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Had the brachytherapy on 6/12. Doin' fine.

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Prostate Cancer
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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/8/2007 7:08 AM (GMT -8)

I already posted one comment dealing with the wonders of prostate biopsies.  I've had five total, with a grand total of 92 needle pokes.  44 in the last one.  Of the 44, one came up with "adneocarcinoma in the right mid".  Gleason of 3 + 3 = 6.  Confined to the prostate.

My PSA has been creeping slowly upwards (around 7.2--7.6 most recently) for the past four years, hence the biopsies.

I had hoped to get into the HIFU study my urologist is participating in.  But, the HIFU pathologists said my Gleason was 7, not 6.  Consequently, I didn't qualify.  Studies like this work best if you eliminate the patients who might get a bad result.

Discussing the remaining alternatives, I was somewhat surprised when my urologist suggested seed implant rather than prostatectomy.  I wasn't really enthralled with the surgery to begin with, and I had already decided on the seed implant route.  I figured if it doesn't get the job done, I can still get the prostatectomy.

At age 59, I have a few additional issues including hypertension and diabetes, both are well controlled.

Frankly, I'm not really suffering any major anxiety about the disease.  The treatments are what I dislike and get anxious about.  At the present time, 10:05 a.m. on June 8, I still do my job everyday and continue with my normal activities.

Anyway, the procedure is scheduled for next Tuesday.

I suspect I'll have some time on my hands after that so I'll be back to relate my experience.

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kziz
Regular Member
Joined : Feb 2007
Posts : 242
Posted 6/8/2007 10:38 AM (GMT -8)
Good Luck to you rek. It sounds like you are on the right path. Keep up the positive outlook. Courtney
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myman
Veteran Member
Joined : Feb 2007
Posts : 1219
Posted 6/8/2007 12:18 PM (GMT -8)
It's good you've posted here. May I suggest you change your Subject to something relating to seed implant - you'd be more likely to have others post here who have had the same method of treatment.

I certainly hope all goes well for you - we'll be hoping for the best outcome with little side effects and will be looking for you here.

Susan
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biker90
Veteran Member
Joined : Nov 2006
Posts : 1465
Posted 6/8/2007 12:56 PM (GMT -8)
Hey Rek,

Welcome to the forum. I considered seeds when making my decision on treatment as it seemed to be the quickest form of radiation treatment. I agree with Susan's suggestion to put something about seeds in you thread title. There are other seed guys here and that will get their attention.

Please stay with us and keep us posted on your progress. That helps us and those who come after.

Good luck next Tuesday...

Jim
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veteran1
Regular Member
Joined : May 2007
Posts : 133
Posted 6/8/2007 6:28 PM (GMT -8)
Great to hear from you rek.

I too, would like to know more about seed inplants. Most importantly, I'm glad you found this site. You'll find very nice, well-informed people here who really care about you and your battle with PCa.
Please keep us posted on how your treatment went

Diagnoised. 12/03/05
Biopsy. Gleason 10
Psa. 5.7
Treatment. RRP 2/14/06
EBRT May - June '06
HT 12/15/05
Diagnosis. t3b Seminal vesicle Invasion
Gleason 5 + 4
Psa. 05/29/07....01
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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 6/8/2007 7:23 PM (GMT -8)
Hi ~ rek,                 W elcome to…                                       H ealing W ell                                                                                              and                     A    “ Special ”    W arm W elcome   to   You !         (Direct Link ~ just click on the title below and a new window will open!   Reminder … click on the REFRESH icon once you get there) Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)   In Friendship ~ Lee & Buddy
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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 6/8/2007 7:32 PM (GMT -8)
Hi ~ rek,    Thank you for your Thread/posting… I truly hope you plan to stay with us and share the stepping-stones that cross your path on Your Journey.   “HealingWell”… has grown tremendously over the past year and adding your journey with specific details would enhance us even more.     We will be here every step of the way…. Thanks for reaching out to “all of us”…   This journey is best traveled with friends…      As you head into your procedure …… we send special thoughts and prayers and a ~       ~~ * ~~ * ~~ * ~~ * ~~~ )*&^%   Group Hug %^&*( ~~~ * ~~ * ~~ * ~~ * ~~   From the 3 of us... Lee, Buddy, & Murphy  
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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/9/2007 6:53 AM (GMT -8)
Well, I certainly appreciate the support and encouragement.

