Jeff & Becky - met with compound pharmacist on injections

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2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 6/21/2007 8:47 PM (GMT -7)   
Just wanted to post an update -

I went to the compound pharmacy and asked the pharmacist to explain the difference between caverject, PGE1, bi-mix and tri-mix, which he did, and which correlated to everything I've read on this board and on the net. I explained the problems we'd had with the docs, and asked him if he'd give me the names of the dr.s who use him to make these mixes and he said sure. Right of the bat he named our original oncology office - but not the dr. we used. He named 3 others that use his pharmacy often, and said that the imprssions he gets from the patients is that they're very happy with their dr.s and with their reults. He also gave me a dr. from UNC medical center, and another doctor in Raleigh.

Then I asked him how often the other doctors prescribed tri-mix compared to our first dr., who kind of took a "wait for it to happen" attitude. Our doctor prescribed it less than a hand full of times - the other dr. hundreds. Now I know the other dr. has been in that office longer, and I'm sure has had a lot more patients over the years. But it still seemed like a large disparity. The 2nd doctor we saw wasn't mentioned at all - which didn't surprise me.

So we'll be sticking with the practive we're with and trying this different doctor. A friend of ours sees him and really likes him. So here's hoping -

bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 6/21/2007 9:43 PM (GMT -7)   
Good to hear you being so proactive Bec! this will be worth it in the long run. Once you find your correct doctor and mix, you'll be looking back and laughing.
;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 6/21/2007 10:02 PM (GMT -7)   
I hope so! We did have a good laugh the other day at the urologists office we were trying. It's a fairly small office, a pretty small waiting room, and there were 4 or 5 of us in there. The lady at the front desk called Jeff up and through the window in front of everyone hands him a cup and says, "I need a urine sample". I was a little surprised - usually they ask for that in the back, not in front of everyone. Jeff was a little surprised too, but without missing a bit he turned an looked at all of us and then asked her, "does it matter who I get it from?" She looked at him a little surprised and then he said "Oooh, you want MY urine sample". I laughed so hard - I couldn't believe he came up with that line so quickly.
bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 6/22/2007 6:57 AM (GMT -7)   

I love it!!  Good for Jeff!  Humour is always soooo relaxing at otherwise uncomfortable moments.

;o) Linda


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 6/22/2007 10:36 AM (GMT -7)   
bec,

Anyone that can throw out one liners like Jeff certainly can handle the injection. Your taking control is an example for others to follow. I am still amzed at the lack of standardization in treatment and rehab among the docs. Now you have the facts and I hope you get a prescription soon for Bimix or Trimix. I have to admit that I have some curiosity about Trimix. While Bimix is giving me a good erection I would like to try Trimix once just to see what, if any, difference there may be. I am seeing my urologist on Monday and may ask for a prescription for Trimix just to give it a shot (pun intended).

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 6/22/2007 12:15 PM (GMT -7)   
Hey Tamu,

Jeff was somehow able to stick that stupid thick needle in like 3 times, thinking he wasn't doing it right - so I think the diabetic one will be a breeze. He's all bruised from the other one. I will keep you all posted on our progress. We probably won't be able to get in to the new doctor for another week, because I'm going to church camp, and I definitely want to be there. Now I'm armed and dangerous!

When we were first married I didn't totally appreciate Jeff's sense of humor - my family is very sarcastic, where as he loves Jerry Lewis and Monty Python. But we've kind of balanced each other out over the years, and I must say he impressed me at the doctor's office!

bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%


El Tigre
Regular Member


Date Joined May 2007
Total Posts : 58
   Posted 6/24/2007 5:31 PM (GMT -7)   
You have one tough guy there!! I don't think I could stick that huge Caverject needle in mine even once, much less 3 times. In my opinion, any doc that just hands out the supplies and doesn't even watch the first injection, much less give any instruction, is dancing with malpractice. A serious talk with the physicians board would be going on if I had had that experience. You can bet there are other men and their wives suffering needlessly at his/her hands.
I sure do wish I had found this site pre-surgery!! RRP 10/25/05 I don't remember all the scores. Have had clean checks ever since. Never had to use the pads!!


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 6/24/2007 8:09 PM (GMT -7)   
Wow El Tigre, I didn't even think of that. Iwas referred to him by our gp, a friend of ours, and I was definitely going to talk to him about it. But your make a good point - someone could possibly injure themselves by not having the proper instructions. If' I'd never been on this site I would've had no idea what the protocol really is. Even the pharmacist indicated that we should've had hands-oninstruction. I think I should look in to contacting whoever is in charge of the urology board in our state, and see what standards they have set in place.

bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%


veteran1
Regular Member


Date Joined May 2007
Total Posts : 133
   Posted 6/26/2007 9:34 AM (GMT -7)   
Bec,

Great to see you getting so involved. Jeff will do that much better with you being so proactive. I think your postings have been excellent.


All Good Thoughts,

Vet

StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 6/26/2007 11:48 AM (GMT -7)   
The lack of standardization is baffling, frustrating and surprising. I got 30.5 gauge needles for PGE1 and bimix, but it sounds like you are getting different info for PGE1 (or is it different simply because it is Caverject?)

I think we'd get different service and information if all the urologists had to go through the process themselves!
____________________


Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: 3+3=6
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches
post-surgery Gleason score: 3+4=7; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006)
- 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007)

ongoing post-surgery treatment: Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis or Viagra every other day, ErecAid pump twice daily (when I can manage it)

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .200 (1 for 5)

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