Home after surgery with a few questions

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bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 6/24/2007 5:48 PM (GMT -7)   
Hello All.
 
After receiving the results of all of my scans, (Bone, CT, transrectal MRI, octreoscan) it was determined that my cancer (a pure neuroendocrine carcinoid) was confined to the prostate and as I had found a few articles that indicated that neuroendocrine cells are resistant to radiation, surgery was my choice. 
 
I had laproscopic radical prostatectomy this past Tuesday 6/19 and was home by Thursday night.
The #1 good news is that the surgeon told my wife that a preliminary pathology work-up was clear. I should receive the official and more comprehensive report next week. (Hopefully with the same result).
 
My initial questions for you veterans are these:
 
1. I read a great deal about incontinence after surgery, but this is after the catheter is gone. Have any of you experienced the same type of incontinence with your catheter?  I experience leaking, especially in the morning when sitting or walking a lot ( as I was instructed to do). Sitting in my recliner or in bed, there is no issue. I have been home now for three days. Could I be over doing it?
 
2.   I feel very good and am wondering what limits I should put on myself with respect to walking. My follow-up visit is for next Friday so I still have almost a week to live with this catheter (minimum). I don't want to do anything to make that longer.
 
3. The worse pain that I have is my throat from the breathing tube. I have been sucking on Cepacol losengers (sp?) and garglling warm salt water. Does anyone have better suggestions? I know that if this is one of my worse problems, I am in good shape but it is still aggravating.
 
All in all I feel everything went very well. Just waiing for that official report.
 
Thanks,
Bob

Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, No gleason score, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 6/24/2007 5:51 PM (GMT -7)   
With respect to #1, I should add that it contains some blood while there is no blood in my regular urine.
Thanks,
bob
Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, No gleason score, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


arb
Regular Member


Date Joined Apr 2006
Total Posts : 36
   Posted 6/24/2007 6:08 PM (GMT -7)   

Bob,

I had some blood in my urine initially.  It should diminish as the days past.  I found that I leaked if I tried any pressure (bowel movement) or moved around a lot.  It is very important that you don't do any kegal exercises with the cath in!  You could try some chloriseptic (sp?) which will help numb your throat. 

I walked a little each day and extended the length daily.  I found that I was quite tired in the afternoons and would nap.  Remember, although you may feel like doing a marathon, you still had major surgery.  Give your body a chance to heal!

Aaron


Aaron
43 years old
PSA-10/05 3.6
Jan 06-biopsy 12 needles
Feb 17-Diagnosed
-upper right quad positive
Gleason 3+3
May 2006 PSA now 10.2
June 26 2006 DaVinci Robotic Surgery 
     PSAs nondetectable for 1 year (May 2007)!!
Almost no leaking
"Happy dance" with 1/2 pill!


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 6/24/2007 6:32 PM (GMT -7)   
Hi Bob, glad to hear you are through your surgery!!   :)
 
1. I read a great deal about incontinence after surgery, but this is after the catheter is gone. Have any of you experienced the same type of incontinence with your catheter?  I experience leaking, especially in the morning when sitting or walking a lot ( as I was instructed to do). Sitting in my recliner or in bed, there is no issue. I have been home now for three days. Could I be over doing it?
 
I am not sure if I correctly understand your question  (i think you leak all the time with a catheter).  Do you mean leaking around the catheter tube?  I think this is very common, although Ken didn't experience that directly.  As to the blood and that being  in the urine (in your second post).  Ken found this quite common, especially while walking at first.  As well as some blood seeping out around top of tube with bowel movements etc.  in the first few days.
 
2.   I feel very good and am wondering what limits I should put on myself with respect to walking. My follow-up visit is for next Friday so I still have almost a week to live with this catheter (minimum). I don't want to do anything to make that longer.
 
We were told walking was ok as long as feel up to it, but no lifting for sure, i don't think walking etc. is bad or will extend your catheter time (just make sure it is secured well ... two or three velcro strips should make it pretty secure ... just don't want to do anything that yanks on it or god forbid, pulls it out!)
 
3. The worse pain that I have is my throat from the breathing tube. I have been sucking on Cepacol losengers (sp?) and garglling warm salt water. Does anyone have better suggestions? I know that if this is one of my worse problems, I am in good shape but it is still aggravating.
 