Seems like the closer I get to "the day" the greater my calm.

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4carl
Regular Member
Joined : Apr 2007
Posts : 24
Posted 6/9/2007 7:48 AM (GMT -8)

You may want to look at Cesium-131 for the seeds. They have a half life of 10 days instead of 58. They got FDA approval 3 years ago not a lot of docs are aware of them. I'm having HDR mono on 7/19 this is a temp seed implant..Do check out the 131  . carl  

http://www.cesium131.com/regionalMap.htm

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mvesr
Veteran Member
Joined : Apr 2007
Posts : 823
Posted 6/9/2007 7:58 AM (GMT -8)
Dear rek3283. Sorry you have to be here but glad you found this site. There are a lot of good people here with lots of good information. I see you have made a decision about treatment and don't look back after making your decision. Make decisions on this subject is a big deal, so stick with it. Next wednesday will be two weeks since my open surgery. I also see you are a corvette fan. Hope to own one before moving from this earth. So expensive and kids and college and other things have kept me from owing one. Take care and best of luck to you.

mvesr
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4carl
Regular Member
Joined : Apr 2007
Posts : 24
Posted 6/9/2007 4:03 PM (GMT -8)
Rek, i'm a car guy also i do 4000 track miles a year 30+ track days. now runnig a Exige S just sold a GT2 + GT3 porsche. carl
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Juniperpnt
New Member
Joined : Jun 2007
Posts : 1
Posted 6/9/2007 5:47 PM (GMT -8)
Hi, I just joined & am not good following computer directions, I will just try this for now. My husband & I just returned from "Dana Farber" in Boston for a 2nd opinion. We are from Boston, live in Miami now. I am writing because I am concerned about your seed implant theraphy. From all I have read/researched I believe it is problematic to have surgery after radiation & that is what the specialist explained to us also. My husband is leaning towards the DaVinci & I am for the open surgery, after confering w several medical professionals. It is his choice, I will keep researching. It will be done at Brigham & Woman"s in Boston. This is where Dana Farber does its surgerys. If you do a Yahoo search on Dr Peter Scardino (Prostate Cancer Foundation), he answers some questions. It would be good if you looked him up. If you do the seeds, you should see a doctor who specializes in just that. Sorry if I am not exactly accurate (think I am though) I would rather be wrong than have you not know all the info. My prayers are w you.
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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/11/2007 6:12 AM (GMT -8)
:-)  Other car guys are great to have on board.

In response to the suggestions, the train has left the station.

Seed implant is the only procedure my rad-onc does.  I'm going to defer to his expertise and judgement on the best type of seed for me.  He's dealt with a lot of prostate cancer, as has my urologist, I haven't.  They will both be performing the procedure, and both are associated with the Sarah Cannon Cancer Center at Centennial Medical Center here in Nashville.

I've worked in healthcare for 37 years.  I made my physican, treatment, and facility choices very carefully, after substantial research and recommendations of physicians I know and respect.  I am confident of the outcome (and the razor pee for a couple of days!).

I appreciate your concern and the suggestions.

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JustJulie
Regular Member
Joined : Mar 2006
Posts : 355
Posted 6/11/2007 10:46 AM (GMT -8)
Hey rek:

Welcome to the Brachytherapy Team!  My husband had the procedure done last April and he's doing very well.  If you have any questions, please post them - I'll answer anything I can.  You've found some great people here - very informed and equally as supportive.

Best wishes to your on your recovery.

