I have put this "Journey" off for as long as possible. Why now? Mostly because of the incredible bravery and positive attitudes that are so much a part of you and all of the wonderful people I've come to know and admire on this site.
My Journey is not as positive as some. My attitude, thanks to you is getting better.
Let's go. I am 54, divorced and have no children. I recieve treatment at a good hospital in Chicago. I was living in San Diego when I received a very late diagnosis.
My PSA on Nov. of '04 was 2.29.
In May of '05 it jumped to 4.6 (doubling time 6 mo). This was missed until Dec.'06
My biopsy on 12/03/05 showed a Gleason 10. (I can't find biopsy for # of positive cores).
In complete disgust I immediately grabbed my notes, left everything behind in San Diego, and flew off to family and friends in Chicago.
I was so wraped up in self pity and dismayed anger that my family had to point out to me that my attitute was bodering on the self-destructive. It was time get going.
I found a good hospital in Chicago and lots of family love and support. I even moved in with my parents...at 53!
Still, I was a very suspicious, decidedly difficult patient. My urologist, Dr. B, recommended Retropubic Surgery. I agreed. I almost backed out when my research said that surgery is not usually for patients with a Gleason 8-10.
I was not pleased. But Dr. B. made his case and I had surgery on 02/14/07. Everything went perfectly. Moderate problems with recovery. Two pads a day for about
you haven't heard before.
Pathology revealed a T3b Seminal Vesicle
Involvement and a Gleason 9. Sometimes I believe the pathologist didn't have the heart to assign a Gleason 10...Hah!
We, Oncologist and me, knew that due to the agressiveness of this cancer multi-modal treatment was in order. Off to the radiation/Oncologist. By this time, I had met so many nice nurses and doctors that I began to lighten up.
Radiation/Oncologist told it straight up. She said that radiation (Proton) could add years to my life or do very little due to aggressive nature of the cancer. ( I now believe that all PCa can be aggressive.) I was at high risk for distant mets.
EBRT (May thru July 06), coming so soon after surgery, was tough for me. Mainly fatigue and leaking. Bottom line...I survived. We all survive!
I was put on intermittant hormone therapy 12/15/05. Not easy to take. ED intermittent, mineral density bone
loss, fatigue, loss of muscle mass and possible anemia, even hot flashes.I thought I would go crazy. Nah.
Then something awful happened. My 79 year old father (no longer living with parents) switched General Practioners and was informed by his new doc that he had a PSA of 70. Read his old notes from previous (Doctor?). He chalked it up at PSA 7.5 to BPH...enlarged prostate. After comforting my father and mother, I went home and literally beat my fists into the cement outside wall. I don't recomend this form of therapy. It really hurts...Ha.
My dad's doc screwed up and so did mine.Truth is stranger than fiction. This was statisticly impossible. I had a history of PCa without knowing about
it. Plus, my 79 year old father is now going through Hormone Therapy. We're cursed, doomed...we're PCa central.
What was poor poor poor me to do. I found you at healingwell. You, through your threads and posts, taught me how to be more accepting and value all the positives in my life. I am in control of my life. Enough anger and the "why me's?
Why not me. No more "if onlys".
Thanks to this forum and your wise counsel, advice, positive attitudes and moral support, I have become a survivor.
I believe this true story will have a happy ending. Comments always appreciated.
Thank You for Listening,
Biopsy: Gleason 10
EBRT: June 5th thru July 25, '07
Diagnosis: T3b Seminal Vesicle Involvement, Gleason 9 both lobes
Currently on Intermittant Hormone therapy
May 29th, '07 PSA---- .01
Post Edited (veteran1) : 6/25/2007 12:46:34 PM (GMT-6)