Ken didn't really have this problem, so don't have any great advice there, but probably numbing lozenges like you are using are the best solution. 
 
All in all I feel everything went very well. Just waiing for that official report.
 
Look forward to hearing a good report
 
Best Wishes,
 
Tanya (and Ken)
 

Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/24/2007 6:52 PM (GMT -7)   

Hi ~ Bob,

 

Welcome home  tongue  ... we are so glad you’ve touched base.

 

The following is our experience…  Mika’s having some of the same issues!!! Mika's journey   

 

#1 Yes, when Buddy initially strained over a bowel movement he leaked around the catheter.  Even taking stool softeners (prescribed and across the counter) he still had some constipation.  He learned to not sit and strain.  Go sit ~ if nothing happens in a very short period of time… get up and move around.  Go back again… if you have to do this several times… do it… but don’t strain!!

 

#2 Buddy’s daily routine is far from the norm that you will read about.  We focused completely on healing mentally and physically…  am: eat, walk, read/sleep, afternoon: eat, walk, read/sleep  pm: eat, walk, read/sleep

We let Mr. Hang do his thang…..  We stayed home and did not travel away from home during the period of time we had the catheter 17 days.  Our main focus was…. Heal and heal well!  And that’s exactly our outcome.

 

His walking gradually increased over time.  Started out slowly and worked his way up to 3 hours per day( (3) 1 hour sets)

He noticed blood and particles in the tubing and bag… cut back the minutes walking on that day.  Approx 1.5 miles per set

Again this is what he built up to over time….  So start out slow. 

 

If you over due it…  you will set your self up to taking 2 steps back for every step forward.  You sound wonderful ~ so keep moving forward and let your self heal properly.  Listen to your body!!!!  If you think you might be overdoing it….. You are!!!! 

 

 

#3 We didn’t experience the sore throat but were told to expect it… the first thing that comes to my mind is coming cold… like a Popsicle…  also the throat lozenges that deaden the throat. 

 

Take care and know we are keeping you close in thoughts and prayers.

In Friendship ~ Lee & Buddy 


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 

 « bluebird ~ Moderator for Prostate Cancer Forum


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 6/24/2007 7:36 PM (GMT -7)   
Hi Bob. Pleas listen to Lee and Buddy. They have provided me with good advise about these issues. With the cath in just walk aroung the house and yard. Don't push it or pull it, you know what I mean. The blood in my cath bag stopped a few days after I got home. I have over done it a couple of times and I have a headache and upset stomach when I do overdo it. Rest as much as you can. I am no expert at this but I am learning to recognize the fact I do too much at times. Still dribbling, 3-4 pads a day. It seems better at night If I go just before bedtime.

Mika-mvesr

bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 6/25/2007 9:47 AM (GMT -7)   

Hello All,

Thank You All for the quick replies. Sorry, that I was not real clear about the leaking part (question #1). There has been no blood in my urine (catheter bag) since leaving the hospital. The leaking is occurring at the top of the catheter tube where it is inserted (on the outside of the tube) and this has a pinkish color from what must be a small amount of blood. As all of you pointed out this occurrs while straining (which I have stopped doing) during bowel movements, walking (about half of the time...especially in the moring) and if I sit in a regular chair for any length of time.

I have been doing ten laps around the inside perimeter of my house 3x a day. This takes about 30 - 40 mins  per set. I am going to back off a little and see if things are better.

One additional question: I was given a small device to do breathing excersizes with every hour. I was told this was to prevent pneumonia from just laying around. I find it difficult to remember every hour and wonder how important this is if I am walking a lot? I continue to do these excersizes whenever I remember them but I am probably only doing them every two to three hours.

Thanks Again for all of the support and information,

Bob 

 


Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, No gleason score, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 6/25/2007 3:37 PM (GMT -7)   
<<One additional question: I was given a small device to do breathing excersizes with every hour. I was told this was to prevent pneumonia from just laying around. I find it difficult to remember every hour and wonder how important this is if I am walking a lot? I continue to do these excersizes whenever I remember them but I am probably only doing them every two to three hours.>>

i forget the name of that device, but we did take ours home (ken said it was good for lungs for scuba diving breathing??) But, he wasn't instructed to use it at home (ken just asked the nurse can i take it with me?) and he didn't even use it in the hospital.

