Hey everyone -
I haven't been posting much, but keeping an eye on everyone. I've learned so much from you all, and read with interest the updates on how everyone was doing with injection therapy. After trying all of the pills with the only effect being migraines, and muse which didn't do too much but cause pain, Jeff's just been plugging along using the pump for therapy. We had sex using it once, but he had to use 2 rings and was in a lot of pain. Subsequently he had horrible pain during orgasm, so we cut out the pump entirely, and gradually the pain subsided. He started up again with the pump, for about
a month now, no rings. But some pain has been returning so I'm not sure what that means.
So we've decided to go witht he injections. Part of our frustration is that although we have a yound dr., he's very minimalist in his approach to ed. When prescribing viagra and muse he'd give VERY low doses, saying that with how Jeff's surgery, healing and prior health were he wouldn't need more than that to get results. Then nothing would happen and we'd be so frustrated. He didn't really have a set plan for us to get things foing after surgery, and we've been the ones to request the muse, pump and injections - for the most part based on what I've learned from you all.
Then 2 weeks ago we found out that he is moving out of the area. I talked to my dr., and Jeff talked to his GP (in the same office) and they encouraged us to try a dr. they like who is very approachable, and proactive. We met with him today and we liked him a lot. He's only a few years younger than we are. When we asked him what kind of a program he sets up for his patience in relation to ed he said that 2 weeks after catheter removal he starts them on ed and the pump, and has good results. Boy were we bummed! He really likes the pump, but we just haven't had good luck with that, and explained to him what had been going on. He asked us if our previous dr. had had a rep come out and fit Jeff for the pump, and train him - we were like, huh? Apparently Osbon and another company have reps that will meet you at the dr.s office for free and go over everything with you, making usre you're doing everything effectively and properly, fitting it properly, etc. So maybe that's why his patience have good re****s in achieving erection on their own through using this therapy. We already have the osbon pump, so Jeff is meeting with them in a couple of weeks.
Then the dr. said the only thing left to try is injections, which we said we were ready to do. I told him what I had read about
caverject causing pain in some of the men on this site, and he said that bi-mix and tri-mix have the same active ingredient, just different mixes and it can be mixed by a pharmacy but will be little more expensive than the predosed caverject. He had some samples, and is starting us at 5 mcg.s, I think? It's the lowest dose on this syringe. He also gave us a prescript
ion to get it by the vile becasue it will end up being cheaper. I guess if it causes pain I will look up Tamu's post about
what his dr. switched him to and show that to the dr.
The thing that threw me is that everything I've read here on the site the dr. administered the first dose. Our dr. gave us the samples, showed us how to use the syringe, and for Jeff to inject the side of his penis. I kept asking him specifically how far down, and he kind of pointed to the area. He didn't say anything about
positioning or anything, and I remember from the posts here - I think TAmu's, that there's a certain way to do this, and that some docs even have you come back in to do it in their office. Of course Jeff needed to get back to work and we hadn't planned on doing this today, and he couldn't very well meet with his plumbing contrator with an erection, so he was more than happy to try it tonight on our own.
I went to the caverject site and got more info on the proper way to inject this, stretching the penis out, putting pressure on the site etc., but I'm very nervous about
this. I'm afraid we'll try one more thing and have it go wrong and Jeff feel like crap again. Do any of you have any suggestions? Has anyone else's doc just sent them home with the stuff to do on their own for the first time? Maybe I'm paranoid, but sticking a needle in a penis doesn't look to be the easiest thing to do, and we don't want to screw it up.
thanks for your help,
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%
Post Edited (2busymom) : 6/19/2007 4:49:27 PM (GMT-6)