Aviator Best Wishes .... same surgery date

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survivor_wannabee
Regular Member


Date Joined Apr 2007
Total Posts : 29
   Posted 6/16/2007 6:16 PM (GMT -7)   
Aviator, I am happy to hear you are doing well. It only reinforces what I have heard several times that there is little difference in the two procedures if both are done properly. Sometimes I think that they should just not use the term open as it sounds so invasive....guess it is, but tends to put you off needlessly. I am much better day by day, but am still impatient with the continence thing. I try not to read the stories about throwing away the pads the first day, likewise the sad story of those that never seem to get better. I am just trying to keep my head down and do the Kegels. I miss working out and I don't quite feel like playing golf just yet.
Age: 57
Diagnosed: 3/27/2007
PSA: 4.9
Gleason: 3 + 4
Cancer in 6 out of 12 samples
DRE: Positive
Stage: T2B
RALP Performed: 5/29/07
Partial nerve sparing one side, full on other
Prostate not enlarged, margins visually look good
Hospital stay: about 24 hours
Catheter Out: 6/8/07

Post Edited (survivor_wannabee) : 6/17/2007 7:27:41 AM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/16/2007 6:32 PM (GMT -7)   
Hey SW,
 
Not sure if you meant to do this... but thought I'd share the info below...
 
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spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 6/16/2007 7:51 PM (GMT -7)   
Hi SW,

Here's a suggestion; as I walked (1-2 miles at first) I would do my Kegel exercises, and the cadence of the walking was the timing for the Kegels: 10 paces holding then 10 paces of relaxing in a series of 5 set each. Then for about 1-2 minutes I just walked. At the end of a mile or so I had completed 5 sets of 5 reps each. So I got my Kegels and walking done together, and a sense of accomplishment too.

I hope this will help you too. I think it made me feel better even though I was slow to regain continence. For some of us it will take longer to heal, but the improvements could be sudden. Maybe one day soon you'll wake up, and that day you'll only need half as many pads. That's the way it was for me.

Good luck with your exercises, and I hope you get dry soon.

Glen


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


aviator
Regular Member


Date Joined Jun 2007
Total Posts : 22
   Posted 6/17/2007 4:08 AM (GMT -7)   
survivor_wannabee said...
Aviator, I am happy to hear you are doing well. It only reinforces what I have heard several times that there is little difference in the two procedures if both are done properly. Sometimes I think that they should just not use the term open as it sounds so invasive....guess it is, but tends to put you off needlessly. I am much better day by day, but am still impatient with the continence thing. I try not to read the stories about throwing away the pads the first day, likewise the sad story of those that never seem to get better. I am just trying to keep my head down and do the Kegels. I miss working out and I don't quite feel like playing golf just yet.

I was actually a little reluctant to even mention the continence issue, because it almost sounds like I'm bragging about something, even though it's not "my" accomplishment.  But some of the people who are reading these threads are looking for encouragement that these problems don't always occur, so I think it's worthwhile to post the good along with the bad, especially for the benefit of those who are trying to decide what to do.
 

survivor_wannabee
Regular Member


Date Joined Apr 2007
Total Posts : 29
   Posted 6/17/2007 6:42 AM (GMT -7)   
Bluebird, must have hit the new topic instead of reply as my intent was just to answer Aviator's comment on our surgery being the same date on another discussion item. Put in a personal note as to continence as he is on the same track as I am time wise. Like many I have an impatience with the whole process of recovery. Aviator has, it appears, fantastic results given the timeline we share. I have had middle of the road ones at least in terms of continence (ED is not a major concern as I am down the pyramid from that issue on the Maslow hierarchy of needs).

The Kegel suggestions, both by SpinBiscuit and others has really been helpful as I believe I have overdone those exercises. The instructions on my release sheet from the surgeon were to do 10 second holds and interim 10 second relaxation every hour. I had been doing them three times a day a month prior to surgery following instructions off a Google. No wonder I was more continent in the AM than the PM.

I am in fact doing very well. I only use Serenity for Men now and typically use 4 pads or less a day if I am not too active. I did a retirement dinner on Friday where I got up and down quite a bit taking pictures and also had a bit to drink and had a some more difficulty, but used some industrial strength pads together with the guards that were wider and really was OK.

Today is Father's Day so a ton of people are coming over and I will be more active, so we'll see how things go. Being a little shy of 3 weeks out from surgery and 9 days out from catheter withdrawal, my expectations are just a bit high. I find though that it is always easier to dispense advice than to accept your own situation with grace. I will keep updating and will try to pay a bit more attention to the reply vs. new topic buttons.
Age: 57
Diagnosed: 3/27/2007
PSA: 4.9
Gleason: 3 + 4
Cancer in 6 out of 12 samples
DRE: Positive
Stage: T2B
RALP Performed: 5/29/07
Partial nerve sparing one side, full on other
Prostate not enlarged, margins visually look good
Hospital stay: about 24 hours
Catheter Out: 6/8/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/17/2007 2:15 PM (GMT -7)   

Hey SW,

 

tongue  Not a problem…. It is an important post… and I wanted it to get the full attention… I’ll attach the other links below!!!!   This helps Newbies see the complete journey!!!

 

It’s true…. What Aviator says….  It is so important for all of us to express “everything”..  Good, Bad, and/or Ugly,  Positives, Mental negatives so we can push you back onto a Positive stepping-stone, All emotions… Everything..  yeah  

 

This is so important not only for you, me, us, but everyone!!!!  That’s why it’s so important to travel this road with friends who have the same walking shoes on…. Traversing the same stepping-stones…. With a few extras thrown in on some paths.

 

We are here for each other…. So ~ keep posting and share your concerns and your thoughts.  We truly need each other!!!

 

There are some excellent postings on the Helpful Hints Direct Links… re: kegels…

Pull what you think will help you!!!!! And yes... the little sphincter will get tired and he will let you know about it!! 

 

Don’t forget…….

(Direct Links ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

 

Kegel Help?

KW

Kegels - to pee or not to pee?

pianoman

Biker90' Page.... Welcome New Friend :)

Biker90's Cancer Summary

Bluebird

Biker90

 

Our thoughts and prayers continue to be with both you and Aviator as you move forward in this journey. 

Hugs from Lee & Buddy

 

Somebody needs a Special Hug…. Filled with color and sunshine!!!

 

 

*This is your very own Rainbow and it’s sprinkled with Sunshine*

*/////////////////////////////////////////////////////////////////

///////////////////////////*/////////////////////////////////////

///////////////////////////////////////////////////////////////

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* 

Truly     Relieves     Stress

Let this bring a smile to your face

and into your heart!!!

 

 

Rainbows bring smiles, smiles bring positive energy into our being!!!

 

 

 

cool   Hey ~ Aviator!!!!

You hit the bull’s eye!!!  Every piece of information is so important to help others.  It allows us the options to pull what works best for our own personal journey.  Thank you for staying with us…

Hugs from Lee & Buddy

 

 

:-)   Hey ~ Glen *Our Spinbiscuit!!! 

You are so important to this forum.  Thank you for stepping back on the path with all of us.

Hugs and more Hugs… to you!!!

 

Threads by:  J *Survivor Wannabee aka Survivor Yes!!

J's Journey

J's Home from Surgery

J's Journey - Path Report

 

Threads by: Aviator

New member - fresh post-op RP

Alcohol and ED

Is there a correlation between incontinence and ED post op radical prostatectomy?

Any other pilots? Are you grounded post prostatectomy?

 

«  bluebird ~  Moderator for Prostate Cancer Forum

Post Edited (bluebird) : 6/17/2007 11:42:15 PM (GMT-6)

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