But if you were instructed to use it at home, should try to remember, i would think. Did they mention anything about hearing that you may be congested when checked your lungs or something? Maybe that is why they are prescribing you use it? I don't think that is a usual requirement when home, in most cases, but I know we had one in the hospital. But maybe if you are up and around, you don't have to use it so much?

So all and all, i don't know anything about it, lol! maybe would ask your nurse if you can call in?

Maybe somene else will weigh in and be of better help!

Tanya
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


concerned spouse
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 6/26/2007 8:31 AM (GMT -7)   
Bob....all your questions are valid ones and my husband had pretty much the same ones.  He is now 12 days post op (Da Vinci robotic) and doing extremely well.  His two most major concerns immediately following surgery were regarding catheter discomfort and a sore throat.  Once the catheter was removed there was a huge improvement (physically and mentally).  The sore throat lasted about a week.  Sore throat lozenges helped a little.  Just give it time and it will subside.  Best of luck to you in your recovery.  
 
Christy 

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 6/26/2007 10:04 AM (GMT -7)   
Bob, congrats on being on the other side of surgery. Jeff used one of those breathing devices in the hospital, but since he was up moving around at home, did not bring it home with him. you'll have the catheter gone this week! hang in there - everything is normal so far and will get better. you're doing great! kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 6/27/2007 2:09 PM (GMT -7)   
Hello concerned spouse, MKat, Izzyblizzy, and All,
 
It has now been a week since surgery and the sore throat is all but gone, however, the leaking was worse than ever yesterday morning when I started walking laps in the house so I took a day to rest in bed or in my recliner with out a great deal of walking. I think the thirty laps/day inside the house was overdoing it a bit. The doctor that released me said to walk, so I figured the more the better. He could have been more specific. It wasn't my surgeon.
 
My surgeon had told me prior to the surgery that there would only be about a 5% chance of any incontinence. This sounded great but I am now having my doubts with the way things are going even with the catheter. Am I being pesimistic or realistic?
 
Do you think it is possible to be completely continent when the catheter comes out this Friday? Sounds too good to be true to me so I'm not counting on it.
 
Don't get me wrong, I'm glad to be where I am!  Thankful for every day!
Bob

Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, No gleason score, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 6/27/2007 3:28 PM (GMT -7)   
Hi Bob 57. Don't be surprised if you leak after the cath is out. I did and have done so for a couple of weeks now. At least you will have the cath out. That was a real plus for me. One step at a time my friend.

Mika-mvesr

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 6/27/2007 3:57 PM (GMT -7)   

Hi bob,

The leaking from the (Foley)catheter is not that uncommon. It may be comming from around the small inflated bulb that's inside the bladder. The bulb's purpose is to keep the tube in place, and to seal the bladder so there will be no leaks. They come in different diameters, and can be slightly enlarged by pumping fluid into them. You will be rid of the Foley Friday so it's hardly worth fussing with it. In the mean time a Depends Under Garment is the best stop-gap-measure. I just went through this whole procedure with my Dad for the last 10 days; trial & error is the best teacher.

I hope you are one of the lucky ones that need no pads. I unfortunately was a slow learner (about 10 weeks), but I'm dry now, and that's all that counts. Good luck to you on Friday; think positive thoughts; watch Humphrey Bogart in "Sahara"; maybe plan a victory dinner (BBQ is my personal preference). Please keep us posted.

Glen

 

 


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


concerned spouse
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 6/27/2007 5:20 PM (GMT -7)   
Bob....glad to hear tomorrow will be the big day!  Having the catheter out was a HUGE relief for my husband.  And yes....there is a possiblity you will see an improvement.  We have been reading the threads almost daily and it does seem that there are quite a few out there that start out with varying degrees of incontinence but the majority of them have improved dramatically with time.  My husband had his catheter removed 7 days ago and he has had no incontinence problems, except for one "mini squirt" when he bent over to tie his shoe (day after catheter was out).  Been dry since and has been feeling so confident that he has been without protection for 3 days and not one drop!  What's even more surprising is that he has been able to get the big E for a few days now too (maybe not quite as big as it used to be), and even had an O, 12 days post-op....I helped a little  tongue   Needless to say his spirits have soared, especially because his surgeon told him that it could possibly be as long as 8-12 months.  Of course it is important to know that everyone's healing time is different and with patience, things WILL IMPROVE!  My father had prostate cancer 16 yrs. ago and medical technology has improved 100 times over since his open radical surgery.  He was not so lucky with the incontinence and ED and because we knew of his problems, my husband was very reluctant to go forth with his surgery.  But, my father is still living and enjoys a great game of golf 4 times a week and lives life to it's fullest.  With that in mind (and all of us coaxing him along), Chuck did his research (with help from this forum) and followed through with his DaVinci surgery.  He is a very happy camper right now and is glad he went through with this and is cancer free!  I'm sure you've been reading threads from people at both ends of the spectrum but just remember, EVERYONE IS DIFFERENT.  We'll be thinking of you tomorrow and wish you a speedy recovery!....Christy
 
