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Posted 6/9/2007 5:11 PM (GMT -7)
Just a question concerning Room Etiquette?

If I find a product on sale that is useful to members of the group is it proper to post it here?

If so what is the proper way to present it?

If not..Where would I post it?

Thank you?

Dave M.
Age: 52

11/10/2006

PSA 10.2 - Discovered during Annual Physical with Family Doctor

Referred to Urologist Surgeon specialist

Free and total PSA - 10.9

Biopsy ( sent to John Hopkins pathology) - 2 of 16 positive on left and right apex of prostate

Left - GS 3+3=6, Right - GS 3+3=6

Davinci assisted laparoscopy radical prostatectomy on Apr. 17, 2007 -Complications due to extreme unusual size of prostate. Normal Prostate = 20 to 31 grams. Mine = 120 grams (not enlarged, but genetic growth large)

Nerves on right side spared.

All Lab's clear. No Cancer outside prostate

Cystogram Apr. 24 2007- Slight leakage at anastomosi negligible.

Catheter in for 1 week Removed Apr. 24, 2007

May 30th, First post-op PSA results...Non-Detectable!

Posted 6/10/2007 4:46 AM (GMT -7)

  tongue Hey ~ Dave M,

I’m looking into the proper procedure and will post as soon as I have the info available.

Lee *mama bluebird

Posted 6/10/2007 5:35 AM (GMT -7)

  :-)   Hey ~ Dave,

 

I'm going to copy and paste the rules from the forum on this post.

Take a look and if you feel it is appropriate and falls within the guidelines

go ahead and post your item.

 

If it’s a product ~ that helps support our “issues”…. I’m thinking it should be okay.

 

We will find out!!    tongue  Lee

 

 

Link to Forum Rules: Forum Rules

 

4. No advertising or links to advertising or "Spam" is permited (including signatures). 

  • Advertising or Spam is defined as posting a link for the purpose of selling, soliciting or promoting by someone that has ownership or other "vested interest" to the web site involved, including efforts to promote other online forums or web sites by web site owners. 
  • If you are a web site owner and have a link that fits into this category that you want to share, please submit it to our resource directory and we will review your submission. 
  • Posts and links about fundraising (including nonprofit fundraisers) are NOT permitted. 
  • Only links to personal home pages are allowed in signatures and member profiles. Links must be appropriate and abide by rules #1-4 or they will be removed. 
  • Links to helpful web sites (commercial or otherwise) are allowed when they are posted by someone without any "vested interest" AND whose purpose is NOT to solicit, advertise, promote, fundraise, etc.
Posted 6/10/2007 1:46 PM (GMT -7)

Hey,

I think you should be fine.  The rules posted by Bluebird are pretty good guidelines.  I think if you have actually gone through prostate cancer, found a product that helped you, you aren't making money off of the sale of the product, etc. It is fine.

Some " hypothetical examples" of types of posts that usually are against forum rules:  (I am just making these examples up, but sometimes you see posts like this),

Someone with no posts on prostate forum posts "hey, i just found this great product, it is a ginseng/black tea pill with some secret additional ingredient that works to cure cancer!  Come visit this website and see the testmonials!! I know dozens of  people CURED of all cancer with this miracle pill!!" 

Then two minutes later, they are posting the exact same thing on say the Parkinson's forum. Cure your parkinsons!!

blah, blah, blah.  That is the type of spam that is frowned upon.  Posting something you have found helpful to YOU that you aren't actually selling is fine :)   As long as you aren't pushing it, etc.  Just something you found helpful and the source of info/sales of it, should be fine.

That's how i interepet the rules anyway.

Tanya

Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.

1st PSA Results: May 11, 2007 <.01

Posted 6/10/2007 4:00 PM (GMT -7)
I couldn't have said it better Tanya and totally agree with you. Just don't be selling the product!
;o) Linda
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.

2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.

 

Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)

PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

Posted 6/10/2007 4:25 PM (GMT -7)
Hello Dave,

A lot of us talk about products, and doctors we have used; example "Depends for Men", and Dr. Menon's name comes up quite often as a well respected surgeon, or Dr. Welsh's book. I guess what's important here is that we are talking of experiencing, and not doing any "Selling".