JustJulie

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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 6/13/2007 10:12 AM (GMT -8)
Hi ~ Rek, Thinking of you and wanted you to know!!!       We hope to hear from you soon...               Keeping you close… in thoughts and prayers. In Friendship ~ Lee & Buddy
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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/18/2007 7:03 AM (GMT -8)
The procedure was like all the surgical procedures I've ever had.  Long time in processing and set up.  Meet the anesthesiologist and nurse anesthetist.  Talk to my treating doctors.  Wake up in recovery.  Nice recovery room though--windows all around.

I came home with a catheter in place on Tuesday and kept it until Friday morning.  It wasn't too bad at first, but by Thursday, I wanted it gone.  It took me a couple of days to get over the general anesthesia (normal for me).  I'll be taking an antibiotic until this Friday, and I'm also now on Flomax (a wonderful medication!!).  Urine stream is almost back to normal, for me, anyway.  I'm not having any urgency like I did on Friday and Saturday last week.  I think that might be the Flowmax working? 

The only pain has been very much like a really bad hemorrhoid flare up.  Preparation H to the rescue!  This has also pretty much disappeared as of this morning. 

What's really cool is that I'm only getting up to urinate twice a night now!  (it was about every hour on Friday night after the catheter came out)  I haven't had this low a nighttime  bathroom run rate in years!

I still have to go back for a CT scan this week so they can confirm the seed placement in 3D. 

Overall, I'm a happy camper at this point!! :-) :-)

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JustJulie
Regular Member
Joined : Mar 2006
Posts : 355
Posted 6/18/2007 7:23 AM (GMT -8)

Whoo hooo - sounds like things are going well.  Flomax is a saviour - great medication.  The other one I might suggest is something called Nupercainal - it's like Prep H but stronger.  The oncologist recommended it for my husband - you have to ask for it over the counter, it's not readily on the shelf - it's not prescription strength but high enough that you have to ask for it from the Pharmacist.

Glad to hear things are going well - welcome to Recovery Road.

JustJulie

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mvesr
Veteran Member
Joined : Apr 2007
Posts : 823
Posted 6/18/2007 3:07 PM (GMT -8)
rek3283. Glad thinks are going well for you. The cath is a mean thing, but you didn't have it long. I have a friend who has a 2007 corvette. It is sweet. I am glad to be around to be able to drive it. God bless.

Mika- mvesr
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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 6/18/2007 5:31 PM (GMT -8)
  Hello ~ Rek, Good to hear from you!!  And we are so lucky to have JustJulie on our side!!!  Now you will be adding to this option for others to learn from.. We will keep you extra close as you move forward... In Friendship ~ Lee & Buddy «   bluebird ~   Moderator for Prostate Cancer Forum
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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/19/2007 8:08 AM (GMT -8)
I decided to change the  title of my original posting now that I have had the procedure.

I just sent thank you notes to my docs.  Physicians don't get a lot of those.

Headin' for the CT scan this afternoon at 3:00.  I'm  going to stop by Walgreen's on the way back to pick up some of that nupercainal.  I used to know about that.

I had thought about taking the Corvette but it's raining here in Nashville (finally!) and I don't want it to shrink.  tongue

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JustJulie
Regular Member
Joined : Mar 2006
Posts : 355
Posted 6/19/2007 8:11 AM (GMT -8)

Hey rek:

If the Nupercainal doesn't work - ask your doctor for prescription Anusol - that has to be issued by a doctor but relief is worth the trip to the doctor.

Continues good wishes for a smooth trip down recovery road.

JustJulie

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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/20/2007 7:38 AM (GMT -8)

A little complication has arisen. mad

Try as I might, I could not get a stream started at 2:30 a.m. this morning.  I've been having problems going at night since I had the saturation biopsy (44 samples) last fall.  My urologist's nurse (a terrific lady) showed me how to self-catheterize at that time (it sounds a lot worse than it really is), so that's what I did this a.m.   What a relief!!

Anyway, I'll let the urologist's office know about it.

I don't understand why it was flowing fine through the weekend and then the non-flow starts again?  Maybe they can explain it?