Husband: 53 yrs
Dx 11/06/06
PSA 7.5   2 out of 13 cores 5% positive
Gleason (3,3)
DaVinci robotic surgery 6/14/07
Pathology results 6/21/07  cancer contained in organ (left side only-right side clear)
 
 
 
 
 
 
 

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 6/27/2007 6:16 PM (GMT -7)   
Hi Bob,

As you know by now, we are all different when it comes to our recovery. Hopefully you won't leak a drop, go home and get a boner. Maybe that will happen and if it does be sure to get us updated. We will all be jealous...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/18/07.
 
 "I have cancer but cancer does not have me."


AEG
Regular Member


Date Joined Nov 2005
Total Posts : 154
   Posted 6/27/2007 7:56 PM (GMT -7)   
Hi Bob,

Good luck on Friday. I don't think that it's impossible to be completely continent when the catheter comes out but don't be disappointed if your not. You have just been through a major surgery so your body needs time to get back to normal. Try not to stress if your not fully continent immediately and just give your body the time it needs to heal.

Remember to do your Kegels when the catheter comes out. I think I saw a post on how to do them the right way, perhaps someone can provide you with that link.

Best of luck to you and keep us posted with your progress.

AEG

bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 6/27/2007 8:23 PM (GMT -7)   

Thank you all for the replies.

I'm just not going to worry about the incontinence issue, I really thought that only a 5%  chance was very optimistic by my Dr. but he is one of the best surgeons in the country from what I understand.  So, I'll just wait and see.

After reading many other posts, it seems that I am actually doing very well and similar to many others.

Thanks again for the support and I wish the best of health to all of you.

Bob


Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, No gleason score, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 6/28/2007 1:55 AM (GMT -7)   

I think the 5% your surgeon was talking about was permanant or long term incontinence. Most everyone is incontinent for a short time. but everyone is different, depending on age and surgeon.  I was expecting 3-6 mos of leaking as a friend of mine same age-54 said he leaked for 6 months, so I was expecting around the same.  I live 40 min from Dr. I had to change pads when I got home.

 I only wore pads for 2 weeks, the pads were damp when I woke in the morning, so no real accidents during the night, during the day I only went through 3 at the most, mostly just 2 a day, leaked when I got up from a chair, coughed, sneezed, passed gas, I don't advise you not to do it because it is what you are suppose to do, I never did the exercises, the only thing I did was during urination, I stopped and started the stream a couple times using the same muscles that you use in the exercises. So being incontinent for only 2 weeks was a blessing and shorter than I expected and even what my skilled surgeon expected.

I think with your age and surgeons skill you should do well.

Ron


diagnosed sept 06
gleason 3+4=7, right lobe only
psa 4.7
RP Emory Atlanta December 2006
Path-negative margins, negative lymph nodes
negative seminal vesicles, multifocal perineural invasion, both lobes involved
40% gland involved
gleason 3+4=7
1st psa April 2007-<0.04
 6 Mos PSA <0.04


bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 7/4/2007 12:34 AM (GMT -7)   

Hello All,

Well, Friday came and went and I am still with the catheter. They first performed a Cistogram, injecting contrast into the catheter to see how the bladder was healing and to no suprise to me, the bladder was leaking , which I was told meant that it was not yet healed. My surgeon recommended leaving the catheter in for another 11 days (you do what you have to do).