Glen
Diagnosed at age 60

PSA went from 2.2 to 3.8 in 14 months

2 of 14 cores positive at 10%

Gleason 6(3+3), negative DRE, neg. boundaries

DaVinci surgery on 02/23/06

 

Posted 6/10/2007 5:41 PM (GMT -7)
Dave----
I would like to know what product you're
talking about. I do believe rules 1 thru 4 serve a purpose though. They keep our site.
dedicated to PCa and our thoughts and opinions from turning into a garage sale. But sometimes there's nothing like a good 'ol fashioned garage sale.

Best of Luck...Vet1

Path Diag. 02/14/06
Seminal Vesicle Involvement
Gleason 5 + 4 both lobes
Latest PSA. 05/29.07---- .01
Posted 6/10/2007 6:34 PM (GMT -7)
I think if you are one of us and actually find something that helps no one will mind you telling us about it.

Good Luck,

KW
    43

    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.

    Gleason 7

    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate

    RRP on Oct. 17, 2006 - Nerves on right side saved.

    All Lab's clear.  No Cancer outside prostate

    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006

    First Post op PSA on Dec. 11, 2006  Undetectable 0.00

    Office visit on Jan. 19th due to continued excessive urine leakage.

    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)

    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!

    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 

    March 8th Started Detrol LA to see if it helps with the leaking?

    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.

    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!

    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!

    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!

    June 1st Start Bio-Feedback to try to control my leaking.

   

Posted 6/10/2007 8:52 PM (GMT -7)
Thank you very much bluebird for the clarification.. and also to all those who helpfully replied.

Okay, here goes!

Both Longs drug and Walgreens have Depends male guard pads on sale this week.

Both are selling the 52 ct package for 10.99

The only difference is Walgreens requires a coupon found in their circular and Longs does not.

about a 5.00 savings..enough to make me switch from the Assurance pads I was using, since I am currently going thru about 4 pads a day I stocked up on several packages.

By the way..do you think this should be in it's own topic so others may see it?

Hope this okay and helps some of you.

Dave M.
Age: 52

11/10/2006

PSA 10.2 - Discovered during Annual Physical with Family Doctor

Referred to Urologist Surgeon specialist

Free and total PSA - 10.9

Biopsy ( sent to John Hopkins pathology) - 2 of 16 positive on left and right apex of prostate

Left - GS 3+3=6, Right - GS 3+3=6

Davinci assisted laparoscopy radical prostatectomy on Apr. 17, 2007 -Complications due to extreme unusual size of prostate. Normal Prostate = 20 to 31 grams. Mine = 120 grams (not enlarged, but genetic growth large)

Nerves on right side spared.

All Lab's clear. No Cancer outside prostate

Cystogram Apr. 24 2007- Slight leakage at anastomosi negligible.

Catheter in for 1 week Removed Apr. 24, 2007

May 30th, First post-op PSA results...Non-Detectable!

Post Edited (drmartin) : 6/10/2007 9:59:56 PM (GMT-6)

Posted 6/11/2007 5:19 AM (GMT -7)
  Hey ~ Dave,   Thank you for your reply post to all of us..... Isn’t it wonderful the support from all areas (males and females)   v       Working together in all areas of this forum v       Welcoming Newbies v       Touching base (reply-posts) with those who are needing a little positive… “re-enforcement” that things will be okay! v       Sharing “their” journey (letting others know there are many options in all areas)   WOW!!!   What a wonderful place to be!!…..   HealingWell “together”                                When we think we are all alone… we realize                                           We Are NOT Alone!!!   My suggestion is this: Post your information on a new thread with the specific dates of the sale.   Title something like this:     I saved $$$ ~ pads on sale….during the week of >>> (date)   Once the sale is over…. The moderator can come in and delete the thread. This will save space on the server….   And will help others save!!!!   In Friendship ~ Lee & Buddy  
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