(I'm using the Nupercainal now and it's doing fine)

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peeweeaz
Regular Member
Joined : Apr 2007
Posts : 27
Posted 6/20/2007 2:08 PM (GMT -8)
Hey Gang,

  I'm back after a small hiatus.

Rek,

  Good luck with your therapy. You're right about this site - if the folks here don't know just about everything there is to know about PC, then it isn't worth knowing. I had my brachytherapy on May 22, 2007. Thirty catheters placed by my uro and 101 I-125 Iodine seeds placed by the radonc. Entire procedure took less than an hour. Pulled the catheter at the surgi-center, urinated on my own, lost some blood and one seed. They said see you in three months for your first PSA test. First three days went pretty smoothly - razor blade pee for first three or four. This subsided and, other than frequent awakening at night (every 2-2 1/2 hours), I felt pretty good. However, over the weekend, I developed a severe case of epididymitis, an inflammation or infection of the long coiled tube behind the testicles, called the epididymis. Monday, morning I went into panic mode and wound up taking and ambulance ride to the ER. Blood pressure was sky high, so EMT's thought maybe stroke or heart attack. No to both. So, they put my on an antibiotic for ten days and it cleared. Called my radonc who said some patients do experience that problem after Brachy. (That wasn't one of the side-effects mentioned during the initial interviews.) I've had a vasectomy and seem to remember this similar pain some years ago. So, perhaps folks who have had a vasectomy are at greater risk in developing this epididymitis. Maybe someone on this form has had a similar problem and can share with us. So, now I'm on an aniexty/anti-depressant, Lexapro, to keep my from wigging out. Any one out there develop any aniexty or depression after Brachy knowing we're playing a waiting game with the PSA's?

Good luck again Rek and Walt and stay on this forum. It helps keep you calm.

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peeweeaz
Regular Member
Joined : Apr 2007
Posts : 27
Posted 6/20/2007 2:19 PM (GMT -8)
Rek,

I forgot to address your lack of stream at 0230. I am trying to drink a lot of water (6-8 glasses a day) to keep the bladder and urethra flushed. However, I've noticed after four weeks that after sleeping for a couple of hours, I'm beginning to have difficulty started the stream. When it finally comes, it's weak and seems to take forever to finish. However, during the day, everything seems to be fine. I have I-125 Iodine seeds which have a half-life of 8 weeks. So, at this point they've released only 25 percent of the 50 that will be released in 8 weeks. Then we go to 50 percent of what's left and so on .. It's like fractions - 1/2, then 1/4, then 1/8. My oncologist said it takes approx 11 months for the seeds to completely exhaust their radiation and become an empty metal shell. Hope this helps.

Bob

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rek3283
Regular Member
Joined : Jun 2007
Posts : 21
Posted 6/21/2007 6:36 AM (GMT -8)
Thanks for the input.

I've been on an antibiotic since the procedure.  (I have to tell you that I have not had a surgical procedure in the  last 20 years where I wasn't sent home with a broad-spectrum antibiotic.)  I take the last one tomorrow morning.  I've been fortunate that I only had razor pee on the day the catheter came out.  Nothing since then, knock on wood.

I drink a lot of water everyday since I am diabetic.  Last night, after talking with my uro's nurse, I catheterized myself before going to bed, and didn't get up to pee once.  I can't recall the last time that happened in my life--it's been a long, long time.  I know we all cringe at sticking a long rubber tube up our penises.  All I can say is that it does get easier with time and the sense of relief is well worth the "horror" of doing it.  Just my opinion.

It's hard for me to evaluate the anti-depressent issue.  I've been on Welbutrin and Lexapro for years due to my bipolar issues (never hospitalized--just mood swings).  I have been wondering if the antidepressents are contributing to my amazing degree of calm about having PC?  It's either that or the fact that I had been anticipating the diagnosis for six years of elevated PSAs and four years of negative biopsies.

I have found this forum to be extremely helpful and I will remain for the forseeable future.

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