I also received the surgical pathology report which indicated that I did have some adenocarcinoma (<5% of the cells) along with the neuroendocrine carcinoid (5-10%). There was no evidence of adenocarcinoma in the twelve biopsies taken. It also indicated that there was some perineural invasion of the neuroendocrine carcinoid but not of the adenocarcioma. The doctor said that this meant there there was probably about a 30% chance that not all of the neuroendocrine cells were removed (70% chance that they were all removed). This type of cancer is resistant to radiation but is also very indolent, so I will consult with the neuroendocrine tumor specialist again to see what, if anything, he thinks we should do. The good news is that there are many new therapies for attacking this if there happens to be any left.

 Bob


Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, No gleason score, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 7/4/2007 9:21 AM (GMT -7)   
Hey Bob. I'm aproaching 9 mo post RRP. Still leaking 10+pads a day. Work on my feet all day so that does not help. Seeing a physical therapist for bio-feedback treatments to see what the muscles are doing. So far she says the muscles are getting stronger after about a month of working on it. She also said it will take more work before I can see a differance with the leaking! Looks like I'm part of the 5% club your Dr. told you about!

Just keep working at it,
KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 7/4/2007 5:35 PM (GMT -7)   

Hello kw,

Thanks for the reply. Sorry to hear that you are in the 5% club! I wish you the best of luck with your physical therapy and hope that another surgery is not necessary. This is my biggest fear if the leaking doesn't get any better. 

When you mention to keep working at it, were you given any instructions while your catheter was in. My biggest complaint is that I was only told to walk and drink a lot of water. I mentioned to my surgeon that the only time that I spend in bed is at night sleeping and his reply was, "Good". In bed there is no leaking. However, I am afraid that sitting too much may be causing some of the problem as I have noticed that there is now more blood in the leaking when I get up from sitting. This is not present in the catheter bag as the urine looks normal. Anyone have any thoughts or maybe was given better instructions for resting and recouperating prior to removal of the catheter?

Thanks,

Bob 


Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, gleason score 3+3=6, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 7/5/2007 3:27 AM (GMT -7)   

Bob,

The leaking around the catheter tube and the blood present in this leaking implies two things to me:  The catheter is not seated properly and the suturing that reattached the urethra to itself is likely being agitated by the loose catheter.

Of course your doctor may just be biding time until the catheter comes out.  Adjusting the catheter may cause more problems than minor leaking and bleeding.  My physician always keeps the catheter in his radical prostatectomy patients for 21 days.  However, I only leaked and bled around the catheter during bowel movements. I walked miles every day with the catheter after day 7 with no blood or leaking. 

I am a big fan of walking as much as possible after any surgery.  However, if the catheter is coming out soon and the bleeding is significant, I personally would take it easy and NOT walk so much.  If the catheter is not coming out soon, I would insist the inflatable ball be re-adjusted to stop the leaking (and likely movement against the suturing) - so that you can heal without leaking urine (annoying) and without irritating the urethra sutures (important).

Wishing you all the best.

CCedar


~~*~~*~~*~~*~~*~~*~~*~~*~~*~~*
2 Years of PSA between 4 and 5.5
Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.
Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.
Confined:)
***************
Texas Hill Country
FRESH Produce Department Manager
Have you had your 5 colors today?


bob57
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 7/5/2007 8:05 PM (GMT -7)   

Thanks Cedar,

Thank you for your theory. It sounds like you know much more about the procedure than I do. Any suggestions on a good link to read about the surgical procedure? I will look or one later tonight.

I have an appointment for Monday to have another cistogram to see how the bladder is healing. In the last one performed a week ago, you could see the bladder fill with the contrast and then leak once the bladder was full. (I had a good view of the screen). When I saw the Dr. he said that everything looked as if it were healing well and that the only way to prevent the leaking would be to insert a larger catheter, which he said was not worth it. He simply asked me to put up with it for another two weeks. However, at that time, it was not bleeding, it was just urine. It isn't a large amount of blood, just noticeable to me but worse than it was a week ago.

Thanks again,

Bob


Age:50, Biopsied 4/9/07, 2 of 12 biopsies positive, pure neuroendocrine carcinoid tumor of the prostate, gleason score 3+3=6, PSA normal 1.4, Grade:T2b, CT, Bone scan, transrectal MRI, and octreoscan all neg., confined to prostate, laproscopic radical prostatectomy 6/19/07. 

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