjoyed my romantic life and will even if the physical side of it isn't the same.  My biopsy had to be postponed, but I have one in another area coming up in the meantime.  Because I haven't had a biopsy yet and PC isn't exactly an area where I am an expert, I haven't been posting recently, but I just wanted to say hello as long as we seem to be in the same neighborhood. 

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 6/8/2007 5:50 PM (GMT -7)   

Just posted this today.

Just finished reading this months AARP Bulletin.  There is a short article in it reporting John Hopkins has developed a new blood test for prostate cancer.  The new test reduces the amount of false positive biopsies.  According to the article biospies done due to the PSA blood test average 80% false positives.  The new blood test, EPSA-2, in testing had a 3% false positive rate.  EPSA-2 stands for Early Prostate Specitic Antigen - 2.  I wonder if that new test has been standardized in the medical community.  Those on this forum should pass this along to those that post here prior to having a biopsy.

 
Tamu
 
If you are waiting on a biopsy or have had one or more with false positives then you might want to query your urologist about this new blood test from John Hopkins.
 
Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07


Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/8/2007 6:42 PM (GMT -7)   
hi gtmriviera..... we've definitely seem to be in the same boat for sure...... I was told my PSA was .01 extremely low, but the urologist does not like the feel of my prostate it should be more pliable, and said there is a 30% chance of prostate cancer ..... I will have the procedure done on the 18, ...so your biopsy has been delayed... I just recently had my thyroid removed about three months ago with a pre-cancerous tumor.... I was fortunate. And now this. Causeing me depression and feeling scared of losing my independence that bothers me more than anything, because I am alone........ I appreciate your response and we will chat together soon.

Richard -- pa
There is a special church here nestled deep
in the forest.... a beautiful bell hangs at the very top.... it only stops ringing.  When you come through the forests for your voice takes its place....   Richard


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 6/9/2007 1:13 AM (GMT -7)   
Tamu, thanks for mentioning the AARP bulletin.  The information about the new test looks promising and I would like to emphasize an important statistic.  80%--80%--80% of everyone who has a biopsy is cancer free.  I like the sound of that much better than "you have a 30% chance of having cancer".  I forgot that 80% of all statistics are made up.

Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 6/9/2007 6:55 PM (GMT -7)   

Richard:

PSA of .01 - has anyone suggested you have another PSA and include a "free" PSA before having a biopsy????  Never heard of a PSA so low except after a treatment has been done, but I'm sure I haven't heard everything.

Also, if your PSA is that low and they find Pca I would think you would be in the very early stages and there are numerous treatments that will leave you with very few, if any, side effects.

Good luck to you.

Dutch



Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.

Post Edited (Dutch) : 6/10/2007 8:24:49 PM (GMT-6)

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