Hi to all of you folks here. This is my first post here, do not intend for it to be the last. I have been a member for a few weeks and have been working on a "My Journey" post that I would like to put up here, but it is not finished yet. There are some fine stories here, both inspirational and sad. Such is life with PCa.
While reading here lately, I have seen a lot of newly diagnosed come here and post and receive some great advice and info, yet most here have opted for surgery and a few have had radiation treatment. I am seeing more posts asking about Proton Beam Treatment and notice that pcdave has done most of the answering in regard to that modality.
I am putting this post up with the idea that I will follow up periodically as I move into treatment phase and also talk about the logistics of having treatment 1300 miles away from my home in the Seattle area. I am posting this from work this evening and do not have a lot of time tonight so I just want to start this off by saying that I first heard mention of Protons at the yananow.net website. This was one of the first places I found after I was diagnosed and came home to my computer and Googled "prostate cancer survivors". You notice I included the term "survivor" in the search. I am very interested in one day being described as same. Each of the testimonials on the Yana site for Protons mentioned the ProtonBob.com site. I went there and read and read and finally contacted Bob Marckini. He is getting swamped these days with requests for info and referred me to the list of people who have agreed to be mentors for Proton Therapy. Well it turned out that several people on that list were from the Seattle area, which made contacting them even easier for me. Trust me it is NOT easy just cold calling someone and asking if they would discuss their cancer treatment with you, a total stranger to them. But one of the great things about this cancer and the people diagnosed with it, is the bond of commonality that we all have. It transcends much of the reserve that we otherwise have with strangers.
To make a long story short, I ended up talking with 2 gentlemen over the phone, one who was treated several years ago and is slightly older than I am and one who had finished treatment just a few months ago and is a couple of years younger than myself. Their testamony of itself was enough to convince me that this was the way I needed to go for treatment. I also ordered Bob M.'s book through Amazon and read the whole thing in a single afternoon. This has also helped to reinforce the opinion that I had made the right decision for me. Thanks for listening and if anyone has any questions about Protons, I will be glad to answer with what I know so far and what I hope to learn soon.