Posted 6/21/2007 10:22 AM (GMT -7)
Interesting question, Vet... I found a similar thing to Tony, none of my docs really wanted to discuss prognosis in very solid terms. I looked at the stats and charts and figured the odds a bit... but who's to say?
You're right, it does not get addressed much on this site....but most of the posters hear seem to be real early stage, small tumor volume, and maybe a bit older. The cure numbers at early stage would probably make you think less about dying, so your biggest concers are ED, incontinence, catherter stuff --- that's my guess.
Ever notice how a newly diagnosied post gets 20 or 30 responses, but advanced complication/treatment posts barely get any?
With my initial numbers, tumor volume, margin and post-op PSA, that stuff got on the back burner real fast. This, plus muy initial ignorance, had me wondering if I had much more tha a year or two.....
This has passed, so here's how I view my situation: I have a 50-50 shot that I'm cured versus advanced PC. IF I have advanced PC, I'll go back on HT, and could go A LONG TIME before actual clinical signs of disease show up. (I like the thread on Mike Milken --- he's 14 years plus post advanced PC diag!)
IF this happens, AND I have enough time, a cure might be found -- or at least better long-term treatments. You, Vet, Tony, and me -- in our late forties and early fifties, could well live to see a permanent cure evlove. Or we could take a turn for the worse in the mean time. Or get hit by a truck this afternoon!
My attitude is now --- I'm not going to die of PCa today, tomorrow, or next month. Or even next year in even a worse case scenario. Time will tell, in the mean time, I'm going to love my family, work hard, enjoy life, and take care of myself as best I can.
Thanks for the post --- that felt good to get that out!
Initial PSA march of 2006: 28
PSA May of 2006: 39
8 of 12 cores malignant
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Post surgury PSA fluctuated between .04 and .09
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sesions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undectable